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Discussion Starter · #1 ·
Hi there I am new here but not new to IBS. I had a mild IBS for many years. Certain foods or situations and within 40 minutes I would have violent diarhea, then all was well. A couple of years ago I got a bad bacterial infection and it took my doc months to put me on medication for it. Since this I have now got IBS from hell. I don't know from one week to the next what I can eat as it always changes. The pain, burning and cramps after eating and sometimes with an empty guit, are now all the time. I have tried modulon and it helps just a little. I have also tried dicetel and although it more or less stopped the diarhea, the pains in the guit were too much. I am now on modulon with nexium as a kind of test they are doing. I had all the exams, barium, sig, gastro and colonoscopy. With the sig and colonoscopy they could not go in to the colon as I have bent pipes ha ha. Has anyone else had this problem? I would like to know what others have tried and does anyone get cramps at the tops of their legs?
 

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I don't understand what would prevent you from having the colonoscopy done all the way in, bent pipes? Everyone's are bent a little. Is the spasming so bad it's too crooked? As far as the leg pain, I have a little pain shooting downthe upper part of my right leg, kinda towards the inside. There is something called psiatica sp?, there is a main nerve that has a pressure point in the bottom of your abdominal area. People with slipped disks down there and pregnant women get it. I just figured since your intestines are all bloated it may put pressure there and stimulates your nerve, but it's worth mentioning to your doc. Most of my IBS pain is on the lower right side of abdomen.
 

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Discussion Starter · #3 ·
Thanks IFlower I didn't think anyone was talking to me
Apparently they could not go further than 8cm because the colon bent and flattened. They tried numerous times but were afraid that they would do damage. The scope is to hard to bend that way. You sure have me thinking though of the leg cramps at the top of my legs this probably is because of the constricting. The specialist however has written me off as just another IBS'er.
 

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scotsrishs , just fyi but 1 in 5 people are known to get IBS after a bad bacterial infection.These sites will help you and there are questions to ask your doctor also there.This is my personal site on IBS and I have had it for over thirty years now, but am doing better close to remission.There are things you can do but first the major thing after diagnoses is education on it, its very important to understand it to treat it right. http://www.ibshealth.com/about_ibs.htm There is also food info on there and a lot of other information for you.I also played soccer and was going professional at one time before I injured my knee. I would get charlie horses all the time.Potassium is the key to that, so maybe your lacking potassium. Bananas and apples are high in it, but be careful with the apples, don't eat to much of them.Hope that helps some for you and keep reading and learning.
 

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Interesting about the flattened colon. Maybe in a few months they could try again? I would still mention the leg pain to your doc. I can't say that I've heard of that before, but have you heard of siatica? Don't know how to spell it! I think it starts with a "p" (sigh AT i cuh) Thats what the pregnent ladies get. They said it "shoots" down their legs. Keggle excercises are good for that. You tighten the muscle that makes you pee. REAlly uncomfortable. It's the muscle on the floor of your abdomen. That's only if you're pregnant. I don't know if this is what you have.Thanks to Eric for saying that an infection can trigger IBS. I've been concerned about my home grown lettuce and the manure I've used to fertilize it. I thought maybe I was getting a germ from my garden cuz my family has been complaining about my lettuce making them crampy and feverish with diarrhea. The doc didn't think so. Just IBS. But maybe the germ passed through before the blood/stool work detected any infection. I worry way too much. But I don't want my friends getting sick on my lettuce either. No body else has complained except my family and a lot of people are eating it.
 

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Discussion Starter · #6 ·
Thanks for your replys Iflower and Eric. As I said earlier I have had IBS for many years but it was not until after the bad bacterial infection that it really got unmanageable. It is sorta under control now with the Nexium and Modulon combination but I really hate taking drugs especially new ones like the Nexium that haven't been around very long. The problem is without them I would not be able to work. IFlower have you tried using a seeweed fertilizer instead of manure? I find that it works really well. I have always eaten healthy but after the IBS got real bad I could not eat veges, fruit, or grain bread. It has been a year and a half and I am just starting to get these things back in my diet. The sigmo and colonoscopy were done a year apart so I think it is something that I am stuck with. The strange thing about the leg cramps is they intensify before the IBS gets bad. It is not psyatica as I do get that when my lower back is out. You guys have been great, thanks.
 

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Hi Scotch!I definately want to try another form of organic fertilizer, but the manure is free and plentiful, but I think I overcompensated. My plants are growing like jack in the beanstalk. I've heard of seeweed fert. there is also bonemeal, bloodmeal, etc.. I also need to make sure my manure is well composted to eliminate the pathogens. I've been on "gardenweb.com" forum talking about that stuff. This one lady said, I've been using manure for 40 years... my daddy did it, my granddaddy did it... but she knew how to compost it and she let it sit for a year, and ammended it in the fall like you're supposed to.I hope your leg pain gets resolved. All these symtoms... so weird!! Now I realize that I start sneezing during an attack. Eric posted these stress responses a while ago. How many do you have?headachedizzinessheart palpitationsback painshortness of breathmuscle achefrequent urinatingdifficulty in urinatingsensitivity to heat and coldconstant tirednessPain during intercourse -sex-trembling handssleep difficutiesbad breath-unpleasant taste in mouthgrinding your teethjaw painflushing of face and neckdry mouthweek or wobbly legsscratchy throattightness or pressure in chestlow sex drivepoor appetiteeye painstiff muscleseye twitching
 

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Discussion Starter · #8 ·
EEESH
I don't even want to tell you how many I checked on that list but I can account for a few of them being menopause. It appears IFlower that we are the same age, have you reached this lovely
transition in life also? I would still worry about the fertilizer, things were alot more natural years ago now the cows are fed growth compounds, animal by products, antibiotics etc. What goes in must come out! I on the other hand have tried hypnosis three times with three different hypnotists and could not be hypnotised. It is pretty costly and I do believe that it has helped many but I guess I am just a stubborn old boot.
 

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I have had IBS since I was 19. I first got it after having food poisoning in Mexico city. Ilater developed a lactose intolerance as well.For years I was able to control the IBS withLomotil and would normally have D attacks a fewtimes a week. Last Feb. I once again got foodpoisoning, only this time I wasn't so lucky. Ihave been house bound for over two months, lostover 18 pounds and have had test after test.I lost count of how many times I've been in andout of the hospital. After all the tests they(I've seen 4 doctors) say it is just IBS. I amon a few different things, which seem to be helping a little (Hyoscyamine and a mild tranq)but I never know what to eat, I'm afraid to leave the house etc. I have terrible lower backpain and some pain in my legs, I think it isfrom the IBS. I am having surgery in two daysfor polyps, anal fissures and internal hemmroidsbecause I have had a lot of blood when I go Dand pain. I am hoping it will solve at leastsome of my problems. I am so happy to have foundthis website, it just makes me releaved to knowthat I am not alone out there. I hope we allfind some answers and feel better soon. I amplanning to try the calcium suppliments withmy meals to see if that helps. Also, I am pre-menipausal and I think that can make the IBSworse, I know it has for me.
 

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Discussion Starter · #11 ·
Hello again IFlower, I was away for a couple of days visiting my daughters. My heart goes out to you knowing that you have been housebound. This flippin disease can ruin your life. I too was house bound for a while and like many IBS'ers still have to cancel plans or call in sick to work far too often. I hope the surgery eases things for you. One day I hope that IBS is recognised as a legitimate disease and will get the attention (we all deserve)in finding a cure. Right now it seems that IBS is only seen as a social problem
and you, me and the rest of us are mere guinea pigs for the new medications. Scuse me for venting but as you well know this can be extremely frustrating and depressing. I am still taking Modulon and Nexium. The Modulon by itself makes me tired, cold, sore boobs and fatigued. The Nexium on the other hand makes me anxious, headaches and trouble sleeping. I don't have a clue why the Nexium is helping with the D. urgency but it is. I have talked to the drug company and they don't know either. Maybe it is the combination.
 

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Hi - I just wanted to post about the leg cramps - lately i've been having weird leg spasms, or just a constant ache in one or both of my legs. I went to a new doctor and asked her about this and she sent me to get blood work done to check on my potassium levels, which were/are (as she suspected) a little low. She wants me to start mild supplements to bring the level up and then get rechecked -- she said that most people get adequate potassium from their diets, but my diet is horrible because i am afraid to eat anything (I can count on one hand the number of different foods that i eat...its not a good way to live). She said that once my potassium levels even out my leg cramps should go away. I also know that when i am really constipated that my back hurts horribly...-Kac
 

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I just want to say they are not all stress responces, but may have to do with some of the underlying physilogical problems in IBS.To read about them and I would do this anyway, subscibe free to theis, especially the current issue.Its called "Digest" http://www.med.unc.edu/medicine/fgidc/digest.htm
 

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Re the potassium .. easy to make a good potassium broth. Use whole potatoes, chard or silver beet and stems, onions, celery .. just drink the juice. Yummy ! It really nourishes the inner woman ( or man) !Also, the leg cramps things .. and you are both women. I think maybe you have magnesium deficiency along with the potassium probs. These two together can prevent the deficiency that causes most cramps, including the worst menstrual cramps. (Also must be used during menopause. It's not the calcium that you need to stock up with at all !)Be careful which magnesium you use -- needs to be magnesium citrate which will not cause you any other gut problems... take 300-500 mgs daily for a while.( Also great for blood pressure allowing blood vessels to relax. Also, I think maybe it could solve a lot of the panic attacks that get mentioned on here -- all signs of possible magnesium deficiency. Also, many of the markers on Eric's list can be properly attributed to mag deficiency) The mag potassium balance could help a lot of the things you mention -- and this imbalance is very common in women. Much more important than the calcium that gets all the PR and advertising ! If there's not enough magnesium in there, the calcium can't be picked up by the body ... so often it is simple magnesium imbalance in the very first place.Good luck.kind thoughtsdianne
 
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