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Discussion Starter · #1 ·
I need some support. My husband is insisting i consider goingto the mayo clinic for an evaluation. I am resisting because I know I have IBS and am trying to manage it with less stress, careful diet, and meds. Has anyone else gone to the Mayo clinic and received help. I have researched IBS and have done a lot of reading and feel as if i have a good handle on it.
 

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If it isn't effecting your life at all (you go where you want when you want and the diet isn't restrictive enough to be overly burdensome) and you've had the sort of usual tests you may be OK where you are.If your doctors refuse to even try to give you any treatment and you aren't handling it on your own going someplace for evaluation and getting good treatment may be worth the time and effort. Not sure if the Mayo clinic has a specific Functional GI department in the GI division, but some places do. Cedar Sinai and UNC in Chapel Hill.Now it can be hard for someone to understand how "nothing" is causing so many symptoms, and he probably is worried there has to be a something. IBS is a something, just not something that shows up on tests developed to find other GI diseases (there is an IBS blood test that is new and maybe getting that from your local doc would help ease your husband's mind... http://www.ibsbloodtest.com...as there is a something with IBS and they have finally gotten around to building a test to look for those. The way I sometimes explain it is if the GI organs are the TV, the Enteric Nervous System is like the remote. If you spill something into the remote you can short things out and it looks like the TV isn't working right. However if you take just the TV to the TV repairman he'll say it is just fine. But when you take it home you still can't get it to do what you want by pressing the buttons on the remote. IBS is like that. Everything can do the right things, but tends to do them at the wrong time or at the wrong intensity like hitting the volume up button now changes the channel. There are treatments that work on the Enteric Nervous System that are prescription so some people do need more than diet and stress reduction or the meds they gave you aren't enough.However if you have typical IBS symptoms no amount of testing (other than the new blood test) is likely to find anything. And most of the other things aren't quickly cured either. In some studies they took typical IBS patients and ran them through all the tests and only something like 1-5% had anything else and often what they did find did not explain the symptoms.I'm lucky as the UNC functional GI clinic happens to be at my regular hospital anyway. But I have very typical IBS symptoms so I didn't get more tests than anyone else even if it is a specialty clinic. I was lucky enough to get into a clinical trial that did me a world of good, but for most of those you have to be local or able to travel easily to the clinic on a regular basis.
 

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Discussion Starter · #3 ·
Kathleen --Thank you for the reply. I am a mental health professional who specializes in chronic illness issues. I think I have a pretty good handle on what is going on. My husband tends to be the controlling, paternalistic type who thinks he knows better. He has seen me wrestle with this for 12 years. He has been to Mayo Clinic and his daughter just went for another issue and they believe this is the place for me. I am seeing Dr. William Chey at the University of Michigan who is a specialist in IBS. I think I am doing all I can. I just don't know how to get my husband to drop this issue.
 
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