Hi badfoot:I'm not familiar with Neurally mediated hypotension. Can you explain a little bit what it is? Also, what type of nutritional deficiency do you have? Maybe some of us can put our heads together and come up with suggestions.JeanG
Neurally mediated hypotension?
Anyone have experience with Neurally mediated hypotension? I have great difficultly gaining weight (IBS-alternating d & c) and I suffer from some unexplained foot pain and severe fatigue. I've been tested by a neurologist (ouch) and my MD says it's a nutrional deficiency. It does improve when my weight goes up. I'm just looking around for anything that might help because I'm having to use a wheelchair more and more often. Thanks for any help.
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G
I thought I might (and still might) have this. It is very common in people with Fibromyalgia and Chronic Fatigue Syndrome. It is a type of low blood pressure and with the way mine has been bottoming out, I would be a likely candidate. But none of the Doc's have seen me when my blood pressure is super low, and it has to be diagnosed with a Tilt test. When I start feeling that way now, I drink a ton of water (in addition to the ton I already drink) and I start to feel better in about 15 minutes or so.
To JeanThanks for the interest. My MD who is a clinical nutrionist calls my foot pain a nutritional deficiency because it does improve when I gain weight. I don't have any specific deficiencies that he can find. The problem is getting enough calories down without turning into a constipated, bloated lump. I eat lots of small meals, turkey, avocado, vegetables, fibre, moderate amounts of mayo and oils (for calories) and drink a liquid supplement at night. I just can't get enough in to boost my weight. I'm 5'9" and 135 lbs, which makes me skinny, but not clinically malnourished. (I did have an IV at a lower weight) I have a good appetite. Within the last few years (i've had IBS 10 yrs) my feet have become sensitive to anything more than a short walk. It's weird, just what I need, another weird symptom. So I'm thinking of pursuing a tilt table test for neurally mediated hypotension. Anyway thanks for listening.
Hi badfoot:Thanks for replying. That must be very difficult for you. Is the problem that you become very constipated when you eat the right amounts of food? I know HipJan has often talked about her problems with gaining weight. The last post I read she has just started to gain again, and is also working with a nutritionist. You might ask her what she is doing.If I run across any information, I'll post it for you.
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JeanG------------------Member of "The Advance Guard for the Ozone Rangers".May the "farce" be with you. JeanG
Yes, I've gained a small amount of weight (8 pounds) by eating all day long, practically -- but can't seem to gain any more right now! I can't relate to your exact problems, but I do know that as I started to gain weight, some of my v. worst symptoms started lessening. I also take quite a few nutritional supplements, since apparently I've been deficient in many important things.(I'm almost your height but many, many pounds less...so, believe me, I know about being really thin and how it can make one's immune system go whacky.) It's interesting, isn't it? I feel so sorry that you have to use a wheelchair at times. I hope you learn more soon and are able to find some relief.... ------------------Cultivate gratitude. Believe in possibilities.
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