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I am totally frustrated as I am unable to maintain a healthy weight. I am five feet, six and a half inches and I weigh only 118 pounds. I maintained a weight of approx 127 to 130 lbs for many years but when I developed IBS about 10 years ago I lost almost 10 lbs the first year. However my weight remained steady at around 120 lbs until these past few months. I can weigh as little as 116 pounds in the morning. I was under the belief that with IBS there is no weight loss as most nutrient absorption occurs in the small intestine and not the large intestine which is where most of the problems occur with IBS (ie the colon). In any case, am very wary of using imodium - will relent and take perhaps one half to one per week. It works for several days - constipation, and then I revert to the diaharrea again - often worse. We go out a great deal and travel a lot so it becomes a real obstacle trying to cope with this condition. I am getting quite worried about this weight loss and my current situation of watery D. It used to go away after a couple of days, but this time I cant seem to break the cycle. Is my IBS getting worse, and will this weight issue continue? I will be seeing my GI specialist in about a month. Had my last colonoscopy about 4 years ago, so not sure what he will do now. Any suggestions or information would be appreciated.
 

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With IBS the amount you weight should change with what you eat exactly like it does with healthy people. A lot of people eat less when they feel sick, so any weight loss from food reduction is normal. IBS does not prevent normal weight loss.Have you tried calcium carbonate rather than Imodium. Some people like it as more natural and sometimes just taking it with meals will calm down the diarrhea enough for them to have reasonable control.It is normal to weigh several pounds less right when you get up then later on in the day after you have replenished the water weight you lose over night. It happens to all people. That is why they say pick one time during the day to take your weight if you are trying to gain or lose. So you see what is happening overall rather than the changes that occur every day.With the diarrhea being worse it is good to see the doctor again. A lot of watery diarrhea can be either something like giardia or microscopic colitis so it is probably worth getting some biopsies from a colonoscopy and a stool sample.You may want to use one of the free on line calorie counters and see how many calories you usually eat a day and see if that really is enough to maintain your weight. If there is a big discrepancy (you eat at least 500 calories a day more than you need and still lose weight or can't maintain unless you eat way more than that you need some more testing).If you haven't been checked for celiac, especially if you eat more than you need it may be worth getting screened for that. May be worth getting screened anyway since the diarrhea is worse. Don't stop eating gluten before the tests as you need to have the disease active to have accurate test results.
 

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Discussion Starter · #3 ·
With IBS the amount you weight should change with what you eat exactly like it does with healthy people. A lot of people eat less when they feel sick, so any weight loss from food reduction is normal. IBS does not prevent normal weight loss.Have you tried calcium carbonate rather than Imodium. Some people like it as more natural and sometimes just taking it with meals will calm down the diarrhea enough for them to have reasonable control.It is normal to weigh several pounds less right when you get up then later on in the day after you have replenished the water weight you lose over night. It happens to all people. That is why they say pick one time during the day to take your weight if you are trying to gain or lose. So you see what is happening overall rather than the changes that occur every day.With the diarrhea being worse it is good to see the doctor again. A lot of watery diarrhea can be either something like giardia or microscopic colitis so it is probably worth getting some biopsies from a colonoscopy and a stool sample.You may want to use one of the free on line calorie counters and see how many calories you usually eat a day and see if that really is enough to maintain your weight. If there is a big discrepancy (you eat at least 500 calories a day more than you need and still lose weight or can't maintain unless you eat way more than that you need some more testing).If you haven't been checked for celiac, especially if you eat more than you need it may be worth getting screened for that. May be worth getting screened anyway since the diarrhea is worse. Don't stop eating gluten before the tests as you need to have the disease active to have accurate test results.
 

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Thanks for your suggestions Kathleen. My GI specialist did a blood test for celiac the last time I saw him, but it was negative. I realize that it is normal to weigh less in the morning, but at night my weight is still below what was normal for me. And yes, I do take calcium carbonate daily, one or one and a half pills. Initially it was working for me, but lately it seems not to be effective. I will also try to use a calorie counter to see if I am eating sufficiently to maintain my weight and in addition I will mention the possibility of giardia and microscopic colitis to my doctor when I see him in a month. Thanks again for your help.
 

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You could have small bowel bacterial overgrowth. Have you ever tried an antibiotic like Tetracycline or Doxy? That works for me when I get too much D and weight loss. Stops it within a day. No good test for SIBO, pretty much either the antibiotic works rather quickly or it does not. Usually it has to be one of the two I mentioned although some people have gotten relief from xifaxan which is NOT absorbed into the bloodstream. It seems to be fairly targeted to e-coli only. It did not help me much. Breath tests are unreliable.
 

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I had a horrible flare up this past winter and lost 14 lbs...i still have not been able to put it back on..i will gain a few lbs and then lose it again....sick and tired of all drs .. have quit them all. they just scare you in to a heart attack by telling you every symptom you tell them could be cancer,then here come all the $$$$$$$$tests i cannot afford andin the end they say IBS>> now all the collection agencys are calling at 8 am and i am still sitting here with IBS.....i am trying Ensure yeah it may cause D but then i have it anyway!!!
 
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