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Discussion Starter · #1 ·
After a massive IBS attack today I was left with the same thought that I always have.... why, why did it happen, why me?Early today as I sat at my laptop I got that all familiar grumble in my tummy, I wondered how long I would have before I would dive into what could only be described as IBS HELL. Sure enough 5minutes later I craddled my tummy and ran for the toilet, I was in AGONY. As I sat on the toilet in my own private misery I hoped it would be over soon. I did what I know to do... grabbed my teddy bear (Im 28 I know but who and what else is going to be there for me), I put a pillow and towel on the floor incase I passed out, placed a bucket beside be incase I vommited and took all my clothes off so I did get them messy. As I knew I would after 10minutes on the toilet of horrible, painful D I passed out and slid of the toilet onto the tiles.... thank god for the pillow and towel. I come to within seconds and call for help, but of course there is no one, there is never anyone. I decided to shame myself and call my mum at work "HELP ME MUM, HELP ME", ohh hunny is it your tummy again "yes mum it hurts so much". Mum talks to me until I start to feel better. In the mean time ive been back onto the toilet several times in severe pain.... certain something is trying to rip my tummy out.After 30minutes of this IBS HELL, I stand up, run a shower and clean up. Im exhausted from it all and cant barely stay awake, I know I need to go to sleep or I will faint again so I slip on my PJ's, cuddle my teddy and go back to sleep...... as I lye there i'm still thinking to myself...WHY, why did it happen, why meI dont think there will ever be an answer to this question... this is my life, this is my private hell..... and I hate it.
 

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awh mate! sounds bloody awful... Although i dont suffer IBS-D i tend to get C and really bad nausea every morning without fail! there are others on here mate who can feel your type of pain, all i can do is but sympathise because as said although mine isnt like yours i feel your stress through nausea... there is nothing i can do, i have my breakfast and that n it still doesnt usually go away until after lunch...sometimes it lasts all day =( i hope it calms for you x
 

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Hello PealeaHope you dont mind me asking are you chronically constipated?I am not typically constipated!my Doctors words.I persistently strain and force on the toilet but my stools are always soft been told too soft so that can make them difficult to pass although i can pass a lot of stool but i always have what they call incomplete evacuation.Hope it was okay to ask?
 

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HelloI am really sorry you are feeling so bad IBS is an awful debilating condition.I to can suffer agonising pain and collapse in the toilet after vomiting and on occassions horrendous diahorrea.I also have to take all my clothes of as i break out in what feels like a fever then i do cool down.It leaves you exhausted unable to do anything.I am always told.Its severe ibs.Wish there was a cure!Hope you feel a bit better.Take care.
 

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Discussion Starter · #5 ·
Hey Diana and Pealea,Thank you for you messages. Im sitting in bed with another round of nausea in my tummy, I get so scared with it as well. It really is so very painful, I can only relate it to the feeling that someone is trying to rip my tummy out or is stabbing it with a knife. I will go over in my mind what ive had to eat to see if it was that, or if i am stressed or... anything really, sometimes i think maybe it would hurt less if i knew why the pain, nausea and D was there and how long it would be until i felt better again. Also even though I know it will eventually go away I still get scared that it wont.I feel that I am extra cautious with life cause of my IBS, i never drink alcohol, eat spicy food, eat large amounts, eat to much junk food, stay up to late. Im 28 and live like an old nanna cause my IBS scares me that much and it hurts so much when it flares up.I wish there was a cure, I wish this didnt happen to me or to anyone else in this world.I have the starts of an IBS attack again.... i really hope that it does become a full blown one.... please let it go away..... please :-(
 

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awh mate..male or female? im 22 and over the last 3 months my life has changed so much, i dont socialise hardly ever n if i do its in the evenings when i feel better its my nausea that really feks me over
 

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PooPeaOrig How often does an attack like you described happen?
 

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Discussion Starter · #8 ·
PeaLea im a femaleBQ - i can get these 3 times in a day every day for a week 3 times in a month, there doesnt seem to be any reason for it or any sense to it. im thinking i might go back and have a colonoscopy done, had one 10 years ago, the pain is unbearable
 

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my doctors arent helping me no more tbh....so im just having to deal with it i guess! i get bad gas, nausea n cramp n gurgling sometimes
 

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I know your attacks have no rhyme or reason.. that is how it is for many of us. I am looking for how MANY of these attacks you have. Like frequency... How many... exactly like you described... this week?Well 2 things right away that caught my eye about your post. First you mentioned "Why me?" Personally.. I stopped asking that one a loooongg time ago. Because while I realize my IBS is severe.. and it greatly impacts my everyday life.. I KNOW there are way worse things one can have. So keeping that in mind helps me keep my perspective about my IBS.Secondly.. you mentioned the words "afraid"...etc I can tell you I have severe IBS pain... and pain bad enough that I vomit because of it as well. Only when that happens to me....I could be laid flat by that attack for days with liquid D sometimes as often as I physically move... not just 30 minutes. I can understand fear.. and fear of pain... but I will tell you I also learned... (the hard way) the more fear I have... the more severe my pain and symptoms can become. The calmer I am.. the greater the chance I have of keeping my symptoms more manageable. I simply can't afford the 'luxury' of allowing fear. So if you are having alot of fear.. perhaps you may have an anxiety problem that needs treating. Talk to your Dr about it. As you probably know.... fear causes stress which>>>> can make symptoms much worse. So I would make a serious effort to get that fear under wraps.Now by all means discuss your symptoms.. their frequency (like the question I was asking above here.. how often the attacks actually occur) their duration.. (how long the symptoms last) and their onset... (how & when they typically start for you) with your Dr. And see if the Dr thinks you need another colonoscopy. I know the pain is bad... but that doesn't always mean there is something terribly wrong inside... it still could be 'just' IBS.
Also even though I know it will eventually go away I still get scared that it wont.
I get it.. really I do. But..I find that if I stick to the facts (which in your case are, that this will pass inside of 30 minutes) I can sorta over rule that fear with rational thought. I can keep emotions out of it. Facts.. not emotion. When I am in the worst of an attack...if I get even a teensy afraid.. I instantly feel a spike of pain. So I lay low... put calming and relaxing images into my head... slow my breathing down and try to go limp. And if I do that.. the pain levels drops... immediately. It is uncanny how this works... everytime!See this essay by our Doc Bolen:http://www.ibsgroup.org/node/516Also you might find this one helpful as well:http://www.ibsgroup.org/node/515
this is my life, this is my private hell
Unfortunately it isn't.... You my dear are in excellent company... even IF I do say so myself! So don't forget.. you are never alone! There are many of us struggling to manage our IBS. And it CAN be done. We can lead good & productive lives despite IBS. We just need to find & practice management techniques that work for us. There IS no quick fix for most of us... try to be patient with yourself. So take your time.. read through the forums here that seem to match up with your symptoms and start trying new techniques. I'm sure eventually you will find something that helps you! And post any questions you may have and we will do our best.All the best
 

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I know what you're going thru, I wish more people realized that having IBS is much more than just "having to use the bathroom a lot". IBS is terrible, painful, and it can be so devastating. I have found that, for some reason, my symptoms have gotten worse as I got older, and I have gone thru 6 jobs since last summer because of my symptoms being so severe I am unable to work, altho I am trying to work. I have applied for disability and am currently on my first appeal after being denied, it's tough.
 

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Discussion Starter · #12 ·
Epona - im so sorry to hear that youve had to change jobs cause of IBS. It does seem the the government that provides disability support doesnt seem to understand how much of a disability IBS can be. I hope you are able to get the support that you deserve. Have you considered working from home so you can choice your own hours and be near a toilet. Im an Occupational Therapist, i chose it for many reasons, one of those being that it is in the health industry and people i work with understand my IBSBQ - this week I have 1 on Monday and 1 on Wednesday and 2 on Friday... with the threat of another but it never became full IBS attack. Thats an example of this week. Some weeks I can have 2 a day every day and weeks I can have none at all. The attacks can last for anywhere between 20minutes to 1 hour, its not very often that it would go past an hour. Sometimes it can settle, I go to bed, then wake up 2 hours later and have another attack. When I have an attack it is very painful, I have D at least 10 times but more like 15-20. Sometimes i vomit sometimes i dont. I almost always pass out. It makes me feel so very ill and puts me in so much pain. It is at these times i want to die. I always break into a sweat as well, dripping all down my back and face.I have had IBS since i was in my early teens, so its not new for me. I have been in remission twice and each being for about 18 months. I dont know what i did different in those times so i cant even help myself or share any geat cure with anyone else. I do agree that the more you stress and fear the pain the worse it is, like you i try and remain calm.... i get my teddy bear, put the bucket, towel and pillow out and say to myself that i will be ok. When it gets to bad I call my mum, i am embarrassed of this and i know she tells her friends about it, but when i am in that agony and when it is at its worst i just need someone to tell me i will be ok and that they love me, just the talking on the phone helps. My mum is almost always amazing about it. I am lucky to be able to call her.I know there is no disease in me and that it is IBS, but IBS is a disease in itself i think. I have IBS, neutropenia and tinnitus..... three incurable conditions that all make my life a living hell at times. Not always but when it flares OMG.... Like you say all we can do is read other stories, try different remedies and above all try and stay calm. I know we are all in this hell together, but sometimes i wish i had someone who would hold my hand, stoke my hair, run a shower and tell me that they are there with me no matter what. Those kind of things make a person feel better.PeaLea - it does get bad, and there isnt much the doctors can do. ive had this for about 15 years now. Some years good some years i just want to die. I find that i surround myself with people who i know love me no matter what, they might not be able to fill the role i mentioned above as i would say that it reserved for a partner, but all my friends know i have IBS and they know what it means. I tell people the truth straight away and refuse to be friends with anyone who judges me for it or cant handle it. My friends are great about it. Do you have a good support network?I really do hate my IBS, i do wish i didnt have to go through this pain so often. I wish none of us had to go through it.
 

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I've never really had any pain, with the crones disease and diariah I had for 30 years. Nor the IBS constipation I now have.But what I can't get over, is I have trouble urinating, because of all the backed up stool. I was at the urologist taking a urodynmaics test. And the tech. that gave it to me, showed me all the backed up stool pressing on my bladder on the imaging screen. Said she was amazed I could still eat with all the backed up poop. Even the head urologist agreed it was stool pressing down giving me urinary problems. Said he couldn't help me with constipation I needed to go back to gastroentrology for that.I'm seeing a colorectal surgeon tomorrow, and he wanted to see the urologists reports. So I had them mailed to me. And you know what? Not one word in them about all the backed up stool. And that's my main problem.My gastroenterologist, pressed on my stomach and said he thought he could feel impaceted stool in there. But never did any xrays or anything to see. Just said he thought I would be alright. This was before I went to see the urologist. At that time, I was urinating okay. So I hadn't mentioned the problem to him.
 

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Discussion Starter · #14 ·
Hey SirJohn... ive had severe constipation too, im suprised it doesnt hurt you, i was in pain with it. I had the same from doctors they would say yes your impacted but youll be fine drink more water and exercise but by that stage it was to backed up. I finally broke down to a doctor and demanded something, he told me to take picoprep, it is what they use to clear you out before a colonoscopy.... and trust me it works. I can be so badly constipated tat coloyxl with senna, parachoc and supps dont work but picoprep does. It can hurt sometimes but the end result is worth it.Me i swing bad between IBS C and IBS D, i can not do a BM for a week but then have D every day for a week. Odd really.Good luck hun, hope it works for you.
 

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Ok so that's what you need to tell the Dr... You had 3 very severe attacks this week as an example. Start making a list of things you want to discuss with the Dr. I find I have much more productive Dr. office visits if I am prepared for the appointment; sometimes I use a list etc to remind me of what I want & need to know and/or things he ought to know.
I know we are all in this hell together, but sometimes i wish i had someone who would hold my hand, stoke my hair, run a shower and tell me that they are there with me no matter what. Those kind of things make a person feel better.
I am married.. a fairly long time now (almost longer than you have been alive... oy.. feeling ancient right now).... yet...no one strokes my hair.. no one runs a shower for me. I know my hub is there for me. I don't ask him to do too much for me. Of course he always offers but I am careful with how much help I ask for. I am not an invalid and I can do things.. even IN pain. So I need to be able to feel.. a-b-l-e.. you know what I mean? I need to feel calm and in control... even though my body feels out of control.Only when I am seriously ill do I ask him for help. And I am very specific with the help I would want. Also..I know it upsets him to see me ill.... so I try not to upset him too much, kwim? Weird I know.. but this is what marriage is for us sometimes. Most importantly I have learned how to soothe myself and make myself feel better with my thinking and attitude. That self soothing is all part of me staying calm and confident while in the midst of an attack. Having that demeanor during an attack helps me feel much more in control and not fearful. It is a challenge to live with this... NO doubt about it! But there are things we can do to try and control/manage our symptoms. And over the years I have noticed.. some techniques that used to work for me.. don't anymore and I have to find new ones. Or try some old ones that didn't work for me before..again... in case they might work this time (and sometimes they do!). So go over your symptoms with your Dr and see if he can guide you on management techniques.If you do not think he/she will be all that helpful.....try reading the forums here again and looking for new ways to manage these attacks. The articles by Dr Bolen are chockful of ideas to help.. just as an example. But maybe you would like to ask your Dr about the use of antidepressants or antispasmodics for pain (Go to the Antidepressants, Antispasmodics & Antidiarrheal Forum for much more info.)Or maybe you would like to try an probiotics or something else... but just have a good look & read around to see what you would like to try next. Because I guess what you are doing now isn't really working as well as you would like. So when that happens to me..... I keep looking & learning about new things to try to help myself.So don't give up.. you may just need to change up what you are currently doing to lessen these attacks.Keep us posted.
 

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I wish I could work from home, but I've been unable to find any type of job that allows that.I did have a job processing medical insurance claims, that was 2 years ago, and they did tell us that we could work from home after about a year there. Unfortunately that was the job that fired me due to my IBS......
 
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