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Discussion Starter · #1 ·
First of all I'd like say a big hello to everyone!!! my name is Dave, im 20 and am glad to find the site!!I wonder if anyone can give me some advice - my story is - (ill try not to go on!) A few months ago I was diagnosed with post - infection irritable bowel syndrome, it started in June last year, I woke up on the morning I was due to go on holiday to Tenerife with a group of friends not feeling too well, it felt like I was coming down with the flu or something, against my better judgement I decided to go, I spent the almost the entire holiday in bed feeling like I was going to be sick any second, while my mates were out enjoying themselves! - on returning home I began to feel a little better and presumed it was just a stomach bug, after a few weeks I notice a small pain in the pit of my stomach with some nausea and diarrhea which, the condition got better and yo-yo�d for a couple of months, anyway I saw my GP who was very unhelpful and told me I need to see a specialist, the nearest appointment was 3 months away under the NHS, around September time the diarrhea had got a bit better but the nausea had got so bad and pain in my lower stomach was so bad I had to stop work, it got too the point where I lost 2 stone in weight (I was skinny anyway), couldn�t eat or drink anything although wasn�t actually sick and thought I was dyeing!!! I decided 2 go private and saw a specialist the next day, after extensive tests were carried out he explained to me that there were very slight abnormalities in my terminal illiem but not nearly enough to suspect crohns disease I diagnosed me with the IBS in January, he prescribed me with the antidepressants with had a immediate impact and began too feel well enough to eat again after 1 week. I was told that the symptoms are usually worse in the first 12 months then start to settle down, I managed to put all the weight back and am gradually feeling better � even manage to use my gym equipment again!!What concerns me is my symptoms now don�t seem really to match with any other story of IBS I don�t have diarrhea although me bowels are loose, I would estimate I go to the loo 4 times a day, but the main symptom is the Nausea, I was a outgoing fun loving, sporty person and now im scared of going outside! � I spent the whole time in my house or garden and haven�t seen my friends in months � I even dread appointments to see my GP because I can�t guarantee Im not going to be sick everywhere! The symptoms have slightly improved through and the tenderness around the whole stomach area isn�t as bad as before. I don�t have any pain although it hurts to prod my lower abdomen. The funny thing is apart from the Nausea and tenderness I feel fine!!So is there anyone else who has had a similar story or symptoms im desperate for advice � I tried all different herbal which seem to slightly help!I also recently found I site which claimed to have found a break through in digestive disorders with a high success rate the product called A.M.P is derived from the Aloe Vera plant, but at nearly �150 for a months supply isn�t exactly cheap!!! so I was also wondering if anyone knows anything about it or has tried it? it sounds 2 good to be true!! web page
 

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Discussion Starter · #3 ·
I know what you mean - have to ask my specialist before trying it - prob isn't much better than the tablets you buy in health food stores for �2!! feel desperate at the mo though!!!
 

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O.K. that was a smart aleck thing to say and I really didn't answer your question. First, forget the miracle cure. There isn't one!Secondly, why did you diagnose yourself? Exactly what tests did he do? Shouldn't your doctor have come up with a diagnosis?Although diarrhea and constipation are talked about ALOT on this BB, you don't have to have either to have IBS. Pain and altered bowel functions are also symptoms. Are you on an anti-spasmodic? There are others on this BB WAY more knowledgeable about IBS than me, so I'll let them take it from here. Personally, I think you need to go back to the doctor and get him to give you a diagnosis.
 

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Hi Dave,Well, you have found the place where we can ALL relate to what you are going through...Sorry to have to welcome you to the group, but I am glad you found us!I didn't check the website (web is sloooow tonight), but I do know there are lots of people who swear by aloe vera juice- some have Crohn's and some have IBS. If you want to try it, you can get it a WHOLE lot cheaper at your local vitamin store or health food store. Just make sure you get the one that is meant for consumption.If you do try it, let us know what you think.Peppermint oil can sometimes help this or ginger. You might consider keeping a food log/symptom log and see if you find any correlations. A good book on the subject was written by Dr. Brostoff in your neck of the woods- "Food Allergies and Food Intolerance". You can get it at Amazon.com or check it out at the library.Did the GI check your stomach or upper GI tract? I had an ulcer once (actually, several times) that felt like what you are describing.Hang in there, Dave!! I am sure more will post with some helpful hints.Lisa from Nevada
 

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Sorry! Another word of advice. Don't try too many new things all at once. Take it slow. Try not to get anxious (I know easier said than done!). There is no easy or quick cure. You're at the beginning of a long journey. The food diary is a good start. You need to find your triggers. It may be food; it may be stress; or it may be a combination. You found an excellent source of support and advice on this BB.
 

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Were you tested for Giardia Lambdia ( a protozoan parasite)?I'm sure you've probably done everything, but its just a thought.My daughter has IBS so I visit the boards on her behalf really, but in Brisbane(Australia) giardia is very common.I had it myself once and after weeks of symptoms,exaustion,nausea(although the doctor said when I mentioned nausea "oh no definately not a symtom of Giardia")I tested positive.However a thing to know is that many people never test positive, so they prescribe Flagyl anyway.Apparently this drug is sometimes ineffective too. I was lucky it did work on me.Other symptom were weight loss, and gurgling stomach.
 

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Discussion Starter · #8 ·
I rushed my little story a bit! I had every single test done - colonoscopy, endoscopy, barium meals blood tests etc! it was a typo - my specialist diagnosed me with IBS, my upper gi seems fine - apart from the Nausea I have no heartburn, indigestion or severe bloating, the tenderness is at the bottom of my abdomen, the top feels not too bad, I do I suppose have a little diarrhea a little in the mornings going to the loo twice within 30 mintues of getting up and my stools are never formed. I eat the same meals everyday, chicken, eggs, pasta, bread and fruit and potatoes - that's it!! I expressed my concerns that I did not have the typical ibs symptoms - I was told that there was nothing physically wrong with an part of my digestive system, I had a change in bowell habits and so it was IBS and in some people nausea and even vomiting can occur - I just haven't found others like me yet !- thanks for your help! I think the best way to describe it - is like the butterfly feeling you get in the pit of your stomach when your nervous - only worse!
 

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Hi Maverick:I would push to have more tests taken. Nausea without any other IBS type symptoms sounds suspicious to me. You should mention to your doc that you do not have D, C or pain (except for tenderness).Nausea can be due to many things, not just IBS. What type of antidepressant are you on? Check to see if nausea is a side effect. Are you on any other medications?We do have an article somewhere on the BB called "10 Questions to Ask Your Doctor" which is very good, and will help you. I'll see if I can find it for you.Here is an article from the National Digestive Diseases Institute which is really good. The url is: http://www.niddk.nih.gov/health/digest/pub...el/irrbowel.htm It always helpsto get as much info as you can.(The link to descriptions of many digestive diseases is: http://www.niddk.nih.gov/health/digest/digest.htm ) What Is Irritable Bowel Syndrome? What Causes IBS? What Are the Symptoms of IBS? How Is IBS Diagnosed? How Do Diet and Stress Affect IBS? How Does a Good Diet Help IBS? Can Medicines Relieve IBS Symptoms? Is IBS Linked to Other Diseases? Additional Readings -------------------------------------------------------------------------------- What Is Irritable Bowel Syndrome? Irritable bowel syndrome (IBS) is a common disorder of the intestines that leads to crampy pain, gassiness, bloating, and changes in bowel habits. Some people with IBS have constipation (difficult or infrequent bowel movements); others have diarrhea (frequent loose stools, often with an urgent need to move the bowels); and some people experience both. Sometimes the person with IBS has a crampy urge to move the bowels but cannot do so. Through the years, IBS has been called by many names--colitis, mucous colitis, spastic colon, spastic bowel, and functional bowel disease. Most of these terms are inaccurate. Colitis, for instance, means inflammation of the large intestine (colon). IBS, however, does not cause inflammation and should not be confused with another disorder, ulcerative colitis. The cause of IBS is not known, and as yet there is no cure. Doctors call it a functional disorder because there is no sign of disease when the colon is examined. IBS causes a great deal of discomfort and distress, but it does not cause permanent harm to the intestines and does not lead to intestinal bleeding of the bowel or to a serious disease such as cancer. Often IBS is just a mild annoyance, but for some people it can be disabling. They may be unable to go to social events, to go out to a job, or to travel even short distances. Most people with IBS, however, are able to control their symptoms through medications prescribed by their physicians, diet, and stress management. -------------------------------------------------------------------------------- What Causes IBS? The colon, which is about 6 feet long, connects the small intestine with the rectum and anus. The major function of the colon is to absorb water and salts from digestive products that enter from the small intestine. Two quarts of liquid matter enter the colon from the small intestine each day. This material may remain there for several days until most of the fluid and salts are absorbed into the body. The stool then passes through the colon by a pattern of movements to the left side of the colon, where it is stored until a bowel movement occurs. Colon motility (contraction of intestinal muscles and movement of its contents) is controlled by nerves and hormones and by electrical activity in the colon muscle. The electrical activity serves as a "pacemaker" similar to the mechanism that controls heart function. Movements of the colon propel the contents slowly back and forth but mainly toward the rectum. A few times each day strong muscle contractions move down the colon pushing fecal material ahead of them. Some of these strong contractions result in a bowel movement. Because doctors have been unable to find an organic cause, IBS often has been thought to be caused by emotional conflict or stress. While stress may worsen IBS symptoms, research suggests that other factors also are important. Researchers have found that the colon muscle of a person with IBS begins to spasm after only mild stimulation. The person with IBS seems to have a colon that is more sensitive and reactive than usual, so it responds strongly to stimuli that would not bother most people. Ordinary events such as eating and distention from gas or other material in the colon can cause the colon to overreact in the person with IBS. Certain medicines and foods may trigger spasms in some people. Sometimes the spasm delays the passage of stool, leading to constipation. Chocolate, milk products, or large amounts of alcohol are frequent offenders. Caffeine causes loose stools in many people, but it is more likely to affect those with IBS. Researchers also have found that women with IBS may have more symptoms during their menstrual periods, suggesting that reproductive hormones can increase IBS symptoms. -------------------------------------------------------------------------------- What Are the Symptoms of IBS? If you are concerned about IBS, it is important to realize that normal bowel function varies from person to person. Normal bowel movements range from as many as three stools a day to as few as three a week. A normal movement is one that is formed but not hard, contains no blood, and is passed without cramps or pain. People with IBS, on the other hand, usually have crampy abdominal pain with painful constipation or diarrhea. In some people, constipation and diarrhea alternate. Sometimes people with IBS pass mucus with their bowel movements. Bleeding, fever, weight loss, and persistent severe pain are not symptoms of IBS but may indicate other problems. -------------------------------------------------------------------------------- How Is IBS Diagnosed? IBS usually is diagnosed after doctors exclude the presence of disease. To get to that point, the doctor will take a complete medical history that includes a careful description of symptoms. A physical examination and laboratory tests will be done. A stool sample will be tested for evidence of bleeding. The doctor also may do diagnostic procedures such as x-rays or endoscopy (viewing the colon through a flexible tube inserted through the anus) to find out if there is disease. -------------------------------------------------------------------------------- How Do Diet and Stress Affect IBS? The potential for abnormal function of the colon is always present in people with IBS, but a trigger also must be present to cause symptoms. The most likely culprits seem to be diet and emotional stress. Many people report that their symptoms occur following a meal or when they are under stress. No one is sure why this happens, but scientists have some clues. Eating causes contractions of the colon. Normally, this response may cause an urge to have a bowel movement within 30 to 60 minutes after a meal. In people with IBS, the urge may come sooner with cramps and diarrhea. The strength of the response is often related to the number of calories in a meal and especially the amount of fat in a meal. Fat in any form (animal or vegetable) is a strong stimulus of colonic contractions after a meal. Many foods contain fat, especially meats of all kinds, poultry skin, whole milk, cream, cheese, butter, vegetable oil, margarine, shortening, avocados, and whipped toppings. Stress also stimulates colonic spasm in people with IBS. This process is not completely understood, but scientists point out that the colon is controlled partly by the nervous system. Stress reduction (relaxation) training or counseling and support help relieve IBS symptoms in some people. However, doctors are quick to note that this does not mean IBS is the result of a personality disorder. IBS is at least partly a disorder of colon motility. -------------------------------------------------------------------------------- How Does a Good Diet Help IBS? For many people, eating a proper diet lessens IBS symptoms. Before changing your diet, it is a good idea to keep a journal noting which foods seem to cause distress. Discuss your findings with your doctor. You also may want to consult a registered dietitian, who can help you make changes in your diet. For instance, if dairy products cause your symptoms to flare up, you can try eating less of those foods. Yogurt might be tolerated better because it contains organisms that supply lactase, the enzyme needed to digest lactose, the sugar found in milk products. Because dairy products are an important source of calcium and other nutrients that your body needs, be sure to get adequate nutrients in the foods that you substitute. Dietary fiber may lessen IBS symptoms in many cases. Whole grain breads and cereals, beans, fruits, and vegetables are good sources of fiber. Consult your doctor before using an over-the-counter fiber supplement. High-fiber diets keep the colon mildly distended, which may help to prevent spasms from developing. Some forms of fiber also keep water in the stools, thereby preventing hard stools that are difficult to pass. Doctors usually recommend that you eat just enough fiber so that you have soft, easily passed, and painless bowel movements. High-fiber diets may cause gas and bloating, but within a few weeks, these symptoms often go away as your body adjusts to the diet.Large meals can cause cramping and diarrhea in people with IBS. Symptoms may be eased if you eat smaller meals more often or just eat smaller portions. This should help, especially if your meals are low in fat and high in carbohydrates such as pasta, rice, whole-grain breads and cereals, fruits, and vegetables.-------------------------------------------------------------------------------- Can Medicines Relieve IBS Symptoms? Your doctor may prescribe fiber supplements or occasional laxatives if you are constipated. Some doctors prescribe drugs that control colon muscle spasms, drugs that slow the movement of food through the digestive system, tranquilizers, or antidepressant drugs, all of which may relieve symptoms. It is important to follow the physician's instructions when taking IBS medications--particularly laxatives, which can be habit forming if not used carefully.-------------------------------------------------------------------------------- Is IBS Linked to Other Diseases? IBS has not been shown to lead to any serious, organic diseases. No link has been established between IBS and inflammatory bowel diseases such as Crohn's disease or ulcerative colitis. IBS does not lead to cancer. Some patients have a more severe form of IBS, and the pain and diarrhea may cause them to withdraw from normal activities. These patients need to work with their physicians to find the best combination of medicine, diet, counseling, and support to control their symptoms.-------------------------------------------------------------------------------- Additional Readings Scanlon, D, Becnel, B. Wellness Book of IBS. New York: St. Martin's Press, 1989. Practical patient's guide to coping with IBS written by a registered dietitian. Available in libraries and bookstores.Shimberg, E. Relief From IBS. New York: M. Evans and Company, 1988. Practical book for patients offers information about IBS symptoms, diet, treatment, and self-care. Available in libraries and bookstores.Steinhart, MJ. Irritable bowel syndrome: How to relieve symptoms enough to improve daily function. Postgraduate Medicine 1992; 91(6): 315-321. Article for primary care physicians includes information about relief of IBS symptoms. Available in medical and university libraries.Thompson, WG. Gut reactions: Understanding symptoms of the digestive tract. New York: Plenum Publishing Corp., 1989. Clear, concise book by a digestive diseases specialist gives advice about diagnosis, diet, and treatment of IBS. Available in libraries and bookstores. --------------------------------------------------------------------------------National Digestive Diseases Information Clearinghouse2 Information WayBethesda, MD 20892-3570Email: ndic###info.niddk.nih.gov The National Digestive Diseases Information Clearinghouse (NDDIC) is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). NIDDK is part of the National Institutes of Health under the U.S. Public Health Service. Established in 1980, the clearinghouse provides information about digestive diseases to people with digestive disorders and to their families, health care professionals, and the public. NDDIC answers inquiries; develops, reviews, and distributes publications; and works closely with professional and patient organizations and Government agencies to coordinate resources about digestive diseases.Publications produced by the clearinghouse are reviewed carefully for scientific accuracy, content, and readability. This e-text is not copyrighted. The clearinghouse encourages users of this e-pub to duplicate and distribute as many copies as desired.-------------------------------------------------------------------------------- NIH Publication No. 97-693October 1992e-text posted: February 1998e-text last updated: November 2000
 

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Discussion Starter · #10 ·
Im currently on Amitriptyline - 3*10ml tabs I doesn't mention nausea as a side effect and if anything after I started taking them - improved me slightly. I really don't won't to have any more tests, last time I have a bad reaction to the aneasthetic and nearly died!!As a said there is slight diarrhea - but I don't feel the need to go to the toilet all the time! feel kinda puzzled now!
 

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O.K. now things make a little more sense. Checking the side effects of the anti-depressant is a good idea. I wonder why your dr. immediately put you on an anti-depressant. Are you taking other meds?My son is the one with IBS (not me). He also didn't have many of the "usual" symptoms. He started out with the feeling incomplete emptying and stomach pain. Contrary to what a lot of the symptom lists say, his pain came "with" bm, it was not relieved by a bm. No diarrhea or constipation. He did begin to go more frequently though. Then the incomplete emptying seemed to go away a bit and he developed gas. Now he has back pain with a bm. This took place all within a period of 3 months.An important thing to remember is that your stomach problems are leading to stress, which in turn is contributing to your stomach problems.I will say though that nausea and vomiting is not something I've heard alot with IBS. But I am NO expert.
 

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Discussion Starter · #12 ·
Thanks JackieGian - 1 thing though - whats bm? im only a newbie - sorry!He put me on the Anti depressents just as a trial and they did help, acidophillus didn't help at all, pepermint did help, the only times I dare go places is before I have anything to eat! stress is definetely not a factor - I spend most days watching vids or sunbathing in my back garden - im also quite a happy person generally! I used to have an extremely stressfull job but didn't let it effect me - it seems to be gradually getting better but at this rate i'll be 50 before I feel 100%Oh im on no other medication.I found that eating small meals every 2 hours helps alot!Thankyou - I feel I gonna be a big test for you lot! I just want to get back playing football!
 

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BM = bowel movement! Sorry!From what I understand peppermint has mild anti-spasmodic effects. Since that seemed to help, why don't you ask your dr. to put you on something a bit stronger? When you say you get "sick" do you mean naseaus? What happens after you eat?I'm certainly not going to insist that you're stressed, but when you said
quote: I was a outgoing fun loving, sporty person and now im scared of going outside! � I spent the whole time in my house or garden and haven�t seen my friends in months � I even dread appointments to see my GP because I can�t guarantee Im not going to be sick everywhere!
It seemed to me - at least at this point - that you're under stress. That's what I meant when I said
quote: An important thing to remember is that your stomach problems are leading to stress, which in turn is contributing to your stomach problems.
 

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Discussion Starter · #14 ·
Hello again, after I eat usually feel o.k for a bit then after a while can get a general feeling of being unwell and although I wouldn't describe it is as be bloated I feel sluggish and heavy.My upper stomach still feels extremely sensitive If I try to eat anything that's not completely bland I wake up the next morning with a real sickly feeling in the pit of my stomach and feel the need to go to the loo a couple of times although after this will probably go all day without needing to go again, for exampple recently I've tried eating the cultured yogurts but every time i've taken them I end up with this feeling the next day.Good idea to ask about the about any anti-spasmodic tablets.I do think your right about the stress thing - I do think anxiety probably has a big part at the mo because it's probably the fear of being sick that doesn't help things alot!
 

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Discussion Starter · #16 ·
I have know done soem research in the archives and found that yes - few people can get nausea from IBS and it seems that upper G.I symptoms seem to be more common with Post infective irratible bowel syndrome which is what ive got, have to have a chat with my gastroenterologist to see if theres anything he can prescibe me to take away the Nausea, any suggestions?
 

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Zofran is a great anti-nausea drug. It's primarily used for chemotherapy patients, but I've seen several people on this BB who have had success using it with IBS (D type I think). However, it is VERY expensive -- like $20 a pill if I remember correctly.
 

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Discussion Starter · #18 ·
Thanks for that JackieGian- did a quick search and found a good site Zofran do you know if it's available on prescription?, if not i'll have to pay - right now ill do anything to get rid of the naausea cos apart from that I feel o.k
 

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Maverick, my main complaint with this IBS has always been the constant nausea. I got IBS after a food poisoning incident where I did get violently ill. It seemed as if the nausea from that night never went away. After all the tests they told me I had IBS. I can deal with the C and the D and even some of the pain, but I do NOT handle nausea very well. I am also on Elavil (amitriptyline) 25mg once at night and it helps a little bit with the nausea. That is, it makes me feel only queasy instead of full-blown nauseous. I also do better with several small meals. I did test positive for H. Pylori last year, and they think that it was a long-standing infection. Even though I've been treated for it I still have the dyspepsia-type symptoms of pain and the queasies in my stomach. Although I was pretty much a C-D swinger the biggest problem, the one that kept me home the most, was that I always felt on the verge of losing my lunch. There is a product I used before embarking on the LEAP program that has helped me tremendously with the nausea for the last 7 or 8 months. I don't post the company's info on the BB but if you want more info email me and I'll give you their web URL and the specific product name you can do a search for. It's no where near the cost of the product you mentioned. [And no, I am not affiliated with any company or product, blah blah and so forth. (I think I've been here long enough that people know I'm not a hawk for anyone or anything.)]Hope you're feeling better today!
 

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That medication can be very effective for nausea and is used in cancer patients. It may not be something to go on long term though and you should talk to your doc about it. It may or may not also help your IBS.It is also expensive.This is some good info on Post infectious IBS http://www.med.unc.edu/medicine/fgidc/post_infestious.htm On a side note hypnotherapy can also be very effective for nausea, as well as IBS.
 
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