Questions for all of you

Hi Churchgirl!I asked my neurologist if he could give me any more informationa about fibro that would help me, other than it is just plain odd. He said that was the best way to describe fibro-that it is odd. The one rehumatologist I went to wasn't any good. He didn't understand anything about fibro at all. He was one that thought it was all in the head and no pain was ever real. I dumped him. I have had more help and support from my regular doctor. He has seen me through over 2 dozen meds trying to find one that would stop most of the pain and aid in sleep. He knows I am well informed about fibro. He sometimes shares the experiences of his other fibro patients-not giving names or anything like that-that he thinks might be a help in my knowing.As I understand , fibro affects the muscles. Tiny microscopic tears form in everyone from streatching, reaching, ect. Most people produce enough growth hormone that repairs the torn tissues while they sleep. We, who have fibro-do not produce enough of the growth hormone so our repairs are not made-therefore we have lots of pain all over. I read a study that told how college students were deprived of sleep for 3 days in a row. Each complained, of muscle pain, brain fog, feeling ill. When they were allowed to sleep a nomral pattern all the symptoms disappeared. Wish we fibro people could have symptoms relieved so easily!! Thats why we take antidepressants so the pain does stop, so we can sleep. Don't get discouraged. Remember knowledge is power and understanding . Take good care of yourself! JM

Hi Missycat,I had problems with finding a doc who could get me a diagnose. I rang a FM support group in my hometown and they were wonderful! I got names of docs and physiotherapists who knew much about FM. I got my diagnose from a orthopedian and now I have a MD who have a lot of knowledge about FM and I go to her on a regular basis. I also have a physiothetapist and I see her twice a week. I am now getting acupuncture and I hope it can take away some pain. If it doesn�t, we will try massage. I�m also going to get aqua training in hot water. I don�t take any meds, my doc asked me if I wanted to try Elavil for my insomnia but I refused. I don�t want to take any anti-depressants right now. One more thing, (I know I�m always nagging about this ) have you checked for deficiency of vitamin B12 and folic acid? A lot of FM patients have that (I have it too) and you can check this with blood samples./Mio