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Discussion Starter · #1 ·
I've had ibs-d for 7 years and I have tried everything, every drug, diet you name it. I live in canada where health care is free in ontario. I finally spent the money to go to the mayo clinic.They prescribed latronex and Fedotozine and they work. I've only been on them for 3 weeks adn I already have my life back. If you've tried everything try this. Thank God!!!
 

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I think Ricki-Lee means Lotronex, which is not for everyone and certainly not a cure. Once you stop taking it your symptoms come right back. A cure would be that you never have ibs-d again, even after you stop the meds. Lotronex has a max dosage and once that max is reached and doesn't work anymore you're out of luck. That's why my dr won't let me take more than one tablet per day now, so I take my one plus 3 immodium. I was on Lotronex before it was withdrawn from the market several years ago and felt I was cured then, too. But not anymore.
 

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Flux said that Fedotozine FAILED the clinical trial.If this guy say that he is cure,he should come back here!
 

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Anyway ibs-d seems easier to cure than ibs-c.But i will send an e-mail to this guy.
 

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NO, i swing both ways with it, and i find that being C is by far the most uncomfortable. At least with D you know where you are, with C- i feel blaoted, uncomfortable and nervous the whole time.
 

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I think there is NO comparing. Both suck equally. I am D type and I still get sore, bloated and gassy as well as unpredictable D. The worst thing about D is how it ruins your life as you are constantly worried about when and where it will happen next. Come to think of it, I think that D type is more psychologically impacting. It has made me a very anxious and depressed person.
 

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Discussion Starter · #12 ·
Hi every one,I just wanted to see the response I got first before i posted again. More info on me. I am 22 years old and a female living in ontario canada. ive had ibs-d for 7 years. I tried everything, buscopan, dicetel, etc. I used a narcotic oxycocet for pain management and it works very well but it is addictive so you have to be careful. i have used it for 2 years but am not addicted so it can be done.i used to have 2-3 bowel movements each day with unbearable pain. I had to drop out of university in my 3rd year bc my symptoms were so bad i would often pass out from the pain. To prevent this i used ativan and that seem to keep me from hyperventilating.Health care in ontario is free but really slow. I got fed up and went to the mayo clinic in the states and they confirmed that i did have ibs. You know that study on the main page at the mayo, i am in that. it's just a small questionar about your family history and a blood sample. my grand father had ibs.Anyway, you're right about fedotozine (tramadol is the other name, it is not in canda yet) being banned in combination with lotronex(sorry about spelling error). This is bc the two together can have the side effect of seizure but this is a 1 in 700 chance. My doctor and i discussed this and decided the risks were worth it. I take a very low dosage of both and that seems to be all i need. In fact i think i am having too much lotronex bc i started having constipation which i have never had before. so eat lots of fibre. The lotronex I take is in pill form( its a big one too) if you would like exact dosages email me. I will answer all your questions. Maybe my health is a reaction of the two drugs combined. Thanks for the feedback everyone. Feel free to call me too, 18885273316 in canada.
 

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Discussion Starter · #13 ·
also, if you don't have both ibs-d and ibs-c than you have no way to compare. We all know how much people don't believe us or don't understand your pain. If you have only ibs-d or ibs-c and you are saying one is worse than the other, your are effectively saying I don't believe you. We all hate that so try to keep this discussion just for those who have both in the interest of other people's feelings.
 

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If you go to the toilet 2 or three times a day dosen't mean that you have diarrhea.You can go and just do little and have a feeling of incomplete evacuation.That is CONSTIPATION!!!Do you was feeling that before your "cure"?I think that most of the ibs-d type are in fact ibs-c by making the mistake that i just talk above.
 

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Discussion Starter · #15 ·
NO, Spasman,I would have large amounts of liquid stool each day. Constipation in regards to ibs is clinically diagnosed as peristalysis of the gut so that stools are pushed in both both directions within the intestines whereas ibs-d is is peristalysis of the gut behind the stool making it move faster in the proper direction but not allowing for absorbtion. in ibs-c the peristalysis happens both before and after the stool causing more water than normal to be absorbed. Constipation and slow bowel motility are not the same thing!
 
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i know this is off topic but its interesting how you describe constipation in ibs c. can you elaborate. are you saying that in people wiht ibs the stool is pushed out and also in? and thats the feeling of incomplete evacuation we get? and that this is a different mechanism from just normal C in normal folks. Where did you hear this? I find this really interseting and never heard it before. Is this something they talked about at the Mayo clinic? Which Mayo did you go to? What tests did they perform before you got your drugs. Please tell us about your experience there. Thanks, Susan
 

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Discussion Starter · #18 ·
Hi susan,Yes, in people with ibs-c the stool is effectively pushed one direction and then the other. This usually occurs in the large intestine. The feeling of incomplete evacuation is because the peristalsis in the colon pushes the stool in the correct direction, towards the anus and you go to the bathroom. Then another way of peristalsis comes which should push the next bit of stool into the rectum. The reason it doesn't adn instead pushes the stool back in the wrong direction-back up the large intestine- is because of the location of the start of the peristalsis or the squeeze. To push a stool in the right direction the squeeze must begin behind the stool. But in ibs-c the squeeze often starts infront of the stool. This means the stool can be pushed back and forth in the large intestine. The longer it stays in the large I. the hard it will become as more water is absorbed. In people with ibs-d the peristalsis or squeeze is happening in the proper place, behind the stool but it happens too often so the stool is pushed too quickly out of the large intestine without all the water being absorbed.Much of this information does come from the ibs clinic that the mayo clinic runs. I went to the one in Rochester MN. They did all the standard test- colonoscopy, endoscopy, barium swallow, eating a radioactive egg, bloodwork, ct scans, ultrasounds. All came up negative.
 

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Why radioactive egg and ct scan?All this probablycost more that i could think.
 

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Discussion Starter · #20 ·
The radioactive egg was a 3 day test to monitor the rate of bowel motility within the gut. The ct scan is just standard procedure. You're right it was very expensive, expecially for a canadian. It was about 11,000 US= 17,000 canadian total. But you can pick and choose which tests you want to have done, based upon financial situation. I asked for a total workup.
 
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