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Hi - I'm new here, from London in the UK - and just as a warning - I have Aspergers and an inability to summerise so please bare with me if it's a long posts.I have suffered with IBS for years, and in school would sit in class in agony. It effectively stopped my life and made it hell. In school for years all I had been living on was hundreds of Nurofen painkillers - sometimes a whole box a day, anti-dirreoal medicines, and anti-acids I just ate like sweets. I often soiled myself in school and was beaten up because of the smell when I'd been threw all my spare knickers. The Doctor kept telling me to go away and lose weight, as I always a clinically obese child, or that I was attention seeking and being a drama queen - yes that is what is actually written on my notes when I was 11years old after sitting in his office, hugging my painful tummy one morning after yet another night of tears, and my mum sitting up with me! Then in 1992 I was diagnosed by a private doctor, and treated for allergies and chronic vitamin and mineral deficiency and an inability for my body to hold any vitamins and minerals. I was given 113 daily pills of vitamins and minerals a day which I still take. The pain became bareable. No other medication was prescribed at that time. I was essentially told to live with it, and avoid allergens, and due to that and the vitamins etc, things I also became more active and alive, and determined to fight back, even though I still had massive and frequent attacks. Then in 1999, I was told from a friend about Peppermint Oil. And then I found Buscopan, and long acting anti-acids like Gavilast, which I have been taking 3 times a day since. Things just began to get easier and I began to be the one in control, not the IBS.About 8 years ago, I found out about IBS diets and added more fibre and fruit, cut down fats, and grazed throughout the day. The pain levels dropped completely, and I began to feel in control - even eating out in restaurants! Things changed for me everywhere in my life, and it was great. Until 3 years ago when my family medical history came back to haunt me and I had a major Gallstone attack, and these attacks continued regularly, but my IBS was still under control. The doctor reccommended surgery. And I expressed concerns about this effecting my IBS. My GP said it never would. I went away and waited for the surgical day and fought to drop my weight in preparation for the operation.I did my research and was a little disconcerted to read the acid would constantly drip into my poor guts if the Gallbladder was removed, but the surgeon said there was little chance that it would affect my IBS and there would be support if it did, but not to worry about it as the chance was so small of any long-term affects, and the only problem would be was that I would be unable to metabolise fats properly and high fats would leave me with explosive diarreoha. This was ok, because for 3 years I'd lived on Apple Juice, and chicken and very little else and I had little intention of returning to my old eating habits, due to the IBS mainly. But I was so upset over the IBS thing, and sunk into a deep depression for a while over the possibility of returning to my old schoolday lifestyle of pain and agony. By the time I went in for surgery (22nd June 2010) I was having Gallstone attacks every few days, but I still hadn't had an IBS attack at all for about 5/6 months. The surgeon said that surgery ad been a lot more complex than anticipated, but it had gone well, and he removed the Gallbladder, the billary ducts, and about 60 stones some as large as walnuts - so no wonder I had been so ill. That was great, but about 5hours after surgery the pain started - IBS was back and it was really bad. I begged the nurses for IBS drugs, they gave me 10mg Buscopan only in 6 hours, they refused me all pain medication because I had been given pain meds in theatre - so why was I in so much IBS pain then!!!???!!! The surgery site itself hasn't been painful at all, which is just weird - it is fantastic in fact. The surgeon in the morning said "maybe" the IBS would settle. It was so bad, I couldn't even lie still, and walked the corridors the whole night. I went home and sobbed in pain in the IBS grips until I fell asleep simply through exhaustion.Since then, the IBS is so bad. I have been doubled up in bed most of the time, even though I could have been up and back at work by now from the actual operation, which has stopped that kind of pain and feels fantastic. But I am so depressed over the IBS. The doctor said I should just keep losing the weight (I've dropped 9stones in a year due to the Gallstone lifestyle change, and workout 3 times a week with a Personal Trainer) and keep taking Buscopan, but it isn't even touching it very much. I am devastated. I talked to a Pharamacist who said to try Colofac IBS - which helped a little more. I have upped the fibre in my diet and try and drink more but it is still so painful. I get a 10minute reprieve when I wake up, and lie still, but after that - PAAAIINNN!!!!!I constantly feel like I have acid problems without having the full on burning feeling in the stomach, and the smells of foods affect me violently, where it never did before. And I'm back on trial and error of what leaves me in agony when I eat, and what doesn't. A few days ago, I had tomatoes, and it left me in agony where I'd loved tomatoes before, and had no problems. Yesterday, my mum peeled an orange in front of me and let me sniff it because it smelt so good and in 5/10 minutes I was bunched up in bed, sobbing with the pain. I ate loads of oranges before without problems. I'm so upset.Has anyone any ideas on what I can do??? As my doctor is so unhelpful - does anyone take Buscopan (Hyoscine Butylbromide) AND Colofac (Mebeverine Hydrochloride) together or is that dangerous for health??? I just feel so down and I do feel that the medical profession has failed me in terms of IBS support. I just want my IBS free life back!Thanks for reading.
 

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I do feel so sorry for you and I do know how you feel. I have Ibs-D and have had it for 10 years, but the last 4 years really bad. I am in pain, full of wind and bloated and have very loose stools every day, I take three and a half Imodium every day and take buscopan and spasmonal antispasmodics. The gastro specialist did a test for bile salt malabsorbption as I do not have a gall bladder and it came back that I do not absorb the bile salts back into my body, it causes the Ibs-d to be much worse, so he gave me some tablets to try and help it called Colesevelam, its been three weeks now and not much improvement. I also suffer with anxiety , I do not want to go out as I am too frightened I wont be able to find a toilet in time. Doctors and specialists dont really understand what its like to live like it, and most just say its Ibs-d go away and live with it. Dont give up, try calcium carbonate tablets and the antispasmodics , also have you tried Imodium. ?
 
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