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Hi all.. I've been suffering from FBO for at least the past 3 years. This is my story.. it's pretty long, so I thank you for reading through and offering advice.I first noticed a bad odor around me when I went on a long train ride. The inside of the car smelled terrible and I thought that it was just the way the train smelled. A couple of girls were covering their noses so I knew that I wasn't imagining the smell. I even had an attendant on a connecting train ask me if I was alright. I thought it was a strange question, but told him I was okay. I had a friend pick me up at the train station and ask me if I needed to use the restroom. In fact, this night was the last time I saw him. I guess I smelled too bad to be his friend anymore. On the train ride back home, I got off at one of the stops to use a vending machine and people were whispering "that's him right there". I got home and related the story to my parents but they thought I was crazy, noting that they'd never smelled anything before.I finally got a job around this time at an office and could smell what could best be described as rotting garbage. I had begun stuffing toilet paper into my butt crack after using the restroom and noticed that I had leftover fecal material on the toilet paper when I checked later on. I found this strange, since I made sure to wipe (with dry paper) myself very thoroughly. One time a coworker brought her daughter by and she made a comment about the smell in the room. I even saw the reflection of a coworker in a door I was walking towards and he had this disgusted look on his face and was looking at my butt. I'd never noticed anything leaking down my leg, though I'd always checked to make sure.. inspecting the back of my pants for drips. I didn't have insurance at the time, but I went to a couple doctors and had them physically examine me. Neither of them noticed any odor and asked if I had merely been farting. I told them I would have noticed that. Blood work was done, came back negative for anything wrong. I couldn't take the stress of this job and moved on to a warehouse position with another company. I continued the practice of folding toilet paper and stuffing it in my crack. Again, there would be fecal material remaining. People at work would make farting sounds around me and it was at this point that I began to complain about an odor that apparently only I could smell. Everyone would act as if they didn't smell anything, though when I said I thought it was me, one guy said "maybe it is". One day I began to feel what felt like something running down my legs and a coworker caught me glancing down at the back of my pant legs and asked me if I was looking for wet spots. I asked her if I had any and she stammered and said no. I immediately went into the restroom, but there were no spots. Someone also used magnetic poetry to put the phrase "#### juice when you smell" on the fridge. I eventually picked up health insurance while working here, paying for it out of my own pocket and began to make more frequent visits to the doctor. Still, no one could confirm anything wrong with me. I had both an endoscopy and colonoscopy done and the only thing that was confirmed was that I had diverticulosis. The doctor did note that it was strange because I was in my late 20's and the pockets were mainly on the right side, or ascending colon. After the colonoscopy was done, I was laid off from my work. I think they had enough of me smelling up the place.. they claimed it was due to a downturn in business, but I noticed they put an ad in the paper shortly after that and a new person was hired when I went back to pick up some personal belongings.During my unemployment I continued to make visits to different doctors, trying desperately to find someone who would listen to me. I knew I smelled bad but no one would believe me. I even had a doctor prescribe thorazine for me, which I did NOT take. Everyone was trying to tell me it was all in my head. I eventually discovered the joys of preparation h wipes (and later on, cottonelle wipes), which were absolutely necessary for me to keep myself clean. I would dry wipe and then when nothing was left, continue with the wet wipes which picked up an amazing amount of material. A couple of doctors noted that I had small hemmorrhoids but nothing that would be causing me the problems I had presented them with -- problems that they insisted I was not having.I eventually found another warehouse job and continued going to other doctors. At this new job, I started noticing that I would sweat more than before, so much in fact that I would have a large amount of wetness on my underwear. I didn't put much stock in it, confident that the wet wipes had solved my problems. I would still hear comments from people about me, however, stating that I smelled weird. I would go to the bathroom and check, first using dry toilet paper and then a wet wipe.. nothing would be there! However, I would have a large amount of wetness on my underwear. I began wearing two pairs, just in case I had a really humid day. I started to notice stains on my dark-colored underwear other than sweat... the weird thing was, they were white! When I wore white underwear, nothing would show up. I was eventually able to find a doctor who agreed to perform a stapled hemmorhoidectomy on me due to the fact that I had a bulge that would come out when defecating. The pain was excruciating while recovering, but I thought it would be so worth it if it would fix my problems. It didn't. While it eliminated the bulge, I would still hear comments from people about my supposed lack of hygiene. I started to get very depressed, hearing comments like "you missed a spot", "why doesn't he just go to the bathroom?" and such. I've noticed that in addition to wiping the area around my anus, I also have to wipe at the top of my crack. I'm very thorough and make sure to get every last bit, even pushing the wipe inside my anus to make sure that I've gotten it all. To this day, I still get those weird sweat marks and white stains on dark underwear, which actually start ABOVE my butt crack. I had another episode today.. I had a bowel movement, went through the cleaning ritual and then showered.. I went to run some errands and heard some comments again. When I got home, I checked my underwear and sure enough, there was that light, chalky white mark running down my underwear. I've tried increasing my fiber, eliminating fast food and caffeine... I don't know what else to do! I have given up on going to the doctor, resigning myself to the fact that I'm destined to smell bad and have no social life.I should also note that this problem seems to be more prevalent when I'm around people. When I'm alone I don't get nearly the amount of marks on my underwear.
 

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Have you been tested for TMAU? Most people do have a hard time getting tested and there are only a few places that do it.Rotting garbage is one of the smells even though it has the common name "fish odor". The smell can be fecal, or rotting garbage through to rotting fish.The diet for TMAU specifically limits choline, which is not one of the normal elimination diets people tend to try.
 

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I may have to try that out as the symptoms seem to have appeared after I became vegetarian and began eating soy patties.One thing that concerns me, however, is that NO ONE has told me I smelled bad even after confronting them about it. There's also the issue of the strange leakage, which looks almost powdery on my underwear and will go away after some time.Oh, the urge I get when I need to defecate is also different than it used to be, almost non-existent.I keep thinking of things that might be related... I have a pink line that runs up from the top of my butt crack. I have no idea what it's from, but could it be a fissure? If so, why wouldn't the doctors have mentioned this to me?
 

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Hi Phil.Having experienced much of what you describe I understand exactly how you're feeling.You're probably under extreme mental pressure.It's not in your head. My experience is that many smell it strongly while others can be oblivious to it.It fluctuates & you can never tell how bad it is day to day.With FBO symptoms you learn how cruel & selective human nature can be.Until you find a cure you need to remove yourself from the pressure of constant contact with others.Without relief you might end up with depression or a breakdown.Firstly try to find a job which minimizes interacting with others. Perhaps an outdoor job or one involving outsourced PC work from home.I left a high paying career & now work as a postman riding motorcycles.It took the pressure off & restored some of my dignity.Step back & take a look at your lifestyle & diet.Instead of lamenting your situation you can view it as a Godsend allowing you to rebuild your whole life.I recommend the following to anyone regardless of whether your have bowel problems or not.1. Exercise regularly.2. Meditate or practice global relaxation.3. Quit smoking.4. Avoid processed foods, soda pop, sweets, & takeaways.5 Replace coffee with green tea.6. Drink 8 glasses of water daily.7. Limit alcohol.8. Make time every morning to clear your bowels without feeling rushed - I have 3 glasses of water when I arise to get things moving.9. Daily multi purpose vitamins.These things will give you strength to tackle your problem & reduce some of your symptoms.Regarding your FBO & inability to clear your bowel.a. I'd ask the doctor to arrange gas tests to see if you are intolerant to Lactose & Fructose. I learned I have a dairy intolerance & have removed it from my diet. When eliminating food groups watch for hidden items in processed or packaged foods (look at the fine print).b. I'd also eliminate Fructans & Sorbitol from my diet. These are known irritants for anyone. c. I'd start taking Huang Lian (Coptidis Ryzoma) a Chinese herb, 2 tablets 3 times a day with water. I've suffered with your symptoms for over 40 years & after learning about Huang Lian on this forum 4 weeks ago I've been able to reduce my symptoms by 80 - 90%. http://alternativehealing.org/huang_lian.htm http://www.orientalpharmacy.com/hulisutak.htmlThe beauty of this stuff is it's a non prescription herb, inexpensive ($AUS16 for 4 weeks) & allows you to experiment before going down the road of getting involved with various prescriptions & expensive products.Best of luck Phil & remember you're not alone.
 

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Discussion Starter · #6 ·
Thanks for the replies, guys.. I'm going to try everything I can to get rid of this issue.I'm leaning towards the belief that this may be at least partially due to a pilonidal cyst because of the whitish discharge I'm seeing. A couple of days ago I had nothing to eat all morning and afternoon, emptied my bowels and took a shower. I ate later on (about 8:30 pm) and a couple of hours later again noticed the whitish skidmarks. This can't be fecal matter because I'm fairly certain that my bowels were empty and the skids start above my anal opening.. and actually above my butt crack. They're also often off to the side. I got another one of them today, except it was just a single spot roughly the size of a dime. I had no issues with the sweating like normal. Again, the weird thing is that the discharge is whitish (kind of light gray) but powdery-looking. If I wear white underwear, I'd never be able to see anything.
 

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Discussion Starter · #8 ·
I had a colonoscopy done 3 years ago. All that was found was diverticulosis. The dr. said the only thing abnormal about that was my age at the time (late 20's) and the fact that the pockets were in my ascending colon.. usually they're on the descending side. I can feel soft, tender spots on my butt from above the crack down to the anus.. there is at least one that feels like it could be a drainage canal. I also have what appears to be a thrombosed hemmerhoid directly inside the anus. It's been there for the past couple years that I know of.. looks like a bruise with blood on it, though I have no blood with bm's.
 

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I had a colonoscopy done 3 years ago. All that was found was diverticulosis. The dr. said the only thing abnormal about that was my age at the time (late 20's) and the fact that the pockets were in my ascending colon.. usually they're on the descending side. I can feel soft, tender spots on my butt from above the crack down to the anus.. there is at least one that feels like it could be a drainage canal. I also have what appears to be a thrombosed hemmerhoid directly inside the anus. It's been there for the past couple years that I know of.. looks like a bruise with blood on it, though I have no blood with bm's.
Don't waste anytime Phil.See a competent specialist who can identify what's really happening & how to correct it.Also a hemorrhoid is capable of producing bacterial discharge & be contributing to your condition.I'd say you're one of the lucky ones. A physical cause of your FBO & discharge.Once healed & back to normal, your experience will have given you new insights on peoples cruel marginalization of others.
 

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Discussion Starter · #10 ·
The hemmorhoid can't be the sole cause of the discharge. Like I've stated before, there's a whitish-gray substance that starts ABOVE the top of my butt crack. I also have a sweat-like substance that sometimes comes out of the inner portion of my butt cheeks, but this mainly seems to originate from right underneath my testicles. I've taken a whiff of both types of discharge and neither has an odor that I can detect and I consider myself to have a strong sense of smell.I can't go to the doctor anymore because none of them (and there have been a dozen so far, including so-called "experts") have been able to identify anything that would be causing the problem. Some have mentioned "minor" hemmorhoids, but stated that they couldn't be causing me the problems I was describing (constipation, leakage, odor). I went to an alternative hemmorhoid treatment center and was told they weren't bad.. but the doctor did say something about an exposed anal mucosa which no one before or since has mentioned at all.
 

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The hemmorhoid can't be the sole cause of the discharge. Like I've stated before, there's a whitish-gray substance that starts ABOVE the top of my butt crack. I also have a sweat-like substance that sometimes comes out of the inner portion of my butt cheeks, but this mainly seems to originate from right underneath my testicles. I've taken a whiff of both types of discharge and neither has an odor that I can detect and I consider myself to have a strong sense of smell.I can't go to the doctor anymore because none of them (and there have been a dozen so far, including so-called "experts") have been able to identify anything that would be causing the problem. Some have mentioned "minor" hemmorhoids, but stated that they couldn't be causing me the problems I was describing (constipation, leakage, odor). I went to an alternative hemmorhoid treatment center and was told they weren't bad.. but the doctor did say something about an exposed anal mucosa which no one before or since has mentioned at all.
I thought the pilonidal cyst sounded plausible due to your whitish gray discharge, but only mentioned the hemorrhoid as this can contribute to your overall FBO.Another name for anal mucosa is an anal fissure (a tear) which can cause great pain depending on its location (sphincter). An anal fissure can have discharge if it's not healing, especially if it's constantly exposed to fecal matter.The fact that you couldn't detect an odor for any of the discharges isn't conclusive.A person who is constantly exposed to their own odor becomes desensitized to it compared someone who comes into a room.I also suspect that odors change when they mix with other gases in the air. If it was me I'd take control & force the issue with one of the doctors.Maybe you can ask for a specimen container & try to save a sample of the whitish discharge so they can do a lab test.Also ask them what examination they need to do to eliminate fissure & pilonidal cyst from your list.Go to other doctors if you need to.In my experience, unless it's obvious or common, many of them don't know.I saw doctors for 30 years before being diagnosed with lactose intolerance.Having come to a road block I highly recommend you start taking the Chinese herb Huang Lian.It comes in small very bitter pills which you take 2 three times a day with meals.I had many of your symptoms but the Huang Lian has reduced them to about 10 - 20% of what it was.The herb seems to have restored the balance (flora) in my digestive tract.
 

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I can't go to the doctor anymore because none of them (and there have been a dozen so far, including so-called "experts") have been able to identify anything that would be causing the problem.
They already confirmed you had diverticulosis.Diverticulitis seems to occur when a small puncture develops in the diverticular wall. This causes a small infection to develop, often forming an abscess.Some of the complications of diverticular disease include * Abscess - untreated, diverticulitis may lead to an abscess (a ball of pus). The abcess might be internal & discharge out through the anus.The white gray secretions could be due in internal abscess & can cause FBO.If your colonoscopy was three years ago I'd front up for another one to examine whether the diverticulosis has worsened.
 

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FoulPhil, have you been checked for Candida? The white chalky material might be yeast. If you have ever taken an antibiotic it sometimes kills the good bacteria in your gut witch kept yeast levels in check. Once the good bacteria is gone the yeast goes haywire. I have eliminated all sugars from my diet this includes fruit and juices. I have read that the Candida diet can take months to clear your system up. I also started eating plain yogurt with live cultures, this replaces the good bacteria in your stomach and stops yeast growth, eliminating the yeast left is the chore. I have the same odor as you, don't have dark under wear but now you have my curiosity up. See if this link helps you any.
 
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