The gi doctor said it can take several months for Trulance to take full effect, so she wants me to keep taking it for another month. She also said because I am still so constipated to add miralax twice daily and keep doing lots of fluids and fiber. Because I am bleeding in the bathroom and still having lots of acid reflux, I am scheduled for an endoscopy and a colonoscopy that I am nervous about. I am a little concerned the plan won’t be enough given that miralax hasn’t worked before but she says I can call if things aren’t improving and we will come up with something else.
Hey Sunstar,
I'm glad you finally had your long awaited visit with your GI.
While for me Miralax didn't cause gas (or smelly gas more accurately) I read in the side effects that it can.
I looked it up and there's only a few bacteria that can assimilate Polyethylene glycol (some soil bacteria and a few others).
I also read that MIralax is an osmotic laxative.
So while, you may have those few bacteria that actually digest PEG, it is also likely that you just already have/had gas from before and that the drawing in of water to the stool just provides more volume for the existing bad bacteria you have to grow and cause more gas.
My suggestion is that you look up/research what causes gas in humans, especially smelly gas.
That way you can understand all the different factors here.
What I've found is that gas that smells is usually caused by bad bacteria or bad pathogens- viruses, yeast, parasites, etc. It is also known to be because there's overgrowth of these bacterium in the small intestine where they shouldn't be (SIBO).
The very prolonged residence time of your stool in your intestines could also be making this even worse, as it allows all these bacteria to have much more time to ferment and grow. Hence, why having daily or more than daily bowel movements would help a bit in terms of removing these gas producing stools.
Have you ever looked at your poo in the toilet and seen bubbles around the stool? This would just be visual evidence of bacterial overgrowth causing gas.
In my opinion, I would really focus on two things if I were you:
1) Finding my daily friendly fiber
2) Exercise (aided if needed)- specific to causing a movement or reactionary movement in the abdomen and lower abdomenal area. Movements that mimic running or doing crunches on the abdomen. Perhaps spin on a bike is a compromise, or swimming, or using your arms to move your legs.
Compared to most people on this forum, your decreased ability to move makes you an outlier, which seems to correlate with how many drugs don't really work on you (also an outlier) even temporarily.
But before you find the friendly fiber, I do recommend you get ALL of the stool out first, or we'll be in the same situation we are in now, where you really don't know what is causing the gas, because you never cleaned your system, so you just blame the new thing, but you had gas before the new thing....so unclear cause.--> can't improve without knowing cause.
It looks like you will finally
get your colon cleanse anyway -- in preparation for your colonsocopy/endocscopy.
Finally!
Please check with your doctor/nutritonist (since you trust them) as to how to make the most of this opportunity to reset your digestive system with a clean colon.
IE
find out what diet you should follow after your colon cleanse/colonoscopy.
My suggestion is to do a:
-low/no sugar, low/no starch diet
-Daily friendly fiber
-lean protein
-good fats: avocado/avocado oil, olive/ olive oil, and a bit of coconut oil if necessary, nuts that agree with you, take the skins off almonds if eating almonds
Do this for at least two weeks, especially if you can start with chicken broth (with celery) you can start healing part of your gut.
In terms of treating gas, I think my shortest comprehensive summary is what I wrote for this person. You can see the post below. I'm curious what your diet is, and also what effects exercise has on you.
I'm sure exercise isn't something your GI doctor is opposed to, maybe its been challenging to do?
Anyway hope you get better. Let me know if exercise helps or/and what diet/diet changes you're making.
I’m damn tired of being stuck running to the bathroom every 20 minutes, being too fatigued to do what I enjoy, and being in so much pain among an endless list of other things we go through. I’ve lived with this disease for over a decade (Since I was 8, I’m 21 now) and I’ve tried what feels like...
www.ibsgroup.org