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Discussion Starter · #1 ·
My sigmoidoscopy showed negative biopsies. Therefore no colitis although my gut looked inflammed by naked eye. Anyway, 25 yrs laters after my original diagnosis it would appear my diagnosis is now not colitis but IBS. I was desperate for some help so decided reluctantly to go through another test (couldn't face a colonoscopy). My problem is having gone through this test and the trauma associated (i wont give the graphic details) I have a letter saying no IBD found and an open invitation to go back to see the GI specialist. I have lived with this for 25yrs and wanted something more than a negative test result. It just doesn't help me at all. I went to an expert for help-all i got was a negative test result and a message "pleased your test was negative". My symptoms haven't gone away and it is disappointing that after psyching myself up for this test for so long that it hasn't helped me at all. She has told me to keep taking imodium -up to 16 per day. She says it is an excellent drug and no problems with tolerance-just take as many as I need.
 

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Well with IBS all you ever get, no matter how many tests you take, is pleased your test is negative.Except for one blood test that can look for IBS biomarkers.Have you been tested for celiac? That may be worth pressing for. The initial tests are just blood tests. However if you eat gluten free you would need to go back on it.I would make a follow up appointment and ask what else can be done because while Imodium works it isn't the one and only medication. I mean there is Questran (or other bile binders) as well as some other things, but a lot of people refuse antidepressants so I don't know if any of those would work.If you have been through all the various medications and the one that works best is Imodium then that may be the best option.Sorry there isn't a medical test or treatment that will give you what you seem to want.
 

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i've never had any biopsies or scopes or anything like that..........i relied on just how my body felt.........i personally believe that alot of medical exams can cause more damage than one would want........but i understand how u might want to just find something that would help........knowing is some peace in & of itself..........i will not tell u what i was diagnosed with last week, but i would like to know if u have any other complaints??............during the last 7yrs, i have had many complaints & problems other than the ibs-d...........they seemed unrelated to the ibs..........the operative word being "seemed"..........i've had exhaustion, skin rashes that come & go, never seeming to b the same, body aches, throwing up, nausea, bloating, intestinal pain & churning, migraines, altho not too many lately, mind fog & some others i can't think of right now.........so what r u dealing with, even if u don't think about them much cause the ibs-d is so over-whelming??..........it can seem that this thing is just so life changing.............it does impinge on everything in ur life, but let me tell u, there r worse things.........the fact that u have ibs-d, is ur body' way of telling u there is something wrong, something not working right..........sometimes it's ur body' way of trying to get rid of something, something that maybe it can't get rid of.........i have been treated for candida over-growth for 2yrs & it has caused me alot of misery & it is a horrible thing to deal with, it also does cause D.........do u have sinus trouble or allergies??........there r so many things that it might mean........how old r u??.........as we age we don't make as much serotonin as when we r young & this can cause D, too...........have u tried tryptophan & or 5HTP?..........i did get some relief from those..........they stop spasms in the intestines, which can cause D.........u have to take them w/niacin, B2, P5P, chelated magnesium & a little bit of vitamin C.........those make a big difference.........there r so many things that might make a difference..........i have always found that listening to my body is the best thing to do, which can b a hard thing to do........would u answer my questions, i would like to know about u.........i may b able to help..........
 

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Discussion Starter · #4 ·
crastar-I think Ihave to accept what the medics found on my sigmoidoscopy. I don't want to harp on about what it might have been now. I finely want to accept their findings and move on with my diagnosis.. I don't actually have any sensible options anyway so must live with what I have-yeh, I have IBS and maybe things can get better.I've lived with this for 25yrs but maybe it will be my turn eventually for a breakthough. I'm smiling cos I guess it could have been worse and I know that now-thanks for your support.
 
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