[ira]

Hello:Lately, one of the IBS symptoms I've lived with for years has worsened.I get this intense sensation of pain/pressure in my lower GI which descends to the rectal area.I feel this strong urgency to have a bowel movement, even though I may have had a recent BM. When this happens, it also causes urinary urgency. Makes it hard to sit sometimes.All too often, this rapidly generates upwards, and I experince quite intense headaches along with the lower GI tension.Actually, my entire body starts to feel tensed up when this "sensation of incomplete evacuation" gets bad. When it gets this bad, I can scarcely do anything without feeling exhaustedThis pattern is dramatically exacerbated if there is the slightest degree of sleep loss. In some sort of vicious cycle, this very pain makes it diffcult ot sleep.While a mild laxative brings temporary relief to this syndrome, it rapidly returns within a day.I haven't yet found a fiber source which helps this. Often, they seem to make things worse.Any suggestions?-Ira

 

[Guest]

hello hello hello!! i have such similar symptoms. wow!! i totally get that thing where it goes up. i get tension in my chest, then throat, and get a headache. if i don't pee or poop right away wheni get the urge i get a headache immediately. but all goes away temporarily when i pee. i can also get severe tenision in my arms and legs when having these issues.nothings really helped me with this so far. it waxes and wanes with intensity too - so i bet it won't be this intense for you for long. i think our problem has to do with all the nerves getting crazy signals and it all being connected. sometimes i fart just a little and my all over body tension is relieved. what felt like a GREAT pressure is gone wiht just a little fart. sometimes the pressure signals that i have a lot of gas inside. so its so confusing. but i think the bottom line is our nerves are OVER responding.have you tried acacia root (fiber)?have you tried Paxil?have you tried Levsin?have you tried low carb?those were the things that helped me most.also, do you get worse when you've had a bowel movement - like the bm makes you feel better temporarily, but you KNOW after that empty feeling is going to come TERRIBLE pressure - usually in the evening or next day. i almost do best slightly constipated b/c it seems to even things out for me.

 

[Guest]

hello hello hello!! i have such similar symptoms. wow!! i totally get that thing where it goes up. i get tension in my chest, then throat, and get a headache. if i don't pee or poop right away wheni get the urge i get a headache immediately. but all goes away temporarily when i pee. i can also get severe tenision in my arms and legs when having these issues.nothings really helped me with this so far. it waxes and wanes with intensity too - so i bet it won't be this intense for you for long. i think our problem has to do with all the nerves getting crazy signals and it all being connected. sometimes i fart just a little and my all over body tension is relieved. what felt like a GREAT pressure is gone wiht just a little fart. sometimes the pressure signals that i have a lot of gas inside. so its so confusing. but i think the bottom line is our nerves are OVER responding.have you tried acacia root (fiber)?have you tried Paxil?have you tried Levsin?have you tried low carb?those were the things that helped me most.also, do you get worse when you've had a bowel movement - like the bm makes you feel better temporarily, but you KNOW after that empty feeling is going to come TERRIBLE pressure - usually in the evening or next day. i almost do best slightly constipated b/c it seems to even things out for me.

 

[Guest]

sleep loss affects my symptoms too. curiuos what else affects yours.being cold and any kind of body tension makes my urgency issues/incomplete evac. issues/bloating 10 times worse.i can't wear clothing that touches me around the middle or even hip area - makes it really hard to dress.caffeine and laxatives make things much much worse for me in the long run - even though they provide temp. relief.

 

[Guest]

sleep loss affects my symptoms too. curiuos what else affects yours.being cold and any kind of body tension makes my urgency issues/incomplete evac. issues/bloating 10 times worse.i can't wear clothing that touches me around the middle or even hip area - makes it really hard to dress.caffeine and laxatives make things much much worse for me in the long run - even though they provide temp. relief.

 

[ira]

Joan of Arc wrote:

quote: have you tried acacia root (fiber)?have you tried Paxil?have you tried Levsin?have you tried low carb?

Thanks for your posts, JoanNo, I don't know what acacia root or Levsin are . I can look into it though.As for Paxil, I had several antidepresants of the SSRI family prescribed for me for depression years ago. I doubt Paxil was one of them. I recall Prozac and i think Zoloft. I couldn't stay on these more than a day or two . Felt too speedy. I'm wondering about antidepressants of other families. I had problems with the tricyclics as well, and had to discontinue themI can't do my basic chores without coffee. Yep, it gives me temporary relief only. In the long run, it might be making matters considerably worse.Often, even the smallest BM can give immediate relief, short-lived though this often is.Things which exacerbate all this, aside from sleep loss, are anger and frustration.I'll think if I can recall other factors.Acupuncture has proved somewhat helpfulIt also helps some if I can take about two hours to myself upon awakening. Not easy to come by though.It's rather bizarre to actually feel the tension sink from my lower GI to the rectal area, then jump up to my head. Sometimes, it's felt as a pressure on the bottom of my feet. It almost seems as if I can't tell what is hurting anymore. But when I take a moment to collect myself, I can somehow intuit the pain as originating in the lower GI. And in fact, timewise, it does begin there This is one of the most stressful and frightening periods in my life, so perhaps that stress is what is driving these symptoms. But it's also a period during which I can least afford to be incapacitated. Quite a dilemma.-Ira

 

[ira]

Joan of Arc wrote:

quote: have you tried acacia root (fiber)?have you tried Paxil?have you tried Levsin?have you tried low carb?

Thanks for your posts, JoanNo, I don't know what acacia root or Levsin are . I can look into it though.As for Paxil, I had several antidepresants of the SSRI family prescribed for me for depression years ago. I doubt Paxil was one of them. I recall Prozac and i think Zoloft. I couldn't stay on these more than a day or two . Felt too speedy. I'm wondering about antidepressants of other families. I had problems with the tricyclics as well, and had to discontinue themI can't do my basic chores without coffee. Yep, it gives me temporary relief only. In the long run, it might be making matters considerably worse.Often, even the smallest BM can give immediate relief, short-lived though this often is.Things which exacerbate all this, aside from sleep loss, are anger and frustration.I'll think if I can recall other factors.Acupuncture has proved somewhat helpfulIt also helps some if I can take about two hours to myself upon awakening. Not easy to come by though.It's rather bizarre to actually feel the tension sink from my lower GI to the rectal area, then jump up to my head. Sometimes, it's felt as a pressure on the bottom of my feet. It almost seems as if I can't tell what is hurting anymore. But when I take a moment to collect myself, I can somehow intuit the pain as originating in the lower GI. And in fact, timewise, it does begin there This is one of the most stressful and frightening periods in my life, so perhaps that stress is what is driving these symptoms. But it's also a period during which I can least afford to be incapacitated. Quite a dilemma.-Ira

 

[knothappy]

I get some of those same feelings, if I have to pee at night( and it is 5-6 times a night) and I want to ignore it and try and try to hold it I start feeling sick, get tension in my chest, same with pooping only I cannot hold that for long!!!!

 

[knothappy]

I get some of those same feelings, if I have to pee at night( and it is 5-6 times a night) and I want to ignore it and try and try to hold it I start feeling sick, get tension in my chest, same with pooping only I cannot hold that for long!!!!

 

[Guest]

hi konthappy - oh i know exactly what you mean. its the worst isn't it. does the pressure in your chest eventually go into yoru throat and then head? mine does. when i have ot pee and i'm holding it (which isn't for long) i get a feeling in my mouth like i had some sour candy - and the pressure in chest and headache. its awful yuck! glad to see someone can relate tho. i know this is all weird nerves and we are not crazy!ira,i took a VERY small dosage of prozac and thought i might start killing people - i felt that out of control and speedy - it was so scary and AWFUL - had to go off of it and PRAY i'd return to normal. i did, thank god. Paxil does act differently from prozac. in my experience prozac is very harsh. paxil made me feel speedy but i had to take a lot more and it did give me relief from some of these symptoms. it did not make me feel homicidal but during the last few months on it i did feel sort of on the edge and had to stop. i'd try it and see how it goes for you tho - just in case it proves helpful. i think it would help with what i believe has a lot to do with colon sensitization - what we are experiencing.i think the coffee could be messing with you too. in my experience its having the bowel movement that makes me feel better b/c it kind of completes the wave that is the pressure - not really having empty bowels b/c i've found i feel worse on empty bowels - felt TERRIBLE after mirilax tho i thought it helped me at first. so this stimulation that coffee brings is kind of a mixed bad of tricks. i think you should try staying off the laxatives (coffee being that) try not stimulating your bowels at all (stay off a lot of grease and sugar) and really bone up on the soluble fiber. acacia root is soluble fiber. i'd give that 4 weeks and see what happens. OR you could try getting prescription for Mirilax and see if that helps - if it makes you really sick as it did me - that is still a helpful clue as to what is going to help and also what is going on in the bowel. levsin reduces spasms and slows the colon down - its a med - and i think it might help you too as i bet part of your problem is spasms. it did not contipate me, but rather gave me more smooth bowel movements with less urgency. it has sideeffects though that again i could not tolerate. for me it was not hte answer but i think it has helped lots of folks with problems similar to ours. if think with us 3 our problem is probably - hypersensitivity in the colon, disorganized bowel contractions, colon that is full in parts empty in others and the 3 kind of feed off of each other. but i think the main thing controlling this is screwed up colon sensitivity.if you want to hear weird: sometimes i can't wear socks that are tight b/c the full in the chest feeling i get from having to pee or poop happens from the socks around my calves??!!! - and it makes my ibs so much worse too - same with tight shoes and clothing that even touches my abdomen. its very bizarre - but i feel like my nerves are ALL connected and sensations seem to be centered on this pressure from the inside out thing and muscles are unable to relax - my whole body gets caught in a wavelike spasm if it feels tension of anykidn anywhere. i think to get to the root of this stuff we have to play with seratonin or other neurotrasmitters b/c they are clearly part of this process. i'm glad to meet some folks who have ibs that is not the typical C,D,G thingy. i think we should stay in touch! i hope you don't think i'm nuts.-susan

 

[Guest]

hi konthappy - oh i know exactly what you mean. its the worst isn't it. does the pressure in your chest eventually go into yoru throat and then head? mine does. when i have ot pee and i'm holding it (which isn't for long) i get a feeling in my mouth like i had some sour candy - and the pressure in chest and headache. its awful yuck! glad to see someone can relate tho. i know this is all weird nerves and we are not crazy!ira,i took a VERY small dosage of prozac and thought i might start killing people - i felt that out of control and speedy - it was so scary and AWFUL - had to go off of it and PRAY i'd return to normal. i did, thank god. Paxil does act differently from prozac. in my experience prozac is very harsh. paxil made me feel speedy but i had to take a lot more and it did give me relief from some of these symptoms. it did not make me feel homicidal but during the last few months on it i did feel sort of on the edge and had to stop. i'd try it and see how it goes for you tho - just in case it proves helpful. i think it would help with what i believe has a lot to do with colon sensitization - what we are experiencing.i think the coffee could be messing with you too. in my experience its having the bowel movement that makes me feel better b/c it kind of completes the wave that is the pressure - not really having empty bowels b/c i've found i feel worse on empty bowels - felt TERRIBLE after mirilax tho i thought it helped me at first. so this stimulation that coffee brings is kind of a mixed bad of tricks. i think you should try staying off the laxatives (coffee being that) try not stimulating your bowels at all (stay off a lot of grease and sugar) and really bone up on the soluble fiber. acacia root is soluble fiber. i'd give that 4 weeks and see what happens. OR you could try getting prescription for Mirilax and see if that helps - if it makes you really sick as it did me - that is still a helpful clue as to what is going to help and also what is going on in the bowel. levsin reduces spasms and slows the colon down - its a med - and i think it might help you too as i bet part of your problem is spasms. it did not contipate me, but rather gave me more smooth bowel movements with less urgency. it has sideeffects though that again i could not tolerate. for me it was not hte answer but i think it has helped lots of folks with problems similar to ours. if think with us 3 our problem is probably - hypersensitivity in the colon, disorganized bowel contractions, colon that is full in parts empty in others and the 3 kind of feed off of each other. but i think the main thing controlling this is screwed up colon sensitivity.if you want to hear weird: sometimes i can't wear socks that are tight b/c the full in the chest feeling i get from having to pee or poop happens from the socks around my calves??!!! - and it makes my ibs so much worse too - same with tight shoes and clothing that even touches my abdomen. its very bizarre - but i feel like my nerves are ALL connected and sensations seem to be centered on this pressure from the inside out thing and muscles are unable to relax - my whole body gets caught in a wavelike spasm if it feels tension of anykidn anywhere. i think to get to the root of this stuff we have to play with seratonin or other neurotrasmitters b/c they are clearly part of this process. i'm glad to meet some folks who have ibs that is not the typical C,D,G thingy. i think we should stay in touch! i hope you don't think i'm nuts.-susan

 

[AD]

I am always bloated and can easil understand the pressure. The difference is that my temporary relief is about five minutes. It feels like my colon is infinite or that there is ALWAYS more solid, liquid, and/or gas to come.At times, I will feel a sense of pressure up near my shoulder blade. This is relieved when I expel gas. It seems to go from my abdomen, through the rib cage, and up to the shoulder blade. Usually, though, the worst of the bloating and pressure is under my rib cage. I think the nerves are all mixed up, signaling things that aren't there.I take Zoloft. While it has done wonders to block out depression (and at times, all emotion), it never has affected my IBS one way or another.

 

[AD]

I am always bloated and can easil understand the pressure. The difference is that my temporary relief is about five minutes. It feels like my colon is infinite or that there is ALWAYS more solid, liquid, and/or gas to come.At times, I will feel a sense of pressure up near my shoulder blade. This is relieved when I expel gas. It seems to go from my abdomen, through the rib cage, and up to the shoulder blade. Usually, though, the worst of the bloating and pressure is under my rib cage. I think the nerves are all mixed up, signaling things that aren't there.I take Zoloft. While it has done wonders to block out depression (and at times, all emotion), it never has affected my IBS one way or another.

 

[Guest]

AD my relief doesn't last very long either. I hear you and can relate to your symptoms.

 

[Guest]

AD my relief doesn't last very long either. I hear you and can relate to your symptoms.