[jinjin]

Hi just wondering if anyone else feels like I do.I feel totally isolated as with IBS it is not a illness that friends can see and therefore I feel that they are not as understanding as might be if your leg was broken. I sweet alot with the pain, I dont go out socially due to swelling and wind and the fact of toilet situations. I am currently very down in the dumps as feel that not even the doctors understand fully. I am on so many tablets and under diets ect and nothing seems to be helping. I am now going to leave work as have been off so long at the moment am sick of messing them around. I dont seem to be getting any help from anywere at the moment as cannot get help from benefits as have good and bad days and I dont think they take the problem serious. I am currently under councelling as well as specialist and dietician,so far nothing... Is anyone else feeling so fustrated and alone.

 

[friski]

there was a time that i felt that way. I too used to sweat alot, so i would only wear black or white shirts so the sweat stains wouldn't show. I was very afraid to go out b/c i might get an ibs attack. But i've finally found my combo of meds that work. anxiety was the cause of my ibs so i am taking antidepressants and antianxiety meds. i don't know what you are on but i have tons of pills too, it gets depressing alot, i know

 

[friski]

there was a time that i felt that way. I too used to sweat alot, so i would only wear black or white shirts so the sweat stains wouldn't show. I was very afraid to go out b/c i might get an ibs attack. But i've finally found my combo of meds that work. anxiety was the cause of my ibs so i am taking antidepressants and antianxiety meds. i don't know what you are on but i have tons of pills too, it gets depressing alot, i know

 

[Clair]

jinjin,Sorry to hear that your feeling so down in the dumps at the moment {{{{{{hugs}}}}}}.I am sure the vast majority of sufferers on this bulletin board can totally identify with how your feeling right now - isolated, alone and fighting on your own. That is why we all come here to find valuable information as wellas great support and friends who understand - for the most part we are a great bunch.Because doctors do not yet understand the cause of irritable bowel syndrome there is yet a cure, and we often feel let down by everyone around us for not understanding what we go through including the medical profession.You are not alone we are all here for you and all in the same boat.However, there are things you can to do to improve the situation including educating your employers, colleagues, friends and family.There are publications available that can help explain IBS to non sufferers and help them understand what we go through on a daily basis.There is a tape called the IBS Companion which has been specially written by one of the leading clinical hypnotherapists in the country who specialises in treating IBS sufferers this is available at minimal cost at http://www.ibsaudioprogram.com. There is also a good brochure in simple language which is useful written by one of this bulletin board's members this can be found at http://www.ibsgroup.org/main/brochure.html These are good places to start, also try reading as much as you can from this bulletin board as you can pick up some fantastic tips to help you deal with your symptoms.On the job front, since you are unable to get benefits could you ask your employer if you could work parttime and try fitting in your work around your symptoms. Some employers are willing to help you work for them by making your schedule a little less hectic or by allowing you to work home sometimes. Do not throw in the towel until you have explored all the options available to you. Also some employers may be able to send you to an occupational medical practitioner who can recommend alternative work patterns or concessions to your employer to help you while your not feeling well. Stick with it - I know its hard - but things can only get better when you hit rock bottom.I hope things get better real soon, I'm keeping my fingers crossed for you.{{{{{hugs}}}}}Clair

 

[Clair]

jinjin,Sorry to hear that your feeling so down in the dumps at the moment {{{{{{hugs}}}}}}.I am sure the vast majority of sufferers on this bulletin board can totally identify with how your feeling right now - isolated, alone and fighting on your own. That is why we all come here to find valuable information as wellas great support and friends who understand - for the most part we are a great bunch.Because doctors do not yet understand the cause of irritable bowel syndrome there is yet a cure, and we often feel let down by everyone around us for not understanding what we go through including the medical profession.You are not alone we are all here for you and all in the same boat.However, there are things you can to do to improve the situation including educating your employers, colleagues, friends and family.There are publications available that can help explain IBS to non sufferers and help them understand what we go through on a daily basis.There is a tape called the IBS Companion which has been specially written by one of the leading clinical hypnotherapists in the country who specialises in treating IBS sufferers this is available at minimal cost at http://www.ibsaudioprogram.com. There is also a good brochure in simple language which is useful written by one of this bulletin board's members this can be found at http://www.ibsgroup.org/main/brochure.html These are good places to start, also try reading as much as you can from this bulletin board as you can pick up some fantastic tips to help you deal with your symptoms.On the job front, since you are unable to get benefits could you ask your employer if you could work parttime and try fitting in your work around your symptoms. Some employers are willing to help you work for them by making your schedule a little less hectic or by allowing you to work home sometimes. Do not throw in the towel until you have explored all the options available to you. Also some employers may be able to send you to an occupational medical practitioner who can recommend alternative work patterns or concessions to your employer to help you while your not feeling well. Stick with it - I know its hard - but things can only get better when you hit rock bottom.I hope things get better real soon, I'm keeping my fingers crossed for you.{{{{{hugs}}}}}Clair

 

[ohnometo]

Trust me you are not alone...I dont know how in the world I made it here at work this morning...I am so sick with this stuff, I have already got sick two times one on the way to work and another time while ago..I am freezing so bad and and cant get warm and my stomach is killing me..I usually have D but now I cant go..I really made myself come to work now hopefully I will get better because I would have to call someone to come and get me because I dont think I can drive....

 

[ohnometo]

Trust me you are not alone...I dont know how in the world I made it here at work this morning...I am so sick with this stuff, I have already got sick two times one on the way to work and another time while ago..I am freezing so bad and and cant get warm and my stomach is killing me..I usually have D but now I cant go..I really made myself come to work now hopefully I will get better because I would have to call someone to come and get me because I dont think I can drive....

 

[jinjin]

Thanks for the moral support. I feel that living with IBS,Adhesions and Divirticulosis(dont know how to spell) has restricted my life.It prevents me doing things others take for granted,for instance shopping,car and bus journeys,long distance travel,going for walks or visiting friends.When diarrhoea is the problem I have to plan around toilets in everything I do. I cannot eat is I am at work as panic in case of accidents. When Pain is the sympton I have to stop everything because the agony keeps me in bed. When wind is a problem I cannot socialise or see people as bery embarrising.The blating of the tummy is bad and people even ask when is the baby due. I find my problem of great embarrsement wind,incontinence, haveing to ruch to the toilet, being doubled up with pain, Panic attacks and sweating with pain.Last but not least not ever fitting into any of my clothes comfortably.

 

[jinjin]

Thanks for the moral support. I feel that living with IBS,Adhesions and Divirticulosis(dont know how to spell) has restricted my life.It prevents me doing things others take for granted,for instance shopping,car and bus journeys,long distance travel,going for walks or visiting friends.When diarrhoea is the problem I have to plan around toilets in everything I do. I cannot eat is I am at work as panic in case of accidents. When Pain is the sympton I have to stop everything because the agony keeps me in bed. When wind is a problem I cannot socialise or see people as bery embarrising.The blating of the tummy is bad and people even ask when is the baby due. I find my problem of great embarrsement wind,incontinence, haveing to ruch to the toilet, being doubled up with pain, Panic attacks and sweating with pain.Last but not least not ever fitting into any of my clothes comfortably.

 

[ohnometo]

JinJinI am sorry that I wasnt much support to you earlier..My pain is letting up somewhat and I didnt have to leave work they just let me close my door and I am so grateful it got bearable...I hope you are feeling better

 

[ohnometo]

JinJinI am sorry that I wasnt much support to you earlier..My pain is letting up somewhat and I didnt have to leave work they just let me close my door and I am so grateful it got bearable...I hope you are feeling better

 

[Mike NoLomotil]

JINJIN:I feel like one of those spooks in Poltergeist 'We're HERE!!!"

If you get this book, read it, not only will you see that you are not alone BUT you may see some of your own situation described, and some ways of dealing with in that your current practitioners do now know. It is absolutely worth the $18 (of which I get none, mind you, I simply know the author, a reknowned immunologist/allergist/Environmental medicine/and pathology specialist):"FOOD ALLERGIES AND FOOD INTOLERANCE: THE COMPLETE GUIDE TO THEIR IDENTIFICTION AND TREATMENT", Professor Jonathan Brostoff (M.D.. Allergy, Immunology and Environmental Medicine, Kings' College, London)http://www.amazon.com/exec/obidos/ASIN/089...r=2-1/102-64875 08-3420903[/URL]We're out here!!!

MNL

 

[Mike NoLomotil]

JINJIN:I feel like one of those spooks in Poltergeist 'We're HERE!!!"

If you get this book, read it, not only will you see that you are not alone BUT you may see some of your own situation described, and some ways of dealing with in that your current practitioners do now know. It is absolutely worth the $18 (of which I get none, mind you, I simply know the author, a reknowned immunologist/allergist/Environmental medicine/and pathology specialist):"FOOD ALLERGIES AND FOOD INTOLERANCE: THE COMPLETE GUIDE TO THEIR IDENTIFICTION AND TREATMENT", Professor Jonathan Brostoff (M.D.. Allergy, Immunology and Environmental Medicine, Kings' College, London)http://www.amazon.com/exec/obidos/ASIN/089...r=2-1/102-64875 08-3420903[/URL]We're out here!!!

MNL

 

[Guest]

Hi JinjinRead your message and can relate to your problems of anxiety. I'm not sure what came first for me, the anxiety or IBS but as a result i have been agoraphobic for the past 2 years. I too worry about going out and not finding the toilet quick enough or fainting etc. I have been a lot better this past year as i learnt relaxtion techniques that helped me too relax. I've refused any antidepressants as i feel they don't really help. I hope you can find someone close to you who you can trust and talk too about these fears, please don't hide them because that's what i did.Try to keep yourself mentally busy when you feel yourself worrying, do something you enjoy to make you feel better about yourself. Anyway, enough of my talking

and to end on a cheesy note, you're not alone.Take lots of care

 

[Guest]

Hi JinjinRead your message and can relate to your problems of anxiety. I'm not sure what came first for me, the anxiety or IBS but as a result i have been agoraphobic for the past 2 years. I too worry about going out and not finding the toilet quick enough or fainting etc. I have been a lot better this past year as i learnt relaxtion techniques that helped me too relax. I've refused any antidepressants as i feel they don't really help. I hope you can find someone close to you who you can trust and talk too about these fears, please don't hide them because that's what i did.Try to keep yourself mentally busy when you feel yourself worrying, do something you enjoy to make you feel better about yourself. Anyway, enough of my talking

and to end on a cheesy note, you're not alone.Take lots of care

 

[MsMinnie]

Hi,Not much to smile about these days. I can feel for you. I have had IBS D since Middle School. It comes and goes, but this time it came back two years ago, I never had it so bad.The sweating is one of the most uncomfortable parts I have to deal with, then there is the cramping, shaking, feeling scared and then feeling so cold when it is over. Also getting out of the house on time can be a hassle. Nobody knows what we are going through except ourselves and the people on this board.I to feel isolated. When it first came back it would wake me in the early morning all sweaty, shaking, scared and heading for the bathroom. Then I sit at the living room window and watch the neighbors go on with there life, while I wait for another attack. I don't know why, but I would all ways try to be back in bed before the house gets moving in the morning. At this time, I don't feel I could hold down a full time job. It is embrassing for me to go to the bathroom 3 or 4 times, when no one else has even moved. It makes my life very difficult. I volunteer in the Library at my sons scool in the AM, (am not my choice, but did not have a choice), I go around putting books away, etc., sweating my a** off, very uncomfortable. When I do head to the bathroom, I am so anxious, I can't relax and have a movement, (unless it is a very bad morning for my IBS D), I go back into the library and do my thing. It is soooo nice to get home and relax on your own throne. Knowing you made it home.

I feel safer at home, that is a big part of our isolation.This has lasted 2 years this time. I hope it stops soon and gives me a break. I have an appt. with the doc soon, cause of a bad attack few weeks ago. I think about cancaling it, (whats he going to do for me?), then I have a bad morning, and think, well it can't hurt to talk with him again.Hang in there, I also look for the rest rooms, (first), were ever I go.MsMinnie

 

[MsMinnie]

Hi,Not much to smile about these days. I can feel for you. I have had IBS D since Middle School. It comes and goes, but this time it came back two years ago, I never had it so bad.The sweating is one of the most uncomfortable parts I have to deal with, then there is the cramping, shaking, feeling scared and then feeling so cold when it is over. Also getting out of the house on time can be a hassle. Nobody knows what we are going through except ourselves and the people on this board.I to feel isolated. When it first came back it would wake me in the early morning all sweaty, shaking, scared and heading for the bathroom. Then I sit at the living room window and watch the neighbors go on with there life, while I wait for another attack. I don't know why, but I would all ways try to be back in bed before the house gets moving in the morning. At this time, I don't feel I could hold down a full time job. It is embrassing for me to go to the bathroom 3 or 4 times, when no one else has even moved. It makes my life very difficult. I volunteer in the Library at my sons scool in the AM, (am not my choice, but did not have a choice), I go around putting books away, etc., sweating my a** off, very uncomfortable. When I do head to the bathroom, I am so anxious, I can't relax and have a movement, (unless it is a very bad morning for my IBS D), I go back into the library and do my thing. It is soooo nice to get home and relax on your own throne. Knowing you made it home.

I feel safer at home, that is a big part of our isolation.This has lasted 2 years this time. I hope it stops soon and gives me a break. I have an appt. with the doc soon, cause of a bad attack few weeks ago. I think about cancaling it, (whats he going to do for me?), then I have a bad morning, and think, well it can't hurt to talk with him again.Hang in there, I also look for the rest rooms, (first), were ever I go.MsMinnie