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Discussion Starter · #1 ·
Hello, It has been a while since I wrote on here. I was diagnosed about two years ago and I have changed my life completly since then. I went through all of the basic testing to rule out anything serious. I say "serious" because I would rather have IBS(which may improve) than Colon cancer(which kills). The tests were horrible but after each one I felt relief. Once they said 'You have IBS' I went through some form of deppression.Then I became tired of listening to the horror stories and crapy(He,He!)Dr's. telling me there was nothing I could do, so.... I switched Dr's (three times) until I found one who actually said IBS was a real thing (not just 'In my head'). I was sent to an allergy specialist. THIS WAS THE TURNING POINT! I found out that I was allergic to many foods and that my gut had problems digesting some proteins found in certain meats. I eliminated all of these TRIGGER foods cold turkey. (All I did was try for a week,then two weeks, then three, etc.) Once a month past and I felt better I swore off the food forever. This was hard and still is, but it is better than being as sick as I was. I stoped drinking milk and eating food with alot of additives (chips,sauces,etc). I made my own jams, sauces, bread, etc. At least this forced me to learn how to cook!!! The change in diet stopped the constant hurt in my side and gut. It decreased the amout of 'episodes' I had, which was a life saver. I switched jobs to a less stressed one. I was in one that my work was timed and bathroom breaks were scheduled. This was finacially hard and very scary but it was neccecary. I also went to a shrink to help my emotional state of mind, a total waste of time and money! It is crazy the amount of change that I have done in the last few years. I could not imagine what it would be like if I didn't. I was sick every day, with constant pain in gut and D every hour. I also had no control of when an episode would occur so I soiled myself a few times (stuck in traffic). I was gaining and losing pounds all the time because I started clear liquids when I was really sick and then went back and forth between them and food. I still have panic attacks worry alot about public places (I do not ride in other peoples cars~fear of D accidents). I still get sick without warning and the pain is horrible while I am sick, but I can live through it. I do not eat out much or go out much but I am happy with home cooking and having people in. I want to pass on some tips:1. Find a GREAT Doctor(a specialist if possible)2. Get tested for food allergies(can try elimination diets to find TRIGGER foods also) 3. Cut out everything that triggers episodes (Change eating habits, sleep patters, execise routines, sex positions, EVERYTHING!!!)4. Realize that this is you and you have a condition, just like Diabetes or Asthma. (don't ignore it~ it is not in your head)5. Find a support team. (partners and friends are supposed to love you no matter what~ remember that)6. Do not tell others eveything(they don't need to know about your privite info, just say you can't or your not feeling well~ I always say "Don't worry, It's just my Colon")7.Get educated. (read medical info~not just websites)8.Try medicine~it may work, may not, but give it a shot! (don't just take Imodium, that will just block you up)9.Make your life your own again (If going out means you drive your own car and wear Depends underwear, then do it) 10. Realize you are not alone. (you always have a willing ear at this site, we will always understand) I just wanted to give some new IBS sufferers some hope. Sometimes it does get better!
 

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Wow, what a fantastic post, jellybean! You've reminded me of all the things I can be doing to change things around for myself. Sometimes we just plain forget!
It's impressive how much you were able to control things by just making a few changes. I think sometime we (I should say I) think that a situation is helpless and forget that there is always something that can be done to change it.JeanG------------------Member of "The Advance Guard for the Ozone Rangers".May the "farce" be with you. JeanG
 
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Discussion Starter · #3 ·
Two thumbs up for that POSITIVE post!
Thanks for your insight and information! You give good advice to look into. I was diagnosed in 1997 and only in the last six months have I been finding ways to get a handle on the 'situation'. The Caltrate has been a God-send, for me at least.
 
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Discussion Starter · #4 ·
Wonderful post Jellybean. You have it pegged and I haven't enjoyed a post like this in a while. It was helpful but not condeming. Good job.
 
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Discussion Starter · #5 ·
thanks.......great post. What area do you live in? I've always thought about seeing an allergist. But not sure where to start.Carol
 

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Good post Jellybean and some very good points.
 

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J e l l y B e a n
Just when I thought it was "safe" to go back to work (as Im sneaking in now) you had to write this very motivational thread on a day when I needed it desperately
!!!)Thanks for sharing all. You're right about sticking to a very restrictive diet, if thats what it takes to not feel ill all of the time! it must be done!The job transition is not easy, impractical in many cases, but you've done it, and we're proud of you. Some shrinks do help, but god, it takes soooo long & lots of $$$, insurance doesnt always cover much for mental therapy
. & lastly, the practical & compassionate words spoken were all very much appreciated. youre right I dont go out "much" either & certainly can not eat out often, but I can live with those 2 sacrifices as long as I know my ibs is at least improving or stabilized. Anything is better than feeling both sick & sad so often
Friends, support & Love does compensate to a large degree
Take Care JellyNBean, and to the Gang
 
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Discussion Starter · #9 ·
I am from a city in Saskatchewan, Canada. There is only one allergy specialist in the city and I was given his name from my G.P. You should ask your G.P. or look it up in the phone book. Consider a dietician and call them for references. Thanx for all of the positive feedback from my post!
 
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