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im soooooooo frustrated! Just when i thought there would be nothing to help me i thought i found some luck. Unfortunately my organ function test and blood test came out normal. I know I should b happy about that but it still doesnt leave me with any answers. I have this problem...huge problem. Leaking gas is the main thing. I've been dealing with this for a year and a half now. If i werent me and this was somebody else dealing with this problem then I don't think they could make it. The unbelievable toll it has taken on my social life is immense! I'm pathetic. I've had to make myself miss out on so many opportunities. Miss so many family functions and even lie to my best friend. Do u know how HORRIBLE that feels? I had to tell my best friend that I didn't have the same lunch hour as him just to avoid embarrassment. I hide this problem from the friends that i have left. I lie just so I can hide in the bathroom to b away from ppl and hopefully relieve some gas. I've had some close calls with a friend almost finding out too. i tell ppl i go to the library during lunch to (A)either get homework done or B: because i get claustrophobic in the lunch room. which neither truely apply to me. The lengths i have to go through to avoid people are ridiculous! Constantly having to worry "do i smell, am i smelling right now?" "that look on their face..is that of disgusting? oh i must smell" anytime i go out anywhere.I WANT MY LIFE BACK! I really just want some answers. what is this? how can i make it go away and what did i do to make this happen to me. could i have prevented this? I'm waiting for a savoir to give me a correct diagnosis. if that makes any sense... and i wont accept if my gastroenerologist tells me i have ibs. I can already just imagine myself walking out of that appointment that took me months to get. That diagnosis would be a slap in the face. CAN ANYONE GIVE ME ANSWERS?! WHAT IS THIS?
 

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No answers really, some things you could try, like a good probiotic (example VSL#3), you could also get tested for gluten or dairy intolerance, and intolerances can produce excessive amounts of gas. Search around in this forum, you might gather other ideas to try as well.I think I know how you feel though, at times I wondered what I was going on with life for (didn't seriously consider ending it all), more recently I've grown a thicker skin, and I simply expect a lack of understanding, derision, disgust, snide comments, and contempt. Meeting people who are polite and treat you more like an equal and with kindness is at times rare.
 

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Hi, I'm afraid I dont have an answer for what you are going through, but just want to offer my support, it sounds like you are having a really bad time. Have you been to the doctors? There must be something they can do. Does it happen after you eat certain foods? I hope you find an answer soon x
 

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Welcome to the club. It sucks! I hate it when I'm in meetings and I can feel the gas near the exit and all I am doing is focused on squeezing tight so that nothing leaks out. And then I wonder why I don't recall large snippets of conversations.The best I can offer is read through every single post on this forum and start experimenting. Be patient and be disciplined. The best is to start with food elimination. Good Luck. Everybody here knows your pain.Come clean with your best friend. It's not your fault. Maybe he/she can provide some good emotional supprt.Good Luck
 

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Discussion Starter · #5 ·
Thanks for some understanding. I'm just venting. And today was another rough day. Had to go home from school 2 hours early to save myself some embarrasment. Yes i've been to a gastroenerologist and basically had to order the tests myself. He just signs off approal 4 them so insurance will cover it. Currently awaiting the results from a Hydrogen Breath Test for Lactose intolerance (which i already know i am since birth). The only reason I agreed to do the test was that it would also show if i had bacterial overgrowth. The waiting is torturous though. I really want to get this all figured out by next school year [MY SENIOR YEAR]. Again, more on the lenghts i have to go through everyday. I would give almost anything to be normal... to smell normal. I'd live outside in a cardboard box, given that i get to visit my family every once in a while, if this smell would go away. I'd probably even give up my sanity. I'd take OCD if it meant I got to trade it for this smell going away. I've had to say no to so many dances i've been asked to. Miss out on all the parties a highschooler should b going to. I'm quiet 1. because i'm insecure, self-conscience and 2. cause i'm hoping when someone talks to me "just walk away.PLZ! just walk away" cause i don't want them to smell me. And my lastest perdicament...FIELD TRIP...in 4 days. The seniors already graduated so my class size is small enough to fit in one car with this guy i think is cute. That's just too close sitting next to ppl. I mean I'm not even comfortable with my family sitting directly next to me on the couch. I prefer they sit 1 cushion over. And I REALLY want to go. Let's be clear though, this smell has NOTHING to do with my hygeine which by the way is good. Before I figured out where the smell was coming from I used to shower/wash up 3 times a day. I still shower everyday but know that this will not make a difference cause the smell is leaking gas. When i go places I put pieces of sented candle into all four of my jean pockets, and either a sented dryer sheet or a piece of toilet paper sprayed with airfreshioner or perfume, between my underwear and my jeans (and hope to god that they don't fall out of the bottom of my pant leg when i walk). Makes little difference, but not much. I've heard a suggestion of filling a sock with coffee grinds and putting it in your pocket. I think i'll try that next week. Just have to think of another lie as what to tell ppl when they ask "Why do you smell like coffee?"
 

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Did the coffee in the sock work?I've got this problem just as bad as most of the people on the board, and I'd do ANYTHING to make it go away.Let us know if you have any luck!!
 

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YES. I tried the coffee in the sock today and it made the most difference out of everthing i have tried, though i'd suggest doing something else along with it to further distract from the gas smell. It makes too big of a bulge in your pocket if you tie it. So I sewed the top and folded it in half. Pick a small sock, kinda thin, like one of those ankle-less socks and fill 1/3 maybe? i'm guessing thats how much coffee grinds i put in there, don't put too much cause the coffee smell is strong. I just know 1 thing. I'd definately rather smell like coffee than something else. PLus it keeps you awake during the day. I put it in the drawer in my dining room at night cause it keeps me up if it's in my room. I was able to fully enjoy my field trip btw. =)
 

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Searching,Glad to hear you enjoyed your field trip. You are a very creative and determined individual! I'm impressed. I have similar issues but thankfully this all started for me after high school was long gone. I am currently taking my college work online so I don't have to deal with the classroom issues (other reasons too). I think I will try the coffee sock though. Thanks for sharing it. I hope you are able to get some answers. Don't give up!
 

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i completly understand how u feel, i deal with this everyday too. it's horrible to be robbed of a social life because of leaky gas. nothing i do eliminates it though i try to reduce it somewhat. lately i drink a 3/4 cup of water with about 8-10 drops of peppermint oil drops (i use herb pharm) the drink this first thing in the morning on a empty stomach. drinking chlorophyll water throughout the day sometimes helps reduce odor also. when i drink the the clorophyll water i drink it in a metal water bottle it hide what i'm drinking so people don't ask me about it. this is a really hard thing to have to live with. hope this may be helpfull to you?
 

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Update: So after 10-12 long business days I got my test results back. I'm shocked! Turns out i'm not lactose intolerant. I showed signs of Baterial Overgrowth. Apparently this is real serious cause in that same phone call they got to setting up an appointment for me tomorrow morning before school to get an x-ray of my abdomen and some other stuff idk. Oh and my mom is picking up a script for antibiotics today. But WOW glad to see SOMETHING is finally happening. Let's get the ball rolling! hahaA little bit confused though because then why did I react the way I did to milk when I was little. I had to be on soy formula as a baby and could never handle ice cream?? All that set aside, the symptoms of bacterial overgrowth makes perfect sense. The sharp pain in upper left of abdomen, naseua, crazy excessive gas. Though i can't help think that there's more to my leaky gas like maybe it's something physical too. We'll have to find out....
 

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update: Today was not a good day. =(. I'm worried becaues i'm already almost halfway done w/ my medicine and today was a bad day. Leaky gas, during a test, a final that i have to be there for, an hour and a half. So humiliating. Girl next to me made comments to her friend although didnt directly point out it was me, she knew. GOD! I'm even embarrassed writing this! wtf is wrong with me?! I had one good day since i started this med, and it was a good day although the leaky gas was not completly gone. Since that one good day it has been back to horrible. Sharp pains back and enough gas inside of me to make me feel nauseated. Seriously i thought i was going to throw up or eek out in pain. So yeah...it was kinda hard to concentrate on my final. Altough i'll pass the class, i wish i could've done better. And i could have, had the circumstances gone away.
 

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Discussion Starter · #15 ·
yes this was with the coffee sock. Not to discourage anyone, but I'm discouraged. I'm beginning to think there's no stopping this leaky gas symptom When i say leaky gas I mean I can feel it like in bubbles or warmth, though I can't hear it it's always there, of course stress or sitting makes it worse and that's what you do at school. I just want to find answers! I'm frustrated with how long everything is taking. And i know it will be such a long road. I'm sure i'll try a few more meds without success. But I've read reviews on the ones used to treat Bacterial overgrowth and some were good. So i'm just hopeing to God that none of them will work! Like you don't know how desperate I am for this. School just got out for the summer. SUMMER. Ha, I remember when that word actually meant something to me. I thought earlier this year that getting all these tests done I'd be able to enjoy my summer. If i'm lucky it'll be Next summer. I wanted a summer job. I don't want this. I don't want to be pathetic, staying in the house all summer. I want to hang out with my friends, accept their invitations to bon fires, long car rides, amuzement parks. I want to travel, maybe even go to a summer camp to do fun things like canoeing and climb rocks. GOD! there is so many things I want to do! Where is this person I want to be?! I'll tell you where she is, She's in my stomach. She's controlled by my stomach problems and is forced into this shell of embarrassment. Yes i'm trying to be positive. No i'm not depressed. But come on! With days like the one I just had, sometimes don't you want to just crawl into a hole and stay there a while? Oh of course I'd bring a candle though cause I wouldn't want to smell me either. I just wish we had some group that we could meet to go to just for people with leaky gas and my symptoms. Where we could relate, tell stories understanding what we all go through, and have candles going so we all didn't have to be so insecure about how we're smelling 24/7.
 

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It's stressful. Mine has gotten marginally better, well a fair bit better than last year. It was just a year ago that entire classes of elementary school kids would guffaw, make snide remarks, and cover their noses. I still get the occasional snide remark, but it's hardly as intense as it once was. I can still smell myself at times, and it's usually the smell of feces, even though usually there's nothing visible that has come out. At least I'm not gagging on it like I once was, and I'm hoping that with the right probiotic and some lifestyle changes I can reduce it further or miraculously eliminate all of it.I stay at home if at all possible. I used to go out to eat, go to coffee shops, shopping, drinking, etc. None of that now. I even try avoiding going to the supermarket or video store if possible. At least the students I have now have accepted it and no longer make a big deal out of it. I lost a few students though.
 

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Hello, I can tell you if you begin eating better this problem will slowly correct itself. I know we all want an overnight fix but there is not one =/. I started posting in this forum about a year and a half ago? Iv been on every diet every supplement everything. I can tell u the candida diet helped me out a lot. but i could not stay on it for longer than three months. Fasting helped probably i know it made me feel better. But over the rest of this time iv just been trying to eat healthier. No stict diet or anything just eating like a regular person with a side of steamed broccoli at most meals and im happy to say that no one makes these faces at me anymore. Some people sniff but i havent had anyone say anything for what must be months. i can hang out with friends now and that feels great after having stayed in my room for the greater part of two years lol. exercise is a big part of it too. i guarantee if u start eating better, maybe try threelac(iv been through like 6 boxes and i feel it helps. but exceeding 2 packs a day is just too costly imo. the beginning is the hardest time and my faith in god is the only way i made it through that. you CAN do it. And u will be rid of this no question about it i think everyone with the LG will get better but it takes time.
 

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Discussion Starter · #18 ·
umm...thanks. that really doesn't help me though and just kinda pissed me off. I've gone through that all ready. The diet changes. There WILL be something to fix this. Something medical. I know it and I'm just looking for those kinds of answers or people who can relate without bring their "faith" into this. I'm not a religious person, that has nothing to do with this, and not hearing about it would just be great. Though I will take your advice on the more exercise cause it makes me feel better emotionally and ask my gastro doc more about the candida diet, though i know most docs disregard it, I think mine goes beyond the typical. I've actually researched my doctor's name to find reviews, found them to be accurate from what i experienced twice. Though the most helpful was some info that popped up on google. He had written an article about the research going on between young people, of several different stomach conditions/diseases, and their transition into college life. Therefor, I can see he has some idea, almost a careing, for what we are going through. The fact that he takes an interest to try to understand shows a real effort. That's the kind of doctor I'd like to see people getting more of. The wait however for appointments is long, but I've got the best hospital medical staff in charge. And i can only hope that once in a while, maybe when they're sitting at home or in the office doing nothing, that they glance at my chart and put the effort in to try to find an answer.
 

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my leaky gas started back in high school as well. jr. high actually. its been about 10 years and still nothing. but dont be discouraged since i really didnt put as much effort as i should have to find an answer. instead, i just slowly avoided people and withdrew some society. okay, that sounds depressing. for me, i have a subtle feeling of some air coming out of the anus and after i sit for a prolonged period, it gets REALLY warm down there. if i put my hand on my bottom, i can feel it very warm. so sitting makes it worse. not have a clear bowel makes it worse as well. if i evaculate thoroughly it is less. so diet is key (i guess lots of fiber and avoid gassy foods). but diet and good bowel movements just reduce symptoms. they arent solving the underlying problem.finally, have you seen any specialists? ive been to colorectal surgeons and some Gastroenterologists. nothing has come of any of the visits other than me learnings (supposedly) that my anal sphincter strength is normal. my current line of thinking is that perhaps there was some nerve damage (i had severe constipation as a child and strained A LOT). so i am going to investigate nerve damage as well as sacral nerve stimulation (what i have read is a successful treatment for many people with fecal incontinence). good luck and keep us updated.
 

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lol i told u what helped me through my rough time and u got pissed off? =P cant help u there bro.Also id been to a GI and two other specialists and nothing ever came of those visits. I did extensive research on this read what must have been over 1000 cases of people having issues related to this... they go to the doctor and the doctor "cant find anything wrong". Not only here but on many many sites, forums, and blogs. You'd think if a doctor had helped someone they'd post about it yet, if u look around any forum on the subject no one has. My grandmother has fecal incontinence. she has for over 20 years. when it was just beginning she went to doctor after doctor for years until she finally gave up. She still goes to the doctor with problems to this day and its always a series of tests followed by no conclusive result. If doctors havent helped a single person with our issue i moved my focus to what I could do to solve the problem. Once i began to control my eating habits i saw results that no medicine or doctor was able to give me... I mean if you are living with this condition and you haven't offed urself yet you are obviously a strong person. Use that strength to keep ur diet a bit more strict and u will solve ur own problems.This is of course aimed at the people who have gotten sphicter tests that come back totally normal because some people do have the sphincter issue but for a lot of us its more than that. Even once the LG stopped i still smelt bad for a while after that but it lessened slowly over time just like the LG did. ill stop posting because i dont wanna piss anyone off but the candida diet worked for me and since theres no downside to it.. why not give it a shot. Good Luck to you all.
 
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