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Discussion Starter · #1 ·
I have been struggling with this issue since July and as you all know has been a huge killer in terms of quality of life. I start each day feeling great but by lunch time I get a gurgling stomach in my mid section, followed by a feeling of slight inflammation/pain around my abdomen and then a general feeling of lethargy as the day moves on. I do have excessive gas after some meals, but my bowl movements have been completely normal during this entire episode. Gastro performed a colonoscopy and stomach endoscope in September and concluded I have IBS. He suggested I take the Promethus IBS blood test and will have those results later this week. My question is how can my Doctor claim I have IBS without diarrhea or constipation? There is something going on down there, but these seem like the two most common Rome III symptoms of IBS. I really think it is a small intestine bacterial overgrowth, but it seems that would trigger diarrhea or constipation as well.
 

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Pain is often the main symptom of IBS.The associated with a change in stool frequency or stool consistency does NOT mean you have to have moderate or severe diarrhea or constipation.Additionally IBS is not the one and only functional bowel disorder. Most of the rest are "not quite enough symptoms for IBS" and a lot of doctors use IBS as short hand for all of the functional bowel disorders. Usually less symptoms than IBS means other functional bowel problems not something much more serious. If every stool is the exact same frequency and consistency as before, then it is chronic functional abdominal pain. I do not know how the other functional disorders show up on the prometheus test.Although the prometheus test may still be a good idea as if you actually have celiac disease it will twig that and you may need more testing to check that out.You may just have just had a shift in the colon bacteria (the ones in the colon are always much higher than in the small intestine no matter how bad the SIBO is the colon still has way more bacteria) from ones that produce less gas to ones that produce more. However that you have pain rather than just painless gurgling and farting tends to indicate there is something functional (like IBS-lite) going on. It may be worth checking to see if you do better reducing either (or some combination of) starches or lactose or fructose which are major gas producers. Some people do well on a generalized lower carb diet as that pretty much takes out most of the things that feed the gas producing bacteria. You can have plenty of gassy bacteria in the colon all by itself. It may be worth trying a probiotic to see if that reduces the gas. Peppermint (if you don't have heartburn) can be a good pain reducer and I keep some Peppermint Altoids on hand for that as they are cheap and easy to get around here.
 

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Discussion Starter · #3 ·
Thanks for the great feedback. What leads me to believe it might be SIBO is that I had a small intestine spasms in March of this year. My primary care Doctor prescribed a round of antibiotics at the time and the symptoms completely went away until July and came back full force. In July my primary care thought it might be my Gall Bladder which was negative and then he sent me to a Gastro and recommended a colonoscpy and endoscope which came back as normal. I tried a Gluten free diet last week and that worked for a while but symptoms came back strong so I don't think it is Celiac. I was eating a lot of rice during this time so I will cut out carbs and see if that helps. Can my primary care Doctor perform the SIBO breath test or should I see my Gastro to have this test done? I read a lot of posts where it is difficult to find a testing facility.
 

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I'm not sure who can order it of your doctors, may be better to work with the GI doctor. Sometimes people need to go to a fairly large hospital to get it done so you might need to get a referral from one or the other to a place that can do it depending on where you are.
 

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Discussion Starter · #5 ·
Well a fun couple weeks. I took the Hydrogen Breath Test on 12/21 and my results were off the charts for Bacterial Overgrowth. My GI put me on Xifaxan at 600mg per day which may not have been enough to help. I see slight improvement in discomfort but still something is off. Taking Align and IBS Advantage to try and ward off the bacteria from coming back. Funny is that my Primary Care Physician but me on Sipro last March and I was fine for 6 months. My GI was out last week and has not returned my call. The most frustrating part of this entire experience is the lack of solutions from my GI. I was the one suggesting the Breath Test and Xifaxan. It is like if I don't have something that requires major surgery they don't want to deal with me. He seems to be like you have IBS and there is nothing we can do.
 

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It is like if I don't have something that requires major surgery they don't want to deal with me. He seems to be like you have IBS and there is nothing we can do.
Yah.. sounds familiar. But I try to just think of it as 'I am in charge of my care and I will use the Docs to get any rx's I need and mostly manage things myself'.... including all of the research etc and what to ask THEM for.. because.. usually?? they just don't know and are happy when I seem to know what I want try. So I think they just write the scripts (if any are necessary) and escort me out with "Let me know...." etc... yeah. Whatever... I use Dr only for rx's. I figure the rest of managing these symptoms is up to me. Saves being constantly disappointed in Dr.'s or the medical profession.Brian go to our "Antibiotics: Bacterial Overgrowth Specific medication" Forum and you will find loads more info.(Use the Site Navigator down on the bottom right of every page here.)Also keep in mind.. many people with SIBO have found that they need to re-do the antibiotic therapy every once in awhile to maintain symptom management. So you kind of need to find a Dr that will prescribe them every once in a while for you.PS I know it was the Holidays...BUT you didn't hear from your Dr... since you called last week?? What do you think would happen if we didn;t return calls when working?? We'd be fired. So??? Fire him. Find a new Dr.
 
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