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Hello everyone. I have an undiagnosed condition with the following set of symptoms which seem to be rare. Still looking for a doctor who can help me out, but have yet to find one. Wanted to see if anyone could relate:
Summary of Condition
Symptoms
· Ongoing constipation which requires continual, heavy use of laxatives on a daily basis (primary Miralax) for over 10 years (age 35)
· Occasional diarrhea.
· Failure to use laxatives can result in severe instances of constipation, lasting up to a week with little or no bowel movement, and sometimes resulting in fecal impactions which may require enemas or manual removal.
· Stools are never wider than half an inch. Anything wider is impossible to pass without anal or rectal injury.
· Even with laxatives, occasional pain or difficulty during bowel movements, ranging from moderate to severe.
· Occasional bright, red blood in stool, ranging from a small amount to an entire bowl full.
· Blood discharge can sometimes continue long after a bowel movement.
· Occurrences of blood in stool are often followed by an "episode", onset beginning immediately to up to 3 hours later.
o Symptoms during "episodes" include aches soreness all over body (but especially in joints, lower legs, arms, hands, and testicles), chills, thirst/dehydration, and sometimes fever.
o Symptoms range from moderate discomfort to severe pain and high fever. Was once so bad I had to go to the ER.
o Usually the more blood, the worse the symptoms.
o Usually the later the onset after a bowel movement, the worse the symptoms.
o Episodes can last 1-4 hours.
o Episodes can be as infrequently as several months apart, to occurring on consecutive days.
o Episodes only occur after a bloody bowel movement.
o Episodes have been occurring for approximately 7 years with no diagnosis.
· Had a colonoscopy that came back negative in 2009.
· Episodes have a major impact on normal routine, both socially and professionally.
Possible Diagnoses
· Anal or Rectal Stenosis or Strictures
· Perirectal Disease
· Internal Hemorrhoids
· Anal Fissure
· Irritable Bowel Syndrome
· Sepsis from Bacteria Entering Bloodstream through Fissure or Hemorrhoid
Current Treatments
· 2 x Daily Dose of Miralax
· Increased Water Intake
· Increased Fiber Intake
· Ibuprofen to manage pain and fever during episodes
Summary of Condition
Symptoms
· Ongoing constipation which requires continual, heavy use of laxatives on a daily basis (primary Miralax) for over 10 years (age 35)
· Occasional diarrhea.
· Failure to use laxatives can result in severe instances of constipation, lasting up to a week with little or no bowel movement, and sometimes resulting in fecal impactions which may require enemas or manual removal.
· Stools are never wider than half an inch. Anything wider is impossible to pass without anal or rectal injury.
· Even with laxatives, occasional pain or difficulty during bowel movements, ranging from moderate to severe.
· Occasional bright, red blood in stool, ranging from a small amount to an entire bowl full.
· Blood discharge can sometimes continue long after a bowel movement.
· Occurrences of blood in stool are often followed by an "episode", onset beginning immediately to up to 3 hours later.
o Symptoms during "episodes" include aches soreness all over body (but especially in joints, lower legs, arms, hands, and testicles), chills, thirst/dehydration, and sometimes fever.
o Symptoms range from moderate discomfort to severe pain and high fever. Was once so bad I had to go to the ER.
o Usually the more blood, the worse the symptoms.
o Usually the later the onset after a bowel movement, the worse the symptoms.
o Episodes can last 1-4 hours.
o Episodes can be as infrequently as several months apart, to occurring on consecutive days.
o Episodes only occur after a bloody bowel movement.
o Episodes have been occurring for approximately 7 years with no diagnosis.
· Had a colonoscopy that came back negative in 2009.
· Episodes have a major impact on normal routine, both socially and professionally.
Possible Diagnoses
· Anal or Rectal Stenosis or Strictures
· Perirectal Disease
· Internal Hemorrhoids
· Anal Fissure
· Irritable Bowel Syndrome
· Sepsis from Bacteria Entering Bloodstream through Fissure or Hemorrhoid
Current Treatments
· 2 x Daily Dose of Miralax
· Increased Water Intake
· Increased Fiber Intake
· Ibuprofen to manage pain and fever during episodes
