Irritable Bowel Syndrome and Digestive Health Support Forum banner
1 - 19 of 19 Posts

·
Registered
Joined
·
422 Posts
Discussion Starter · #1 ·
On two occasions, I have tried to get a separate thread on this website for "leaky gasers". I even wrote to the moderator and never got a response. However, I continue to get personal emails from people with the same problem that I have, and continue to read posts on this site from people with "leaky gas". If enough people on this site want their separate thread, they need to say so and write to the moderator. Then, we might could get together enough people for a study. This is the last time I will bring this up. For all the people that have written to my personal email, this is the time to write to the moderator and ask for our own space. I would love to have a gastro doc finally take some interest in us. Nelly
 

·
Registered
Joined
·
1,082 Posts
The fact that your emails have not been acknowleged and that other Gas Forum correspondents often challenge what we say indicates that we are not taken seriously at all.I can't find it now, but there was a Talk With The Experts section on this site and one of the few questions which was not given a response was one about leaky gas. I can't recall whether you were the one who asked the question, nelly2.My undetected gas seems to be getting worse, because I'm hearing more 'stinky' remarks than ever before. I get near the end of my tether at times and it would help if we had an area wherre we could support each other. I suppose there needs to be a limit to how many forums there are. Maybe the rationale is that if we had our own forum, then the pain and bloating people (and there often is an overlapping of symptoms)would want their own ones too. But we'll never know what the reason is if no reply is given.
 

·
Registered
Joined
·
47 Posts
i think we need to stop calling it gas. i would consider it tiny particles of fecal matter leaking out because of weakened digestive muscles, which leads to incomplete evacuation, which leads to us pushing hard in the wrong way(tightening the muscles that should be relaxed), which leads to fecal matter being lodged in our rectum, which leads to our tiny little a-holes producing terrible odor that fills up entire rooms. then there is the mental factor. we get nervous in any situation where other humans come within our 10 ft radious of shame. and the mfers are no help with their dirty looks and rude comments. we psychologically break down and become weak minded, depressed, and suicidal. society wants nothing to do with you if you smell like feces. so then our doctors prescribe us dangerous seritonin changing medication because they refuse to admit that we smell like feces because they know they cant do anything about it. these meds(zoloft, paxil, luvox for me), make our situation even worse since the side effects are usually diareah(and in the old paxil commercials, discharge leaking from the anus).alright time for action. the only way to beat this is with honest effort. exercise(i see yoga asanas as the only way out benfits of each bikram asana ) and diet changes are necessary. supposedly, all grain is some type of sugar. when bacteria breaks down sugar, it produces odor. if you eat no sugar, after a few weeks(if not months) you should have no odor. then there is the poison factor. supposedly pesticide residues cause digestive problems, along with the heavy metals found in most foods(even organic vegetables). flouride in tap water is binded to some kind of metal, and mercola.com had an article about the most common heavy metals and what they do to your body, but i cant find it now(most cause digestive problems supposedly). metals stay in your body unless you take chlorella(which probably takes a while to clean you out). i dont know if ill ever get rid of the metals in my body, but exercising the right muscles should get rid of all digestive problems caused by chemicals and metals.ok, sory for the long post. my recommendations as a 3 year ass-odor guy: raw brown eggs, carlson liquid fish oil, 5 servings of vegetables a day(as clean as possible), half your body weight in ounces of flouride free water, goat milk. GOOD LUCK. WE CAN BEAT THIS TINY LITTLE PROBLEM. YOU ARE NOT YOU PHYSICAL BODY - YOU ARE A POWERFUL SPIRITUAL BEING!!!!!!!!
 

·
Registered
Joined
·
34,955 Posts
Well I think the issue is more odor of unknown origin.I'm not sure if in most cases we have accurately tracked it to stuff the leaks out the anus without being seen or felt. There was something recently about bacteria that hides in the tonsils and they laser I think the folds and I thought sulfurous gases were one of the problems with this. Has anyone with the "leaky gas" ever gone to a body odor specialist to see what the deal is (There are people that research this stuff and I think that is what is needed to get to the bottom (bad pun) of this.Just because it "smells like feces" I don't know that this means it is in fact "feces" much of what makes the "feces" smell can be produced by bacteria in other areas.Here is a link about the tonsil seriously evil bad breath curing thing http://optics.org/articles/news/10/11/12/1 http://groups.msn.com/BodyOdorSupport/whoarewe.msnw is a group for odor issues, maybe that would be more help than an IBS board.K.
 

·
Registered
Joined
·
1,082 Posts
It's something that can't really be explained to people who don't have the affliction. I never have discharge in my undies. I have discomfort in my anal area for much of the time (I have incomplete evacuations), with far too frequent urges to use the toilet without really needing too, if that makes sense. I can tell by people's reactions that it's an intermittent thing, suggesting gas, not BO. But I take the advice on board and will look at the BO link. I have a therapist who would probably be honest with me if I asked what sort of odor I'm getting, how frequently and how badly.Malachithesoothsayer, I love your way with words....10 foot radius of shame! Very clever. I even managed to break out a little laugh. I get the feeling that mine now goes beyond 10 feet, though. What's going wrong?I'm sure your advice about exercise is very good, but I work out virtually every day and walk heaps (to the gym, shops, work, etc) as I don't have transport, so it's not helping me. I'm sure it will help others.If that is your diet, what weight are you?Good advice in your thread, but I'm not too sure about grains causing the odor, though they will cause gas. I tried to ask flux about that one, but he wouldn't take the bait.
 

·
Registered
Joined
·
301 Posts
I'd like a separate thread for leaky gas. But part of the problem with this condition is not all of us have the same symptoms. I would not call the odor a fecal smell, which to me means ****, but just a real strong fart odor. It's not of unknown origin either, its obviously from the intestine. I still maintain it's from the small intestine, not leaking out the anus. I almost never get any sensation in the anus or rectum, whether a warm, wet, or expelling gas sensation. My main symptoms are on the lower right hand side, a constant sputtering and thumping feeling and sometimes some rumbles through the rest of the bowel. I have stated numerous times that I have contacted well known specialists like Dr Pimentel and Levitt by mail and their personal Email and have had zero response. Also contacted Dr Andrew Wyeth who supposedly welcomes questions and also got zip. Also contacted the Monell Center which studies odors, I now forget the name of the doctor but he's affiliated with MIT which is only one mile away from me and also got no response. Also contacted numerous hospitals like UNC, Cleveland Clinic, Mayo, Cedars Sinai, and about 20 others I no longer remember. Oh, I forgot, also Dr Ronald Hoffman who wrote a book about GI disorders and has a practice in Manhattan, zippo and another Doctor who just wrote a new book about IBS, I think his name was Rubin, all to no avail and all the doctors I've seen in Boston, etc. I'm in exactly the same situation. I had to give up goldenseal and/or berberine because although it slightly changed the odor, it also caused constipation leading to hemorrhoids. So I guess we're all different but in my case, nothing really has worked at all. A thread would be good but a cure would be even better. But first we need an expert who'll at least take an interest. I've been told to live with it.
 

·
Registered
Joined
·
47 Posts
well, that isnt my diet yet. im still struggling with food addictions. when you cut out grain it has a large impact on your emotions. you start to go a bit mad. i also cant fall asleep most nights and end up drinking beer at 2 in the morning(fluoride, lead, aluminum) which probably makes me worse. and your body does most of its healing from 10 pm to 2 am if you're asleep.im very confident that daily bikram yoga asanas along with 0 grain will completely get rid of the odor. i also believe attitude and faith(in anything spiritual?) are the most important. it gets lonely when you smell like ass and we get consumed by negativity. i try to laugh as much as possible, and think positvely. ass would be the best word to describe our smell, now that i think about it. just straight up a s s. not quite sh*t and dirtier than a fart. anyway peace for now and hang in.
 

·
Registered
Joined
·
38 Posts
i have leaky gas, and i have to say by far, the worst side effect is the social factor. it seems like with other types of ibs, whether it be c or d that it easier to deal with because there is no leaky gas. but when you throw "leaky gas" into the mix the situation is much worse. always feeling messed up inside is horrible. feeling like you cant be in the same room,car,class with other people is even worse. no matter what anyone says, people are judgmental, sometimes too much. i know it's not a good way to think but why me? why us? living with this disorder feels like punishment... but i am, and am sure all of you, are good people being hit with this awful condition. i have tried numerous things but nothing works. been dealin with this for for about 4 years and i just hate looking back seeing how i was happy and "normal" physically. it's like i'm never going to be able to be myself again. there's no more sittin around hanging out with friends anymore b/c of this, just goin through a ruff time, tryin to hang in there.
 

·
Registered
Joined
·
2,427 Posts
Mine definitely comes out of anus. I don't have a lot of gas but I can fell a small leaky back down there, a lot. I probably have halitosis and am perssy too. But the really offensive stuff is gas. After all thee years I should know. As for a seperate forum for leaky gas. The gas forum itself isn't that busy. I may only check in every othr day and not many new post have been added. Not like on some of the other forums where if you don't check twice a day you thread can disappear. So I am guess that is why J. don't give us our own forum.
 

·
Registered
Joined
·
1,082 Posts
Flux is around as large as life and prolific as ever -he's just not contributing to our particular threads.I can identify with you stillstanding. In fact, I've made a vow not to do any more bus travel. It's humiliating for me and unpleasant (I guess) for other passengers. But never assume that people will not enjoy your company because of the anti-social side of it. They might be driven away because of negative vibes rather than gas.
 

·
Registered
Joined
·
1,082 Posts
And joycein, at the end of the day you are right in that it is a very small forum, anyway. But it's a good idea, anyway, nelly.Let's continue to post here and share what we are up to in the fight against this darned thing. I am always trialling something and there is always something on the horizon to keep me going. At the moment I've been on noni juice for a few weeks, Metagenics Bifoviden and Lactoviden for a couple of weeks and have just started Iberogast. I'll let you know how I get on.I've never tried Primal Defense, but that's an option.
 

·
Registered
Joined
·
6 Posts
Hey everyone, i dont check this forum as much as i should, but if noone minds id like to offer some thoughts on what has been said here.First off i agree with malachithesoothsayer that this problem has less to do with gas and more with fecal mater. I do get gas at times but i can feel it, hold it in, and release by will. If i sit in the bath tub i can smell myself but no bubles are forming. Its like the fecal matter particles mix with air/water and are carried everywhere, doesnt really require US to produce the gas. If that makes any sence. The problem is that we cant eject fecal mater like healthy people can, and as is logical the more uncomfortable you feel in the rectal area the worse youll smell, cause theres more feces there. I have found that if i evacuate a formed lump of stool, and dont get too much of it left inside i can pretty much clamp my sphincter(sp) muscles by using the same muscle i would for holding urin, and i wouldnt leak allmost anything. Coupled with quite a bit of perfume im normal again(i still smell but just a little compared to unlucky days).The rest of the time i get mushy unformed stool, that smells really bad and a lot of it stays at the exit, and i can actually smell myself all day. On these days i dont leave the house if my life depends on it. Allso this happens 99% of the time if i dont get too much sleep, have to wake up early and am under some stress. Which is if i have to go to school, or one day work. I really hate the fact everything allways starts at 8 am, requiring me to wake up at 4 am, then strugle for 3 hours trying to unload, to in the end stay at home cause i just refuse to go somewhere smelling 10 times worse then i would if i woke up at 10. And i would still smell at 10.Ive tried changing my diet. Did a carb free diet while bodybuilding back while i though eating lots of sumplements werent bad for me- GI told me they were NOT for people with my problems, he allso said live with it(actually every doctor said the same thing). But that creates a diferent problem. I get constipated which im pretty sure makes the matters worse since the problem is weakened intestinal muscles due to holding too much stool. So if the goal to beying smell free is less feces inside, i cant bring myself to eat allmost no fiber and lots of protein torturing my intestines further and stockpiling s**t. So as i see it its a lose lose situation. A compromise as in moderation of both is what normal people eat, but that clearly doesnt work for us, so what are we to do? Merry Christmass.
 

·
Registered
Joined
·
2,427 Posts
quote: this problem has less to do with gas and more with fecal mater.
The only thing I know is that even if I use an enema to clean myself out with I still have that bad odor problem.
Sometimes I know I am passing gas and no one seems to mind. Other times, I think I am OK and people make remarks or show signs that they detect the smell..
Sure wish I knew what causes what. By not being able to smell what others around you smell is that it makes it hard to know which foods are making things worse.
 

·
Registered
Joined
·
39 Posts
Sorry if this had been written before, but I found this on a website:"Our intestinal tract is populated by all sorts of bacteria. For proper intestinal function we need about 85% friendly bacteria and 15% putrefactive bacteria. In most people, these ratios are reversed. While putrefactive bacteria is neccessary, an excessive amount means that nutrients are decomposing within the body and are producing a noxious gas that is the cause of not only gastric and eliminatory distress but also embarassing and unhealthy odor." http://www.kitchendoctor.com/healthconditi...tinalflora.html Take a look for more information.
 

·
Registered
Joined
·
10,398 Posts
quote: we need about 85% friendly bacteria and 15% putrefactive bacteria
They are the same bacteria.
 
1 - 19 of 19 Posts
Top