[knothappy]

i went to both my Drs. GI and reg. care,both of them will not be prescribing Lotronex. Too much paper work and do not want the responsibilty that goes with this. My GI said he never heard of going through all that wil any other drug, he said when it will be prescribed like any other drug , he will do it.-- Many say got to another DR.--well they want you to get all the testing all over again, many drs. will not take info. from previous test form other drs.----No way am I going to have another colonoscopy just to get a pill.This was all just a bunch of hoopla, they knew that if Lotronex came , we would have a hard time getting it anyway. Back to the crates of Imodium, i wonder how much I am harming my health by gobbling all the Imodium, which by the way j does not work all the time!!!

 

[JuliaNYC]

It's the responsibility, not the paperwork, regardless of what the doctors SAY. The paperwork is one simple attestation form (maybe the doctor can't truthfiully say he can recognize and treat ischemic colitis? In that case, I don't blame him for not wanting to sign. I wouldn't want him prescribing and I respect him for having teh honesty and integrity to refuse)and having to sit down and explain about Lotronex with the patient so that the patient can sign the doctor-patient form. Frankly, I would not want to be treated by a doctor who does not want to be bothered doing these two simple things. I know that sounds harsh, but as I have posted numerous times before, if the doctors had bothered to learn about the drug the first time around, we wouldn't have gotten into the need for a risk management program. I suppose neither doctor will prescribe Accutane, which has similar restrictions; probably doesn't have to prescribe Clozaril (mostly that's the province of psychiatrists) which has more stringent restrictions; rarely has to prescribe Thalidomide (again, more stringent restrictions); never prescribes certain narcotic analgesics(many require a triplicate prescription form, or are otherwise restricted), etc. So, if Lotronex is their first experience wirh a restricted distribution medication, maybe filling out one form and spending 15 minutes or so with the patient once a month does seem like a big deal. I hope you are successful in finding a physician who is willing to work with you to treat your IBS.

 

[martini]

Knothappy,Did you see the doctor listed on the Doctors for Lotronex page? There is one in Columbus. Is that close to you? Perhaps if you obtain copies of all your tests and medical records and send them to him with a letter, you will be able to see him and get Lotronex. Good luck!

 

[Nanci]

Knothappy, I know you must be very frustrated and disgusted right now. BUT, you can't give up. Immodium will eventually loose it's potency. Are there other GI drs in your area not in with your current dr? If your tests are relatively current, surely you can get copies to take to another dr and not have to undergo everything again. Hang in there and let us know if you're able to find another dr. That is hard and very time comsuming I know, give yourself a couple of days rest and then start to work at it again.