[Sruthi]

Hey, my name is Sruthi. I urgently need suggestions from you guys. I have IBS C and gas incontinence. I keep passing gas every 30 seconds without my knowledge. I can’t smell or hear myself. I live in Appartment and from last 2 weeks I hear my neighbors calling me names and once even heard my neighbors talking that I continuously fart everyday and night 24/7.
I am not sure how my neighbors can hear my farting when the walls between the units are quite thick. Now a days my upstairs neighbors are stomping on the floor and shouting each time they hear me. This is so embarrassing and it’s causing me panic attacks. I am now scared to even sit in my own home thinking that my neighbors will hear me farting continuously. What should I do in this situation I am on IBS medication and on diet but still no improvement. I feel like I have lost all the hope in life. Please help

 

[Mrs B]

Hi Sruthi, how long are you on this medication? You are producing a lot of gas, so something is causing it. Could it be food? I do not have those symptoms, but if I do not want to pass too many winds (ex. having a keep fit class) I drink "Apple Cider Vinegar from Mother" that day. It seems to calm my intestines.
You need to check if you can take it along your medication first.
Secondly, you are an important person and no one can treat you that way, a bit of love and understanding from others goes a long way. They should be ashamed.

 

[Sruthi]

Hey, I am on medication from past 2 years but no difference. As per doctor’s recommendation I was on Low fodmap diet but I didn’t find any relief from my symptoms.
Doctor said that it is excessive flatulence, but I cant even feel or smell anything it’s like gas is leaking without my knowledge. I feel that even doctors couldn’t understand my problem.
I never tried Apple cider vinegar, will try once and hoping it will help with my symptoms(fingers crossed). Thank you so much for the support

 

[Mrs B]

Two years is a lot of time not to get any change in the condition. Could you see another doctor? Is it the same medication or has it been changed before? Did you search "excessing gas leaking" on internet? I mean from the medical point of view, not on this webisite.
Best wishes.

 

[Sruthi]

Yes, I was on linzess the first year then on antidepressants lexapro. Also I have consulted 3 different doctors over past 2 years but nothing seems to work 😞

 

[Mrs B]

I checked Linzess and it looks like a very specific medicine, but I do not have an experience of it. I used to take Mebeverine and it work very well, until about two years later when it stopped working. I had high hopes for Mebeverine... So, now I am back to when I started: bad wind.

I resigned to taking certain digestive enzymes, bacteria, apply cider vinegar and avoidance of: dairy, soft cheeses, wheat, soy, processed foods, rye bread. It is no fun if you have to evoid many foods in your life, it makes me miserable.

I would say, keep trying with the doctors.
Has any of them diagnosed a leaky gut issue? Overgrowth of Candida yeast?
Take care.

 

[gutsygreen]

Yes, I was on linzess the first year then on antidepressants lexapro. Also I have consulted 3 different doctors over past 2 years but nothing seems to work 😞

There are other meds besides Linzess. I found it too harsh, causing painful cramping before BMs. I've switched to Lubiprostone. Keep trying. You are being challenged to put the puzzles pieces together so you can see the picture.

 

[Sruthi]

I checked Linzess and it looks like a very specific medicine, but I do not have an experience of it. I used to take Mebeverine and it work very well, until about two years later when it stopped working. I had high hopes for Mebeverine... So, now I am back to when I started: bad wind.

I resigned to taking certain digestive enzymes, bacteria, apply cider vinegar and avoidance of: dairy, soft cheeses, wheat, soy, processed foods, rye bread. It is no fun if you have to evoid many foods in your life, it makes me miserable.

I would say, keep trying with the doctors.
Has any of them diagnosed a leaky gut issue? Overgrowth of Candida yeast?
Take care.

Even I have tried mebeverine it didn’t work for me. I have appointment with doctor this Thursday hoping for the best.

 

[Sruthi]

There are other meds besides Linzess. I found it too harsh, causing painful cramping before BMs. I've switched to Lubiprostone. Keep trying. You are being challenged to put the puzzles pieces together so you can see the picture.

Hey, yes even I have painful cramps when I take linzess. How is Lubiprostone? Does it help with the symptoms better than linzess?

 

[yellow11]

H Sruthi,
Am v sorry to read of your situation. I get plenty of “ugh you farted” comments thrown at me throughout the day but at least I live in an isolated area so I can relax a bit at night. Must be horrific feeling almost under siege in your own apartment from the hostility of your neighbours.

One of the very unfortunate things about our condition is how far the smell travels. That's the way it is with me anyway. Actually your post reminded me of this older post from a few years ago -

https://www.ibsgroup.org/threads/i-smell-so-bad-that-the-whole-block-could-smell-me.258729/#post-1148993

If it’s ok I would have one or two suggestions but obviously I’m no expert. Maybe you might think of getting a tmau test done. Tmau is more commonly referred to as Fish Odor Syndrome but don’t let that mislead you; people who have tmau suffer from all kind of bad smells not just fish. Also a test for small intestinal bacterial overgrowth. Obviously I wouldn't want you to shell out money on tests that don't help you so please don't rush into anything but I think they might be a good place to start. Unfortunately I find ibs to be meaningless as a diagnosis. A doctor told me I had that too but really it'sa bit of a catch all term - like there's something wrong with your digestive system; we're not sure what so we'll just call it ibs.

I strongly believe that you may the wrong type of bacteria growing in your gut which produces all the disgusting smells. Again I'm not an expert sp treat what i have to say with a grain of salt but I did read before how bacterial smells can travel a good distance so that may explain why your neighbours are complaining. Perhaps you would like to google how to change your gut flora and you might get some pointers. If you find a doctor that would be prepared to prescribe you with a very strong dose of antbiotics that may be the fastest way to get some resutsz.

You have all my sympathy, the very best of luck in finding a cure.

 

[GM007]

Have you tried pro biotic? There are many good brands available. Speak to your doc. I wonder why your docs are unable to help you. Please research the internet. You may find a solution. Also have you tried gut directed hypnotherapy? It helps lot of IBS people. You can get more info on this site.

 

[Mrs B]

Hi,
I need to tell you that strange thing happend to my smelly winds. I was prescribed Lansoprazole for acid reflux recently. I started taking one capsule a day. I noticed that I do not have any smelly winds since I started taking it. It has been two weeks and I am ok. What is going on? Why this medication has such an effect?