Dear Members of the Same Boat
Society:It saddens me that so many people can find no one who can implement clinically a patient specific integrative therapy program. The prioblem is that the "tools" are all available, but very few practitioners understand all of them enough to integrate them. hence the need for agressive development of Disease Managment Programs for IBS too, not just diabetes and hypertension and wound care and urinary incontnence.Fortunatley this decade will see a rise in the ability of medicine to have access to protocols which provide guidelines on how optimize "INTEGRATED therapies to patient needs.Since we are not there yet, LOL and my dats are now completely consumed by the activity of managing an organization which pursues these ends agressively and is working with more doctors every dy on this approach, let me respond quickly to some specific common issues and make a sugestion or two which can help you each and others who may read this thread. First suggestion is to try to overlook my chronic typos....I cut corners for the sake of speed and this is one of them...no time to edit (no offline production just point and shoot). ____________________________________"or am I just suffering the consequences of a long-term eating disorder?If the latter is true,I should abandon attempts at dietary therapy.At the moment I'm in a right mess because I just don't know which road to go down." ____________________________________Part of the priblem that patients and practitoners get immersed in is a desire for a clear answer as to WHY their body is generating symptoms...and why it is in response to diet, to stress, to the phases of the moon.There are books which can help with that and you have to read each in context of what the authors background is, but here is one that is a good start as he covers things on
balance:IBS: A DOCTORS PLAN FOR CHRONIC DIGESTIVE TROUBLESBy Gerard Guillory, M.D.; Vanessa Ameen, M.D.; Paul Donovan, M.D.; Jack Martin, Ph.D.
http://www.amazon.com/exec/obidos/search-h...9085785-1742301 This pursuit of the causal basis of different persons onset of IBS symptoms is frustrating as the sum of the possible mechanisms is diversity itself.If you get the articel below, and look at this diagram in
it:: "Figure 1 . Pathogenesis of food hypersensitivity induced irritable bowel syndrome. the title is a misnomer as this diagram shows most of the integrative mechanisms of symptom generation, at least for the 70% of people who have diarrheic and pain componenets to their IBS no matter how intemrittent. It shows the interraction of the top-down model or the bottom up model. here is where to get the
article:Alimentary Pharmacology and Therapeutics Vol. 15 Issue 4 Page 439 April 2001 Food hypersensitivity and irritable bowel syndrome S. Zar, D. Kumar, M. J. Benson
http://www.blackwell-synergy.com/servlet/u...36.2001.00951.x If everyone could understand that simple diagram and relate it to their life and their symptom-generating events they would at least understand why "you cannot get to Buffalo without a map".There are many ways to get to Buffalo and it depneds where YOU are starting from. Thus a personla route must be drawn to get you there, and most people (lay people and medicos alike) simply do not have the complete set of map making tools. OR they simpley give the same map to everybody so some will get there some won't. OR they throw you an atlas and say go find your way...the info is in there somewhere.One thing is for sure, you must NOT give up..we must give UP on the idea that right now there is a way to find the original PATHOLOGY which is causing you to genrate symptoms as this is still indscrutable. The idea is to isolate what things PROVOKE symptoms in your life and then use an integrated plan of all the tools currently available to reduce the symptoms.As Dr. Villaneuva stated last year: ___________________________________"...it is not likely that one single treatment will help every IBS patient and many of them will need a more complex approach with multidisciplinary therapy (diet, psychotherapy, medications). " _____________________________________So the key is to read a book like the one I referenced which explains to some degree whay each of these therapies , used together, will produce the best outcomes compared to any SINGLE modality, and Zars little diagram shows "why", then find some doctor or dietician who actually DOES this....then you can at least buils a personal road map (treatment plan) which addresses each of the symptom generating mechanisms within your own body and heads them off at the pass.By the way you really don't have to go to Buffalo for this
_____________________________"(I should add that I am having psychotherapy so that side of things is being addressed and my therapist is very good but not a medical doctor).However,the physical symptoms still bother me very much and I would like to find way of alleviating them." ____________________________This is why patients need interdisciplinary therapeutics. Whatever psychotherapy regimen is being used, it must address your specific needs,OR it must be a regimen which has been shown to have a blanket effect on the central nevrous system, such as an HT based stress managment regimen (see
www.ibstherapy.com for the one the doctors that work with us use.)THEn you must have a dietary protocol which can isolate ALL THE SYMPTOM GENEARTING MECHANISMS involved in abnormal reactiosn to foods and food chemicals, not just one or two mechanisms or an enormous trila-and-error compilation. ___________________________________"Can anybody shed any light on this?" ____________________________________We try
____________________________________"Is there really a way to control IBS ?." ____________________________________Yes. There are several modalities which are helpful alone. Combine them the right way and you improve the outcomes. Some people who were refractory can enjoy 100% remission so long as they follow their personal program. _______________________________________"I am newly diagnosed..and pretty much stay in the house except for work.. I have heard it is caused by stress..Is this true?" ________________________________________No. it is not casued by stress, stress is a mechanism of symptom generation. You can blunt the stress response several ways to reduce symptoms. You can alter your perception and reaction to stress so that DIStress becomes more EUstrss (normal perception of stress) and blunt your symptoms. You can isolate foods and chemicals which provoke your symptoms and thus casue even MORE stress and anxiety which then becomes self-fulfilling. You can do any one of these with particular methods and get some repsonse. Do them all and get the combined repsonse. It is actually simple when one understands the whole thing. Many patient still cannot get a definite underlying causal basis isolated yet for WHY their body systmes are dysfunctional BUT we can isolate that which provokes the dysfunction and avoid it. _________________________________"How do you know what foods to stay away from? I have so many questionsand no answers...Thanks" __________________________________Actually, there are answers to almost evry question a victim of IBS can ask...even this one. BUT you must speak with someone who knows the answer. I would not ask a cop in Bombay how to get to Canal Street...unless I know he has been there. He won'y know, anymore than the Market Street cop will know how to get to the nearest temple in Bombay.that does not make either incompetent...they are simply 2 different fields of knowledge. Put them together and you just doubeled the places you can get to.here is another helpful bok on the "food that make you sick" side:"FOOD ALLERGIES AND FOOD INTOLERANCE: THE COMPLETE GUIDE TO THEIR IDENTIFICTION AND TREATMENT", Professor Jonathan Brostoff , M.D.. Allergy, Immunology and Environmental Medicine, Kings' College, London
http://www.amazon.com/exec/obidos/ASIN/089...6487508-3420903 But do not despair as there are answers. If you read a couple of these things it sheould help you understand that to ebtrue, and perhaps help you better isolate the right doctor or dietician for you.Also the DIET BOARD has some people who were just as frustrated with their diet problems before, and who have found various solutions which worked for them.DIET AND NUTRITION BULLETIN BOARD
http://www.ibsgroup.org/cgi-local/ubbcgi/u...=4&DaysPrune=30 The thing we have to accept, and it is hard to but we must so that we can then move forward, is that there are NO pat answers...no "Brilliant Sage" who can reveal the truths about our bodies to us in one wave if his/her magical diagnostic wand. Its a process and it must be done methodically.Eat well. Think well, be wellMNL