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Gastrostomy/Jejunostomy Tubes

1987 Views 6 Replies 3 Participants Last post by  Kathleen M.
I am severely underweight, and I have had trouble gaining any since I was 13 years old. Here I am, a 5'3" 19-year old male at 68 pounds! I've never lost any, but I haven't been able to gain as I grew. With my IBS, I cannot handle eating the amount I need to gain weight (though I can manage to maintain). Anyway, one doctor suggested I may want to consider a J-tube or G-tube that goes directly into the stomach (G-tube) or small intestine (J-tube). I would only use it to get up to a normal weight and could resume my current eating habits after a few months when I gained enough.I liked the idea that I would not need to stay overnight or any extended period at a hospital. Also, I wouldn't be confined to a bed or be an invalid. Anyway, I am sure there are downsides. Does ANYONE have any experience with these tube things? Also, the doctor only mentioned the G-tube. Does the J-tube pose more risks, problems or pain? It sounded better since I might not feel the fullness or bloating. Does a person still feel "full" from a G-tube? (If so, that one would seem pointless.)I do plan to talk to a specialist about it when I can get an appointment, but would appreciate any personal experience or input.
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The only experience I have is from a friend who had to have a tube (don't know what type) when she was pregnant as she couldn't keep any food down and they don't let you lose much weight when you are pregnant.I think the main issue was keeping the thing clean and watching out for infections. Anytime you have a tube sticking out of you that is an issue as any opening into the body that isn't natural carries the risk. So the main thing is whatever protocol they would give you for maintaining the thing you need to follow exactly.She didn't have any problems with hers and near the end of the pregnancy she could keep food down and they took it out. The baby was fine.K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.My story and what worked for me in greatly easing my IBS: http://www.ibsgroup.org/ubb/Forum17/HTML/000015.html
The only experience I have is from a friend who had to have a tube (don't know what type) when she was pregnant as she couldn't keep any food down and they don't let you lose much weight when you are pregnant.I think the main issue was keeping the thing clean and watching out for infections. Anytime you have a tube sticking out of you that is an issue as any opening into the body that isn't natural carries the risk. So the main thing is whatever protocol they would give you for maintaining the thing you need to follow exactly.She didn't have any problems with hers and near the end of the pregnancy she could keep food down and they took it out. The baby was fine.K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.My story and what worked for me in greatly easing my IBS: http://www.ibsgroup.org/ubb/Forum17/HTML/000015.html
A j-tube makes sense over a g-tube if you have delayed gastric emptying.
quote:is an issue as any opening into the body that isn't natural carries the risk
The risk shouldn't be significant.Your best bet for information would be to subscribe to the g-tube mailing list at by sending a message of "set gtube digest" to LISTSERV###MAELSTROM.STJOHNS.EDU------------------I am not a doctor, nor do I work for profit in the medical/pharmacological field, but I have read scientific and medical texts, and have access to numerous sources of medical information that are not readily available to others. One should always consult a medical professional regarding advice received.[This message has been edited by flux (edited 06-29-2001).]
A j-tube makes sense over a g-tube if you have delayed gastric emptying.
quote:is an issue as any opening into the body that isn't natural carries the risk
The risk shouldn't be significant.Your best bet for information would be to subscribe to the g-tube mailing list at by sending a message of "set gtube digest" to LISTSERV###MAELSTROM.STJOHNS.EDU------------------I am not a doctor, nor do I work for profit in the medical/pharmacological field, but I have read scientific and medical texts, and have access to numerous sources of medical information that are not readily available to others. One should always consult a medical professional regarding advice received.[This message has been edited by flux (edited 06-29-2001).]
I didn't think it was that big of a risk, but with anything like that it is a good idea to follow whatever hygiene protocols they give you closely.K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.My story and what worked for me in greatly easing my IBS: http://www.ibsgroup.org/ubb/Forum17/HTML/000015.html
I didn't think it was that big of a risk, but with anything like that it is a good idea to follow whatever hygiene protocols they give you closely.K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.My story and what worked for me in greatly easing my IBS: http://www.ibsgroup.org/ubb/Forum17/HTML/000015.html
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