[freeme]

Hi everyone,since i had come on the site i felt more hope but i saw my consultant on monday after months and my mum came with me this time as she wanted to make sure he realised what agony im going through,i had spoken to a few people on here that thought i had colonic inertia,my wish now after 5 years of coping with this agony everyday was to have my colon taken out but when i asked my consultant he said that wont be an option because i have pain and constipation i cant have to colon out but if i just suffered constipation then i could have had it out,i really dont understand this,so now he wants me to go on a new trial tablet,dont get me wrong im grateful for any help,yet consultant told my mum and me that no matter what medication im on i will always suffer pain because i have had bowel problems most of my life,as a baby i bled from the bottom and vomited a lot and at about age 6 or 7 i had to have enemas and now still suffering everyday bloated like im 9 months preg and in so much pain i've been on fentynl patches for pain for 2 years now and have been told i will never be able to come off of them because of my pain,i am grateful for whatever is done for me but i dont want to keep trying these different tablets i just want the colon out so i can have my life back,i feel like im dead already inside as i have nothing like this,has anyone any ideas anything else i can do?im so depressed with it all,and im so tired all the time and am struggling so much.bless you all we are strong people what choice do we all have.

 

[Tiss]

Hi everyone,since i had come on the site i felt more hope but i saw my consultant on monday after months and my mum came with me this time as she wanted to make sure he realised what agony im going through,i had spoken to a few people on here that thought i had colonic inertia,my wish now after 5 years of coping with this agony everyday was to have my colon taken out but when i asked my consultant he said that wont be an option because i have pain and constipation i cant have to colon out but if i just suffered constipation then i could have had it out,i really dont understand this,so now he wants me to go on a new trial tablet,dont get me wrong im grateful for any help,yet consultant told my mum and me that no matter what medication im on i will always suffer pain because i have had bowel problems most of my life,as a baby i bled from the bottom and vomited a lot and at about age 6 or 7 i had to have enemas and now still suffering everyday bloated like im 9 months preg and in so much pain i've been on fentynl patches for pain for 2 years now and have been told i will never be able to come off of them because of my pain,i am grateful for whatever is done for me but i dont want to keep trying these different tablets i just want the colon out so i can have my life back,i feel like im dead already inside as i have nothing like this,has anyone any ideas anything else i can do?im so depressed with it all,and im so tired all the time and am struggling so much.bless you all we are strong people what choice do we all have.

Hi,Sorry you are going thru all this awful stuff. Can you get a 2nd opinion? Seems to me that if we're chronically constipated then there's going to be some pain! See another doctor (specialist)!

 

[zoetrope]

This sounds like what I have, except for the bleeding at a young age. How long have you had it for? I wish I could offer help but I've no idea and need to seek help again myself.

 

[Diana63]

I'm really sorry you are having such a difficult time.I'm a severe ibs sufferer to and you just want to see a Doctor who will understand your symptoms and what you are going through and of course to help you.Maybe it would be an idea to get a second opinion as Tiss said and what about your GP,have another talk to him/her also.Take care.

 

[Mary5]

I also think that you should either get a second opinion or go see another doctor, probably a colorectal surgeon. You need to have all the tests done to determine the actual cause. Have you had any tests done?