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Discussion Starter · #1 ·
I have recently been diagnosed with IBS haing had many tests in the last year due to abdominal pain which also transfers to my ribs, legs, hips, buttocks and lady area. I also have Endometriosis and had surgery in May to get rid of some. This however didnt control my pain levels at all. I am due to be assessed at a clinic soon to see if i have ME/CFS and currently feel a bit lost and am finding it hard to distinguish between IBS symptoms and endometriosis symptoms. I am awaiting appointments for IBS and endo specialists but am getting impatient!My mum has had IBS for as long as i can remember and i know it can cause bloating, stomach pain and gases and problems with the bowels. What i dont know is whats good and bad to eat? I cannot eat dairy or tomatoes already due to eczema and i have a figuring wheat sets off bloating, gas and worsens pains. I am starting to feel there is nothing i can eat anymore and being a junk food addict its very difficult LOL!I currently take anti-spasmodics which do help but really i have no idea if there is anything i can do or take to help even more. Pain rules my life and controls my relationship with my dh and kids so i am eager to do anything i can to help myself. Due to suffering severe pain i do take heavy duty pain relief and at a guess i think this cant help my digestive system but i cant even get out of bed with out them.Does anyone have any info about self help, medications and diet please? I have heard that bifidobacterium can help and someone mentioned acidopholis too? Anyone had any experience?Sorry for going on a lot and all the questions, as i said this is a whole new world and learning curve for me! I look forward to getting to know some people here :(Michelle x
 

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Probiotics help some people, some times they have to try a couple to find the right one.Have they thought about trying low dose antidepressants with you? Sometimes that helps control the pain. The problem with narcotics is sometimes they can for some people over time make the abdominal nerves much more sensitive so you end up with worse pain than you started with. If the pain has been getting worse over time it may be something to consider. They usually use antidepressants to control the pain as the wean you off the pain meds.Some people have found self-hypnosis helps a lot so you could check out the CBT/Hypnosis forum to look into that if it sounds like something you'd like to try.Diet really varies as to what helps. Some people find a lower carb diet helps a lot as that can reduce gas volume.
 

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Discussion Starter · #3 ·
Thanks for replying. I have recently emailed 'actimel' to see if they do any sort of pro-biotics that are milk free, am just waiting on a reply as i am yet to find one(though i havent looked that hard yet).I do already take low dose anti-depressants. I take 20mg of Nortriptyline and it really does help with the nerve pain, but still its there. I am hoping to have a repeat op done by a specialist as i believe i have endo that was missed. So its continue with the pain releief until then. So with diet do i just keep experimenting? If i find the right foods will it get rid of all symptoms or do people still get them no matter what they eat? Sorry for all the questions!
 

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It is pretty rare that with IBS someone finds a magic diet that controls all their symptoms 100% every day all the time.However a lot of people have foods that can make things worse and avoiding them makes the disease easier to manage.Some people have the exact same symptoms no matter what food they eat. Often IBSers react to the act of eating. The stomach fills, it tattles to the rest of the GI tract it got fed. That sets a bunch of things in motion to deal with the new food coming in. One of those things is the colon becomes more active, and IBSers often have more symptoms during those periods of increased colon activity. So sometimes it is more how you eat than what you eat. Smaller more frequent meals that are lower in fat overall tend to cause a smaller "get things moving" signal than a large heavy greasy meal eaten much later than usual so you are really starving before you sit down to eat.Generally there are a few things people can look at besides looking for certain foods that set you off.1. Play with your fiber level. Some poeple do well at certain levels of fiber, sometimes it is a bit more fiber, for some it is less fiber.2. Look at how much starch, lactose, and fructose you eat. See if lowering the amount of those help. Some people don't absorb/digest fructose/lactose well and the extra ups their gas volume and is bothersome. There are starches (and some sugars) no human on earth digests and those also contribute to gas volumes.3. Some people are very sensitive to the fat levels so see how that effects you. Some people aren't that sensitive to fat levels, but may be more sensitive to large amounts of carbs. I can't tell you which you will be.4. Look at how much alcohol and caffeine you drink. Some people find those cause diarrhea to be worse, but on the other hand some people need a cup or two of coffee in the morning when they are constipated to get things going and do better when they do that.5. If sorbitol gives you diarrhea (either from sugar free mints/candies or raw fruits/juices like apple, pear, peach, cherry) avoid that. Again if it doesn't cause too much gas and you run constipated it can be used to keep things going. This is what is in plums/prunes that are a traditional constipation relief food.
 

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Discussion Starter · #5 ·
Thank you so much for taking the time to reply and help me. I really appreciate this. I will do all the things you say. I dont often get diarrhoea due to the amount of opiates i take, though alcohol definately affects me but i rarely drink. I only drink tea and the odd coffee and i have maybe 3-4 teas per day. This has neevr affected me as have always been the same and up until recently i had what i would call a 'cast iron stomach' as nothing affected me. I will start experimenting to see what affects me. Again thank you
 

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Hello MichelleApologies for mistake on last post.I do understand your frustration of what you are going through.Kathleen has given great advice as always.Hope it helps you in some way.My IBS is very severe,has been for many many years and still looking for something to ease it,saying that this forum is very good because you know you are not the only one suffering.I have CFS,so do let me know how you get on when you see Doctor about yourself.Take care.
 
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