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Discussion Starter · #1 ·
O.k, I am hoping that someone might be able to shed some light on this. I have had ab pains for 1.5 years now. I have had all the tests done:2 ct scans, colonos, gastric emptying,blood work,xray, etc etc. Only thing they tell me is that the stomach is inflammed. This inflammation is NOT from ulcers, etc. so all the prescribed doses of meds don't help. They don't even know what is inflamming it.(This is what the tests showed 2 times from an endoscopy, the last one being from a year ago.) Food doesn't seem to make it better or worse.They keep telling me that it is ibs. My symptoms can occasionally vary, but I can feel the root of my problems is right in the middle/upper ab. There is a chronic pain that is in there and at times it can be worse than others. For instance, the last few days I have had extreme pain nearly like spasm. It is like my stomach takes on it's own heartbeat, if that even makes sense to someone! So here I sit with no meds for the past year and wait to get better and it' not happening. This anti-spas meds aren't cutting it either. Because of this medical condition, I can't get health insurance, so my resources to see a doctor is limited, which doesn't matter anyways since they don't seem to help me.So here goes my thoughts: You can't help but wonder if something else isn't going on in your body. I mean, if the doctor can't diagnose you with chron's, ulcers, pancreatitis, etc. then they are at a TOTAL lost. I don't see how the medical community can't be more up to date with more possible reasons people are hurting. I mean the stomach itself seems like such a complex organ, that there are many possibilities!!! So what if something like that is possible with you, then what? The gastro's that we see most likely can't do surgery. So who do you go to that is ABOVE a gastro? I feel as if gastro's can't help and that there HAS TO be some sort of doctors that specializes with abdominal surgeries. Does anyone know????? At this point, I feel that I need to see someone who would be willing to nearly cut me open to see what the heck is going on!!! I have heard of VERY few people talk about exploratoy surgery, WHO does it? I am just frustrated cause I feel I am just sitting and waiting to just sit and wait. I have an appt. in the beginning of March at Cedar-Sinai and I know that the test comes under much criticism. I am sure that I will be that one percent that test negative and even if I turn positive, then I doubt those antibiotics will help given that I have tried so many in the past. So what now? What doctor's to see above a gastro? Is there libraries to even study other stomach disorders? I fail to see how a community in the medical field be so slow as to finding out the causes/many conditions that people can have!!!!!!!!
 

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shelley, you describe me to a "t", i mean it, perfect-o. my symptoms are right between the curve in my ribs and to the left often to the right and shoulder blades. i've now had 2 liver scans, upper gi series, small bowel series, pelvic ultrasound, colonscopy, mri, 2 endoscopies, tons of blood work, tons of stool tests, and pardon me, not a damn thing but ibs. my gastro wants to do exploratory surgery just to see what is causing the pain and i'm like no way. i've suffered through so many humiliating tests and painful hospital exams, i can't count. so i made an appointment with another gastro at baylor medical center here in dallas for another opinion. ibs runs in my family (mom and 2 sisters). i just can't accept this as being this disabling and i mean i have days where the pain doubles me over. the only thing the doctor gave me was elavil 10 mg at nite and i have to cut that in half cause i can't function on 10 mg. i don't have a gallbladder so i'm still concerned about that dangone pancreas. i have to know, i mean i just have to. i've lost 40 pounds. i had it to loose but i'm spending a fortune buying new clothes every week. i'm not crazy, i'm not but this is driving me nuts and wrecking job, marriage, and everything. the shoulder pain is bad too. surely there must be something other than exploratory surgery just to take a look. give me a break please. if this new doc says ibs then i swear i promise i'm off to a shrink because at that point i'll need one big time that or a divorce lawyer!!!!
 

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Go to the www.iffgd.org site.To do some of your own research start with Medline www3.infotrieve.com is my favorite. Also medical school libraries are generally open to the public. You generally can't check anything out, but you can copy whatever you want.Look at the advisory board section. This will give you a list of doctors that specilize in functional GI disorders. Even within specialties there are specialties and perhaps one of them could be helpful. If nothing else the one closest to you may have a suggestion of who to see, or the IFFGD might be able to make a recommendation.K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.And from the as if IBS isn't enough of a worry file...from New Scientist's Feedback column: photographed on the door of a ladies' loo in the Sequoia National Park in California by reader Liz Masterman: "Please keep door closed to discourage bears from entering."[This message has been edited by kmottus (edited 02-19-2001).]
 
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Discussion Starter · #4 ·
Hi Shelly Girl-I just got back from the doctor and got my diagnosis of IBS, so I guess I'm a member of the club officially today! I had a feeling that was what he was going to say when I went to see him with some of the symptoms I was having, but the upper abdomen pain (that you describe PERFECTLY in your post) was the one symptom I have that made me think maybe I didn't have IBS. However, my doc said that that symptom went right along with the IBS as well.Anyway, he started me on Librax today. I hope it helps. My symptoms aren't nearly as severe as some of the folks I've read about on this board so far. I hope the medication and some of the lifestyle changes he suggested (i.e. diet modifications) will help me get better.Good luck to you Shelly Girl, and I just wanted to let you know you're not alone with your upper abdomen pain.
 

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Same here, my pain is right above my belly button, also am tender in that area, also runs to the right and up where my gallbladder used to be, this all started after gallbladder surgery. My doc told me that the big colon runs along there too, so I dont' know if it is stomach or bowels. Do any of you get a burning sensation there too, like you are on fire on the inside of you and anti acid med helps take it away???? I get the burning, like heartburn only it is in the lower part of my stomach. I also get the pain that Genny describes, feels like my gallbladder is still there. I don't worry about my pancreas, I worry when I have that pain is that it might be my liver missing my gallbladder..lol that sounded corny but what if it is being overtaxed? I still got more test to go sad to say but when they are done with me, I just want to be lefted alone. God Bless.
 

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Hmmm, I dunno, sorry!
I assume that tissue biopsies were taken during your upper endoscopies? I asked for one with mine and am so glad I did. We found some bacteria that is "probably" H. Pylori (though they weren't sure for certain). I've been through an awful lot physically, one of the reasons likely being that my body had been trying to fight off infection for a long, long time. Good luck with your own search...truly!
 

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shellygirl Perhaps you should go to a PHysician- A doctor who is a specialist in Diagnosis. They would be looking at the entire body rather than just the G.I. Tract.There was a small article on the news the other day that women with chronic "indigestion" should think about heart problems. I don't want to be a scaremonger but doctors only see you for such a short time and have little idea of how you suffer between visits. you need to be very persistant. They do start making you believe that it is all in your head, which makes it all much more difficult.
 
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