Irritable Bowel Syndrome and Digestive Health Support Forum banner
1 - 6 of 6 Posts

·
Registered
Joined
·
2 Posts
Discussion Starter · #1 ·
I am a 36 year old male that has been dealing with "stomach issues" since I was about 14 years old. Over the past 2-3 years, I have been getting progressively worse. I picked up a virus about 3 years ago, and have not been the same since.My Symptoms:bloatingflatulencebelchingdiarrheacrampingI will not have a bowel movement for 3 or 4 days, then usually get really crampy and have diarrhea.I have been tested for the following:colitisKrones Diseaselactose intollerancegall bladderCeliac (blood test only)ulcersgiardia and other parasitesEGD/colonoscopy test showed irritation in both my esophagus and small intestine.and a few benign polyps were removed.I did test positive for fructose malabsorption/intollerance, but my score was not off the chart, it was barely above normal.I also had allergy testing (skin prick) and they found the following as positive allergens:whole wheatcultivated oatsricefish mixcelery orangesbuckwheatstrawberrychocolate Chicken and rice also showed up on the food patch test!I do not get any typical allergic reactions when I eat these though. No hives, no anaphalactic reactions, etc. THey have tried:Align (probiotice)xanax (in case nerve related)aciphexnexiumBentyl (am trying now-it has only been a week on it, but I do not feel any better)The allergist thinks I may have something called eosinophillic esophagitis because sometimes my food gets stuck and I choke.I have lost over 30 pounds in the last 6 months (and I was not really overweight to begin with), and cannot seem to eat anything. Milk products make me sick, even though lactose and allergy tests were both negative.Help, please.
 

·
Banned
Joined
·
240 Posts
What was the viral infection?When you got this infection, how longwas the acute sickness? Did you ever have intense GI symptoms beforethis viral infection?Did you lose 30 lbs because you have lost your appetite? I did not see that mentionedon your list of symptoms.30 lbs is alarming. Can you tell us your height and weight? You should get another opinion from a top GIspecialist. Are you near a large city? Did they check for blood in the stool?You may want to see an infectious disease specialist.
 

·
Registered
Joined
·
34,955 Posts
Are you really eating a lot less? Weight loss due to eating less is normal, and they have checked for most of the things that cause weight loss without a change in eating habits.A lot of IBSers really have the exact same symptoms no matter what they eat because it is how the GI tract reacts to being fed (and the stomach is a little snitch and tells everyone the volume of food and how fatty it is).A lot of people can get a conditioned response to dairy (even if they don't react to lactose if you hide it in their food) and often the fat in dairy is a problem more than the lactose if you are fat sensitive at all.GI infections are known to trigger IBS because the nerves get tweaked as the body fights off the infection. You do not need an ongoing infection to have GI symptoms after a bout of gastroenteritis.If you are eating more than enough calories and you are still losing weight it may not be in the GI tract and you may need blood sugar and thyroid issues checked for. One thing when people have problems eating is they tend to wait as long as possiible to eat and that can then make you react more to the act of eating. If you can eat 300-400 calories every 3-4 hours that may help with the GI problems and make it easier to get more calories in. Some people end up supplementing with Ensure which tends to be well tolerated (designed for people with cancer or other major health issues) and that can get the calories up, but some people don't tolerate it. You can get it at just about any pharmacy and many grocery stores.The next step medically is probably low dose antidepressants to see if you can re-tweak the nerves to behave better. If you do not want to go that route I would suggest one of the home hypnotherpy CD sets (the ones Mike Mahoney does seem to help a lot of people) or if you are lucky enough to have a person trained in CBT or Hypnotherapy for IBS (there is a specific protocol, you don't want a random can do it for other things) that can help a lot. There aren't enough trained people so often people do the at home CD's (and I think they have MP3s now) and they are sometimes cheaper than sessions (especially if your insurance doesn't cover it). Those sorts of things usually help about 70% of people in clinical studies and sometimes help people who have tried everything else.
 

·
Registered
Joined
·
2 Posts
Discussion Starter · #4 ·
My weight loss has occurred over a period of time, not like 30lbs in a month or anything, and yes I think it's because I am eating less. I am 5'8 and was around 195, and now I am still 5'8 (unfortunately) and weight around 156.I have no blood in the stool, no crones, no colitis. All they found on the colonoscopy and egd was irritation in both the esophagus and small intestine. They also confirmed that I have Fructose intollerance/malabsorption. I did have GI issues since around 14, but not to the extent I do now.I have always had allergies, but most of the food allergies went away during my teen years. I am also asthmatic (caused by allergies I was told-not exercise induced).I live between Chicago and Saint Louis (directly center of the state), but can only go to local physicians due to HMO coverage. My GI guy has been pretty thorough, but I am still suffering.I really thought the Lactose test would come back positive, but it did not.The allergy results have me confused. I show no symptoms like hives, just GI and occasional wheezing (not sure if it is from the foods though). The allergist ran every blood test you can think of and found my immune system not so good, she thinks I have Eosinophillic Esophagitis/gastroenteritis.I am not wild about having another EGD, but my GI guy did not take any biopsies.If I take wheat, rice, chicken, fish, oats, chocolate, milk and fructose out-there is not much left to eat.
 

·
Banned
Joined
·
240 Posts
5'8 156 is healthy. Your weight before was overweight.The weight loss without dieting is not healthy though.If you can pay cash out of pocket, you may want to see a specialistat Wash U. medical center in St. Louis. Try giving up those foods for 50 days and see what happens. They have dairy alternatives (toffuti cream cheese, tofuttiice cream, etc.) and you can still eat beans, nuts, etc.
 

·
Registered
Joined
·
473 Posts
Dew,I lost 33 pounds in 3 months. I had developed a number of food intolerances (particularly fructose intolerance) either caused by cholesterol medication side effects, or stress. I had bloating, nausea, diarrhea and so on.I stopped the cholesterol medication, found a way to reverse the effects of stress and stopped eating wheat.You may notice a lot of gains if you stay away from wheat.With wheat abstinence, the most important gain for me was a significant improvement in my FRUCTOSE tolerance. I can now eat oranges, carrots, brown rice, honey etc although I won't eat sorbitol foods (pears, apples, plums, cherries).I don't drink milk. I have rice milk instead. I have no probs with cheddar and colby cheese.My weight is normal.Jackmat
 
1 - 6 of 6 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top