For 2months, all of my symptoms were gone. I was under the impression that I was healed and could eat whatever I wanted. My ex boyfriend moved out, I was pretty happy, my new relationship is healthy, I'm going to school and I have a job. Everthing was Ok. Until yesterday. A flare up. While my new boyfriend of 2months was at home. I thought I was done with this thing! I can't have a flare up in december! It's holidays. I have to see my family, I have exams at school. I have a one week vacation too!. It just can't happen.I had a coloscopy a while back and they didn't find anything unusual. I had bloodtest. It's not coeliac disease. It's not Crohn. It's IBS. It use to alternate between C and D. But now it's just D. As soon as I wake up, I have to go to the bathroom. I never have to go in the morning usually! What the hell? Can symptoms change between flare ups? I know what I can and cannot eat but I've enough. I want to eat what I want when I want like normal people. I don't want to keep myself for eating what I like. I don't want to be isolated because I always have to go to the bathroom. I tried several medication but it didn't help either. I wanna be able to take a trip, or be in a bus for more than 10minutes. I don't wanna have to share my rectal life with my lover. I don't want to have to wonder if I can go to classes for my finals or if I'll be sick. I find it hard to belive that there are some of us here that are cured. Dammit, why can't I be cured huh??It feels like a fight everyday. I feel like giving up too.
I've had enough
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You have my sympathy.I've been in hospital 3 times within the last 9 months with whatever it is thats affecting me. They can't find anything physical wrong with me and that is so annoying. My symptoms drive me crazy. Since coming out of hospital 2 weeks ago i've been fine but now i feel terrible again. Started last night with diarrhoea at 3am. Managed to work today but i feel really rough and quite nauseous (as usual).I see a private GI specialist tomorrow. I have lost faith with the NHS.
BQ, I know. But it's not like common cold. IBS doesn't change. My asthma is chronic and there are medications for that. What are they waiting for? Why aren't they coming up with something to make the pain go away? Crohn has some medications too. They live quite well as far as I know.
I misunderstood what you were saying.... sorry.Oh I know Yukie it is enough to drive one nuts! I do not know why there is nothing for us.Maybe they don't think there is any money in this??? If that IS the case....I think they are the crazy ones with 5% of the population walking around with this.... I think they would make mountains of money if they ever discovered a med that would help us. It IS complicated...as it varies and presents itself differently in all of us.. but...the research $$ apparently isn't there. I do not know why they don't help us. And I know it IS maddening... Many of us are impacted severely on a daily basis. It isn't a rare thing... it is hugely common and one of the main sources of absences for people lucky enough to be IN the workforce with it. It beats me why they don't help us. So you are not alone in your feelings.
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Healing through diet takes a looongg time. Most people use it as a way of controling the problem. IMHO it would take more than 2 months before you could go back to eating whatever you wanted.Rant all you like, that is what we are here for. Hang in there and good luck on finding what works all the time.
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It took over a complete year for the supplement I use to eliminate the D. Even 10 years later I can still get a quick, soft one, from time to time. This is not to trivialize your feelings about normal, just to say that it can take time, even if you find something to treat the cause. Retired, I am back to school; but I would never take an 8 or 9 o'clock class, even now, just to be safe.Stress and the adrenaline it releases can be a killer for us. If you can, try to let that go. Maybe take a look at the hypnotism CD or, if you have insurance, see if you can get your doctor to give you a referral for CBT. Either of those ought to have a good impact on you.Cheers,Mark
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I'm not sure how to answer that, other than to say at one time this had gotten so bad that I didn't know how I was going to make a living, anymore, and really didn't know what the point of anything was. I had no strategy for dealing with this, I was just trying to avoid having an old age of heart problems when I lucked into at treatment for both conditions. Once my bowels began to get better--and once my chances of having a heart attack began to drop--it was amazing how quickly I found the point to it all, again. Obviously, none of us can say what will help you, we can only say what has helped us and what has helped others. Hopefully, within that list you will find something that will work as well for yourself. I know you want to be better; but, sadly, this just won't go away by itself. Try and figure out what brought this on, how that might have caused your IBS, and then see what you can find that can break that chain of cause and effect. Mark
I understand. But I just don't know what could help. I've tried so many medications, herbal tea, heat pad, meditation etc.it doesn't seem very realistic to believe that I'll be cured someday. It's only been a year and I'm already sick of it.
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overitnow (mark) i was thinking about ordering a hypnotist cd off ebay, supposed to be really effectivei hope you find something that will help you soon yukie, i'm not excited about christmas this year due to ibs, every other year i would be excited with boxing night and new years eve coming up
Although I'm a stranger to these forums, I am not a stranger to IBS. I was diagnosed back in the stone age days of the condition (before they differentiated between C and D, I think it was sometime around 1994). I've had IBS for virtually all of my life (28 years). I haven't given my condition much thought over the past 10 years or so because I have been fortunate enough to manage it to the point that I sometimes forget I have it. I only discovered this site because I was researching something else my brother became afflicted with over the past year.I hear your frustration Yukie. All throughout the 80s and especially early to mid 90s I suffered a lot. I practically locked myself into my apartment as the pain had a knack for starting anytime I left the grounds of my building. It was such a long time ago I feel I am beginning to forget some of this stuff. I'm sure you have heard this a million times, but I feel it is important to understand that while you can live symptom free, IBS is a condition, not a curable disease (in my opinion). I found that once I really accepted this, I was able to move forward with my life by leaps and bounds, even through the occasional IBS set backs. Also, I found it helpful to think of myself as a scientist whenever I had setbacks. I've found that with IBS, there is always a catalyst, be it a food, lack of sleep, anxiety, stress, emtions, etc. If you get to know your body (it seems that this condition is at least slightly different for everyone afflicted with it) I think you will have an easier time getting through the setbacks . I beleive you have to get down and dirty with this condition to really master it.
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