Irritable Bowel Syndrome and Digestive Health Support Forum banner
1 - 19 of 19 Posts

·
Registered
Joined
·
80 Posts
Discussion Starter · #1 ·
uthor Topic: UK Subscribers AndyH9Senior Member posted 08-07-2001 02:09 PM --------------------------------------------------------------------------------Hi.Since it seems to be the hot on the board at the moment (location that is).Anyone from the UK?It would be nice to know, re. experiences in my own country also.Andy 40/M/DerbyshireIP: Logged CalibongoSenior Member posted 08-07-2001 02:16 PM --------------------------------------------------------------------------------Hi AndyH9 I live in the South West of England! You are not alone, I posted to find out if there were any other people in the UK out there and I got a brilliant response, I couldn't believe how many Brits were out there going through the same as me! And I got mailed by somebody who does'nt live far from me!IP: Logged ClairSenior Member posted 08-07-2001 02:23 PM --------------------------------------------------------------------------------Hi Andy,There are plenty of us Brits on the BB!I'm 27/Female/Nottingham - so probably not far from you!I've had IBS C/D for just over a year - and finaly got diagnosed in April.How long have you been suffering from IBS?Clair IP: Logged wanderingstarSenior Member posted 08-07-2001 03:12 PM --------------------------------------------------------------------------------Hi! Me too - 23 yr old F currently living in Dorset. Don't forget to go to chat - don't know about you lot but the specific scheduled chats are way too late (early) for me being in the UK, so I just wander on over there at other times. ------------------susanIBS D/C type & M.E/CFSIP: Logged linda2001Senior Member posted 08-07-2001 03:45 PM --------------------------------------------------------------------------------Hi AndyAnother UK person here! I'm 28 and live in London.IP: Logged Spike_UKJunior Member posted 08-07-2001 03:49 PM --------------------------------------------------------------------------------One more to add to the listSteve (Spike_UK) - 20/M/London, HertfordshireHad IBS for 6 weeks only been diagnosed for 2 days :(I'm never flying again.....that's what started my IBS off, nerves IP: Logged FaySenior Member posted 08-07-2001 04:35 PM --------------------------------------------------------------------------------Hi Andy,I'm in the U.K., but I probably don't count as I'm a Dutch expatriate ,Female/45/IBS-D/Scotland (Perth)Fay[This message has been edited by Fay (edited 08-07-2001).]IP: Logged DenisespoonSenior Member posted 08-07-2001 04:49 PM --------------------------------------------------------------------------------HiI am from Ayrshire, Scotland. Female, 37years and IBS D since April 2000 Thanks for you response.AndyH9Please email me. andy###airway.freeserve.co.uk
 

·
Registered
Joined
·
152 Posts
HiI just logged on today. I am almost 38, live in Inverness, Scotland and have been having IBS/bladder/possibly prostate problems for four and a half years.Kenny
 

·
Registered
Joined
·
152 Posts
HiI just logged on today. I am almost 38, live in Inverness, Scotland and have been having IBS/bladder/possibly prostate problems for four and a half years.Kenny
 

·
Registered
Joined
·
4,034 Posts
tumtumJunior Member posted 04-19-2001 12:22 PM --------------------------------------------------------------------------------Hi everyone,I've had IBS D for about a year now -started after an appendectomy. It's getting worse and worse. I'm a 21 year old student and I have real problems just leaving the house to go to work /college. Went to a nightclub for the first time in 3 months last Friday and I ended up sitting in the toilet for three hours before being taken home in floods of tears! (I'll spare you the other gory details!). Anyway, to get to the point - My doctor is useless. I go to see him and he tells me there's nothing he can do. I think he feels it is psychosomatic. He refuses to help me in anyway possible and its starting to get me down. I can't go on like this, there must be something I can do? I've tried looking at 'trigger' foods, but nothing seems to be consistent (other than alcohol which I don't drink). Does anyone else in the UK have an understanding Doctor, or any solutions? I don't mind going private if I have to. Someone to talk to would be really good right now if there is anyone that wants to 'buddy' up.ThanxKeep smiling!KtIP: Logged HEPPERSSenior Member posted 04-19-2001 12:55 PM --------------------------------------------------------------------------------HIYA HUN IM FROM ENGLAND TOO!!! I THINK YOU AND ME HAVE THE SAME DOC!!!!! MINE ISNT UNDERSTANDING EITHER!! I JUST HAVE TO "LIVE WITH IT" "GET ON WITH IT" "THERES NOTHING WE CAN DO". IVE HEARD THEM ALL!!! IVE ACTUALLY STOPPED GOING TO THE DOCS COS I THINK HE THINKS IM A HYPOCONDRIAC!!! IM IBS-D BUT I CAN CONTROL IT BETTER WITH MY DIET!!! I GUESS IM PRETTY LUCKY THAT WAY!!! IVE LOST LOADSA FRIENDS THROUGH THE CONDITION, THEM NOT UNDERSTANDING THAT I JUST CANT GO OUT CERTAIN TIMES AND I NEVER MAKE PLANS FOR A FEW WEEKS AHEAD EVERYTHING IS DONE ON THE SPUR OF THE MOMENT IF IM HAVING A "GOOD" DAY!!!I SUFFER REALLY BAD WITH STOMACH CRAMPS AND SPASMS BUT I HAVE TO CONTROL IT MYSELF. WHEN YOU EAT SOMETHING TRY SUCKING A FEW POLOS OR SIPPING PEPPERMINT TEA I FIND THIS HELPS SETTLE MY STOMACH A LITTLE BIT!!!!!IM LIVING ON RICE CHICKEN AND CARROTTS AT THE MOMENT AND HAVE BEEN FOR OVER 6 MONTHS IVE LOST ABOUT 3 STONE IN WEIGHT BUT THERE IS NO WAY I COULD EAT ANYTHING ELSE ID BE ON THE TOILET FOR A WEEK. HOWS YOUR DIET??? ARE YOU EATING NORMALLY??? WHY DONT YOU GIVE RICE AND CHICKEN A TRY YOU MIGHT FIND IT HELPS. GET BACK IN TOUCH IF YOU WANT ANOTHER CHATCATHERINE XIP: Logged wanderingstarSenior Member posted 04-19-2001 01:50 PM --------------------------------------------------------------------------------Hi tumtum, I'm from the UK.Why don't you go and see a different GP? Try one at your usual surgery. You don't have to stick with one who isn't doing anything for you.I've found diet changes helpful, some don't. Also general stress reduction, gut-directed hypnotherapy, taking Remeron (mirtazapine or Zispin here in the UK), and taking calcium carbonate for the D. There is a hypnotherapy board here.Taking calcium carbonate might be a good place for you to start. There is a loooong thread on 'Caltrate' on this board.As would trying antispasmodics, your doctor should have at least suggested these. There are several types available over the counter - Colofac IBS, Peppermint Oil, Relaxyl etc. They don't help me, but it is a simple and basic way to start.Antidepressants such as SSRIs or mirtazapine can help. Not becuase you have IBS because you're depressed, but because they alter the amount of serotonin in your gut. (only 5% of serotonin is in the brain, the other 95% is in the gut).Take care,susanP.S CATHERINE: please would you mind not typing in CAPS? It is really hard to read. Thanks.[This message has been edited by wanderingstar (edited 04-19-2001).]IP: Logged SpliffSenior Member posted 04-19-2001 02:16 PM --------------------------------------------------------------------------------Hi, I'm from England. I'm an 18 year old student. Where are you living at the moment? Are you at uni? if so which one are you at? Sorry, so many questions!HEPPERS: PLEASE DON'T TYPE ALL IN CAPITOLS. AS YOU CAN SEE, IT IS VERY HARD TO READ. YOU WOULDN'T LIKE IT IF SOMEONE WROTE A POST TO YOU IN ALL CAPS. SORRY TO SEEM LIKE A NAG. i DON'T WANT TO START AN ARGUEMANT. I'M A NICE PERSON REALLY!Right, i'm done. I am going out to do karioke tonight. See you later.IP: Logged ClairSenior Member posted 04-19-2001 05:41 PM --------------------------------------------------------------------------------I'm also from the UK I really feel for your situation - it must be awful not having an understanding doctor.Honestly, the best thing you can do is to go and see another doctor until you find one that your comfortable with.I'm really lucky both my GP and my gastroenterologist are just lovely, OK they don't know all the answers but they are compassionate, supportive and very understanding and they are willing to give anything a go to try and help me!So don't put up with a doctor who is unsympathetic and unsupportive - you really need one who is a partner in helping you deal with your IBS.I was also a student once (well 4 years ago) so I can totally sympathise with how miserable having to cope with uni life and IBS is - you poor thing!There isn't much I can add that wandering star hasn't already covered - just I wish you luck in finding a better doctor and hope things work out for you soon.And we're here if you want to talk,Clair IP: Logged AellaJunior Member posted 04-20-2001 04:24 AM --------------------------------------------------------------------------------Tum tum...What a good name!Anyway,I'm in England and just want to tell you about something that I've recently found that helped me with D.It's from Holland and Barret and is called Regucol,with Psyllium husk powder,Fructo-Oligosaccharides,Lactobacillus Acidophilus and Bifidobacterium Bifidum.Wow,that was a mouthful!Anyway 2 teaspoons of this night and morning,has helped me greatly.I have tried just about everything on the market to no avail,but think i may be on to something with this.Good luck...and let me know if you try it.It's about �6 but is quite a large tub>>Aella>>IP: Logged KTJunior Member posted 04-20-2001 01:42 PM --------------------------------------------------------------------------------Thanks everyone!I've been having a really bad week, but your replies really cheered me up. It helps to make me realise that it isn't just me going through the D and the C etc etc etc,...Catherine, Yeah I do eat lots of chicken. I cut red meat out because that was making me very bad, but there is still something else. Someone today told me that yeast may be a trigger, what do you think? Wandering star - Didn't know about the calcium c but I'll give it go! Thanks for the thought. Got any personal views on hypnotherapy? I can't see how/what it can help, but that's prob becuase I don't know much about what it is trying to do!Spliff, I'm just finishing studying at De Montfort Univerity, what about you? Did you sing at karioke? I think the nerves would cause me problems- but maybe that's because I know I can't sing. It's good that you still can go out and have fun though. Aella - Regucol sounds good, I'm going to see if I can get some tommorrow. I'll be eternallly grateful if it helps!Thanks a lot everyone, if anyone ever wants a chat..KtIP: Logged OnTheLooAgainJunior Member posted 04-20-2001 04:49 PM --------------------------------------------------------------------------------Hi all, I am also from England.After 5 days of extreme cramps, B C and D I went to my local GP. Guess what he did ....1. Took my blood pressure2. Poked me in the stomach3. Said 'Yep you got IBS .. come back in a month if its not better .. goodbye'Bloodly useless if you ask me, it seems they are stretched to breaking point and don't want to deal with problems that take more than a simple prescription.I am now looking at private health care, I'm lucky that I may just be able to afford it. Hopefully I will be booked in for a complete health check by Bupa pretty soon. Maybe they will do some urine, blood and stool tests before sending me home in pain.Good luck to you all and I really feel for you guys n girls at Uni or college, should be the best years of your life.------------------If I posted this then I managed to get off the loo for 5 minutes.IP: Logged kmottusSenior Member posted 04-20-2001 04:52 PM --------------------------------------------------------------------------------KTMind body therapies like hypnosis are some of the most effective treatments for IBS. See www.ibshypnosis.com for some graphs that show what it can help with.A different mind-body therapy put me almost entirely into remission and I was ready to pull out my own colon with my own teeth and force them to give me an ostomy bag.K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.My story and what worked for me in greatly easing my IBS: http://www.ibsgroup.org/ubb/Forum17/HTML/000015.html IP: Logged girlJunior Member posted 04-20-2001 05:08 PM --------------------------------------------------------------------------------Hello,Im from UK and new to all this(web chat)but have suffered for approx.25 years.Last 2 yrs got increasingly worse and last 3-4 months in agony - every area of my life now affected.Just been dignosed acid reflux also, got to back to doctor in one month hoping to get referral for specialist but terrifed of tests involved!!IP: Logged GazedmundsJunior Member posted 04-20-2001 05:10 PM --------------------------------------------------------------------------------Hi m8, well I'm not from england, but not far away (wales).anyway, read my post down the page called 'my miracle'...I suffered IBS for 10 years, and now I feel a whole lot better cos I take one glass of Boots Natural Fibre Drink a day..it changed my life completely.I dont know what it does exactly, but I guess it just gives you that dose of fibre your system needs everyday, and you basically get 'oiled' and so things start working again, a bit like an engine i suppose ?anyway, your in the UK so for the sake of �1.39 a box of 10 sachets, theres at least something that may help you out.I know it worked wonders for me, but I guess everyones IBS is caused by different things, but worth a shot maybe...best of luckIP: Logged JuJuJunior Member posted 04-20-2001 05:21 PM --------------------------------------------------------------------------------Hi, I'm 22 and live in England I have had IBS D for a couple of years now and like the majority of people have a useless Doctor. I don't bother going any more either as i'm just told theres nothing that can be done so just get on with it, but now I am begining to think that Hypnotheropy might work. I always shout at my boyfriend and tell him he dosen't know what he was talking about when he says that IBS is all in my head, but I am starting to think part of it may be psychological. Over the bank holiday weekend when I wasn't worried about having D at work I was fine and didn't have any attacks, but going back to work on Tuesday I couldn't get out of my front door with out having to take an imodium tablet. I was back to normal, my stumach was churning was I was panicing like mad and really wanted to stay at home just incase I hade an attack at work.Is this just coinsidence or dose any one else think IBS may be partly pyscological?I would love to hear what other people think.Thanks, JulieIP: Logged KateyKatSenior Member posted 04-20-2001 10:15 PM --------------------------------------------------------------------------------tumtum, welcome .. I'm also from UK and can empathise with your comments on NHS docs.When u had your appendectomy, did you by any chance come down with a hospital acquired infection? Can cause D and there seems to be a lot of HAI's about.KKatIP: Logged Nina MSenior Member posted 04-20-2001 11:23 PM --------------------------------------------------------------------------------Well I'm going to get really pickie here and say how annoyed I get when people say 'England' when they mean the U.K. or Britain; you know the combined kingdoms of Scotland, England, Ireland & Wales. Sorry but I just find it so bad-mannered and downright rude. Of course if you actually mean 'England' well that's different. In which case you might not want to hear about a rather particularl hospital acquired infection that gives many of the symptoms of IBS and many doctors simply diagnose as IBS. IP: Logged KTJunior Member posted 04-21-2001 06:24 AM --------------------------------------------------------------------------------Thanks for your messages! Onthelooagain - v apt name!!(Why didn't I think of that!)Your doctor sounds just like mine. I went to see him after 6 months of symptoms, he poked my tum and told me it was either IBS or an infection (for 6 months?), got me to do a s sample, prescribed some buscopan (didn't work at all) and told me to eat fibre and come back in a month if it didn't help. Went back in a month and a new doctor said that it was definitly IBS and prescribed another stomach relaxent mebeverine (also didn't work) and said there was nothing else to do and to come back in 2 months if it still hurt.Just went back to the docs and saw another one (the first doc. Told him that it had got so bad that I was scared to go outside and I had no quality of life, but he said 'i realise its frustrating, but maybe they'll have a cure one day, you never know in a couple of years....' Then he tried to prescribe me more mebeverine - even though I told him it wouldn't work, and told me to come and see him in 4 months. Asked him if the IBS could be related to my op, he said a def no - but I am not to sure. He told me that surgeons don't make mistakes anymore. What about that person that died when given the wrong injection.Doctor huh!Sorry that was a bit of a long rant about my useless doctor, who seems intent on thinking that I am making this all up. My mum tells me to think positive, but it is hard when you are on toilet 9 times a day! Have to say though this has been very handy sometimes, and has mean that I've caught up on all my uni reading LOL I wish you luck with BUPA - please let me know how you get on - it might be worth a try.Kmottus - I'll have a look at the graphs. Thanks a lotGirl - Sorry to hear how bad you've been I really symapthise with you. What is this acid reflux thing? I don't think I'll ask about the tests but good luckKKat - I don't think I had a HAI, but the symptons started so soon after my op it really seem that it can't be a coincidence. Yet my doc refuses to discuss this. Maybe they left something in me??! NinaM - I'm sorry if anyone offended you, I'm sure it was not purposely done. Speaking for myself, I know how fast I type (phone bill and all), and how perhaps I should think more about what I am saying before I hit the 'submit' button. Personally I do not think that it is 'downright rude', and the fact that i am speaking with an Irish boyfriend and Scottish relatives goes someway to show that I'm not racist towards any country in the UK. I'm sure the others feel the same - but this is just my own view. PC gone mad? And yes it would be helpful to hear about the HAI thing be it Wales, Scotland, Ireland, or Britain. Thanks.Thanks again for helping to cheer me up after what has bene a v yucky week.KtIP: Logged wanderingstarSenior Member posted 04-21-2001 08:02 AM --------------------------------------------------------------------------------Kt:Gut directed hypnotherapy works by affecting the brain-gut connection which has recently been shown to play a big role in IBS.I have found it to be very helpful for D, pain and anxiety. It's not just for anxiety related D though. There's lots of information at the following sites:Eric's hypnotherapy BB: http://pub47.ezboard.com/birritablebowelsyndrome Home of Mike's tapes for IBS: http://www.ibsaudioprogram.com/ BB like this one: http://www.ibsgroup.org/cgi-local/ubbcgi/f...er=11&SUBMIT=Go Article on the brain gut connection: http://www.usnews.com/usnews/issue/000403/gut.htm IP: Logged linda2001Senior Member posted 04-21-2001 08:55 AM --------------------------------------------------------------------------------HiI'm also living in England, The first doctor i went to about my condition just told me not to get stressed. I recently went to another doctor he has referred me to a specialist and for tests, which i'm not looking forward to but it has to be done!I started to get panic attacks on transport (i live in london - so that can be quite often!) I know for me stress triggers an attack and i hate going to meetings!I have made some diet changes - and don't drink as much as i use to. I also take calcium three times a day which has helped a great deal.Someone in the noticeboard recommended taking bach's rescue remedy - for panic attacks and stress - i have started this week, you can get it in most heath stores. There are 35 different drops you can use so i also did some research on the internet to check which one was best for me.LindaIP: Logged JackieSenior Member posted 04-21-2001 09:51 AM --------------------------------------------------------------------------------There is a clinic in the UK called the IBS/Allergy Clinic. They test and treat for bowel infections. The info. is on my site: http://bara.idx.com.au/dfragilis/info.htm under "where to find help".The London School of Tropical Med. & Hygiene also test properly for parasites.The majority of infections aren't picked up by local labs due to ineffective testing. Most gastros aren't interested in infections as a cause of bowel problems, preferring instead to diagnose bowel problems as IBS. There are lots of case histories on my site about people who were, in some cases misdiagnosed for years with IBS, when they actually had a treatable infection. Jackie IP: Logged Nina MSenior Member posted 04-21-2001 11:20 AM --------------------------------------------------------------------------------The article below gives info in C.Difficile, a frequently acquired hospital infection. The info holds good regardless of country. Many doctors will dismiss, or misprescribe for, or label IBS. Three day stool test minimum, insist on it. If you check out the information in the post above this one, you can have both infections tested for at the same time. Though maybe not on the National Health.Referring to the entire U.K. as England is not racist, but it is thoughtless and it does cause annoyance and ill-feeling. "Am J Gastroenterol 2000 Jan;95(1 Suppl):S11-3 (ISSN: 0002-9270) Pochapin M Cornell Medical Center, The New York Hospital, New York 10021, USA. Clostridium difficile is the leading cause of nosocomially acquired intestinal infection in the United States, affecting virtually all cases of pseudomembranous colitis and up to 20% of cases of antibiotic-associated diarrhea. Even after receiving antibiotic treatment with either metronidazole or vancomycin, 20% of patients will have recurrent Clostridium difficile diarrhea. An innovative approach to the problem involves the introduction of competing, nonpathogenic (probiotic) organisms into the intestinal tract to restore microbial balance. The theoretical premise behind this approach is that the protective intestinal microflora is damaged by antibiotic treatment; the initial antibiotic exposure thus leaves the host susceptible to colonization and subsequent infection by Clostridium difficile. A so-called "second-hit" to the intestinal microflora occurs when the infected host is treated with flagyl or vancomycin, further destroying susceptible bacterial flora. Probiotic agents, such as Lactobacillus GG and Saccharomyces boulardii, have been studied for the treatment of Clostridium difficile. We are currently running a prospective, randomized, placebo-controlled trial of Lactobacillus GG in combination with standard antibiotics for the treatment of Clostridium difficile infection. Although it is too early to draw statistically significant conclusions, two patterns seem to be emerging: Lactobacillus GG is effective in reducing the 3-wk recurrence rate of Clostridium difficile, and patients feel better when taking Lactobacillus GG, as compared with the placebo, with early disappearance of abdominal cramps and diarrhea. In conclusion, the use of probiotics for the treatment of primary and recurrent Clostridium difficile diarrhea looks promising. Patients seem to have less recurrent Clostridium difficile diarrhea and early symptomatic improvement when using the probiotic Lactobacillus GG. " IP: Logged KTJunior Member posted 04-21-2001 11:31 AM --------------------------------------------------------------------------------Jackie - Thanks for passing on the URl of your site it was v informative. Never heard of the d.fragilis before, but as I've lost about a stone and a half in weight, often suffer from fatigue, dizzines, a horrible tongue, hot sweats, and 'churning' I think this could be a possibilty and should be something me and my doc investigate further. Thanks again. Much appreciated.IP: Logged FaySenior Member posted 04-21-2001 12:02 PM --------------------------------------------------------------------------------Hi tumtum,I'm afraid I took your topic quite literally and didn't respond at first (but then I do that often because English is my second language). I'm in Scotland, but I am Dutch. I have been living here for 1 1/2 years now and I'm still trying to figure out how the NHS works, and what rules do apply. I'm IBS-D, have been that since my teens and am 44 now. My g.p. here gave me Mebeverine and fibre-sachets when I started to have daily,unstoppable D. It plugged me up completely and gave me gas and pain, and I don't like to take medecine all the time. I'm having some success with the Caltrate and a low fat-low carbs diet. So I'll join the others who said that calcium might be something to try out first. This BB is really helpful, hope you'll find something that works for you.(P.S. : "tumtum" is a kind of candy in Holland, is it a candy in the U.K. too?)Fay IP: Logged SpliffSenior Member posted 04-21-2001 01:07 PM --------------------------------------------------------------------------------Oh, i don't think the whole of ireland counts and UK, but only the north, but i'm not 100% on that.Many of us here actually ARE from England. Linda, where in London are you from? I'm from there too!IP: Logged KateyKatSenior Member posted 04-21-2001 09:50 PM --------------------------------------------------------------------------------quote:--------------------------------------------------------------------------------Asked him if the IBS could be related to my op, he said a def no - but I am not to sure. --------------------------------------------------------------------------------Funny how he's prepared to insist its IBS - which after all is not a definitive diagnosis but a sorta default often used when they're not sure what's wrong - but at the same time be so sure its nothing to do with your op. Have been/am going through something similar - my 'IBS' stems from botched op but they deny it to the hilt and are so, so defensive despite my *obvious* illhealth.quote:--------------------------------------------------------------------------------He told me that surgeons don't make mistakes anymore. --------------------------------------------------------------------------------Ha-ah LOL .. did god ever admit to making mistakes?If u want tests then take note of the relevant ones and ask for them .. u will get them but may have to insist.There's also a number of helpful suggestions here for u to try, let us know how you go on.KKatIP: Logged linda2001Senior Member posted 04-22-2001 02:22 AM --------------------------------------------------------------------------------Regarding the UK and England issue - Northern Ireland is part of UK - Southern Ireland is not - won its independence after the easter uprising in 1916 (father is irish!)spliff - i live in dollis hill north west, born in manchester and grew up in australia. been here for three years.IP: Logged Maureen KearonSenior Member posted 04-22-2001 07:16 AM --------------------------------------------------------------------------------HI,I cant beleive how picky some people cam be when someone is suffering from I.B.S.most of the posts are good but the rest about Caps and England and the Uk get a grip,I;m from Scotland and used to hearing that all my life,I hope you can find something to help you I take immodiam when I have big things to do and also a small amount of xanox has helped manage it, you are just a young girl so I hope you can find a better treatment too bad about the lotronex,I live in the U.S.A now good luckIP: Logged SpliffSenior Member posted 04-22-2001 09:19 AM --------------------------------------------------------------------------------Yeah Linda, thats what i meant, the North is Uk and the south is not. OR whatever, one of the two. I get confused. I studied it for part of my a level earlier this year, and Micheal Collins was on last week, and i quite enjoyed it.Is it bad to go on those fad diets when you have IBS? Because the cabbage diet looks quite good, only i don't like cabbage. I might use a differet veg.IP: Logged tumtumJunior Member posted 04-23-2001 07:42 AM --------------------------------------------------------------------------------hi everyone,uh oh. I've just noticed something that will probably mean that I will get shouted out for confusing everyone - but its probably best to own up! I posted this thread as tumtum from my work comp. I had registered before on my computer at university but something went kaput (v technical) and it went to the computer man to be fixed. Me being me couldn't remember my password and couldn't work out how to check it without it being sent to my email address that was being fixed, so I re-registered. Prob is I've got my computer back and the original password has been stored, and I've just noticed I've been switching between Kt and Tumtum - v sorry, I know this has confused me, let alone anyone else. I'll make sure I use just one from now on.Fay - haven't seen any sweets called tumtum here in the UK, its the pet name my boyfriend calls me (ahhhh).Hello to all the Londoners out there. I'm about 45 mins by train from Kings Cross, so I'm fairly nearby -and am shopping there at the weekend.Thanks for the posts, I'll have a better look when I'mnot at work and am sneakily using the computer!KtIP: Logged girlJunior Member posted 04-24-2001 05:25 PM --------------------------------------------------------------------------------KT/TUMTUMAcid Reflux is like constant heartburn and gnawing stomach pains which seems to be linked to IBS as spasms seem to be going upward - pushing stomach acid into windpipe ( i think that's right! )anyway going back to private doc in 2 weeks - thank heavens for company health schemesLinda2001I have suffered panic attacks also and my GP always puts everything down to the fact that i have a history of stress related illness which is fine but then what - i just have to suffer!?Sorry for rushed reply - i don't seem to get any time to myself anymore and only get to log on when jobs are done, kiddie is in bed etc etc take care all, speak to you soonIP: Logged judamarSenior Member posted 04-25-2001 03:33 AM --------------------------------------------------------------------------------Hi tumtum ... glad you're sticking with the cute'n'cuddly name I'm about 30 mins from Kings Cross (Herts/Beds border) so presumably we live quite close. Julie------------------*** Seeking accurate information in the fight against IBS ***IP: Logged SpliffSenior Member posted 04-25-2001 08:40 PM --------------------------------------------------------------------------------I live approx 2 train journeys from kings corss. It takes about 15 mins on tain to waterloo from Richmond (where i live) and then another train from there.We all live quite close! Cool!IP: Logged linda2001Senior Member posted 04-26-2001 10:56 AM --------------------------------------------------------------------------------Hi allI'm off work today, wasn't too good yesterday. Slept all morning now I am bored!Just writing to complain about my doctor. I phoned yesterday to check on some blood results, i changed my address last week and they wrote down the incorrect house number. I was worried in case my appointment notification would go to the wrong house....and then was informed my doctor hasn't sent a letter to the specialist yet. How long does it take for the doctor to write a referral - i assumed maybe a day or two - but over a week!LindaIP: Logged tumtumJunior Member posted 04-26-2001 12:23 PM --------------------------------------------------------------------------------Wow Spliff, one of my best friends who left uni last year came from Richmond! Judamar - Yes think we must be close. I'm at the Herts/Beds border too.I'm in a happier mood today (yippe). Saw my new doctors this morning, who has now referrred me to a gastro and bloodtests. This may not seem like progress but after my last docs diagnosis after 1 prod and a s sample, it really is an improvement. She thinks that I haven't got IBS but colitis. Not sure how they are diff? She is also checking for diabetes and thyroid things - has anyone else been tested for these? Have got both a diabetic cousin and grandma with thyroid so they are both present in my genes - but didn't think these would make my tummy so bad.Thanks to everyone who suggested changing doctor, it seems to have got me on my way to a more thorough diagnosis!Perhaps we should organise an 'away-day' for all the Londoners/Herts/Beds????! TTFNKtIP: Logged SpliffSenior Member posted 04-26-2001 07:41 PM --------------------------------------------------------------------------------Cool, sounds good to me. About the day out.What was your mates name?Anyway, need to go to bed now. Its 12.50 pm now. I hve to be up at 9.IP: Logged tumtumJunior Member posted 05-04-2001 12:35 PM --------------------------------------------------------------------------------Uh oh my computers just crashed about three times - not sure if I've already sent this or not. Sorry if I have! Not really a computer wizzkid as you all might have guessed.Hi everyone,Linda - sorry to hear about that. Especially because I've just moved and am waiting for blood test results and referrals etc to my new address ahhhhh! You've got me worried! Actually I am a bit worried. I've got my last uni exam next Tuesday and its three hours long. I honestly don't know how I'm going to last. I think if I stuff my self full of immodium I should just about manage to avoid the D but I swear my bladder must only be the size of a thimble becuase at the moment I'm peeing every 15 mins. Its been like this and has got worse for the last couple of months. I'm thirsty and tired all the time too, and recently I've been getting light headed. You know when you stand up adn you get head rushes? Well I get those, some days only couple a day, others everytime I move? Not sure if I'm getting dehydrated - but I'm drinking loads. I get my diabetes test back on Thursday so all shall be revealved. Its not that I want Diabetes, or colitis, or an over active thyroid gland - its just that i'd rather I knew what I had so I could treat it. My mum keeps saying 'ooooh you don't want colitis you know'. Don't think she understands that I've already got something - and being told what I've got isn't going to change my symptoms, just perhaps help how its dealt with.As I'm typing this I'm getting really shaky hands. Have been for a couple of weeks now. Does anyone else get this? Spliff - His name was tristan. His surname's escaped me at the mo, but he's a big blonde rugby player, with a penchant for blonde girls with big boobs!! (not quite sure how we became friends - pancake chested that I am!) I've just read your thread from the 10th May and am v sorry to hear about the stuff going on in your life. I hope your feeling a bit more cheery now? I really feel for you, and as much as it is probably selfish to say - it does help to put my own problems into perspective. If you ever want to talk....Are you still going to go to university in Sep, what are you going to study? I'm just finishing business and dance. Believe me it is very hard to get three layers of lycra off when you are desperate for the loo(LOL)!TTFNKtIP: Logged SpliffSenior Member posted 05-04-2001 07:50 PM --------------------------------------------------------------------------------I am feeling quite a but more cheery now thanx. And at uni i'll be studying Music.You may think its a doss subject but it is, in fact, surprisingly difficult.Did anyone see the american weakest link? it was soooo funny. I laughed my head off!Gotta go, am watching a film on channel four.IP: Logged nichopSenior Member posted 05-05-2001 01:53 AM --------------------------------------------------------------------------------tumtum,Hearing your story makes me real angry because i'm in the UK and went through all if this rubbish as well. I hope you get a decent specialist, but if not, insist on a second opinion. I'm in the UK too and my first Gastro dismissed me as having IBS and told me to eat lots of high fibre. I had already found that cutting out wheat helped me but he dismissed the 'food link' completely. I insisted my GP referred me to a second Gastro who was a bit better, however I had to insist that, when doing a Colonoscopy he also test me for Celiac. Incredible ! Weight loss and D and he wouldn't consider Celiac as a possibility.tumtum, be prepared to do all the hard work yourself in terms of finding the possible causes. By pushing hard I got tested for Diabetes, Thyroid, Celiac and Stool cultures amoungst others. Also once these have been eliminated, do look at diet. Through my own elimination diet i found wheat and associated grains to be my major cause and am almost normal again now. I'm about to visit a nutritionalist who specialises in Food Intolerance. If you get to the point where everything else is eliminated, it might be worth paying her a visit. I'll let you know what she's like in a couple of weeks. When I told her about the Gastro's attitude she wasn't at all surprised. This is what we want - some medical people who will listen to their patients and look at the evidence !Keep on at it. I've been where you are now, thinking there was no hope, but there is. There will be a way of easing or removing your symptoms. Its just unfortunate that you have to do all the work to get there but don't let these so called 'specialists' put you off - there not the ones who are suffering!NicPS, i'm in Woking and nutritionalist is in Newbury.IP: Logged nichopSenior Member posted 05-05-2001 01:59 AM --------------------------------------------------------------------------------PPS, I get shaky hands too. Don't worry too much about that - your'e stressed and anxious at the moment so its no surprise. I also had and still have a little light headedness/dizziness. For me this seems to be down to what/when I eat. If you have a low red blood cell count this can cause these sort of symptoms. Worth asking (demanding) for a blood test to check on this as well.NicIP: Logged linda2001Senior Member posted 05-05-2001 04:17 AM --------------------------------------------------------------------------------Hi TumtumGood luck with your exams on Tuesday, hope it all goes well. It must be a very stressful time for you.My blood results came back fine and i received a letter yesterday for an appointment at a gastroenterology clinic on the 25th June seems like it is so far away - but at least it came to the right address!Well I'm off shopping shortly and to enjoy the sunshine - retail therapy works wonders! IP: Logged Flash_On_The_PanJunior Member posted 05-05-2001 11:08 AM --------------------------------------------------------------------------------Sorry to enter this discussion so late, but I'm new to all this.Tumtum, hope your exams go well. I finished Uni a couple of years back and I don't think I could have done it without the help of immodium. The last thing you want to worry about in an exam is if you're going to fill your pants or not. I learnt my lesson from GCSE English - I was the kid who was excused from the 2 hr exam 3 times to go to the toilet.My IBS-D has been a rollercoaster ride since I was a young teen, although I was always a legend in the playground farting contests! I find IBS frustrating as it silently tries to ruin your life. As far as my doctor goes the ones I've had over the years have never been much good. The line 'Eat more fibre and come back in 3 months' is a way of getting you out the door. Do I really need more fibre if I'm already going 4-5 times a day? People's comments in this thread about changing doctors has given me hope to give one more a chance.Anyway, best dash,Flash.IP: Logged Flash_On_The_PanJunior Member posted 05-05-2001 11:11 AM --------------------------------------------------------------------------------.....By the way I'm another one from England. West London to be precise. IP: Logged
 

·
Registered
Joined
·
4,034 Posts
tumtumJunior Member posted 04-19-2001 12:22 PM --------------------------------------------------------------------------------Hi everyone,I've had IBS D for about a year now -started after an appendectomy. It's getting worse and worse. I'm a 21 year old student and I have real problems just leaving the house to go to work /college. Went to a nightclub for the first time in 3 months last Friday and I ended up sitting in the toilet for three hours before being taken home in floods of tears! (I'll spare you the other gory details!). Anyway, to get to the point - My doctor is useless. I go to see him and he tells me there's nothing he can do. I think he feels it is psychosomatic. He refuses to help me in anyway possible and its starting to get me down. I can't go on like this, there must be something I can do? I've tried looking at 'trigger' foods, but nothing seems to be consistent (other than alcohol which I don't drink). Does anyone else in the UK have an understanding Doctor, or any solutions? I don't mind going private if I have to. Someone to talk to would be really good right now if there is anyone that wants to 'buddy' up.ThanxKeep smiling!KtIP: Logged HEPPERSSenior Member posted 04-19-2001 12:55 PM --------------------------------------------------------------------------------HIYA HUN IM FROM ENGLAND TOO!!! I THINK YOU AND ME HAVE THE SAME DOC!!!!! MINE ISNT UNDERSTANDING EITHER!! I JUST HAVE TO "LIVE WITH IT" "GET ON WITH IT" "THERES NOTHING WE CAN DO". IVE HEARD THEM ALL!!! IVE ACTUALLY STOPPED GOING TO THE DOCS COS I THINK HE THINKS IM A HYPOCONDRIAC!!! IM IBS-D BUT I CAN CONTROL IT BETTER WITH MY DIET!!! I GUESS IM PRETTY LUCKY THAT WAY!!! IVE LOST LOADSA FRIENDS THROUGH THE CONDITION, THEM NOT UNDERSTANDING THAT I JUST CANT GO OUT CERTAIN TIMES AND I NEVER MAKE PLANS FOR A FEW WEEKS AHEAD EVERYTHING IS DONE ON THE SPUR OF THE MOMENT IF IM HAVING A "GOOD" DAY!!!I SUFFER REALLY BAD WITH STOMACH CRAMPS AND SPASMS BUT I HAVE TO CONTROL IT MYSELF. WHEN YOU EAT SOMETHING TRY SUCKING A FEW POLOS OR SIPPING PEPPERMINT TEA I FIND THIS HELPS SETTLE MY STOMACH A LITTLE BIT!!!!!IM LIVING ON RICE CHICKEN AND CARROTTS AT THE MOMENT AND HAVE BEEN FOR OVER 6 MONTHS IVE LOST ABOUT 3 STONE IN WEIGHT BUT THERE IS NO WAY I COULD EAT ANYTHING ELSE ID BE ON THE TOILET FOR A WEEK. HOWS YOUR DIET??? ARE YOU EATING NORMALLY??? WHY DONT YOU GIVE RICE AND CHICKEN A TRY YOU MIGHT FIND IT HELPS. GET BACK IN TOUCH IF YOU WANT ANOTHER CHATCATHERINE XIP: Logged wanderingstarSenior Member posted 04-19-2001 01:50 PM --------------------------------------------------------------------------------Hi tumtum, I'm from the UK.Why don't you go and see a different GP? Try one at your usual surgery. You don't have to stick with one who isn't doing anything for you.I've found diet changes helpful, some don't. Also general stress reduction, gut-directed hypnotherapy, taking Remeron (mirtazapine or Zispin here in the UK), and taking calcium carbonate for the D. There is a hypnotherapy board here.Taking calcium carbonate might be a good place for you to start. There is a loooong thread on 'Caltrate' on this board.As would trying antispasmodics, your doctor should have at least suggested these. There are several types available over the counter - Colofac IBS, Peppermint Oil, Relaxyl etc. They don't help me, but it is a simple and basic way to start.Antidepressants such as SSRIs or mirtazapine can help. Not becuase you have IBS because you're depressed, but because they alter the amount of serotonin in your gut. (only 5% of serotonin is in the brain, the other 95% is in the gut).Take care,susanP.S CATHERINE: please would you mind not typing in CAPS? It is really hard to read. Thanks.[This message has been edited by wanderingstar (edited 04-19-2001).]IP: Logged SpliffSenior Member posted 04-19-2001 02:16 PM --------------------------------------------------------------------------------Hi, I'm from England. I'm an 18 year old student. Where are you living at the moment? Are you at uni? if so which one are you at? Sorry, so many questions!HEPPERS: PLEASE DON'T TYPE ALL IN CAPITOLS. AS YOU CAN SEE, IT IS VERY HARD TO READ. YOU WOULDN'T LIKE IT IF SOMEONE WROTE A POST TO YOU IN ALL CAPS. SORRY TO SEEM LIKE A NAG. i DON'T WANT TO START AN ARGUEMANT. I'M A NICE PERSON REALLY!Right, i'm done. I am going out to do karioke tonight. See you later.IP: Logged ClairSenior Member posted 04-19-2001 05:41 PM --------------------------------------------------------------------------------I'm also from the UK I really feel for your situation - it must be awful not having an understanding doctor.Honestly, the best thing you can do is to go and see another doctor until you find one that your comfortable with.I'm really lucky both my GP and my gastroenterologist are just lovely, OK they don't know all the answers but they are compassionate, supportive and very understanding and they are willing to give anything a go to try and help me!So don't put up with a doctor who is unsympathetic and unsupportive - you really need one who is a partner in helping you deal with your IBS.I was also a student once (well 4 years ago) so I can totally sympathise with how miserable having to cope with uni life and IBS is - you poor thing!There isn't much I can add that wandering star hasn't already covered - just I wish you luck in finding a better doctor and hope things work out for you soon.And we're here if you want to talk,Clair IP: Logged AellaJunior Member posted 04-20-2001 04:24 AM --------------------------------------------------------------------------------Tum tum...What a good name!Anyway,I'm in England and just want to tell you about something that I've recently found that helped me with D.It's from Holland and Barret and is called Regucol,with Psyllium husk powder,Fructo-Oligosaccharides,Lactobacillus Acidophilus and Bifidobacterium Bifidum.Wow,that was a mouthful!Anyway 2 teaspoons of this night and morning,has helped me greatly.I have tried just about everything on the market to no avail,but think i may be on to something with this.Good luck...and let me know if you try it.It's about �6 but is quite a large tub>>Aella>>IP: Logged KTJunior Member posted 04-20-2001 01:42 PM --------------------------------------------------------------------------------Thanks everyone!I've been having a really bad week, but your replies really cheered me up. It helps to make me realise that it isn't just me going through the D and the C etc etc etc,...Catherine, Yeah I do eat lots of chicken. I cut red meat out because that was making me very bad, but there is still something else. Someone today told me that yeast may be a trigger, what do you think? Wandering star - Didn't know about the calcium c but I'll give it go! Thanks for the thought. Got any personal views on hypnotherapy? I can't see how/what it can help, but that's prob becuase I don't know much about what it is trying to do!Spliff, I'm just finishing studying at De Montfort Univerity, what about you? Did you sing at karioke? I think the nerves would cause me problems- but maybe that's because I know I can't sing. It's good that you still can go out and have fun though. Aella - Regucol sounds good, I'm going to see if I can get some tommorrow. I'll be eternallly grateful if it helps!Thanks a lot everyone, if anyone ever wants a chat..KtIP: Logged OnTheLooAgainJunior Member posted 04-20-2001 04:49 PM --------------------------------------------------------------------------------Hi all, I am also from England.After 5 days of extreme cramps, B C and D I went to my local GP. Guess what he did ....1. Took my blood pressure2. Poked me in the stomach3. Said 'Yep you got IBS .. come back in a month if its not better .. goodbye'Bloodly useless if you ask me, it seems they are stretched to breaking point and don't want to deal with problems that take more than a simple prescription.I am now looking at private health care, I'm lucky that I may just be able to afford it. Hopefully I will be booked in for a complete health check by Bupa pretty soon. Maybe they will do some urine, blood and stool tests before sending me home in pain.Good luck to you all and I really feel for you guys n girls at Uni or college, should be the best years of your life.------------------If I posted this then I managed to get off the loo for 5 minutes.IP: Logged kmottusSenior Member posted 04-20-2001 04:52 PM --------------------------------------------------------------------------------KTMind body therapies like hypnosis are some of the most effective treatments for IBS. See www.ibshypnosis.com for some graphs that show what it can help with.A different mind-body therapy put me almost entirely into remission and I was ready to pull out my own colon with my own teeth and force them to give me an ostomy bag.K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.My story and what worked for me in greatly easing my IBS: http://www.ibsgroup.org/ubb/Forum17/HTML/000015.html IP: Logged girlJunior Member posted 04-20-2001 05:08 PM --------------------------------------------------------------------------------Hello,Im from UK and new to all this(web chat)but have suffered for approx.25 years.Last 2 yrs got increasingly worse and last 3-4 months in agony - every area of my life now affected.Just been dignosed acid reflux also, got to back to doctor in one month hoping to get referral for specialist but terrifed of tests involved!!IP: Logged GazedmundsJunior Member posted 04-20-2001 05:10 PM --------------------------------------------------------------------------------Hi m8, well I'm not from england, but not far away (wales).anyway, read my post down the page called 'my miracle'...I suffered IBS for 10 years, and now I feel a whole lot better cos I take one glass of Boots Natural Fibre Drink a day..it changed my life completely.I dont know what it does exactly, but I guess it just gives you that dose of fibre your system needs everyday, and you basically get 'oiled' and so things start working again, a bit like an engine i suppose ?anyway, your in the UK so for the sake of �1.39 a box of 10 sachets, theres at least something that may help you out.I know it worked wonders for me, but I guess everyones IBS is caused by different things, but worth a shot maybe...best of luckIP: Logged JuJuJunior Member posted 04-20-2001 05:21 PM --------------------------------------------------------------------------------Hi, I'm 22 and live in England I have had IBS D for a couple of years now and like the majority of people have a useless Doctor. I don't bother going any more either as i'm just told theres nothing that can be done so just get on with it, but now I am begining to think that Hypnotheropy might work. I always shout at my boyfriend and tell him he dosen't know what he was talking about when he says that IBS is all in my head, but I am starting to think part of it may be psychological. Over the bank holiday weekend when I wasn't worried about having D at work I was fine and didn't have any attacks, but going back to work on Tuesday I couldn't get out of my front door with out having to take an imodium tablet. I was back to normal, my stumach was churning was I was panicing like mad and really wanted to stay at home just incase I hade an attack at work.Is this just coinsidence or dose any one else think IBS may be partly pyscological?I would love to hear what other people think.Thanks, JulieIP: Logged KateyKatSenior Member posted 04-20-2001 10:15 PM --------------------------------------------------------------------------------tumtum, welcome .. I'm also from UK and can empathise with your comments on NHS docs.When u had your appendectomy, did you by any chance come down with a hospital acquired infection? Can cause D and there seems to be a lot of HAI's about.KKatIP: Logged Nina MSenior Member posted 04-20-2001 11:23 PM --------------------------------------------------------------------------------Well I'm going to get really pickie here and say how annoyed I get when people say 'England' when they mean the U.K. or Britain; you know the combined kingdoms of Scotland, England, Ireland & Wales. Sorry but I just find it so bad-mannered and downright rude. Of course if you actually mean 'England' well that's different. In which case you might not want to hear about a rather particularl hospital acquired infection that gives many of the symptoms of IBS and many doctors simply diagnose as IBS. IP: Logged KTJunior Member posted 04-21-2001 06:24 AM --------------------------------------------------------------------------------Thanks for your messages! Onthelooagain - v apt name!!(Why didn't I think of that!)Your doctor sounds just like mine. I went to see him after 6 months of symptoms, he poked my tum and told me it was either IBS or an infection (for 6 months?), got me to do a s sample, prescribed some buscopan (didn't work at all) and told me to eat fibre and come back in a month if it didn't help. Went back in a month and a new doctor said that it was definitly IBS and prescribed another stomach relaxent mebeverine (also didn't work) and said there was nothing else to do and to come back in 2 months if it still hurt.Just went back to the docs and saw another one (the first doc. Told him that it had got so bad that I was scared to go outside and I had no quality of life, but he said 'i realise its frustrating, but maybe they'll have a cure one day, you never know in a couple of years....' Then he tried to prescribe me more mebeverine - even though I told him it wouldn't work, and told me to come and see him in 4 months. Asked him if the IBS could be related to my op, he said a def no - but I am not to sure. He told me that surgeons don't make mistakes anymore. What about that person that died when given the wrong injection.Doctor huh!Sorry that was a bit of a long rant about my useless doctor, who seems intent on thinking that I am making this all up. My mum tells me to think positive, but it is hard when you are on toilet 9 times a day! Have to say though this has been very handy sometimes, and has mean that I've caught up on all my uni reading LOL I wish you luck with BUPA - please let me know how you get on - it might be worth a try.Kmottus - I'll have a look at the graphs. Thanks a lotGirl - Sorry to hear how bad you've been I really symapthise with you. What is this acid reflux thing? I don't think I'll ask about the tests but good luckKKat - I don't think I had a HAI, but the symptons started so soon after my op it really seem that it can't be a coincidence. Yet my doc refuses to discuss this. Maybe they left something in me??! NinaM - I'm sorry if anyone offended you, I'm sure it was not purposely done. Speaking for myself, I know how fast I type (phone bill and all), and how perhaps I should think more about what I am saying before I hit the 'submit' button. Personally I do not think that it is 'downright rude', and the fact that i am speaking with an Irish boyfriend and Scottish relatives goes someway to show that I'm not racist towards any country in the UK. I'm sure the others feel the same - but this is just my own view. PC gone mad? And yes it would be helpful to hear about the HAI thing be it Wales, Scotland, Ireland, or Britain. Thanks.Thanks again for helping to cheer me up after what has bene a v yucky week.KtIP: Logged wanderingstarSenior Member posted 04-21-2001 08:02 AM --------------------------------------------------------------------------------Kt:Gut directed hypnotherapy works by affecting the brain-gut connection which has recently been shown to play a big role in IBS.I have found it to be very helpful for D, pain and anxiety. It's not just for anxiety related D though. There's lots of information at the following sites:Eric's hypnotherapy BB: http://pub47.ezboard.com/birritablebowelsyndrome Home of Mike's tapes for IBS: http://www.ibsaudioprogram.com/ BB like this one: http://www.ibsgroup.org/cgi-local/ubbcgi/f...er=11&SUBMIT=Go Article on the brain gut connection: http://www.usnews.com/usnews/issue/000403/gut.htm IP: Logged linda2001Senior Member posted 04-21-2001 08:55 AM --------------------------------------------------------------------------------HiI'm also living in England, The first doctor i went to about my condition just told me not to get stressed. I recently went to another doctor he has referred me to a specialist and for tests, which i'm not looking forward to but it has to be done!I started to get panic attacks on transport (i live in london - so that can be quite often!) I know for me stress triggers an attack and i hate going to meetings!I have made some diet changes - and don't drink as much as i use to. I also take calcium three times a day which has helped a great deal.Someone in the noticeboard recommended taking bach's rescue remedy - for panic attacks and stress - i have started this week, you can get it in most heath stores. There are 35 different drops you can use so i also did some research on the internet to check which one was best for me.LindaIP: Logged JackieSenior Member posted 04-21-2001 09:51 AM --------------------------------------------------------------------------------There is a clinic in the UK called the IBS/Allergy Clinic. They test and treat for bowel infections. The info. is on my site: http://bara.idx.com.au/dfragilis/info.htm under "where to find help".The London School of Tropical Med. & Hygiene also test properly for parasites.The majority of infections aren't picked up by local labs due to ineffective testing. Most gastros aren't interested in infections as a cause of bowel problems, preferring instead to diagnose bowel problems as IBS. There are lots of case histories on my site about people who were, in some cases misdiagnosed for years with IBS, when they actually had a treatable infection. Jackie IP: Logged Nina MSenior Member posted 04-21-2001 11:20 AM --------------------------------------------------------------------------------The article below gives info in C.Difficile, a frequently acquired hospital infection. The info holds good regardless of country. Many doctors will dismiss, or misprescribe for, or label IBS. Three day stool test minimum, insist on it. If you check out the information in the post above this one, you can have both infections tested for at the same time. Though maybe not on the National Health.Referring to the entire U.K. as England is not racist, but it is thoughtless and it does cause annoyance and ill-feeling. "Am J Gastroenterol 2000 Jan;95(1 Suppl):S11-3 (ISSN: 0002-9270) Pochapin M Cornell Medical Center, The New York Hospital, New York 10021, USA. Clostridium difficile is the leading cause of nosocomially acquired intestinal infection in the United States, affecting virtually all cases of pseudomembranous colitis and up to 20% of cases of antibiotic-associated diarrhea. Even after receiving antibiotic treatment with either metronidazole or vancomycin, 20% of patients will have recurrent Clostridium difficile diarrhea. An innovative approach to the problem involves the introduction of competing, nonpathogenic (probiotic) organisms into the intestinal tract to restore microbial balance. The theoretical premise behind this approach is that the protective intestinal microflora is damaged by antibiotic treatment; the initial antibiotic exposure thus leaves the host susceptible to colonization and subsequent infection by Clostridium difficile. A so-called "second-hit" to the intestinal microflora occurs when the infected host is treated with flagyl or vancomycin, further destroying susceptible bacterial flora. Probiotic agents, such as Lactobacillus GG and Saccharomyces boulardii, have been studied for the treatment of Clostridium difficile. We are currently running a prospective, randomized, placebo-controlled trial of Lactobacillus GG in combination with standard antibiotics for the treatment of Clostridium difficile infection. Although it is too early to draw statistically significant conclusions, two patterns seem to be emerging: Lactobacillus GG is effective in reducing the 3-wk recurrence rate of Clostridium difficile, and patients feel better when taking Lactobacillus GG, as compared with the placebo, with early disappearance of abdominal cramps and diarrhea. In conclusion, the use of probiotics for the treatment of primary and recurrent Clostridium difficile diarrhea looks promising. Patients seem to have less recurrent Clostridium difficile diarrhea and early symptomatic improvement when using the probiotic Lactobacillus GG. " IP: Logged KTJunior Member posted 04-21-2001 11:31 AM --------------------------------------------------------------------------------Jackie - Thanks for passing on the URl of your site it was v informative. Never heard of the d.fragilis before, but as I've lost about a stone and a half in weight, often suffer from fatigue, dizzines, a horrible tongue, hot sweats, and 'churning' I think this could be a possibilty and should be something me and my doc investigate further. Thanks again. Much appreciated.IP: Logged FaySenior Member posted 04-21-2001 12:02 PM --------------------------------------------------------------------------------Hi tumtum,I'm afraid I took your topic quite literally and didn't respond at first (but then I do that often because English is my second language). I'm in Scotland, but I am Dutch. I have been living here for 1 1/2 years now and I'm still trying to figure out how the NHS works, and what rules do apply. I'm IBS-D, have been that since my teens and am 44 now. My g.p. here gave me Mebeverine and fibre-sachets when I started to have daily,unstoppable D. It plugged me up completely and gave me gas and pain, and I don't like to take medecine all the time. I'm having some success with the Caltrate and a low fat-low carbs diet. So I'll join the others who said that calcium might be something to try out first. This BB is really helpful, hope you'll find something that works for you.(P.S. : "tumtum" is a kind of candy in Holland, is it a candy in the U.K. too?)Fay IP: Logged SpliffSenior Member posted 04-21-2001 01:07 PM --------------------------------------------------------------------------------Oh, i don't think the whole of ireland counts and UK, but only the north, but i'm not 100% on that.Many of us here actually ARE from England. Linda, where in London are you from? I'm from there too!IP: Logged KateyKatSenior Member posted 04-21-2001 09:50 PM --------------------------------------------------------------------------------quote:--------------------------------------------------------------------------------Asked him if the IBS could be related to my op, he said a def no - but I am not to sure. --------------------------------------------------------------------------------Funny how he's prepared to insist its IBS - which after all is not a definitive diagnosis but a sorta default often used when they're not sure what's wrong - but at the same time be so sure its nothing to do with your op. Have been/am going through something similar - my 'IBS' stems from botched op but they deny it to the hilt and are so, so defensive despite my *obvious* illhealth.quote:--------------------------------------------------------------------------------He told me that surgeons don't make mistakes anymore. --------------------------------------------------------------------------------Ha-ah LOL .. did god ever admit to making mistakes?If u want tests then take note of the relevant ones and ask for them .. u will get them but may have to insist.There's also a number of helpful suggestions here for u to try, let us know how you go on.KKatIP: Logged linda2001Senior Member posted 04-22-2001 02:22 AM --------------------------------------------------------------------------------Regarding the UK and England issue - Northern Ireland is part of UK - Southern Ireland is not - won its independence after the easter uprising in 1916 (father is irish!)spliff - i live in dollis hill north west, born in manchester and grew up in australia. been here for three years.IP: Logged Maureen KearonSenior Member posted 04-22-2001 07:16 AM --------------------------------------------------------------------------------HI,I cant beleive how picky some people cam be when someone is suffering from I.B.S.most of the posts are good but the rest about Caps and England and the Uk get a grip,I;m from Scotland and used to hearing that all my life,I hope you can find something to help you I take immodiam when I have big things to do and also a small amount of xanox has helped manage it, you are just a young girl so I hope you can find a better treatment too bad about the lotronex,I live in the U.S.A now good luckIP: Logged SpliffSenior Member posted 04-22-2001 09:19 AM --------------------------------------------------------------------------------Yeah Linda, thats what i meant, the North is Uk and the south is not. OR whatever, one of the two. I get confused. I studied it for part of my a level earlier this year, and Micheal Collins was on last week, and i quite enjoyed it.Is it bad to go on those fad diets when you have IBS? Because the cabbage diet looks quite good, only i don't like cabbage. I might use a differet veg.IP: Logged tumtumJunior Member posted 04-23-2001 07:42 AM --------------------------------------------------------------------------------hi everyone,uh oh. I've just noticed something that will probably mean that I will get shouted out for confusing everyone - but its probably best to own up! I posted this thread as tumtum from my work comp. I had registered before on my computer at university but something went kaput (v technical) and it went to the computer man to be fixed. Me being me couldn't remember my password and couldn't work out how to check it without it being sent to my email address that was being fixed, so I re-registered. Prob is I've got my computer back and the original password has been stored, and I've just noticed I've been switching between Kt and Tumtum - v sorry, I know this has confused me, let alone anyone else. I'll make sure I use just one from now on.Fay - haven't seen any sweets called tumtum here in the UK, its the pet name my boyfriend calls me (ahhhh).Hello to all the Londoners out there. I'm about 45 mins by train from Kings Cross, so I'm fairly nearby -and am shopping there at the weekend.Thanks for the posts, I'll have a better look when I'mnot at work and am sneakily using the computer!KtIP: Logged girlJunior Member posted 04-24-2001 05:25 PM --------------------------------------------------------------------------------KT/TUMTUMAcid Reflux is like constant heartburn and gnawing stomach pains which seems to be linked to IBS as spasms seem to be going upward - pushing stomach acid into windpipe ( i think that's right! )anyway going back to private doc in 2 weeks - thank heavens for company health schemesLinda2001I have suffered panic attacks also and my GP always puts everything down to the fact that i have a history of stress related illness which is fine but then what - i just have to suffer!?Sorry for rushed reply - i don't seem to get any time to myself anymore and only get to log on when jobs are done, kiddie is in bed etc etc take care all, speak to you soonIP: Logged judamarSenior Member posted 04-25-2001 03:33 AM --------------------------------------------------------------------------------Hi tumtum ... glad you're sticking with the cute'n'cuddly name I'm about 30 mins from Kings Cross (Herts/Beds border) so presumably we live quite close. Julie------------------*** Seeking accurate information in the fight against IBS ***IP: Logged SpliffSenior Member posted 04-25-2001 08:40 PM --------------------------------------------------------------------------------I live approx 2 train journeys from kings corss. It takes about 15 mins on tain to waterloo from Richmond (where i live) and then another train from there.We all live quite close! Cool!IP: Logged linda2001Senior Member posted 04-26-2001 10:56 AM --------------------------------------------------------------------------------Hi allI'm off work today, wasn't too good yesterday. Slept all morning now I am bored!Just writing to complain about my doctor. I phoned yesterday to check on some blood results, i changed my address last week and they wrote down the incorrect house number. I was worried in case my appointment notification would go to the wrong house....and then was informed my doctor hasn't sent a letter to the specialist yet. How long does it take for the doctor to write a referral - i assumed maybe a day or two - but over a week!LindaIP: Logged tumtumJunior Member posted 04-26-2001 12:23 PM --------------------------------------------------------------------------------Wow Spliff, one of my best friends who left uni last year came from Richmond! Judamar - Yes think we must be close. I'm at the Herts/Beds border too.I'm in a happier mood today (yippe). Saw my new doctors this morning, who has now referrred me to a gastro and bloodtests. This may not seem like progress but after my last docs diagnosis after 1 prod and a s sample, it really is an improvement. She thinks that I haven't got IBS but colitis. Not sure how they are diff? She is also checking for diabetes and thyroid things - has anyone else been tested for these? Have got both a diabetic cousin and grandma with thyroid so they are both present in my genes - but didn't think these would make my tummy so bad.Thanks to everyone who suggested changing doctor, it seems to have got me on my way to a more thorough diagnosis!Perhaps we should organise an 'away-day' for all the Londoners/Herts/Beds????! TTFNKtIP: Logged SpliffSenior Member posted 04-26-2001 07:41 PM --------------------------------------------------------------------------------Cool, sounds good to me. About the day out.What was your mates name?Anyway, need to go to bed now. Its 12.50 pm now. I hve to be up at 9.IP: Logged tumtumJunior Member posted 05-04-2001 12:35 PM --------------------------------------------------------------------------------Uh oh my computers just crashed about three times - not sure if I've already sent this or not. Sorry if I have! Not really a computer wizzkid as you all might have guessed.Hi everyone,Linda - sorry to hear about that. Especially because I've just moved and am waiting for blood test results and referrals etc to my new address ahhhhh! You've got me worried! Actually I am a bit worried. I've got my last uni exam next Tuesday and its three hours long. I honestly don't know how I'm going to last. I think if I stuff my self full of immodium I should just about manage to avoid the D but I swear my bladder must only be the size of a thimble becuase at the moment I'm peeing every 15 mins. Its been like this and has got worse for the last couple of months. I'm thirsty and tired all the time too, and recently I've been getting light headed. You know when you stand up adn you get head rushes? Well I get those, some days only couple a day, others everytime I move? Not sure if I'm getting dehydrated - but I'm drinking loads. I get my diabetes test back on Thursday so all shall be revealved. Its not that I want Diabetes, or colitis, or an over active thyroid gland - its just that i'd rather I knew what I had so I could treat it. My mum keeps saying 'ooooh you don't want colitis you know'. Don't think she understands that I've already got something - and being told what I've got isn't going to change my symptoms, just perhaps help how its dealt with.As I'm typing this I'm getting really shaky hands. Have been for a couple of weeks now. Does anyone else get this? Spliff - His name was tristan. His surname's escaped me at the mo, but he's a big blonde rugby player, with a penchant for blonde girls with big boobs!! (not quite sure how we became friends - pancake chested that I am!) I've just read your thread from the 10th May and am v sorry to hear about the stuff going on in your life. I hope your feeling a bit more cheery now? I really feel for you, and as much as it is probably selfish to say - it does help to put my own problems into perspective. If you ever want to talk....Are you still going to go to university in Sep, what are you going to study? I'm just finishing business and dance. Believe me it is very hard to get three layers of lycra off when you are desperate for the loo(LOL)!TTFNKtIP: Logged SpliffSenior Member posted 05-04-2001 07:50 PM --------------------------------------------------------------------------------I am feeling quite a but more cheery now thanx. And at uni i'll be studying Music.You may think its a doss subject but it is, in fact, surprisingly difficult.Did anyone see the american weakest link? it was soooo funny. I laughed my head off!Gotta go, am watching a film on channel four.IP: Logged nichopSenior Member posted 05-05-2001 01:53 AM --------------------------------------------------------------------------------tumtum,Hearing your story makes me real angry because i'm in the UK and went through all if this rubbish as well. I hope you get a decent specialist, but if not, insist on a second opinion. I'm in the UK too and my first Gastro dismissed me as having IBS and told me to eat lots of high fibre. I had already found that cutting out wheat helped me but he dismissed the 'food link' completely. I insisted my GP referred me to a second Gastro who was a bit better, however I had to insist that, when doing a Colonoscopy he also test me for Celiac. Incredible ! Weight loss and D and he wouldn't consider Celiac as a possibility.tumtum, be prepared to do all the hard work yourself in terms of finding the possible causes. By pushing hard I got tested for Diabetes, Thyroid, Celiac and Stool cultures amoungst others. Also once these have been eliminated, do look at diet. Through my own elimination diet i found wheat and associated grains to be my major cause and am almost normal again now. I'm about to visit a nutritionalist who specialises in Food Intolerance. If you get to the point where everything else is eliminated, it might be worth paying her a visit. I'll let you know what she's like in a couple of weeks. When I told her about the Gastro's attitude she wasn't at all surprised. This is what we want - some medical people who will listen to their patients and look at the evidence !Keep on at it. I've been where you are now, thinking there was no hope, but there is. There will be a way of easing or removing your symptoms. Its just unfortunate that you have to do all the work to get there but don't let these so called 'specialists' put you off - there not the ones who are suffering!NicPS, i'm in Woking and nutritionalist is in Newbury.IP: Logged nichopSenior Member posted 05-05-2001 01:59 AM --------------------------------------------------------------------------------PPS, I get shaky hands too. Don't worry too much about that - your'e stressed and anxious at the moment so its no surprise. I also had and still have a little light headedness/dizziness. For me this seems to be down to what/when I eat. If you have a low red blood cell count this can cause these sort of symptoms. Worth asking (demanding) for a blood test to check on this as well.NicIP: Logged linda2001Senior Member posted 05-05-2001 04:17 AM --------------------------------------------------------------------------------Hi TumtumGood luck with your exams on Tuesday, hope it all goes well. It must be a very stressful time for you.My blood results came back fine and i received a letter yesterday for an appointment at a gastroenterology clinic on the 25th June seems like it is so far away - but at least it came to the right address!Well I'm off shopping shortly and to enjoy the sunshine - retail therapy works wonders! IP: Logged Flash_On_The_PanJunior Member posted 05-05-2001 11:08 AM --------------------------------------------------------------------------------Sorry to enter this discussion so late, but I'm new to all this.Tumtum, hope your exams go well. I finished Uni a couple of years back and I don't think I could have done it without the help of immodium. The last thing you want to worry about in an exam is if you're going to fill your pants or not. I learnt my lesson from GCSE English - I was the kid who was excused from the 2 hr exam 3 times to go to the toilet.My IBS-D has been a rollercoaster ride since I was a young teen, although I was always a legend in the playground farting contests! I find IBS frustrating as it silently tries to ruin your life. As far as my doctor goes the ones I've had over the years have never been much good. The line 'Eat more fibre and come back in 3 months' is a way of getting you out the door. Do I really need more fibre if I'm already going 4-5 times a day? People's comments in this thread about changing doctors has given me hope to give one more a chance.Anyway, best dash,Flash.IP: Logged Flash_On_The_PanJunior Member posted 05-05-2001 11:11 AM --------------------------------------------------------------------------------.....By the way I'm another one from England. West London to be precise. IP: Logged
 
G

·
Gosh, there are a lot of us out there! Although I still feel a bit out of it up here in Scotland. Still new at this BB stuff as only just found site and boy have I learnt a lot! Have been IBS-C for about 4-5 years now and only just "officially" diagnosed with it, should I be happy that I know what it is?!Anyway good to know there is support out there.(I seem to be registered as a junior member although I am 24, not 12!)
 
G

·
Gosh, there are a lot of us out there! Although I still feel a bit out of it up here in Scotland. Still new at this BB stuff as only just found site and boy have I learnt a lot! Have been IBS-C for about 4-5 years now and only just "officially" diagnosed with it, should I be happy that I know what it is?!Anyway good to know there is support out there.(I seem to be registered as a junior member although I am 24, not 12!)
 
G

·
Hi Andy and everyone,Wow I'm impressed that my old posting appeared on your thread! I'm now 22 and am working in project management - student days are well behind me now! I managed to scrape through to get a first class honours (all that sitting on the loo gave me loads of time to read!) My IBS has got a lot better now that I've cut out all dairy food (it was a last resort move!), but I still feel anxious about going out and having fun again. I know that this anxiety is probably making me worse, but it's kind of a viscious circle I spose.Does anyone know of any support groups or similar in the London/Beds/Herts area. I think it would do me some good to go out and meet some people who are in the same boat as me. Is there some kind of social/networking thing that organises events etc? Email is all very well and I've found loads of useful information about IBS through this site, but I sometimes feel as if I need more practice at being normal, to stop me worrying about going out, which then causes problems (cramps and D etc) when I do try and be normal and go out and have fun, and do exercise, eat food etc etc. - If that makes sense?I think some kind of social support group is a good idea anyway. What does everyone else think?Kt
 
G

·
Hi Andy and everyone,Wow I'm impressed that my old posting appeared on your thread! I'm now 22 and am working in project management - student days are well behind me now! I managed to scrape through to get a first class honours (all that sitting on the loo gave me loads of time to read!) My IBS has got a lot better now that I've cut out all dairy food (it was a last resort move!), but I still feel anxious about going out and having fun again. I know that this anxiety is probably making me worse, but it's kind of a viscious circle I spose.Does anyone know of any support groups or similar in the London/Beds/Herts area. I think it would do me some good to go out and meet some people who are in the same boat as me. Is there some kind of social/networking thing that organises events etc? Email is all very well and I've found loads of useful information about IBS through this site, but I sometimes feel as if I need more practice at being normal, to stop me worrying about going out, which then causes problems (cramps and D etc) when I do try and be normal and go out and have fun, and do exercise, eat food etc etc. - If that makes sense?I think some kind of social support group is a good idea anyway. What does everyone else think?Kt
 

·
Registered
Joined
·
217 Posts
Welcome to the board Adrian
I'm also from London, North West which area are you from?Tum Tum, I think it is a great idea if we could get a social support group going. Clair has started a UK Chat commencing at 8.00pm on Sundays nights. So hope you all can come and chat! I also suffer from anxiety, have you considered cognitive behavioural therapy? I get anxious about attending meetings, travelling etc can not even go to the cinema or theatre anymore. I am in the middle of therapy at the moment. Also a lot of people have seen great improvement from listening to Mike's tapes.
 

·
Registered
Joined
·
217 Posts
Welcome to the board Adrian
I'm also from London, North West which area are you from?Tum Tum, I think it is a great idea if we could get a social support group going. Clair has started a UK Chat commencing at 8.00pm on Sundays nights. So hope you all can come and chat! I also suffer from anxiety, have you considered cognitive behavioural therapy? I get anxious about attending meetings, travelling etc can not even go to the cinema or theatre anymore. I am in the middle of therapy at the moment. Also a lot of people have seen great improvement from listening to Mike's tapes.
 
G

·
Hi everyone,Linda - probably a dumb question but what is cognitive behavioural therapy? Do you find that it is helping you out?Now I know about the chat I'll make sure I have a look. I still haven't found any 'fun' support groups yet!!Kt
 
G

·
Hi everyone,Linda - probably a dumb question but what is cognitive behavioural therapy? Do you find that it is helping you out?Now I know about the chat I'll make sure I have a look. I still haven't found any 'fun' support groups yet!!Kt
 
1 - 19 of 19 Posts
Top