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Discussion Starter · #1 · (Edited)
I suffered with IBS-D for 40+ Years so I would NEVER lie to you or sell you a bill of goods. I have ZERO to make off this, as you will soon discover, other than to help my fellow IBS-D sufferers in ending this nightmare, or in some cases this LONG nightmare as it was for me.

Just do the following and all I can tell you is it's worked for me, 100%, and I'm going on six months now. To be clear, when I say it's worked for me I mean I am having normal bowel movements, once or twice a day, for what seems like the first time in my life. Not since I was a child was I having normal bowel movements, so I couldn't even recall what this feels like. So far as I'm concerned, this is BRAND NEW for me and I still can't believe it.

Anyway I also have GERD and other internal issues that required numerous surgeries and procedures, but since I spent so much time in and out of the Hospital I made it clear that I've also been living with IBS-D all of my life, and now even the Imodium's I've spent my life taking are not as effective as they used to be, which has turned this nightmare (IBS-D) into a horror show.

Fortunately one of the G.I. surgeons who performed one of my six surgeries, a very kind and considerate Asian woman, was quite familiar with IBS-D and recommended a treatment plan for me following her successful surgery for the other issue she addressed.

Below is the treatment plan and AS GOD IS MY WITNESS, it's now been six months and counting without so much as a cramp, you know, the cramps that always precede the Diarrhea, much less the Diarrhea. The IBS-D is GONE. 100% GONE. Not ONE SYMPTOM, much less IBS-D.

So here is the treatment plan, some is OTC (but not Imodium, those days are OVER), and some will require a prescription from your Doctor:

1. Cholestyramine Powder for Oral Suspension (4 Grams Per Packet), mixed with a small bit of Juice or Water. Prescription Required.

I take one packet per day and that's more than enough to give me a solid stool, almost too solid, but some people require two or three packets per day. Personally I can't imagine even needing two because my IBS-D was as bad as it gets, and the one packet a day is 100% suffice.

2 Sucralfate Tablets (1 Gram). Four per day. One before each meal and one before bedtime. Prescription Required.

3. One Probiotic, OTC, but make sure you get the ones that require only one per day and take it in the AM with the Powder and Sucralfate.

4. Lastly, I have GERD so I take two Antacids per day, one Omeprazole (40 MG's) in the AM with all of the above, and one Famotidine (20 MG's) at bedtime. Both of my Antacids Require Prescriptions, but there are OTC versions like Prilosec, but they are not 40 MG's, only 20.


Do all of the above and your IBS-D nightmare will be OVER. Not minimized. Not dependent on what you eat. Nothing matters, not even spicy foods.

If you don't have GERD or Acid Reflux of any kind, you may not need those prescriptions, but I would still recommend one OTC Prilosec to be safe.

Follow this plan and you will be SHOCKED by the results. That Asian female G.I. gave me a new lease on life and I am eternally grateful.

Let me be clear, no matter how bad your IBS-D is, there's NO WAY it can be worse than mine, and she cured mine. 100% CURED.
 

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Discussion Starter · #3 · (Edited)
That’s awesome! I’m glad you found what works!
Thanks Sun. I wish I could say I found it, but the title is misleading. I had long since given up on even the idea of finding a cure, or a treatment plan that works. I had been to numerous G.I.'s in my youth and well into my late 20's, even early 30's, but at that point I just quit trying and accepted the fact that I'll have to live with IBS-D for the rest of my life, with my only treatment (if you can call it that) being Imodium's and diet.

I just happened to come across this Asian doctor by sheer chance. I had some surgeries and she happened to be the specialist who was assigned as chief surgeon on one of them. She did such an amazing job, instantly curing something I'd been suffering with for years, the pain growing increasingly worse, to the point where even "suffering" is far to mild a description, but she performed this surgery and when I woke up that pain was gone, INSTANTLY. Not even a trace remained.

Needless to say I was so grateful and effusive in expressing that to her that she and I became friends. That's when I said; "What the heck, might as well tell her about my IBS-D, what's the worst that can happen, that she has no solutions either, in which case I'm where I've always been."

So I told her about it, how I'd been living with it since my early teens and the whole history of seeing G.I.'s, taking tests etc., all to no avail.

That's when SHE drew up this plan for me, the powder being the primary source, but all working in accordance, and told me there's a good chance my battle with IBS-D will be over if I follow her directions, Imodium's no-longer required. She said I can never make any promises, but I have a considerable number of IBS-D patients and so far it's worked for all of them!

So I tried it, did as I was told, still do, EVERYDAY, and now it's been 6+ months without even a hint of IBS-D, not even once.

Like I said above, some people require more than one packet of the powder per day, but I can't imagine it considering how hard my stool is, all day and all night, by taking only one packet each morning. It's so normal, or BEYOND NORMAL, I wouldn't know the difference anymore, that one packet is suffice for me. One thing I can tell you for sure, forget Diarrhea, I haven't even had a SOFT STOOL since I've gone on this plan she drew up for me. My only regret is she grew homesick and recently went back to Japan. Fortunately my current PCP and G.I. continue to renew her prescriptions.
 

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I'm glad this worked for you, but it did not for me. I have cholestyramine and sucralfate--for my ibsd and my ulcer, and was taking them anyway for those. So, I thought I'd follow your plan. It did not work for me. I ended up taking 3 packets of cholestyramine a day, a sucralfate 1/2 hour before each meal and nothing. I even added your antacids, even though I didn't need them for gerd and nothing. I still have very loose stools all day every day. FWIW, I also follow the low fodmap diet and get no relief from it,either, although using it I learned what I can and cannot eat. For me, raw is a killer. I eat baked or grilled fish or chicken, with only a bit of salt, daily. I eat cooked carrots, beans, peas, beets, any of the crucifers and, rarely, anything else. I am trying to lose weight, so low or no carbs. I also take a gelatin powder that I mix into my drink during the day and L-glutamine (heals the gut) and, if needed marshmallow root and mastic gum. I also keep DGL (deglycerized licorice) as an 'as needed' acid reducer. I still struggle, but there is no one single answer that fits every person who has ibsd.
 

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Thanks for sharing this. I actually think that your advice has a lot of merit. These drugs all have mechanisms by which they could help improve IBS.

Colestyramine - Bile acid binder (Bile acid malabsorption is often a hidden "cause" of IBS-D).
Surcralfate - also binds bile, heals ulcers, slightly constipates, lowers acid. Was shown in 1 study to reduce symptoms of IBS-D.
Acid reducers - Omeprazole is a PPI, but Famotidine is and h2 antagonist. If you have another "cause" of IBS-D called histamine intolerance, this could improve it. I am not sold that Omeprazole could help IBS-D unless you had stomach inflammation which is diagnosable with an endoscopy.

I think if the above worked for someone but they were still having issues, I'd also recommend trying Ebastine (h1 antagonist and mast cell stabilizer, shown in a study to help IBS, if it's available in your country), or Fexofenadine (h1 histamine antagonist and mast cell stabilizer, aka Allegra allergy medicine), and perhaps Psyllium, which can also bind bile.
 

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I'm glad this worked for you, but it did not for me. I have cholestyramine and sucralfate--for my ibsd and my ulcer, and was taking them anyway for those. So, I thought I'd follow your plan. It did not work for me. I ended up taking 3 packets of cholestyramine a day, a sucralfate 1/2 hour before each meal and nothing. I even added your antacids, even though I didn't need them for gerd and nothing. I still have very loose stools all day every day. FWIW, I also follow the low fodmap diet and get no relief from it,either, although using it I learned what I can and cannot eat. For me, raw is a killer. I eat baked or grilled fish or chicken, with only a bit of salt, daily. I eat cooked carrots, beans, peas, beets, any of the crucifers and, rarely, anything else. I am trying to lose weight, so low or no carbs. I also take a gelatin powder that I mix into my drink during the day and L-glutamine (heals the gut) and, if needed marshmallow root and mastic gum. I also keep DGL (deglycerized licorice) as an 'as needed' acid reducer. I still struggle, but there is no one single answer that fits every person who has ibsd.
I have/had a similar diet to Trudy. Thanks for sharing, and thanks for sharing that you tried Mo's plan.
I've become normal without the Cholestyramine and Sucralfate as well. I read the first, binds excess bile acid that goes to the gut. But not everyone's bile is going to the gut, hence why it probably didn't have the same effect on you...

Here's an excerpt from this medical website:

"
Off-Label Uses for Diarrhea
Bile acids are produced in the liver and stored in the gallbladder. After they help with digestion in the intestines, the unused bile acids get reabsorbed and sent back to the liver to be recycled. Normally, only a small portion makes its way through the intestines and colon.
If your body releases extra bile acids that spill into the colon, you have a condition known as bile acid diarrhea (BAD), also called bile acid malabsorption (BAM). The excess bile acid in the colon causes loose and watery stools.
Cholestyramine helps stop the problems caused by too much bile acid. It attaches itself to bile acids within the digestive tract to ensure that the extra bile acids pass out of the body, which relieves symptoms of diarrhea.

"

I agree we have to each find whta diet works for each of us. I do hope you get better Trudy. I'm not sure if I posted to you before, but do add a bifido/lacto mixture probiotic to your diet. It should help kind of create a buffer in your digestive system, that allows you to eventually digest more foods, and also make triggers less damaging. So when we accidentally consume something that is bad for us, the probiotic seems to take some of the hit for us, helping us not to have such a bad episode/reaction, than if we didn't have the probiotic inside... Does that make sense?
 

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I would assume, what the author of the original post means, is they have found a way to "control" their symptoms of IBS. I would add to their regimen Calcium, which I also take twice a day. As a probiotic, I use Align, which has been found to have some positive effect in clinical trials. What I can say is, while I have seen some improvement, the magic bullet for me has yet to be found. At 76, I have tried everything from acupuncture to zen without significant improvement. I believe the bottom line, is you can't cure a disease if you don't know the cause and until the underlying biologic/chemical cause of IBS is found, the best we can do is wonder around the vast forest of treatments and hope we trip on something that works. That said, I want to thank all those who take the time to share their experience with this miserable condition in hopes of helping others.
 

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I would assume, what the author of the original post means, is they have found a way to "control" their symptoms of IBS. I would add to their regimen Calcium, which I also take twice a day. As a probiotic, I use Align, which has been found to have some positive effect in clinical trials. What I can say is, while I have seen some improvement, the magic bullet for me has yet to be found. At 76, I have tried everything from acupuncture to zen without significant improvement. I believe the bottom line, is you can't cure a disease if you don't know the cause and until the underlying biologic/chemical cause of IBS is found, the best we can do is wonder around the vast forest of treatments and hope we trip on something that works. That said, I want to thank all those who take the time to share their experience with this miserable condition in hopes of helping others.
tcl4p,

I agree, I'm grateful for all the people who've posted their experience and what works for them. Yes, even Mo Green here.
I'm sure it will help some people, and giving people something to try is not a bad idea as it maybe their solution, if not, its just one more thing that didn't work (as long as its not a very risky/deadly trial, which is not the case here).

But as for a "cure," I also wouldn't say I found a cure for all IBS or all IBS-d (which is mostly what I have/had).

But I can say, most people would think I'm normal, and I consider myself pretty much normal now, basically mostly "cured."

It took me 7 years to get to this "normal" state and 5 years to get to an "almost normal" state. The first 5 years were very difficult, debilitating even, and for some months I would fast during the week, just because I wanted to be able to go to work without gas or problems, and I'd eat on the weekend.

At this point, I can eat some dairy, which for 7 years I coudln't have a drop of. Like i couldn't have anything that said it had even a little bit of milk. Now, I can eat a scoop of ice cream without diarrhea or smelly gas. But i can't eat two scoops without getting queasy or having a smelly stool. But, I'm happy with that. most people shouldn't eat too much ice cream anyway (too much fat and sugar).

I can eat 2 medium apples a day now. Yet, I was first diagnosed with fructose malabsorption days after my IBS started 9 years ago. My first successful bite of an apple without causing immediate diarrhea was at year 5 of my IBS. At that point I guess my gut was stable enough and I had taken enough probiotics to withstand something I was formerly VERY intolerant to.

Its possible to get cured or "almost cured" without knowing the cause of the disease.

Still no doctor has dared to confirm what "caused" my IBS.
There are so many potential causes.

What I did was eliminate all foods to a core diet (chicken broth and celery cooked for minimum of 4 hrs with ACV to get the gelatin out) and then slowly add one food every 3 days to my diet. If I had a bad reaction I wouldn't add at the time. If i had no reaction even 3 days after, it would become part of my diet.

The other thing I did was find a fiber that didn't cause gas or diarrhea for me. That fiber was spinach.
I take it daily in the morning with my smoothie, almost 2 cups full with water and stevia. Now a days i add pea protein too and some berries (but if you're not sure don't add teh pea protein).

Finally, I was treated with a number of antibiotics and antifungals at different times in my 7 years to normalcy. The drs had found C. Difficile, H.Pylori, Intestinal Candida, and other stuff at different times and gave me different antibiotics and antifungals to get rid of them.
Most recommended probiotics as I took the anitbiotics.
One doctor recommended a regimen, that I think is what was the game changer from "managing" my IBS to becoming "normal" or "almost normal."
That regimen was 150 billion probiotic capsule 3 times a day for 2 weeks, and then a strong probiotic (I chose 80 billion) once a day as maintenance every day for months (actualy ended up being almost 2 years).

That seemed to have changed my gut to help me digest things I couldn't in the beginning of my IBS (some milk tolerance, greater fructose and grain tolerance).

Don't know if it helps you, i hope it does, but cure or almost cure can be possible.
 

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I should have taken more time to explain the difference between control and cure. As I mentioned we still don't know what the pathology is behind IBS-d. Over time I've seen everything from a psychological disorder to SIBO, but I suspect the answer lies somewhere else. The example of control I would use is diabetes, where in this case we know the basic pathology of the disease, that being the lack of insulin, but at this point all we can do is to control the disease with insulin injections. Cure would be the a person with a strep infection, where not only do we know the basic pathology, but can give antibiotics to end/cure the infection. All that said, I'm glad you have arrived at a point where you can control your IBS and at this time that all one can ask.
 

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I should have taken more time to explain the difference between control and cure. As I mentioned we still don't know what the pathology is behind IBS-d. Over time I've seen everything from a psychological disorder to SIBO, but I suspect the answer lies somewhere else. The example of control I would use is diabetes, where in this case we know the basic pathology of the disease, that being the lack of insulin, but at this point all we can do is to control the disease with insulin injections. Cure would be the a person with a strep infection, where not only do we know the basic pathology, but can give antibiotics to end/cure the infection. All that said, I'm glad you have arrived at a point where you can control your IBS and at this time that all one can ask.
My guess is that there isn't a single cause for all IBS or even just IBS-d or just IBS-c.
I think there are multiple factors.
It could be more like IBS is to the body more like when we get a fever.
A fever has several causes, a viral infection or other infection, but both can lead to a fever.

IBS could be like that.. Its more likely given the range of possible causes we hear and you stated, like both psychological or infection or gut imbalance or stress combined with all of these.
 

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My guess is that there isn't a single cause for all IBS or even just IBS-d or just IBS-c.
I think there are multiple factors.
It could be more like IBS is to the body more like when we get a fever.
A fever has several causes, a viral infection or other infection, but both can lead to a fever.

IBS could be like that.. Its more likely given the range of possible causes we hear and you stated, like both psychological or infection or gut imbalance or stress combined with all of these.
Nina, Interesting thought, which leads to the question is there more than just IBS-c or IBS-d? I'm sure there is an genetic component involved with IBS since one of my brother's has IBS and one of my children. This leads me to an assumption that IBS has at its root a biologic/organic pathology. As for the psychological implications as a cause, I wonder if this is a cause and effect issue, that is to say do I have a psychological issue as a root cause of my IBS or as a secondary complication of the disease. Have I been so influenced by the fact that I will often have an episode of diarrhea in the most inappropriate time that it affects my thinking with regards to being able to do certain things, i.e. taking a commercial flight or do I have an underlying psychological problem that brings about my IBS-d.
 

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Nina, Interesting thought, which leads to the question is there more than just IBS-c or IBS-d? I'm sure there is an genetic component involved with IBS since one of my brother's has IBS and one of my children. This leads me to an assumption that IBS has at its root a biologic/organic pathology. As for the psychological implications as a cause, I wonder if this is a cause and effect issue, that is to say do I have a psychological issue as a root cause of my IBS or as a secondary complication of the disease. Have I been so influenced by the fact that I will often have an episode of diarrhea in the most inappropriate time that it affects my thinking with regards to being able to do certain things, i.e. taking a commercial flight or do I have an underlying psychological problem that brings about my IBS-d.
Maybe you can contact your local university hospital and offer to be a volunteer in these tests (and propose them).
I don't think they're bad ideas and would be useful to find out.
But given the lack of conclusive data, I still look for solutions that work for me, because more than likely most of us here are not biologists or research doctors so is not our main career or how we make a living to pursue these clinical trials.
You could even ask people here to join you in the trial if interested.

There is a gut brain connection that only recently has been taken seriously by neuroscientists. Apparently the vagus nerve is how our gut connects to our brain.
I heard on Radiolab podcast a recent episode that they did an experiment with mice where they gave them lactobacillius rhamnosos (sp?). Anyway basically the mice that had taken the probiotic (lacto. rhamnosus) didn't exhaust/give up when stress tested vs the mice that were not given the probiotic. This was in a water stress test, that basically mice withhout the probiotic frantically try to get out of the water that they were suddenly immersed in, frantically trying to get out and when unable to, in 4 minutes they would just start floating (give up). The mice that had taken the probiotic instead didn't give up and kept going.
Apparently the lactobaccillius rhamnosus would cut the cortisol (stress hormone/chemical that is excreted when in stress) in half vs without the probiotic.

So, again, not causes here, but possible solutions to help alleviate.
Causes may take decades to discover, which we should all help find out if we can. But we all NEED to find better alleviations or solutions.
 

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Maybe you can contact your local university hospital and offer to be a volunteer in these tests (and propose them).
I don't think they're bad ideas and would be useful to find out.
But given the lack of conclusive data, I still look for solutions that work for me, because more than likely most of us here are not biologists or research doctors so is not our main career or how we make a living to pursue these clinical trials.
You could even ask people here to join you in the trial if interested.

There is a gut brain connection that only recently has been taken seriously by neuroscientists. Apparently the vagus nerve is how our gut connects to our brain.
I heard on Radiolab podcast a recent episode that they did an experiment with mice where they gave them lactobacillius rhamnosos (sp?). Anyway basically the mice that had taken the probiotic (lacto. rhamnosus) didn't exhaust/give up when stress tested vs the mice that were not given the probiotic. This was in a water stress test, that basically mice withhout the probiotic frantically try to get out of the water that they were suddenly immersed in, frantically trying to get out and when unable to, in 4 minutes they would just start floating (give up). The mice that had taken the probiotic instead didn't give up and kept going.
Apparently the lactobaccillius rhamnosus would cut the cortisol (stress hormone/chemical that is excreted when in stress) in half vs without the probiotic.

So, again, not causes here, but possible solutions to help alleviate.
Causes may take decades to discover, which we should all help find out if we can. But we all NEED to find better alleviations or solutions.
Nina, with regard to your suggestion I volunteer at my local university hospital, the fact is I did take part in the clinical trials for Lotronex. You seem to be confusing my response to the issue of cure vs control. I never implied that one should not try every avenue available to make life with IBS more tolerable. My point is, until we know the actual cause of IBS, be it genetic, infectious, metabolic etc, all that is left are methods/actions to control the symptoms of IBS and I used diabetes as an example of a disease where we have a method of control versus a cure to diabetes. The bottom line is we should be cautious when someone uses the term "I found a cure for IBS", rather "this is what's working for me". Over the years of reading this blog, there have been many posts claiming a cure for IBS and one has to be very careful less you end up with a "cure", that's not a cure that can potentially hurt not only your pocketbook, but have adverse effects on your health. Hope that helps clarify my position.
 

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Nina, with regard to your suggestion I volunteer at my local university hospital, the fact is I did take part in the clinical trials for Lotronex. You seem to be confusing my response to the issue of cure vs control. I never implied that one should not try every avenue available to make life with IBS more tolerable. My point is, until we know the actual cause of IBS, be it genetic, infectious, metabolic etc, all that is left are methods/actions to control the symptoms of IBS and I used diabetes as an example of a disease where we have a method of control versus a cure to diabetes. The bottom line is we should be cautious when someone uses the term "I found a cure for IBS", rather "this is what's working for me". Over the years of reading this blog, there have been many posts claiming a cure for IBS and one has to be very careful less you end up with a "cure", that's not a cure that can potentially hurt not only your pocketbook, but have adverse effects on your health. Hope that helps clarify my position.

I'm glad and grateful you (and people like you) helped out with finding a drug to help IBS-d sufferers.

I agree that technically no one can claim a "cure" for IBS because IBS isn't even a disease to begin with. It's Irritable Bowel Syndrome, a diagnosis of exclusion I was told by many doctors. its more of a description of knowing something is wrong in that area and you can suffer any number of chronic symptoms but its not known to be a specific disease (like your pancreas not making enough enzymes, is an actual disease that leads to similar symptoms, but can be cured and cause is acknowledged.)

I think people are here at their own risk, and believing the benefit of the information outweighs the risk.
For how many decades do doctors dismiss our plight?

Since its not colon cancer, Chron's, UC, some of them say its all in our head, and provide no solutions other than more drugs as you say to control symptoms or worse brain drugs for our anxiety/depression (which may have been caused by IBS not the other way around).

Yes, I agree everyone should do more research on the possible solutions before embarking them. They should even ask their traditional or functional medicine doctor their opinion before starting their venture.

But many of our doctors don't give us a starting point or their plans do not work for us. So to even see and learn what other people suffering from the same thing as you have found is worth their time to look into and possibly try.

Your clinical trial was not without risk. I saw that Lotronex can have fatal side effects in some people.
I'm sure you would understand that discovery of solutions are not without cost.

But I agree, people should exercise caution and ask their doctors before venturing into a new treatment.

As for the term "cure" or "cured", yes you are technically correct.
However, I do personally consider myself mostly "cured" because I don't really manage/control my symptoms like I used to where, I'd reach for a Sacccharomyches Boullardi as soon as I got a loose stool (which would indicate diarrhea coing on soon).
I don't carry Loperamide HCL around.
I don't have to cancel my trips or meetings or skip going to a restaurant.
I can live a basically normal life.

That is something I could not do when I had IBS, even when I "controlled' most of my symptoms or managed them, they would sometimes suprise me (like you said, there could be a psychological connection causing upset to some degree).

But that's the thing.
Even when I do get nervous now and I can feel my stomach move a bit, I don't get all the crap I used to get- spontaneous gas or bad gas, diarrhea, or loose stools.
I don't feel that saying I "control" my symptoms (gas, diarrhea, loose stools, constipation) is accurate for how I live now.
I'd say I just follow a healthy lifestyle.
I don't live in fear carrying around a whole bunch of drugs and saying no to the tiniest bit of garlic, onion, milk, fructose in my food , like I once used to live. I can actually tolerate enough of these foods to go eat in a restaurant, have an ice cream scoop, eat meat marinated in onion and garlic.. :)

My IBS was mostly exhibited by a number of infections and SIBO, which I got under control with a cleanse, an elimination diet, a gut reset and repopulation with good bacteria (probiotics), and exercise (took months/years for full recovery).

From this blog, I can see some people took similar action and are much better.

I'm not "cured" but I live as if I don't have IBS anymore (no symptoms, rarely a loose stool- only if I eat a ton of bad stuff like erythritol or lots of ice cream or food with dairy/whey.. I just don't really eat these things).

I do have a different lifestyle and I do limit/avoid foods that I know are bad for my gut flora or which I still have some intolerance to (I can tolerate a certain quantity of milk, but above that threshold I have a negative reaction). But most people wouldn't even have to know I have this intolerance, because I'd eat a small amount without incident and they'd never know. And I call that being/living like a normal non IBS symptomatic person.

So its not a cure, you would still call this "control?"
 
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