Greetings to anyone who has stumbled upon this thread. This thread is meant to serve as a personal recollection of my experience with Fecal Microbiota Transplantation, or FMT. I will be undergoing this procedure on August 22nd; it will be performed by me in my own home as no doctor currently provides the treatment within the United States unless the patient suffers from C diff. I will be performing this procedure in an attempt to relieve myself of IBS-A (IBS-D dominant); a condition which has plagued me for my entire life making school and my social life extremely difficult to manage. Within this journal I will be explicitly and comprehensively detailing my experience with this procedure in the hopes that if it works I can help others achieve the same results. If it does not work, I will share that information as well.
My Personal History:
My Irritable Bowel Syndrome originated when I was very young. At the age of 3 - 4 years old I came down with a fatal case of food poisoning; I was hastily rushed to the hospital where I received multiple doses of heavy antibiotics in order to relieve the problem. This course of antibiotics is very likely to be the origin of my IBS. Since this point in my life I have suffered from constant diarrhea and abdominal cramping accompanied by gas. From the age of 4 to 15 my IBS was dominantly IBS-D and continued to worsen. From the age of 15 to 19 my IBS changed to IBS-A whilst still predominantly causing diarrhea. I have had an extraordinarily difficult time throughout school as during tests and extracurricular activities I would constantly fall ill and be encumbered by horrific stomach cramps. I have missed quite a few days of school because of this problem and in 2013 was forced to transfer from public education to a private online education program because I could no longer manage my schoolwork with how much IBS was keeping me out sick.
I have tried and tested almost every "cure" out there. I have extensively modified my diet to remove trigger foods; I no longer eat Gluten, Dairy (lactose), Nightshade fruits and vegetables, high fiber foods, pork, sausage, processed foods, preservatives, coffee, candy, rice, oats, or beans. I have followed the necessary steps to cure leaky gut. I have faithfully eaten fermented vegetables, cultured coconut yogurt, and taken probiotics. I have avoided excessive stress and anxiety. I slept as much as my body needed (10 hours a day). I've exercised for 2 to 3 hours a day. I've done everything I can; most of which has had a positive effect but is far from a cure - most of these are simply steps to take to keep the symptoms at bay. I'm now 19 years old and will soon be enrolling in college; FMT is my final stand against this ailment and hopefully it's an effective method.
On a side note, though this may be an unrelated issue: in 2013 I developed bilateral chronic pain in both hands caused by excessive muscle tension. I also suffer from a clouded/foggy mind and low levels of energy regardless of what I eat that day, or how much sleep I get. This foggy headedness has progressively gotten worse as I've grown older regardless of changes made to my diet and lifestyle. Lastly, I've had struggles with countless psychological disorders; including severe OCD, generalized anxiety disorder (GAD), and paranoia.
The Donor I have chosen is my mother. My mother has not used antibiotics since she was young, she has absolutely no stomach ailments, and her stools match the 3 and 4 on the Bristol stool chart. My mother is not obese nor does she suffer from any mental problems. I felt the best choice for a donor would be one's mother because essentially that is where the gut flora originates from when we are born.
- My Mother's Donor Screening Questionnaire: [Part 1] [Part 2]
- My Mother's Home Infusion Protocol Sheet
- My Mother's Screening Test Results
I will be following the procedure detailed here. The positions I will be using during the procedure to allow for propagation are detailed in this thread here. There are various optional steps suggested in the procedure which I will be following. The optional steps that I will opt to do are: colon cleanse/lavage, low fiber diet 2 weeks prior. The optional steps I will not do are: antibiotics prior to procedure.
August 7: Started a low fiber, low sugar diet; this will create an absence of substances which the bad bacteria within my colon could use to feed off of and propagate. (Notes: this diet has been quite difficult to maintain when paired with all the other food restrictions I already have in place.)
August 20: Taking a quick note on how I feel prior to the procedure so I can compare. Currently I feel fairly tired even with 10 to 11 hours of sleep, I'm having quite some difficulty properly focusing (I feel very zoned out and out of it), my entire body is very tense, my anxiety level is high (as it always is), and I have pain in my hands and a bit throughout my arms and back. My nose is still chronically stuffed, therefore I can't take in a full breath of air or smell. As a whole I do not feel very well.
August 21: Formed a mixture of 3 cups Gatorade and 1/3 cup(s) Miralax at 12:30 in the morning; drinking the mixture throughout the day. Consumed one bottle of Magnesium Citrate starting at 7:30 PM and ending at 12 PM. Following a liquid diet.
Day 1 [Day of Procedure]: Took Imodium at 1 PM. The procedure was performed at 2:30 PM; the stool used was a 3 to 4 on the Bristol stool chart. The procedure itself honestly isn't that bad; it felt like it went by fairly quickly. The only part of the procedure which was difficult was inserting the enema - I had trouble doing so because of my chronic tension. I would suggest having someone around to help you with this procedure if available. All in all the procedure really isn't a big deal; the cleanse the day before was a bit bothersome because I essentially had to starve myself to clear out my colon and inserting enema was not comfortable but aside from that it's not that bad. Today I will be eating organic chicken, organic turkey, organic carrots with the skin still on, organic cabbage, organic blackberries, and some cashews, almonds, walnuts, pecans; all I'm drinking today is water. (Notes: I will be holding in the solution until 2:30 AM; this will make it a total of 12 hours holding the solution in. The solution is a bit difficult to retain for the first 3 hours and then the urge to go passes.)
Day 2: It's now Day 2; I ended up holding the solution in all the way through today. The abundance of fiber I ingested yesterday clogged me up a bit, which I do not mind because the longer I can hold it in the longer the bacteria has spread and propagate. I ate an excessive amount of fiber yesterday which normally would make me quite ill; yet it only gave me subtle gas - nothing compared to what it did before. I have not noticed any substantial changes yet however. My diet will be essentially the same as yesterday.
Day 3: Finally went to the restroom at 2 PM today; I had not been able to go since the procedure - this means I held in the solution for 48 hours.The stool was a type 5 on the Bristol stool chart; therefore not in line with healthy stool. I'm not sure whether this is due to die off of the bad bacteria or if it means the procedure does not work, I will have to wait and see. I should know that a heavy amount of fiber is recommended so that the new bacteria can propagate; however if your body is not used to dietary fiber then take it easy the 1st few days or you will constipation yourself - a mistake I made. Today I begin taking Intestinew; a supplement meant to help repair gut lining in order to fix my leaky gut.
Day 4: It's interesting; I'm actually feeling a bit worse than before I did the procedure. I'm having IBS attacks frequently and my anxiety has risen. I followed the procedure perfectly; so I'm quite dumbfounded on how it could make things worse. Either my problem extends farther than dybiosis or I'm still experiencing die off symptoms; I hope it's the latter. If anyone has experience with fecal matter transplant die off symptoms please do share what they were. Today I'm continuing with Intestinew and reducing the fiber that I've been eating to try to calm the symptoms down.
Day 5: Due to a lack of any results I'm going to discontinue this journal here; I will revisit FMT in about a month and will update my progress then. This specific FMT unfortunately did not yield any results; this may be due to a variety of reasons which will be addressed next time. I still feel FMT is a real means of fixing the bacteria in one's gut but I can't say anymore until next month.
[Read the end of this thread, which is page 2, to see what I did following this journal. The FMT's did work, but it took a much more comprehensive plan.]
If you would like to request any more information during the course of this journal feel free to ask and I will answer as soon as I can. I would like to make this as descriptive as possible in order to give people considering the treatment a comprehensive look at its affects and benefits.