What is IFFGD? The reason I'm asking is because about 20 years ago, I was a member of the Endometriosis Association and the founder scheduled a huge convention of 100's of patients and doctors in various specialties. She arranged hotel rooms and airline reservations with group rates and had a 2 day convention with large lectures and later for small groups, depending on various symptoms. She even had one for yeast, with some specialist at the time. Topics were done by specialists in the field, well known doctors from all over the country. I had endometriosis, but the symptoms were mild and did not affect my life any where near as much as this "leaky gas". We need answers and don't want to hear simple measures which just don't work. We need to be able to question doctors and really press them for solutions. Forums like ask the specialist really don't go far enough, the solutions are just too simple and the doctors don't have to listen to feedback from the public, letting them know we've already tried that without success. I know that doctors have regular conventions but they don't allow the public
Bonnie, Just for clarification, I think Eric is saying IFFGD sponsors the symposium/conference, so I don't think Jeff would be doing the inviting (but I don't know. I just went to the IFFGD site to look up more info on their symposium. It looks like it takes place in April. An easy way to link to the site is by simply going to our (the IBS group) home page, and to the right is an icon for a release on April being IBS Awareness month in the US. It takes you directly to the site. Once I was at the IFFGD site I clicked on "symposiums" somewhere near the top right of the page, and it had a recap of the last several symposiums sans the most recent held in April 03. They look quite good. I wonder if anyone here has been, and what the costs of attending are. I would be interested in going if possible.
IFFGD's symposium is every two years and it is not patient oriented. It is a scientific symposium which presents research papers related to all functional gastrointestinal disorders and not just IBS.We had considered organizing a patient conference. Drs. Drossman and Whitehead at UNC Chapel Hill, did have a patient symposium twice before but it seemed to only be attended by local patients.I'm not sure that IBS people want to leave their homes so I have considered a different type of forum to address the need for more direct contact with each other and researchers. I hope to be able to talk more about this in the fall.Jeff
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