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Discussion Starter · #41 ·
My fissure has healed (thank God). What I don't get is doctors are willing to give a colostomy for incontinence but not for RH. I almost feel lucky that I have a incontinence issue because living like this (laxitives or enemas daily) is just a twisted way to live. I am currently in some Facebook support groups were people have had rectal nerve damage (same as RH) that caused incontinence and their lives are going great.
 

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Discussion Starter · #42 ·
Pre Op is on the 4th, then surgery is on the 11th. doctor is doing a loop so that I can enema from stoma to clear out mucus. To say the least I am nervous! excited. Hope-full, scared
 

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good luck with your surgery! you're on your way to a better quality of life. keep us posted.
 

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Discussion Starter · #44 ·
Well had the surgery (really wasn't bad) I can tell you already my life has improved. Even tho I'm taking pain meds colace is actually working. I am still in hospital but they plan on me being out tomorrow (so 4 days total). The doctor. Told my wife and mother when he was done "he now has his life back"
 

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Well had the surgery (really wasn't bad) I can tell you already my life has improved. Even tho I'm taking pain meds colace is actually working. I am still in hospital but they plan on me being out tomorrow (so 4 days total). The doctor. Told my wife and mother when he was done "he now has his life back"
Good to hear, Hybo! Keep us posted.
 

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Discussion Starter · #47 ·
So it's been a few months sorry I haven't been posting. I have been able to get out and live again. Travel, eat, no more hours on the pewper. I will say that the bag may have it's in problems but I gladly will take them over what I was doing. Colostomy really is not that bad. I empty twice a day And change every other day (tho most people wait longer) No one should have to live a life of rectal hypo.
 

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Hi Hypo

thanks so much for the update! i was wondering how you were doing.

so happy to hear that everything is going well for you. that's terrific!

i change every other day, too. of course, i'd like to be able to go longer but it's really not a problem and is a small price to pay for getting your life back, isn't it. no more misery and sitting on the toilet fighting with a rectum that forgot how to work years ago.

thanks again and take care!
 

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Hi Hypo

thanks so much for the update! i was wondering how you were doing.

so happy to hear that everything is going well for you. that's terrific!

i change every other day, too. of course, i'd like to be able to go longer but it's really not a problem and is a small price to pay for getting your life back, isn't it. no more misery and sitting on the toilet fighting with a rectum that forgot how to work years ago.

thanks again and take care!
Hello Annie.
Have you agreed to a colostomy due to hyposensitivity and constipation? Do you have a permanent colostomy? Because you, as far as I know, had a megarectum, and if it was cured surgically, perhaps your problems would go away and you would only need a temporary stoma.
Do you currently have a permanent ileostomy? Let me ask you a question - why did you get an ileostomy and not a colostomy? After all, your problems were only in the rectal area, and the transit through the large intestine was normal?
A colostomy is more convenient, as far as I know, there is less frequent and more formed feces.
Thanks
 

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i have a permanent ileostomy. i also had slow colonic transit. i did not have megarectum.
 
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