Irritable Bowel Syndrome and Digestive Health Support Forum banner
1 - 2 of 2 Posts

·
Registered
Joined
·
7 Posts
Discussion Starter · #1 ·
I few months ago I was diagnosed with IBS-D. It has been out of control since I got food-poisoning in June. These are my symptoms: severe abdominal pain and cramping (keeps me doubled over)severe nausea (wakes me up at night and sometimes prevents me from eating I take Phenegren)fatiguebloating and gas (usually only when I have my period)heartburn (I take Prilosec and it doesn't really help)loss of appetitesour taste in mouth and coated tongue (it is horrible, I brush my teeth constantly)fibromygilahair loss (probably due to the shock on my system)weight loss ( I have lost 50 pounds since June)tremors (Sometimes I shake so badly I can't hold a cup)intolerances to food (I have flare-ups even with IBS-safe foods)sensitivity to heat and cold (I get really irritable if I'm too hot or too cold)ringing in earsdizzinessmigraineseasy bruisingyellow stools (my stools have be yellow since my gallbladder was removed)passing rectal mucus (sometimes bloody, clear, or yellow - sorry to be gross)weaknessweird cravings (sometimes I crave nail polish remover and other times I just crave a bowl of Froot Loops)anxiety and depressionMy monthly cycle is all out of wack too. I get constipated and my cramps are severe. My PCP put me on birth control pills to help my periods be more regular and less painful. I have cramping and spotting mid-month as well.My doctors did all the tests and they found my gallbladder wasn't functioning so I had it taken out. I felt okay for about a week then all my symptoms returned with a vengence. I went back to see my surgeon in September and he referred me to a GI but I had to wait until December 1st. Meanwhile I got a kidney stone and had to have it blasted. That relieved my symptoms for about a day then they all came back. I got the stomach flu back at the beginning of November and had to be hospitalized for rehydration. I was so sick it took me almost a month to recover. I couldn't eat or drink anything for two weeks. So my GI appointment finally comes and the GI tells me I have out of control IBS-D (DUH!) and I need to find a therapist. She gave me Symax duotab and Xifaxan (200 mg 3x daily) neither of which seem to work very well. As soon as I go off the Xifaxan my symptoms return. I have been pretty sick the past two days since my precription of Xifaxan ran out. I was in the bathroom for hours yesterday. I don't know what I did wrong, I have been so careful to eat right. I can walk to exercise but usually I stay away from exercising because I feel like I am going to throw up all of the time. All of my doctors are aware of all of my previously mentioned symptoms. All of my blood, urine, and stool samples came back normal. I had a colonoscopy and an upper endoscopy with normal results. I was even tested for heavy metal poisoning which came back normal. My GI office is like a conveyor belt, the doctors move you though quickly and don't seem to listen. I have a follow-up in THREE MONTHS! So in the meantime I have all of these symptoms which prevent me from living my life. I am trapped inside my house because my flare-ups have no warning so I have to be close to a bathroom. I just don't understand, I was healthy as a horse this time last year! I missed Thanksgiving with my family because I was so sick. I won't be able to visit relatives this year for Christmas because it is a 2 hour car ride. What if I have a flare-up in the car or while I am visiting? It is horrible and humiliating. I am completely devestated. My life is ruined. I am a stay-at-home mom but I can't even take care of my family anymore. I cannot get my symptoms under control. I have tried, really tried and I may feel good for a few days but then I get sick again. It is like taking one step ahead and three steps back. My husband has been taking care of me this whole time (thank God for him!)Thanks for listening to me whine.
 

·
Registered
Joined
·
8 Posts
Hi Manda--I've been reading posts at this site for awhile and have found them very helpful. I was driven to reply to your post because your story sounds so much like my own. Like you, I had my gallbladder out without relief of symptoms. I am newly diagnosed myself with IBS but have atypical symptoms:I have upper abdominal pain with severe nausea...the pain and nausea wake me at night which I've read is not a typical feature of IBS. I've also experienced profound hair thinning and muscle/joint achiness and ringing in my ears. My PCP feels I have some sort of autoimmune thing going on and I understand one theory of IBS is that it can be brought on by an autoimmune problem. I take Symax which helps a little but not much. I have an appointment to talk with my GI doctor about Elavil in January...I can hardly wait and hope I don't get my hopes up too much that it will work, only to be let down.Did you consider that your hair loss might also be related to your hormones getting out of wack...if your cycles are messed up, you definitely have some hormonal changes going on. I hope you find some relief and I hope you are a little comforted to know that others out there share experience similar pains and anxiety. I know it's been helpful to me. Thanks for posting.
 
1 - 2 of 2 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top