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Discussion Starter · #1 ·
This site has helped me so much.Thank you for it! However, I have never seen this topic addressed before. I have been having total fecal incontinence and it is happening more often. It is very frightening as I never have any warning. Does it happen to anyone else and how do you cope with it?
 
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yes I am 31 now but it started when I was 26I thought that I was going to go crazy: stayed in the house all of the time and declined all invitesnow I've found help with caltrate in the purple and white box. I take three a day before meals. I had mainly diarrhea and now I do not at all. then I had a problem of urgency but after about 1 month on Caltrate I have very little problems. Please search for caltrate by choosing the search prompt and you can read exactly how and why it works and most people on this board have found it to be the answer to their probbems.good luck but I am sure you will be please after a month on Caltrate. You can buy it at sav ons or any drugstore. If you live outside of the US then look for calcium that contains carbonate and vitamin D.
 

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Sally Jane, I hope you are under a doctor's care. You should not suffer total fecal incontinance alone. Don't be ashamed. March right in there and demand help. You could be losing too many fluids like this.Yes, it happens, but it shoud be transitory. You may have found your Big Trigger Food.I have been on the Caltrate for two weeks, and so far, so good. I have had NO IBS attacks at all. It seems too good to be true, but I'm hoping!!
 

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You should get this checked out to be sure there is no underlying problem. Your doctor could offer suggestions.If it is D you might try fiber, like Metamucil for bulk or probiotics to restore your natural intestinal flora. Culturelle is a probiotic that works for me and almost eliminates gas as well as bouts of D. It can be taken with or without food and doesn't need to be kept in the fridge.Let us know what happens.------------------vikee
 

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Sally Jane, I just read your post and felt I needed to reply.Is your bowel incontinence due to diarrhea, or do you have more normal stool, just don't have the control?I had been suffering from bowel incontinence for the last 7 years. It finally got to the point that I did not want to go anywhere or do anything and when I did, I took changes of clothes, diapers, towels, etc. It was awful. My stool would sometimes be mushy, with little form, other times hard--more like constipation, and only occassionally would it be more like diarrhea. But, the embarrassment!!! No control. Anyway, a year ago this month, I finally went to see my regular Doc and told him that this was not living, this was simply existing and I wasn't going to live like this anymore. (Thru the years, every time I would mention the incontinence to the G.P. and to a Gastro., they would say, "it's the colitis, that's what colitis does".) My Doc referred me to a Colon/Rectal Specialist/Surgeon. He found that: #l. A piece of intestine had fallen down and was resting on the pelvic floor---it was in a fan-shape pattern and would kink off sometimes, resulting in frequent, but small movements and then a "sudden" rush of a huge amount when I would move, or whatever and "unkink" it. And, it was full of diverticulosis. #2. I only had about a 1/2" of sphincter muscle that was good. The rest had been damaged due to bad episiotomies, fast childbirth, and damage from a hemmorrhoidectomy. #3. The Levator muscles were so weak, I basically didn't have any!After a number of test, etc. this is what was decided:phase #1 surgery involved removing the bad section of colon (Sigmoid Resection) and straightening the vagina and rectum again--the intestines had rested on these and they needed to be straightened and tacked back in place (vaginalpexy and rectopexy). After 3 months of healing, Phase #2 surgery was done which involved tightening the sphincter muscle and the levator muscles (Sphincteroplasty and a Levatorplasty). Granted, this was not easy surgery by any means, but the Surgeon was confident that it would give me back some semblance of a more "normal" life again. There is the possibility that I will need a permanent colostomy later on, but it's bought me hopefully about 6 to 10 "good years" before I have to deal with that.Recuperation has taken a whole year and the Sphinteropexy and Levatorpexy are not considered fully healed until May of this year, but, I am beginning to see the end! Stool is now "normal" and easy clean-up, and I have more control. I can now "hold" it a little and it gives me time to be able to get to a bathroom safely. That, in itself, is wonderful!! I hope I haven't offended anyone here by being so forthright, but I think it's important that others know that it's possible to gain back some control, depending on what the causes are. If anyone has any other questions about any of this, please feel free to e-mail me directly, or post to me on this Board. I've been around for a year on the Boards here, but I'm mostly at the Fibromyalgia, Chronic Fatigue site because I suffer from those culprits also! And the interesting thing about that is that most of us with the Fibro have IBS, too!Take care.Hope this helps you. Remember, you are not alone.Karen------------------There is a silent strength within each soul, and that strength is multiplied for those who remember that they do not walk their path alone. Thomas J. Edwards
 

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Discussion Starter · #6 ·
Thanks to all who have responded to my problem with incontinence. I am seeing a therapist and talking Zoloft and Xanax for the anxiety. I have a colonoscopy every 3 yrs (and am overdue right now). I do have "normal" days but I never know what triggers this. I have been taking the Caltrate for some time and it seems to help. I am going to start taking more and see if this helps.I will let you know and God Bless you All!
 

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BOY, I felt like I was reading my own post!! I am really struggling with this as well. I have become EXTREMELY afraid to leave home after 3 embarrassing accidents in public within the last year. I've been hold up in this house for 4 months (minus one trip to my Mom's house for Christmas dinner, and I only made it THERE because they live just 5 minutes away...) because of it. I have become very withdrawn, depressed, afraid and just paranoid in general. I have cancelled 2 doctor's appointments because of my fear to go out, and I wish I'd kept them now. I have an appointment Thursday that I am GOING to keep. If I have to strap on an undergarment, then I will just do that. I know that if I don't get ahold of myself now, I'll never leave home again, and that is a scary thought. So believe me, I can understand 100% what you're going through. Scan through some of the "Most Embarrassing Moments" topics, and you will quickly see that you're not alone. There's been some debate here on the bulletin boards about whether those stories actually help or hurt. I personally benefit just from knowing that I'm not alone, and knowing how other people react in these situations. I will try to find those topics and bump them up for you. You are not alone
I'm right there with you...please email if you would like to talk some more!!
 

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Discussion Starter · #8 ·
AMcCall, Thanks for making me feel I'm not the only person with this problem. I have found out that if I don't eat before I go out I can feel safe. I always have my Imodium in my purse. I don't leave home without it.Sometimes I take one before I leave the house. I know I am not one to be giving advice but I also take Xanax for the anxiety. Without it, I doubt if I would have the nerve to leave. I have now read some of the "most embarrassing moments" and I guess I have been lucky. Only once did I not make it home and I was in my own car. The Xanax helps me feel more comfortable about leaving the house. If you are not taking something for anxiety,I would suggest you try it. Thanks again and God Bless us all!
 
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