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Hi everyone,I would firsly be interested to hear from anyone who has the exact same symptoms as me..... so hear it goesFirstly I tend to wake up in the morning and honestly for the first minute I feel quite good. Then I think my bowels wake up and I start feeling sick and hungry. Most of the time I have to pass wind (my poor wife loves that NOT!). From then my symptoms vary a little from day to day. Normally at about morning tea time I get some sort of weird spasms neally allways to the right side of my abdomen. I am pretty sure it is trapped gas? Does anyone have this? Sometimes I get what I call a bowel growel which is not so much passing of wind but an uncontrollable rumble that can go on what seems forever. I hate this especially when I am in meetings ect ect. Probably my worst symptom is the sick gassy feeling I have in my stomach pretty much all the time! I have seen many doctors and GI specialists. I have had colonscopy etc - ruled out most nasties and diagnosed IBS (2-3 years ago). Before this I had bladder instability and still have some but gotten use to this. About a year ago I had a small bowel X ray - follow through test and they said that I had very very slow transit time and that I was constipated. Felt like this was a little strange as I would probably go once a day but probably not really well. At that time I rarely had D, but very occasionally. Of all the meds and natural remedies I have tried I had some good results with the antibiotic Neomycin. It was nasty though, after 5 days on it I had massive D and gas. Stopped early. Was then good for about 2 weeks after that. Doc gave me repeat scripts but have not been game to try again as D was bad BUT thinking about trying it again.The other thing that I have been trying at the moment is eliminating wheat (heard this would be good to reduce the bloating and gas problems). I have tried an exclusion diet before (10 days) and did not get any good results so this new trial I am really clutching at straws. Interestingly though but not so comfortable is that I have been having lots of bouts of D. I was wondering if anyone else has had a similar experience like this? Look forward to hearing from youMark
 

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I posted a question here on 3/08.So far your symptoms are the most similar to mine.I never get cramps,but seem to have an excessive amount of gas, which usually exits as flatulence !!It's very embarassing as I have NO control over it.I get a loud rumbling noise in my stomach sometimes,& it's so loud I think everyone nearby can hear it.My bowels are no longer "normal" either too ofte loose or the opposite.(constipated) I have been on the new yogurt --Activia--for 9 days and have noticed a slight difference.My next step was to try a gluten free diet. Am interested in your progress, if you try it.Would you please keep us posted on any changes??
 

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Hi there, I have experienced similar symptoms. I am never in agony, but very often experience discomfort. My main concern is the noise my stomach (lower bowel) makes, due to the embarassement it causes. Like you said, meetings are terrible and I often feel like I can't continue in my job due to this. I have eliminated/ reduced my intake of wheat for about 8 months now and sadly am still experiencing problems. If my stomach/ lower bowel isn't making really long loud noises, it can often keep making squeeks and gas sounds. Cringe!! I really can't seem to find anything to help, and find it very upsetting. I am such a bubbly person, except in quiet places due to the noise of my tummy! It really seems to have an efect on my confidence. How do you cope aboutt he meeting thing Jacko?
 

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I'm currently awaiting results on blood work taken the other day. My GI is thinking Celiac. While I have the IBS-A diagnosis from my family doc, my GI feels I have symptoms that makes her think it's something other than IBS. I don't have the horrible pain or cramping that other IBSer's have and the gurgling isn't loud at all. My symptoms have been getting worse over the past 6 months, so just about anything I eat anymore causes some kind of reaction. My stomach feels junky from the minute I get up in the morning. I don't even have any kind of appetite until a few hours after I've been up. I'm really interested in how the Wheat/Gluten free diet works out for you. Please keep us posted.
 

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thanks everyone for replyingI have finsihed my wheat free diet. Lasted around 20 days, unfortunately did not make any noticable difference. I actually beleive that if I was really intollerent to some food group then by eliminating it for just a couple of days you should see a difference.At the moment I am desperate and will try anything. Unfortunately we are probably all like that and there is also lots of people out there claiming the mirracle cure just to get some $$$$. The meetings at work can be pretty bad. I probably am more sensitive to my growling noises so I guess it is possible that other people might not hear it ... but maybe they do and ignore it. Most people at work know that I have been sick with IBS but they don't really understand it AT ALL.My current doctor sucks big time. But hey they all can't know everything. I am going back to my old GP and going to see my old GI specialist at I have a proposal for them. Going to try the neomycin again and then ask to try the Zelnorm. He was going to try it with me about 6 months ago but I was a little hesitant about it considering I am male etc.I must say that everyone should try the elimination diet as I have heard that some people feel heaps better without wheat. Even salicitates ang amines can be a problem.Wish you all the bestMark
 

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quote:Originally posted by Jacko2:thanks everyone for replyingI have finsihed my wheat free diet. Lasted around 20 days, unfortunately did not make any noticable difference. I actually beleive that if I was really intollerent to some food group then by eliminating it for just a couple of days you should see a difference.At the moment I am desperate and will try anything. Unfortunately we are probably all like that and there is also lots of people out there claiming the mirracle cure just to get some $$$$. The meetings at work can be pretty bad. I probably am more sensitive to my growling noises so I guess it is possible that other people might not hear it ... but maybe they do and ignore it. Most people at work know that I have been sick with IBS but they don't really understand it AT ALL.My current doctor sucks big time. But hey they all can't know everything. I am going back to my old GP and going to see my old GI specialist at I have a proposal for them. Going to try the neomycin again and then ask to try the Zelnorm. He was going to try it with me about 6 months ago but I was a little hesitant about it considering I am male etc.I must say that everyone should try the elimination diet as I have heard that some people feel heaps better without wheat. Even salicitates ang amines can be a problem.Wish you all the bestMark
However, if you have celiac disease it can takes months before you notice a difference because of all the years of damage to your small intestine. It needs time to heal.
 

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I think that the people that get relief right away may be those that do not do well when there is a lot of starch, especially wheat starch in the diet (resistant starch).If you have celiac and there is a lot of damage to the lining of the small intestine it will take some time before the intestine regenerates, so symptoms may start getting better over time, but it may take several weeks to get full benefit.Also celiacs often get big symptoms to very very very small amounts of gluten once they get healed up. I know a guy who if you take the spoon used to stir regular pasta and stick it in his pot of quinoa pasta he will be able to tell based on his symptoms. People with wheat starch issues will tolerate small amounts of wheat without too much problem. If it is wheat starch, you could eat rice crispies without problem, but someone with celiac won't tolerate the small amount of wheat flour they add to keep the cereal from sticking together.It can be very hard to fully remove all gluten from the diet, so some people who think they have gone gluten free may still be getting enough to keep symptoms going.K.
 

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I tried Activia yogurt for two weeks and have found some relief. So fr no D and bowels have never seemed better.Minimal rumbling and a lot less uncontrolable flatulence.I'm going to keep taking it every day, because it seems to be helping, will post again in a couple weeks.
 

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quote:Originally posted by Jacko2:hi lagomorphReally??? How long did that take you. Did you have the blood test for celeac?Mark
Yes I had two negative blood tests. But now I am very informed and I'm not sure that the full celiac blood panel was run. I didn't want to be sick anymore and went gf just to try it. I saw my doctor about three months after that and she was amazed and happy with the results. She did not think it was a good idea to reintroduce gluten to do an endoscopy.There are some very good celiac forums on the net. These make it easy to be gf because of the sharing of info.
 
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