Jody,I just found out that I also have this condition. I am so glad to be talking to someone else that has it. All along I though my problem was in my colon, but it is not. I found out that I had this though a manometry. Another problem is that I also have very decreased sensation, so they do not think Biofeedback will help me, since I have no feeling in the area. I tell you. I have absolutely no feeling, I NEVER feel as if I have to go to the bathroom. The only way I know I have to go is that get a pain over my right eye. They are also going to send me for a Defcocograpy soon.The only things that is helping me with this condition is Miralax because it makes the stool soft enough to come out because my muscle contractions are so off due to the dyssenergia.Please elaborate on this. I am hoping we can help each other. Nicole