So as my journey continues I went to the Digestive Disease Clinic in Pittsburgh yesterday. The GI dr I saw was good and talked to me for well over an hour reveiwing my records and symptoms. In the end he is suggesting a couple more blood tests and a pill endoscopy. He told me that he feels I have functional bowel disease and not IBS ? I explained what the last 26 years had been and how it had changed over the last 10 months but he remained firm that it is functional bowel disease....I have never really heard of it so that I thought I would post this in hopes that someone has some knowledge of it.I go back to Pittsburgh in 2 months (takes that long to get in) to the functional bowel disease clinic where I will be evaluated by a team of doctors and they will discuss all the findings and come up with a treatment plan. I don't know I am really confused by all this and am getting quite tired of all the run around. The dr said since I was not really responding to traditional IBS treatment that it could not be just IBS......All I know for sure is that for the last 9 days I have been taking 2 mg of Lotronex and 1 Tylenol with codiene at bedtime and have not had a single bad day. No d and not constipated but for some reason dr's don't want to give you codiene even one at bedtime.....so they don't care what works.My arguement was this....you made me sign paperwork with FDA stating I understand the horrible risks of taking Lotronex and its been OK for me to take Ativan for months but now you are worried that I will become addicted to codiene or get constipated?? First I know to back off the Lotronex or codiene or both should i become constipated....Second...one does not get addicited to 1 tylenol with codiene daily....third my risk of narcotic bowel syndrome on 1 at bedtime is far less than the risk associated with Lotronex.....11 months into this and I finally found something that really helps...even went shopping with my hubby all day saturday for the 1st time in 10 months and now....In my corner however is the dr I saw yesterday. He said he sees no problem with me continuing the codiene at bedtime if I stay aware of constipation and is going to write my GI dr here a letter to that effect....so we will see. I also have an appt with the pain management clinic at local hospital.My husband and I have talked and I am all most 52 years old....I want to go to NC and see my family which I have not been able to do for 11 months....I want to get back to work full time and I want my life back. If I am willing to risk Lotronex....I am willing to risk one codiene a day. Any input would be appreciated on knowledge of Functional Bowel Disease verus IBS And I thought IBS was functional bowel disease....I am really confused?