Irritable Bowel Syndrome and Digestive Health Support Forum banner
1 - 20 of 21 Posts

· Registered
Joined
·
44 Posts
Discussion Starter · #1 ·
Hello

My gastro says my only hope is FMT. I have severe constipation and cannot have a BM without a water enema.

He has prescribed me vancomycin and rifaxamin to take for 3 weeks then to follow it up with an FMT if i can find a donor.

I am wondering if ANYONE on this earth has been cured with FMT?
 

· Registered
Joined
·
4 Posts
I've had FMT and have suffered from constipation before, though nowhere near as bad as you by the sounds of it (i'd go every day or two but only produce small amounts of rabbit droppings) since FMT I have been pretty regular, producing a decent stool mist of the time - but I'm also eating loads more fiber. I'm generally on a really healthy diet but both diet and FMT haven't completely resolved bloating issues. But yes, the constipation is pretty much gone.
 

· Registered
Joined
·
2,195 Posts
Hello

My gastro says my only hope is FMT. I have severe constipation and cannot have a BM without a water enema.

He has prescribed me vancomycin and rifaxamin to take for 3 weeks then to follow it up with an FMT if i can find a donor.

I am wondering if ANYONE on this earth has been cured with FMT?
I've been posting on the IBS Constipation (IBS-C) and Chronic Constipation board for a couple of years now, give or take. I really think FMT's are the only hope of actually curing those of us with chronic constipation. And by curing us I mean you don't have to take anything afterwards to help you go and you'll have normal BM's.

http://www.ncbi.nlm.nih.gov/m/pubmed/26751143/
 

· Registered
Joined
·
155 Posts
I know I am jumping on this thread way late, but as a long time chronic constipation sufferer I'd like to know more about FMT.

Is there a criteria for getting this done?

Did you have to have tried different things before they would consider FMT?

Did your Doc perform the procedure or did you go somewhere like the Cleveland Clinic?

Does insurance cover?

How long is the procedure and what is involved?

What was the recovery time?

Were there any complications?

Are there risks?

How long before you noticed a big difference in your BMs?

Thanks
 

· Community Manager
Joined
·
13,193 Posts
current US FDA regulations only allow FMT to be used for the treatment of clostridium difficile that does not respond to standard treatment.

you can always try a do-it-yourself FMT if you can find a suitable donor.

some people here have gone to the newberry clinic or the taymount clinic to get it done. these clinics are not in the usa.
 

· Community Manager
Joined
·
13,193 Posts

· Registered
Joined
·
2,195 Posts
I tried to edit my post because my views have changed since I posted a couple of years ago, but I couldn't (board problems). Just wanted to say I think the only hope for a real cure is series of FMT's and/or fasting.

I have heard in other board discussions that the odds of a series of FMT's to cure your IBS-C aren't too good, about 30 or 40%, but I think that figure may very well be inflated. (It's said to be about 80% for IBS-D, but I'm thinking more like 50%?)

I think what they need to try for their chronically constipated patients is mixing about 50% fecal matter in from someone who has IBS-D, and the rest just a normal healthy donor. I'm surprised they don't do this already.

They try this? Watch the success rate go up. IMHO
 

· Registered
Joined
·
2,195 Posts
Just to add to this topic. I think without the FMT what you can try is to buy a good probiotic and take it indefinitely. This will work to resolve your constipation at least until you can get the FMT.
I'm glad they work for you but for most of us with chronic constipation, including myself? Probiotics make constipation worse, not better, and I've even tried a few different kinds/brands.
 

· Registered
Joined
·
553 Posts
I'm glad they work for you but for most of us with chronic constipation, including myself? Probiotics make constipation worse, not better, and I've even tried a few different kinds/brands.
That is interesting. In my experience probiotics make my diarrhea worse. Maybe probiotics just dont have the type of bacteria that are helpful to ibs.
 

· Registered
Joined
·
8 Posts
Hey all,
I noticed the title of this thread, and figured I would post my experience with FMT. I used to have chronic constipation for about 15 years. My bowel frequency ranged from 3-days (at their best) to about 7 days (at their worst). I tried everything under the sun, probiotics, fiber, magnesium, C, many many hundreds of different supplements, trying to find a resolution to my chronic constipation. Nothing worked except the FMT. Within 4 months following the FMT, my constipation resolved and now I have soft daily BMs (not rock hard anymore, but like a banana).

Also, all my food sensitives resolved as well. I was on the GAPS diet for many years, and also sulfur/thiol diet, and reacted to pretty much most foods. I could only eat about 5 or 6 different foods. But today I can say that I can comfortably eat even dairy and gluten again (the biggest offenders for most people). I can even eat ice cream, pizza, and McDonalds (though I only did so just to test myself... I plan to continue to eat healthy). No more blood in my stools either. I just made myself a grilled cheese sandwich for the first time in about 12 years. All of this would not be possible without the FMT.

I am a mechanical engineer, so I am not one to use the word "miracle" or "cure" loosely. But for me, the FMT is closest to a miracle cure than anything else I have tried under the sun.

But there is one thing I feel necessary to note: I not only took it rectally, but also orally. I was concerned I was not feeling anything from the rectal administration, so I tried making my own pills. To my surprise, I felt immediate improvement---literally that night. I have heard this happens sometimes: Some people feel nothing with rectal FMT but find relief with oral FMT. So I figured I would mention it here (for me, I also had SIBO, so much of my problems were further up the intestines).

I went to Taymount by the way. So I got a full course of 10 samples from 10 different donors.

I hope info this helps everyone here. If you guys have questions, I would be happy to try to answer them.

-Davide
 

· Registered
Joined
·
2,195 Posts
That's fantastic news, Davide Bianchini!

Did you get a series of FMT's or did they do it all on just one day?

If I may ask, how much did it cost you?

I tried making fecal pills once, it was quite disgusting and didn't work for me. Glad it worked for you though. Happy!

w/b when you can.
 

· Registered
Joined
·
8 Posts
I just realized this is an old thread from 2016. But I'm glad people are still viewing it.

In regards to your questions Flossy, the Taymount gives a total of 10 FMTs over a 10-day period (one per day). Each sample is sourced from a different donor. And each FMT costs about $550 (USD). So it is a bit pricey, but worth it in my opinion for restoring health again. They are also currently running a sale for 30% off until the end of August.

The pills were easy to make, because the stool samples from Taymount are already liquified. So all you do is extract them with a syringe and squirt them into enteric pills. Here is a good video on how to do it;

How Mikhaila Peterson cured her C. Diff Infection with Oral FMT (when rectal did not work)

If you go the DIY, you will need to smash up the stool in a zip-lock bag and add some water to loosen it up a bit. It takes a good 20 minutes or so to liquify a raw stool. Then you need to strain the excess matter. Here is a helpful video on how to make pills from a DIY sample;

Do-it-yourself FMT Capsules

But do note, DIY FMT is usually not recommended due to the risk of using a bad donor. Screening donors thoroughly is absolutely necessary. This means stool sample analysis, blood work, doctor history check, and cancer screening (especially colon cancer). Also, any sort of anxiety, depression, or mental disorder is an automatic disqualification as well, since gut dysbiosis can be the cause of these things (especially anxiety).

-Davide
 

· Registered
Joined
·
2,195 Posts
Just thinking out loud....

I really want to do this... I have the money saved.

I HATE to make a trip overseas, just to do this. The Cleveland Clinic does FMT's for c-diff, but that's it. I'm 12 miles away from them. It's a 10 hour flight for me just to get to the UK from Ohio....

Our compromised FDA here in America won't okay FMT's for anything else, because they are in bed with Big Pharma. They just want to sell us their drugs (and vaccines).

-I might have to get vaccinated just to fly. I'd have to get approved to take a leave of absence from work. The list goes on and on.

And to be honest? A series of FMT's still may not work. So there's that.

We'll see.
 

· Registered
Joined
·
8 Posts
You can schedule a consultation with Taymount to see if it might be something worth doing and answer any questions you may have about the procedure.

Yes, it is a real pain to fly to England, especially since COVID. As of Summer 2021, you need to get tested before flying, then you need to get tested again once in England (on day 2 and 8 of your trip). But the good news is, there are testing facilities right at the airport. So as soon as you land in Heathrow you can get tested right there (here is the link; Test On Departure - UK Airports ). You also need to buy a UK SIM card to use your phone and data in England (here is a link; SIM Card for UK & Europe - Prepaid UK SIM Card | $39.99 | My UK Prepaid SIM Card ).

To my knowledge there are no thoroughly screened donors in the United States yet. There are a few who are selling their stools here in the states, but I heard they are already at max capacity and are not taking on new clients. We really need someone to put together a registry of donors to connect them with people. While it is not legal to do the procedure here in the USA, it IS legal to sell your stools privately for home use. So all we would need is a good vetting process to find a small group of donors to provide to the US population.

-Davide
 
1 - 20 of 21 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top