Irritable Bowel Syndrome and Digestive Health Support Forum banner
1 - 10 of 10 Posts

·
Registered
Joined
·
100 Posts
Discussion Starter · #1 ·
My main complaint is pain in the lower left quadrant. Ever since being on Zelnorm, I've had a total of about 12 good days (7 weeks on). The pain is unbearable. Could the Zelnorm be causing spasms, trying to move something thats just not there?
 

·
Registered
Joined
·
100 Posts
Discussion Starter · #3 ·
I broke it into 3mgs. I did this for a little over a week and found myself constipated. I took three days off the Zelnorm and now I am back, I have horrible spasms whether I'm on Z or not, I would rather be regular.
 

·
Registered
Joined
·
1,808 Posts
I have no clue as to what's going on. Sorry, I wish I knew more about the GI tract. Could there be some kind of bowel obstruction going on? I would think that if the Z is creating the peristalsis to move your bowels and something is stopping your bowels from moving then either the Z is just not affecting the lower part of the colon or there is an obstruction of some kind. Have you tried stool softener?
 

·
Registered
Joined
·
846 Posts
teacher 954 (born sept '54?)I have the same prob (see my post) I asked the expert forum and Leonard Weinstock asked me if I had a)pelvic floor dysfunction b)an impactionNow, I've had an impaction before and know what that's like--WATER moving past hard stool, and a fever. I dread getting tested for pelvic floor dysfunction, because the solution is biofeedback--no one in Phila promises to work on IBS AND it's not insurable (I checked)Not much help, but we're in the same boat,Joan
 

·
Registered
Joined
·
100 Posts
Discussion Starter · #6 ·
hi joan, the 954 is the area code for south florida, lol. i had another name then my computer crashed and i was in a hurry to post!! i haven't missed a single one of your posts, including over in the ask the specialist. you ask or mention alot of what i'm thinking, thank you!! i have a laporoscopy (sp) scheduled for the 17th. i want to make sure i do not have any scar tissue or endometriosis. i wrote my doctor a letter and told her i was off the zelnorm since my major complaint was pain. i really hoped it was the answer. i also advised her that if the lap turns up negative that i would be turning to her for more test suggestions. to be honest, i can't imagine this is only my colon. the pain is HORRIBLE but i've managed to not miss work, coach track, gain too much weight and eat plenty. its taken 4 years to get here, if it weren't for this board i don't know what i've done. what other tests/procedures have you endured? i never ran a fever but impaction is how i feel!! what do you do to relieve the pain? sorry to ramble, lots of questions!! maybe should have posted this to you on another board. write soon.Lynne
 

·
Banned
Joined
·
5,767 Posts
heyman from UNC gave a good presentation on biofeedback in the UNC chat tonight. There must be someone in Philadelphia that does it. call the hospitals - it requires equipment only hospitals are likely to have. the excuse your insurance ompany is probably using to not pay for it is they are using the 'mental health' dodge?tom
 

·
Registered
Joined
·
846 Posts
teacher,Since 1996 I've had two colonoscopies; an endoscopy; a barium enema; and ultrasound of my ovaries where the technician told me I have stool in my bowel. My last procedure was a colonoscopy on 3/31/01. I was diagnosed with "poor muscle tone." (Flux says that this test does not show muscle tone).The '96 colonoscopy showed lots of twists and turns in my colon.trbell, I used your list, posted on the cognitive and hypnosis board. The same PhD listed as a hypnotherapist on another thread is listed as a biofeedback specialist on your thread.Do you learn to relax your pelvic floor by listening to beeps or something? (I'm not being sarcastic, tom) Tom, have you had biofeedback yet?My insurance co. just blew me off.Plus, honestly, I'm frightened of when I'd fit this in. I work full time and then am a night time mommy (and wife)If you've read my other posts, you know I used to be D. Then I became REALLY C. Now I have soft stool that, after one bm, won't come out (perhaps after years of senna use? Even on the senna, I was using more and more supps--that's why the 2d colonoscopy.Thanks for listening and reading, teacher & tom,Joan
 

·
Banned
Joined
·
1,012 Posts
Joan, I've had an impaction that became life threatening and required emergency surgery.The colonoscopy did not reveal anything in my colon (that would have caused the problem)My problem was OUTSTDE of my colon.I had/still have pelvic ADHESIONSIf your situation is in the adhesion department there is no amount of biofeed back or hypnosis oralternative therapy that will give you anything more than a temporay reprieve from pain.I'm a holistic practitioner. Alternative is my life and my world.However, there are just some days when the real answer might be found in the gynecologists office and not with the gastroenterologist.Unfortunately pelvic adhesions can be bad enough to be causing the dysfunction of other organs.Mine was.But even in the worst cases of adhesions, in most imaging tests, adhesions can't be seen and so many many women with serious adhesion problems just go around throwing up and being constipated or pooping waterey poop and having chronic debilitating pain and being sent to the pain doctors or just given a med for a spastic bladder.It's appalling.I was told in january by a very brilliant gastroenterologist about the adhesion reality.Stuff my gynecology surgeon was even missing.He and a Urologist I was seeing for bladder painboth independantly put me on Hyoscyamine as an anti spasmodic for different reasons and for my general pain.I still take that medication. Everywhere your colon has a crink/twist it's possible that pockets of fecal matter are getting stuck and that makes all kinds of unpleasant trouble.Adhesions sometimes are secreted by the colon wich causes it to attach to other organs in the body.My colon was wrapped around my Ovary and beginning to fuse and both those organs were stuck on the musculature of the Pelvic wall.Yeh, I had bowel problems.I eventually began taking 24 hour anti emetics as a course of my regular meds for the day.I was nauseas all the time.Adhesions are a body response to something the body perceives as an illness or an injury or an invader.There are a lot of reasons a body will form adhesions. Most of the pelvic reasons are due to trauma,such as surgery, even tubal ligations orany kind of pelvic infection or endometriois.(At any time in your life)I also had endo and all of my tests came back fine except the pathology report from my hysterectomy which showed endo.There are a number of female conditions that just don't show on tests.Adenomyosis which is a uterine endometriosis is one of the destructive endometrium processes that causes many a woman to have mystery pain.It's a whole other world of medical realities that will make a whole lot of IBS sense if indeed you have the difficulty of pelvic adhesions.Personally, I don't know anything about Zelnorm.But I know a lot about spasms and I can tell you adhesions to the colon can cause the most gosh awful insane spasms.The only way to know for sure about the adhesions is to get a gynecologist go inside with a laproscope and take a look.That's what my 1st gastroenterologist told me and that was exactly the truth.My sugeon drug her feet but eventually scheduled me for surgery.She was not anticipating anything at all that she found going inside.She thought that she'd probably find a little bit of adenomyosis because she said my uterus was tender but that was it.My surgery ran overtime.4 1/2 hours to clean up that mess.My husband saw the surgery pictires and the adhesions were so bad that they looked like cheeze on the pizza.My ovary was under an adhesion blanket.I have no clue as to why they can't see that stuff on imaging tests because inside they look so dense.But they can'tBy the way, pathology on the rest also showed more tha a little adenomyosis.It showed EXTENSIVE adenomyosis,a fibroid tumor,cysts and the big colon/ovary pelvic wall adhesion mess.You may want to do some personal research on this subject.KamieP.S. by the way, one of the very few things that showed on the sonogram was STOOL IN MY BOWELthe technician made a comment about it to me and then the nurse practitioner showed me where they saw the stool.That was last November 2001.The gynecologist blew that little fact off telling me that the Nurse practitioner didn't know what she was looking at.I had my surgery in April of 2002 by that same gynecology surgeon.Oh one more thought. The reason I still have adhesion problems is because my situation went so untended for so long that it was almost aan impossible job to clean everything up and not wreck the colon.In addition, if you have had adhesions once there is a very good chance that they can reform so for surgery specificlly to address adhesions the doctors us a sheet of protective material called INTERCEED to hopefully help to keep the organs from sticking together.However, even the Interceed is not always 100%It's tough.
 

·
Banned
Joined
·
5,767 Posts
i'd really suggest you talk with Heyman at UNC - he might be willing to give you some feedback by email or phone and might be able to give your biofeedback specialist info on getting it covered.tom
 
1 - 10 of 10 Posts
Top