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Discussion Starter · #1 ·
I'm new to this. I've had abdominal pain for about 10 years. I've experienced the severe pain others have described in the left lower quadrent. It has been bad enough to make me pass out, throw up, and consider suicide.I often have the gas problem, and have had constipation, but don't have a severe problem with either D or C.The pain seems to start around ovulation and stops a day or so before my period starts. I have suspected endometriosis in addition to IBS. Just wondering what other women's experiences have been with this. I've had a colonoscopy and CT scan recently and both looked fine. I'm going to see the GYN again and am at a point where I just want a laparoscopy to rule out or verify endometriosis. Then at least I can focus more on the IBS.
 

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Welcome, Amy. Sounds like you may have the old one-two punch, and it's good that you will consult with your gyn.I'm an IBS and endometriosis veteran. Was diagnosed with IBS about 24 years ago. Have had endometriosis for about 15 years now. I've had several laparoscopies for the endometriosis. The kicker for me is that the worst endo is actually on my intestine, so the two disorders aggravate each other tremendously. (I also have a thyroid disorder, since 1991. Basically, if I were a car, I would have been junked ages ago.)The worst endometriosis pain for me has always been during ovulation. I could predict my period from the ovulation pain. Still pretty much can. The so-called treatments for endo are lousy, and if you wind up being diagnosed with endo (which can only be done through a lap), there's a lot of information and support on the web for you. I can direct you to some sites if you get to that point. Just post and ask me, and I'll point you in the right direction.I have a wonderful gyn, but he didn't think I had endo at first. This, however, was years ago, when less was known. He thought the pain I had at ovulation was the release of the egg irritating my irritable bowel. We now know, of course, better.I've got endo pretty bad, and am on strong pain meds. I hope you don't have endo, but if you suspect it, knowledge is power.Amy, please reach out to someone close to you if suicide is truly something you've considered. I understand the desperation and the pain and how it can drive you to desperate thoughts. But if you feel those thoughts may become action, you MUST not ignore this. You are worth fighting for, so fight for yourself, hon. Get whatever help you need, and whatever answers you need.You deserve better. Please keep us posted.
 
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Discussion Starter · #3 ·
hey hun~boy can i relate. I am 18 and suffer the worse cramping in the world ever since my IBS(before IBS i would load myself up on aleve, advil..etc.) So i never felt it before...but now I do. Since i have developed ulcers i cannot take any oc pain remedies without getting sick..I saw 2 gyns and had ultrasounds and blood work..one said it was nothing the other gave me painkillers, which put me in lalala land so I only take them in the extreme. But they dont want to go into all sorts of testing on me because i am young and a virgin. I can tell you excatly when I am getting my period due to the severity in pain which starts 2 days beforeand lasts 2 days into it. I found that stretching and yoga a week before your perios tends to lighten it a little, as well as massaging your lower abdomin, with one of those neck things you put in the microwave...I dont like meds so i suffer for the first 2 days, if you find out anything id be interested in knowing....donna
 

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Hi Amy:My IBS also worsens right before my period, and makes those cramps worse too! I haven't had problems like this in many years, so really resent it cropping up now! But many of us are in the same boat, so vent alone with us.
Welcome to the Board.JeanG------------------Member of "The Advance Guard for the Ozone Rangers".May the "farce" be with you. JeanG
 

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I have to say that I have suffered for many years with the monthly cramps, and in the past year it had gotten worse. To the point that I was almost throwing up too and the cramps were so bad they gave me bad D too and I'm usually a C type IBS. I dont know if it will work for you but this is what I have done. I take one vit B6 100 mg daily, 1 magnesium, 300 mg, daily and trust me on this, the cramps and D are gone. The first month I couldn't believe it, for the first time in 15 years I didn't have any cramps!!!!It has taken about 2 months to work and believe the cramps are gone!!!!! The last 2 periods I have had, there was no need for even tylenol, I am still in shock and the stupid doctors wont even tell you about it. Hope that you give it a shot and let me know if it works for you too. Good luck
 

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Amy, just for clarification purposes, I thought you were referring to pain that occurred mostly at and after ovulation, not cramps/pain with your period. Is this true?It is sometimes confusing, because the degree of pain one feels is hard to quantify. Many women have painful cramps with their periods; some of this is normal and some is not. Some may be due to endometriosis.The red flag as I see it is that I'm getting that you have bad pain at ovulation. Now some women get a "twinge" or two, or even a day of some pain. The pain of endometriosis at ovulation can be excruciating.Please let us know, Amy.
 

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Hi,I can certainly relate to what you all are saying here. I am 46 yrs old,and have been having tremendous pain/cramps and D with my menstrual period. But this last year,I think I am in a pre-menopausal stage, it is just so bad I can hardly stand it. I have been getting nausea,stomach cramps,vomiting about 1 week before onset of period. Once that hits,the IBS really kicks in and I am hit with terrible bouts of D. I don't know what to expect next. I've talked to my gyn about this many times,with not much response. When I told him I took Bentyl for IBS, he just said,that it would also take care of painful cramping, not to worry. I wonder, what are the symptoms of endometriosis? Am I too old to be getting it? Since there seems to be such a connection between hormones and IBS, why is it that gynecologists don't seem to know much about it? As I go through menopause,is IBS going to get worse as hormone levels fluctuate? So many questions, I know! I hate not knowing what lies ahead.Jan
 
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Discussion Starter · #8 ·
Hello AmyI also have both IBS and stage 4 endometriosis. I find I have a lot worse IBS problems during my periods and now, in the last 3 years since my endo has worsened, I have pain during ovulation and the IBS has MUCH worsened. Like KES, I also have a lot of endo and scarring on my intestines which makes my IBS a lot more miserable.Please do try to get the lap so you can know where you stand as far as the endo dx goes. Some women are helped a lot just by using birth control pills to control the endo/hormones...I don't know how helpful this post is, but I wanted you to know that I know of the pain you describe, and that I wish you the best in finding out about the endo. I am having a hysterectomy in two weeks after 3 years of bleeding and pain, and while I know that isn't a cure-all with endo, I am hoping that they will remove enough endo and junk from my intestines to help with the IBS symptoms I experience.Please take care and keep in touch. If I can be of any help, please email me at: stephaniesue###yahoo.comBest wishesStephanie
 
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Discussion Starter · #9 ·
Wow, thanks for all the responses and support. KES is right. I believe the pain is with ovulation and stops before my period. Once I've got my period, I'm fine. I actually seem to have very little of what I think menstrual cramping is. I need to investigate this site more to get some answers to my questions. There are actually about 3 different kinds of pain. Theworst is the lower left quadrent. Each episode lasts about 20 minutes and then the pain is completely gone. It's mostly at night and early a.m. During the time of month I have this pain, It comes on after a bowel movement also. Do others experience that? The other is a burning sensation in the lower abdomen. The last is kind of gassy, pressure which sometimes I feel up to my ribs-only one side at a time.With the gassy stuff, the only way it seems to go away is by laying on my left side and belch it up. Little belches, it seems like almost nothing. The GI doc who did the colonoscopy gave me a prescription for Levbid. I've just tried it a couple times because I think it caused consipation. I definitely lean more toward C and am reluctant to try anything that might make that worse.I'm curious to hear any more thoughts or similar experiences. In any case, there is a font of information here and I'm going to start searching now. Thanks.
 
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