Okay I am now a very cranky mother of a newly diaganosed 14 year old who has this "syndrome".I just found out this past Friday that the high school my son goes to will not let him get any credits for this year as he has missed too much school(4 months).We have been doing the work at home and a tutor finally came for a whole 2 weeks.Big deal. Anyway, all of his work is not acceptable now. He may be able to get half a credit for one class and another credit from correspondence school if they approve of it. In the mean time he is getting really depressed about not seeing his friends nor being in school. We were trying to get him for half days as those seem to work for his pain level. Can't do it till we get approval.Not a good plan for the kid. I am also not happy that his doctor in Boston still has not returned any of my calls yet. I realize that we are not his only patients, but he could at least return my calls to let us know what to do next for this thing. None of the drugs are working yet and he has been on some of them for a few months now. Sorrry so long, but this is really a good place to vent and get supportI just wish the rest of the world was so supportive. Thanks to everyone who has been so helpful in the past!