mx, this thread was about oregano oil if you want to pursue a different topic then start a different thread. You could start a few, maybe questioning the legitimicay of "juniors" to post anything on what proved helpful for them, or aliens with heretical notions posting on this board. I'm sure you'll think of something.
The ONLY thing that FINALLY "cured" my IBS
81 - 100 of 101 Posts
I just want to respond to mxz583 on the fecal flora thing. First, if you read the posts and the link you'd have learned that nobody is calling it a cure for IBS, rather a cure for persistant C. Diff infections. Ulcerative colitis is another thing it may work for. For it to benefit IBS patients there would have to be a link between bacteria and IBS symptoms. You seem to think that's laughable, however that's exactly what's going on with the Cedars study on small bowel bacterial overgrowth. I'm not saying there is a link, I'm saying that it should be explored. The link could be in various forms, from pathogens to dysbiosis. If you think this is laughable, then you must think that probiotics are pretty funny too. I guess you think probiotics are snake oil. Their claims are exaggerated, but I disagree that that is snake oil. Who exactly do you think is benefiting in a "snake oil" sense from this anyway? The Doctor offers the info for this procedure for free. All it seems he can gain if you're right is people like you laughing at him. Why not address the ideas presented in the editorial? Why not state why you think it doesn't make sense or is stupid, etc? If you think there's a flaw in the logic of it, then say so. Make an attempt at intelligent discussion. The only flaw you point out is that there is limited information on it. And then you add that your sister who is in charge of grant money thinks it is funny. And then you wonder why there isn't more information on it. I'm laughing at you now.
Well, it's good to know we have such open minded people in charge of grant money.
You obviously didn't read the editorial you are bashing. Nobody mentioned it as a cure for IBS.
Did you ask them about it? So, let me understand this....unless you hear something talked about, you discard it? That's good logic.
That would be the people who cured themselves of C. Diff using the procedure.
Nina Calm down and take a deep breath. This post has spun off course. I always get a kick out of people who can't back up there statements. You lasted longer then Joan she couldn't back up her statements, so she also attacked me in this thread. Well unlike you when I do post a topic like aliens, or whatever you can count on me having the proof to back it up.Tim(There is no cure yet)
UGH I guess you only read what you want to read. Your www.east whatever had a editorial (Editorial- expressing the OPINION of the editor) The last editorial I read was on cold fusion, that didn't work anymore than the do it at home #### transplant. I do believe that I posted a real link that didn't have anything about your editorial listed. Have you been watching to much X-Files? I'm sure if there was anything to this, do it at home #### transplant they would have talked about it at one of the symposiums. Nina posted a site that told how to do it at home, just in case you want to bash me for calling it a do it at home deal. Well what is the reason they don't have more infomation? Do you think its part of a big cover up? I just got done reading Chronic Gastrointestinal Disorders, written by the top sixty seven experts from around the world(Thomas Borody wasn't listed), and nothing in there about the Flora power treatment or this oil. The NIH isn't the only place that gives out grant money, but maybe just maybe no one wants to fund this so called treatment. I guess I will wait on this treatment, but go ahead feel free to try it at home if you want.Tim(There is no cure yet)
mxz583,There's no use even discussing or arguing about it with you because you have no point. I read your post, and I still don't know what you are trying to say. After you realized nobody said it was a cure for IBS, you dropped that. So what in the world is your point? Are you saying the reports are wrong and it doesn't cure C. Diff infections?? You argue against the editorial with nothing.... you present nothing. You're basically the same as all the "snake oil" salesman you claim you are debunking, because you present no real information and dodge the questions.By the way, what is the "Flora power treatment" you keep searching for and talking about??? "Flora power" was the title of the editorial. It's funny and telling that you couldn't figure that out and thought that was the name of some kind of treatment.Yes it was an editorial, but it had references you could read about if you really wanted to learn more about the topic (it's clear you aren't after facts). Again, you obviously didn't take the time to read it, or you would have seen the following:References 1. Persky SE, Brandt LJ. Treatment of recurrent Clostridium difficile-associated diarrhea by administration of donated stool directly through a colonoscope. Am J Gastroenterol 2000;95:3283-5. 2. C. Difficile Support Group: www.geocities.com/HotSprings/Falls/5272/index.html. 3. Eiseman B, Silen W, Bascom GS, Kauvar AJ. Fecal enema as an adjunct in the treatment of pseudomembranous enterocolitis. Surgery 1958;44:854-9. 4. Bowden TA, Mansberger AR, Lykins LE. Pseudomembranous enterocolitis: Mechanism of restoring floral homeostasis. Am Surg 1981;47:178-83. 5. Schwan A, Sjolin S, Trottestam U. Relapsing Clostridium difficile enterocolitis cured by rectal infusion of homologous faeces. 6. Tvede M, Rask-Madsen J. Bacteriotherapy for chronic relapsing Clostridium difficile diarrhoea in six patients. Lancet 1989;i:1156-60. 7. Flotterod O, Hopen G. Refractory Clostridium difficile infection. Untraditional treatment of antibiotic-induced colitis. Tidsskr Nor Laegeforen 1991;111:1364-5. 8. Paterson DL, Irdell J, Whitby M. Putting back the bugs: Bacterial treatment relieves chronic diarrhoea. Med J Aust 1994;160:232-3. 9. Lund-Tonnesen S, Berstad A, Schreiner A, et al. Clostridium difficile-associated diarrhea treated with homologous feces. Tidsskr Nor Laegeforen 1998;118:1027-30. 10. Gustafsson A, Lund-Tonnesn S, Berstad A, et al. Faecal short-chain fatty acids in patients with antibiotic-associated diarrhoea, before and after faecal enema treatment. Scand J Gastroenterol 1998;33:721-7. 11. Gorbach SL. Lactic acid bacteria and human health. Ann Med 1990;22:37-41. 12. Gustaffson A, Berstad A, Lund-Tonnesen S, et al. The effect of faecal enema on five microflora-associated characteristics in patients with antibiotic-associated diarrhoea. Scand J Gastroenterol 1999;34:580-6. 13. Butt HL, Dunstan RH, McGregor NR, et al. Alteration of the bacterial microbial flora in chronic fatigue/pain patients. Proceedings: "The Clinical and Scientific Basis of Chronic Fatigue Syndrome: From Myth Towards Management," Feb. 1998, Sydney, Australia. 14. Hart CA. Antibiotic resistance: An increasing problem? Br Med J 1998;316:1255-6 (editorial). 15. Borody TJ, Noonan S, Cole P, et al. Oral vancomycin can reverse idiopathic constipation. Gastroenterology 1989;96:A52. 16. Celik AF, Tomlin J, Read NW. The effect of oral vancomycin on chronic idiopathic constipation. Aliment Pharmacol Ther 1995;9:63-8. 17. Andrews PJ, Barnes P, Borody TJ. Chronic constipation reversed by restoration of bowel flora. A case and a hypothesis. Eur J Gastroenterol Hepatol 1992;4:245-7. 18. Andrews PJ, Borody TJ. Putting back the bugs: Bacterial treatment relieves chronic constipation and symptoms of irritable bowel syndrome. Med J Aust 1993;159:633-4. 19. Borody TJ, George L, Andrews PJ, et al. Bowel flora alteration: A potential cure for inflammatory bowel disease and irritable bowel syndrome? Med J Aust 1989;150:604. 20. Bennet JD, Brinkman M. Treatment of ulcerative colitis by implantation of normal colonic flora. Lancet 1989;i:164. 21. Ricci N, Caselli M. Rectal infusion of bacterial preparations for intestinal disorders. Lancet 1983;ii:1494. 22. Pearce L, Bampton PA, Borody TJ, et al. Modification of the colonic microflora using probiotics: The way forward? Gut 1997;41(suppl 3):A63. [This message has been edited by Ugh (edited 05-24-2001).]
One last time nice and S L O W so you can follow. I can't find anything about the cure or treatment other than the editorial, so it hard to talk about it if they don't have any infomation out there to read. Gee one editorial and one website that tells how to do it at home. You must be right with all that proof behind you. I remember Mike and others laughing at this under Nina's post back awhile. I must repeat myself I think I would need more proof than you have listed before I turn on my blender. I will ask in Nov. at the UNC center about this just like I asked Dr.Drossman about Caltrate. www.gihealth.com/TREC2/articles/cdifficile.html I have looked in a lot of sites dealing with Chronic difficile diarrhea, like the link above you would think that they might talk about the treatment/cure if it was for real. So again if it is so great with a 90% cure rate why oh why can't I find anything about it. I have better things to do than chase some cure/treatment that can't be found. I have learned a lot in my search about different treatments for chronic C difficile diarrhea, none have said fire up the blender for a transplant. Your name ugh was it flux before?Tim(There is no cure yet)[This message has been edited by mxz583 (edited 05-24-2001).]
Okay, lets try this one last time just in case you are not joking and are actually as clueless as the above statement. The editorial....see, that editorial actually is there because of the following:1. Persky SE, Brandt LJ. Treatment of recurrent Clostridium difficile-associated diarrhea by administration of donated stool directly through a colonoscope. Am J Gastroenterol 2000;95:3283-5. See, the above isn't an editorial. It's separate. As in not the editorial. Get it yet?Reference: A note in a publication directing the reader to another source of information.See, that means that is more than "one editorial and one website" but apparently your brain is not capable of comprehending that. Try reading my last post again.
The information was posted because it was interesting, had been effective against C. Diff, and was now being looked at to see its effectiveness against IBS like symptoms. Nobody ever said it cured IBS or that anyone should try it (other than a last resort for C Diff). It should be researched further though. You dismissed it before you even read about it. You're the same as those who spread disinformation.
Mx, I'm perfectly happy to go through the pro's & con's of the procedure but I honestly think we shouldn't be hijacking the thread on Oregano Oil to do it. Joanofarc was only trying to do the decent thing because she & I share a similar difficulty with spasms. She knew I had been waiting to try this procedure, no guarantees it would work, but nothing to lose by trying it, there has been several hundred, more I think who have undergone it with a variety of conditions. She also knew that at almost the last minute I had a disagreement with the nurse at the clinic and I got cancelled off the programme. So like I said she was doing the decent thing speaking up for me. The whole procedure is counter-intuitive, it goes against everything we normally think, like what leaves our bodies is "waste" something we could get infected from. It takes quite a bit of doing to turn ones thinking around and maybe start to think that all that stuff, bacteria, break-down of food, etc., etc., is a major defence system and if something goes awry we get health problems. Looked at from other angle that "waste" if it is "healthy" full of good bacteria etc., can be thought of as the "ultimate probiotic". It would be great if we were at the stage where all of the bacteria, good or ill in our intestines could be isolated and identified, but it can't, not yet, plus the fact that many of the human GI strains still can't be cultured in a petrie dish, or whatever it is they use. The doctor who is using and has more or less pioneered the procedure (and god knows there's no reason for me to be promoting or defending it, I missed out)doesn't promise anything, but the fact is it is getting good results across a range of conditions, not for all, though the more they trial it the more information regarding the failures is being turned up. Distasteful, counter-intuitive yes, but for people who are desperate, whose lives are a misery with no other help in sight it holds out possibilities so they are willing to try it, usually with a spouse or close family member as donor. All stool & blood tested of course for all known transmittable diseases. They've never lost anyone yet and for some it has truly worked like a miracle. Nobody's saying for everyone, doesn't work if there are parasites present, they have to be killed off first. It's safe, its cheap and ones got nothing to lose by trying it.
mx, you may have read this site before, but if not it is worth looking at. http://bara.idx.com.au/dfragilis/links.htm Jackie is a patient of this particular gastro, the procedure doesn't work for her because of her D.Fragilis infection, a parasite & difficult to get rid off. Her site is a good one and she has done a lot of research on her infection, knows more than most doctors. One of the points being made in all this is that many people are being diagnosed as IBS, as in functional bowel disorder, when in fact they aren't. Too many labs & too many doctors are missing infectious agents, or dismissing them as harmless and telling patients "it's IBS". Possibly one of the reasons that people post on this board telling what worked for them, helped or cured their IBS. How many times does the reply come back "then it wasn't really IBS", well it probably wasn't, but don't blame the patient, blame the doctor/s who told them that's what they had. Does this procedure work for "true IBS, functional IBS" frankly I don't know, I'm not this guy's favourite person so I'm not privy to the results of his research. But I do know that people who other gastro's and possibly he himself had classed as IBS are A) either getting a recovery, thereby demonstrating that something was wrong in the microflora, or
![]()
they are carrying a parasite infection not previously identified but now being found by some newer testing procedures. Do I know what these tests are? Well no I don't, 'cause he stopped playing 'speaks' with me. And if you're wondering why it's a problem that I am off the programme, when one can seemingly do this at home very cheaply (but under strict guidlines with before & after regime) it's because I don't have a suitable donor and I needed them to supply one, the expensive way to do it.
G
Guest
·I have now been on the oregano oil about a month and a half, and the Atkins diet was started a week after I started the oregano oil. During my first week, my bloating was not as pronounced, though I did still have some. The gas pains also were pretty much gone as well. In my opinion, something positive was happening to my system...Clear it up any Tim? I have lost 18 pounds, and am starting to get a little more energy, but I do still have my down times. There are still bouts with both "D" and "C", but not like I used to get. and Yes... I KNOW THERE IS NO CURE!!!I am just trying to get myself better, and if anyone can use this info, please do. Are we not trying to help each other out here?To those that are serious about all of the members postings, bravo. The next time someone trashes your input, just look at who it is and try to find a positive posting by the individual... You probably will not find any! I did'nt!!!Sorry Jeff... I had to say it!Blaster
Hello All.First, I want to see how people who tried the oregano oil are doing.I had no idea that my original post would cause such diverse, very good, imformative opinions. Even if some people were skeptics (I did get my rookie initiation) their posts gave me good info. Second, there is one thing still bothering me that I wrote in the original post: In the Topic I used the word "cure." If you noticed I specifically wrote cure in quotation marks thinking that the people who read my post would know that I was using "cure" loosley - meaning I wasn't really sure if this was a cure for me or not.... and many people let me know that there is no cure. My apologies for unintentionally coming across as gung ho. I did learn a lot from many of you - leading me to do further research into my own use of oregano oil.While I do firmly know that the pure oil did wonders for me, I no longer believe you HAVE to start out using the pure oil. The alcohol or non-alcohol based tincture of oregano may be a good way of introducing your body to oregano at first. And, I'll even retract further by saying that the oregano oil that has a mixture of olive oil may also be good to take initially or might be just as effective as the pure oil for some people.A few people mentioned doing testing with the oil. For myself, when I originally started using the oil, I didn't change anything in my diet before or for at least a few months after using oregano oil. I know, I know, not exactly anywhere near a scientific study done here, but bottom line, it worked for me.More research needs to be done. I absolutely believe that the oil is safe and there is an Osteopath who touts the use of oregano oil, but he also sells it and I don't know anything about him yet other than he has an active license in the state of Iowa.Anyway, thanks to all of you for your responses - positive or negative - because like I said I learned more than I can explain from many of you. I certainly didn't think I'd be doing a re-evaluation.Lastly I'm not of the opinion that once people who decide to give oregano a try will have to take it for the rest of their lives.On another very helpful thread started by Metaphorica, a poster said he/she took the oil for only 6 months and was still symptom-free after a few years...I believe?? This has lead me to soon stop using it because I have gotten the results I was hoping for. Also, taking the oil for too long a period of time, may be harmful????? I just don't know yet (still researching) but when you're attempting to heal yourself with a powerful herb and you're only going by antecdotal evidence, you obviously have to be cautious.Like I said, I learned a lot from the posters here and I realize how reckless I probably was. By the same token, when you've suffered the torture of IBS for so many years and you find something that works for you, you want to share it with the world.......if you're me anyway
![]()
. Kenya
Hello All.First, I want to see how people who tried the oregano oil are doing.I had no idea that my original post would cause such diverse, very good, imformative opinions. Even if some people were skeptics (I did get my rookie initiation) their posts gave me good info. Second, there is one thing still bothering me that I wrote in the original post: In the Topic I used the word "cure." If you noticed I specifically wrote cure in quotation marks thinking that the people who read my post would know that I was using "cure" loosley - meaning I wasn't really sure if this was a cure for me or not.... and many people let me know that there is no cure. My apologies for unintentionally coming across as gung ho. I did learn a lot from many of you - leading me to do further research into my own use of oregano oil.While I do firmly know that the pure oil did wonders for me, I no longer believe you HAVE to start out using the pure oil. The alcohol or non-alcohol based tincture of oregano may be a good way of introducing your body to oregano at first. And, I'll even retract further by saying that the oregano oil that has a mixture of olive oil may also be good to take initially or might be just as effective as the pure oil for some people.A few people mentioned doing testing with the oil. For myself, when I originally started using the oil, I didn't change anything in my diet before or for at least a few months after using oregano oil. I know, I know, not exactly anywhere near a scientific study done here, but bottom line, it worked for me.More research needs to be done. I absolutely believe that the oil is safe and there is an Osteopath who touts the use of oregano oil, but he also sells it and I don't know anything about him yet other than he has an active license in the state of Iowa.Anyway, thanks to all of you for your responses - positive or negative - because like I said I learned more than I can explain from many of you. I certainly didn't think I'd be doing a re-evaluation.Lastly I'm not of the opinion that once people who decide to give oregano a try will have to take it for the rest of their lives.On another very helpful thread started by Metaphorica, a poster said he/she took the oil for only 6 months and was still symptom-free after a few years...I believe?? This has lead me to soon stop using it because I have gotten the results I was hoping for. Also, taking the oil for too long a period of time, may be harmful????? I just don't know yet (still researching) but when you're attempting to heal yourself with a powerful herb and you're only going by antecdotal evidence, you obviously have to be cautious.Like I said, I learned a lot from the posters here and I realize how reckless I probably was. By the same token, when you've suffered the torture of IBS for so many years and you find something that works for you, you want to share it with the world.......if you're me anyway
![]()
. Kenya
Hi Kenny,Thanks for your post. And, thanks again for your original post. The oil (I take a mix with olive oil) seems to be helping me. Like I said in a post in the other thread, I talked to my doc (MD) about it, and she recommended that I take it for at least a few months, to clear up the candida which I was probably struggling with. I don't know if the flora imbalance due to IBS causes candida, or the other way around, but clearing up the candida does seem to help.I have been doing a lot better, and I really have you to thank for it, so I am very grateful that you wanted to help people if you could by posting your success story!!!Thanks again Kenny, and best wishes to you,Edith
Hi Kenny,Thanks for your post. And, thanks again for your original post. The oil (I take a mix with olive oil) seems to be helping me. Like I said in a post in the other thread, I talked to my doc (MD) about it, and she recommended that I take it for at least a few months, to clear up the candida which I was probably struggling with. I don't know if the flora imbalance due to IBS causes candida, or the other way around, but clearing up the candida does seem to help.I have been doing a lot better, and I really have you to thank for it, so I am very grateful that you wanted to help people if you could by posting your success story!!!Thanks again Kenny, and best wishes to you,Edith
Joined
·
181 Posts
Hi KenyaThanks for your post. I for one took your 'cure' in inverteds to mean exactly that, something that worked for YOU, and MAY help other people. I in no way considered that you were touting it as THE answer. Secondly, I think it's great that you've done such a generous acknowledgment and summing up of all that we've learned since your original post. What we've learned about is OPTIONS--that their are variations on the original recipe that can and do work. I think Boisie, Edith and I are evidence that you don't necessarily need the pure, pure, uncut oil to get some kind of result (or at least to see something happen. So thank you for your drawing the threads together so well. We all know so much more now. And of course, as you say, the long-term implications need to be considered, too.I too believe that given time, one needn't take it forever.thanks again for your post, and do let us know of any research you come up with.many cheersMEta
Joined
·
181 Posts
Hi KenyaThanks for your post. I for one took your 'cure' in inverteds to mean exactly that, something that worked for YOU, and MAY help other people. I in no way considered that you were touting it as THE answer. Secondly, I think it's great that you've done such a generous acknowledgment and summing up of all that we've learned since your original post. What we've learned about is OPTIONS--that their are variations on the original recipe that can and do work. I think Boisie, Edith and I are evidence that you don't necessarily need the pure, pure, uncut oil to get some kind of result (or at least to see something happen. So thank you for your drawing the threads together so well. We all know so much more now. And of course, as you say, the long-term implications need to be considered, too.I too believe that given time, one needn't take it forever.thanks again for your post, and do let us know of any research you come up with.many cheersMEta
I'm glad there are so many happy campers out there due to the use of oregano oil! I'd try it myself, but I have my own regimen of "stuff" and now have close-to-normal bowel functioning again (particularly after my H. Pylori treatment a few months ago).
I'm glad there are so many happy campers out there due to the use of oregano oil! I'd try it myself, but I have my own regimen of "stuff" and now have close-to-normal bowel functioning again (particularly after my H. Pylori treatment a few months ago).
G
Guest
·BUMP
G
Guest
·BUMP
81 - 100 of 101 Posts
