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Hi.I was diagnosed with mild crohn's disease in my terminal ileum in May of this year, after about 3 months of symptoms - the most alarming being blood in the stool. Colonscopy was normal, apparently the crohn's is too high up to see it. Inflammation was found on the SBFT and I have low vitamin b-12. I am also slowly losing weight, even though my diet is pretty much the same as it was before. I took entocort for 10 weeks after trying Pentasa. Symptoms subsided, especially the bleeding and 16 trips to the bathroom in a few hours. The pain in the right side also went from constant to intermittent, usually coming after eating the wrong thing. I had a CT scan done after about 8 weeks on the entocort to check for fistulas which came back completely negative. No inflammation to speak of. So now my GI is thinking that I may have IBS as well, as an explanation to why I'm still having symptoms. He has not ruled out Crohn's (damn
) but is considering that I may have both. I'm waiting for approval for the pill/camera test from insurance. If no, then another round of barium. I've gone off the entocort for a period of time, and my symptoms are coming back. With that I have a few questions. How common is it to have both IBD and IBS? If I do have both, what can I expect for treatments of IBS? How will I know which one is acting up. The crohn's pain seems to be a bit worse. What medications are used for IBS? I'm so tired of taking meds, and was hoping that if Crohn's went into remission I'd get a break. Thanks for any advice you can give!
 

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Hi, just wanted to let you know that I have had crohn's for 11 years and just this year was told I also have IBS. Bad luck to have both I'd say. I have a hard time telling my symptoms apart as I find the abd pain is in the same area and well diarrhea occurs with both. My GI told me that having both is actually quite common as either once inflammed or operated bowels are more prone to IBS, however I don't understand what triggers the symptoms of IBS and have posted a question about this myself. I am finally getting some relief from an antispasm medication added to the meds I take for crohn's. When I have a flare that won't settle down, my doctor says we need to start again each time and determine by colonscopy which disease is causing the problems as bleeding may also be from hemmorhoids common with lots of diarrhea, plus another clue is when I don't get better with steroids (some pain relief, but not really better). Seems pretty frustrating to me, but know that you are not alone. I had a hard time accepting that I could have something on top of crohn's, but I hope as time goes on I will learn to recognize one from the other better so I can better control symptoms.
 

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PS. To stay well with crohn's(no cure) often means taking meds even when you are well, so might as well just get on that train of thought early as many people will tell you alwful stories of what happened when they stopped taking their meds. Don't know if the same is true for IBS, to new for me, but maybe the specialist can answer for us both.
 
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Generally both IBD and IBS are only diagnosed if someone continues to have GI symptoms when the IBD is shown to be in complete remission. I do not know what percentage of IBDers have this. Of course it also depends on how easily the IBD is controlled into remission.It is thought that the inflamation in the gut can damage the nerves in the gut wall and this causes the IBS symptoms that occur during full remission.It is hard to judge if you will need medication continually forever or not. For some people they can have periods of remission where they need either less drugs or can go without drugs. Some drugs may make people more likely to stay in remission, so you may need to take some medications even if the colonoscopy indicates that the inflammation is gone at this time.Generally for IBS the drugs used are based on which symptoms you have.Antidiarrheals for diarrhea, osmotic laxatives or stool softeners when diet doesn't correct constipation. Antispasmodics and antidepresants for pain. Two new drugs are out for IBS, but I do not know if there is any evidence they would be safe if you have IBD problems. Lotronex has been reapproved for diarrhea predominate IBS and Zelnorm for constipation predominate IBS.K.
 
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