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Discussion Starter · #1 ·
Hi all- There are so few posts in this area of the Bulletin Board that I'm guessing not a lot of people are getting Lotronex these days.Has anyone been through a Lotronex study? And if so, how did it go and what were some of your experiences with it?Even though I was on Lotronex successfully in 2000 when it was out, I've been trying all summer to find a doc here who will prescribe it and the closest I've come is one who's doing a study at the U. of Rochester. I asked twice if they could possibly just give me the prescription without going through the study (and the 1 in 3 chance of getting a placebo) but he said no. So what could I do but volunteer for the study?I would like to feel more charitable about it, and think of all the people I might be helping by hopefully adding some positives to the Lotronex battle for acceptance, but pain, cramping and missing work make me more selfish than I'd like to be. I was hoping for the quick fix, and I'm envious of all of you who've been able to get prescriptions for the miracle(to me)drug!Anyhow, it's good to be able to talk about it..thanks for listening.
 

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Discussion Starter · #4 ·
Although I don't remember an exact reason given, the research coordinator did tell me that they are testing different types of dosing. I believe I'll either be given the medicine(or placeb) once a day, twice a day, or as needed. Something like that. Ischemic colitis was mentioned, but I'm not sure that's the purpose of the study.As prep, and to qualify, I had to have a colonoscopy 2 weeks ago(ugh), then wait a week, then start a phone diary for 11 days for them to have a "baseline", and then next Monday I will meet with the research guy again and he will tell me what the protocol will be for me.I did sign a lot of forms, and I know I should have made sure I got copies of them, but I forgot and I think he did too. When I go in Monday I'll have to remember to get them..Anyhow. I will let you know what I find out..
 

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Discussion Starter · #6 ·
Thanks, lionala- I hope to have the same luck! Speaking of luck, this week as I do the daily phone calls before I get the stuff, I've actually been better than I had been in weeks.. no complaints here, though!
 
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