Jen37 thats not good ok iggy my friendship I wena be friends but iggy me ok that act aint good not good that was really cruel n rude because someone don't mind others feelingsIt would be great if the medical field would really look into this, but they wont. Here is the thing, they do Not want to have a cure for IBS or any other chronic disease out there. They would stand to loose tons of money. Think about it, do you know that Gastroenterologists are the busiest specialists out there. They are overloaded with patients with gut issues( more than half probably have IBS symptoms). If they actually started implementing Fecal Transplants I am fairly certain a lot of people would start getting better. Another issue is that like Leo41 said, it is going to be very hard to find healthy donors as so many people are messed up in so many different ways. A lot of this is because of western diets and because of our Agricultural system and their continuous use of GMO's and pesticides. That as well as too many antibiotics being used in the foods we eat. I try and eat as organic as I can.
My best friends mom got a nasty case of C-diff while in the hospital recovering from surgery. She almost died! Her kidneys were shutting down and she almost had sepsis. MY friend inquired about the FT and the hospital said No. They said they do not do this( and this is a Big hospital here where I live). They said there is only one or two hospitals that will offer it, but that is only if a person has failed the Big gun antibiotics three times!! It is very maddening because they know damn well that the Vancomycin they are pushing down people is going to even screw their guts up way more, but they would rather do that than offer a procedure that would likely cure them and would not have the devastating consequences that the Vancomycin will have.
I would not hold out too much hope on the AMA and FDA passing the use of FTs anytime in the near future. It is sad, but our country is run off of greed. Our best interest is not their best interest sadly.
I'm in the one in New York. They are not using a blender it's 25 pills a day for 3 consecutive days. The pills have no taste.Thanks Leo,
I thought so too.
I agree, finding the right donor is a challenge.
Just did some checking :
There are 4 clinical trials for IBS using FMT, that are currently recruiting patients. (8-6-15)
1 Montefirore Medical Center (New York)
2 Ghent, Belgium
3 Un. Hospital Norway
4 Orebro Un. Sweden
So, these 4 places are seeking IBS patients to be in this study. I hope to God they are not using the blender method, as this would skew the results badly. I hope they follow Dr. Borody's technique of doing several infusions for IBS.
Wishing them the best success !
Two phases of the trial three months apart. One phase you get the real pills and one you get the placebo and nobody knows which is which. I had one phase a few weeks ago. Next phase is at the end of October. My symptoms which generally can be altered dramatically by slight changes in diet, sleep, excercize, etc. were not affected at all by the first phase. I'm thinking I likely had the placebo. I doubt there will be much to update before Novemeber. Feel free to ask questions here or via PM.DuncanD, we will be waiting for your updates ....
The pills were created by a non-profit called Openbiome. There is quite a bit of info online about openbiome.Thanks DuncanD,
That's interesting, it sounds like the pills that Dr. Louie (from Canada) was developing.
Wishing you success !
Please, keep us updated.
The link you posted talks about the trial I'm in. The doctor they quoted, Dr. Aroniadis, has been the doctor I've been working with at Montefiore. She's been excellent, by far one of the best doctors I've dealt with throughout this nightmare. She was telling me if this treatment helps a lot of us she is going to start another trial with about 700 ibs patients. Then if that goes well too she is going to work with the FDA to make this a standard treatment for everyone. If nothing else they will at least be able to look at my biome, before and after, and see if my bacteria looks good or not and I should know whether or not that's the cause of my problems.Thanks DuncanD,
Was just reading a really great article about this company, OpenBiome.
Created a new post so others can learn too. Great stuff.
Wish you the best ! Keep us posted.
Question #1-- I have no idea...I'll ask. I'm pretty sure since these are the people who prepare most of the transplants in the US for C-diff they know how to prepare an FMT pretty well. They've had enormous success curing c-diff.DuncanD,
I've got a few important questions.
1. Can you ask you doctor if the preparation of the pills is done anaerobically ? It is extremely important to do this, as many of the bacteria we are trying to transplant are anaerobic and exposure to air would kill off these bacteria. This would in turn skew the results negatively. Both Borody and Taylor are avoiding exposure to air.
2. Donor selection. Ideally, we need to find donors that have an extremely diverse microbiome, one that hasn't been damaged by medications, or antibiotics. The average American has lost 40% of the diversity of their microbiome, so we run the risk of skewing the results, unless we find and use a microbiome that hasn't been affected by medications, or antibiotics. Please, ask your doctor about this. Ask her if she understands the importance of this, and how it could negatively affect the study.
Perhaps, students from foreign countries that are studying at our universities might have more diverse microbiomes ? Perhaps, the Navajo Indians, or the Amish ? We can't expect to have high cure rates, if we are only transplanting 60% of the normal diversity of the microbiome, and then we kill off many of these bacteria by exposure to air.
Also, worth noting : Taylor is using the microbiomes of several different donors in the aim of increasing the diversity of the total transplant.
Wishing you the best, this is a very promising study, that if done correctly could help so many people here. I read of so many people that are suffering and just wish they could understand that microbiome transplants, if done correctly, are going to fix their problems. They're going to have their health back. I truly hope that Dr. Aroniadis get's these important steps right. If we can get this right, and can fix IBS, it opens the door to solving a host of other diseases too. Sooner or later, this will be front page news.