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29 Posts
I am so sick of this, going on three years of terrible constipation. I've been scoped and scanned and nothing found except one small polyp, a redundant colon and lots of stool (on scans). Sitz marker test was somehow normal (but they didn't tell me I was supposed to stop all fiber supplements). I'm living in fear that something has been missed because I know what I'm going through is not normal.
What has not worked for me - Linzess, Motegrity, Miralax, psyllium powder, flaxseed, chia, prunes, kiwi, brown rice, prune juice, magnesium supplements, senna, colace, probiotics, enamas and probably two dozen other things that have escaped my mind. I do go to the bathroom almost daily but it's usually just a very tiny amount of mush or di and very hard to push it out even though it is very soft. And when I say tiny size, I mean a quarter of a cup or less of mush. It is also very thin, from worm size to the size of my finger. Interspersed with this is the now and then passage of a larger pile of mush. But never enough for me to say "aaahhh." I long for a nice Bristol # 4 like I used to have every day. Getting a new doctor is not an option right now. The next closest GI center is 40 miles away with a 6-8 month wait for a new patient.
My diet is good, lots of healthy fruits and vegetables, brown rice, very little processed food, no soda, no gluten.
The doctor tells me to take more miralax and doesn't get it when I tell him that doesn't help me. He tells me I need to get this under control, making me feel like it's all my fault and I'm doing something terribly wrong. It seems everything makes things worse, like I'm bulking up but it's not getting out. I'm so bloated and uncomfortable and afraid something is terribly wrong. I have no social life at all because I can't make any plans as I never know how I will feel. Most days I am too sick and uncomfortable to do anything.
What has not worked for me - Linzess, Motegrity, Miralax, psyllium powder, flaxseed, chia, prunes, kiwi, brown rice, prune juice, magnesium supplements, senna, colace, probiotics, enamas and probably two dozen other things that have escaped my mind. I do go to the bathroom almost daily but it's usually just a very tiny amount of mush or di and very hard to push it out even though it is very soft. And when I say tiny size, I mean a quarter of a cup or less of mush. It is also very thin, from worm size to the size of my finger. Interspersed with this is the now and then passage of a larger pile of mush. But never enough for me to say "aaahhh." I long for a nice Bristol # 4 like I used to have every day. Getting a new doctor is not an option right now. The next closest GI center is 40 miles away with a 6-8 month wait for a new patient.
My diet is good, lots of healthy fruits and vegetables, brown rice, very little processed food, no soda, no gluten.
The doctor tells me to take more miralax and doesn't get it when I tell him that doesn't help me. He tells me I need to get this under control, making me feel like it's all my fault and I'm doing something terribly wrong. It seems everything makes things worse, like I'm bulking up but it's not getting out. I'm so bloated and uncomfortable and afraid something is terribly wrong. I have no social life at all because I can't make any plans as I never know how I will feel. Most days I am too sick and uncomfortable to do anything.