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Discussion Starter · #1 ·
As per my previous post, I have a 1 to 2 year supply of lotronex. I guess my decisionwhether or not to continue taking it is goingto be based on the following question. WouldI be able to tell that I was developing ischemic colitis or other complications intime to stop taking the lotronex and reversethe symptoms? I have only been back onlinefor 4 days (I moved to Brasil) and I missedFaith's posting. Could someone direct me to it? Does anyone know the answer to my question? Thank you VERY MUCH for any and allreplies.Linda
 
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Discussion Starter · #3 ·
Repeat of earlier posting:I just wanted to respond to the many posts from individuals who are so upset about this withdrawal. I'm one of those people who thought Lotronex was a miracle. I had diarrhea for 40 years....not D & C, not C, just D. I was the perfect candidate for Lotronex. I took it for almost three months and was in heaven. Because it did have a tendency to be constipating, I took only 1/2 tab once or twice or day. I had no problems that I knew of with the drug. It was wonderful (I thought), until I ended up spending a night in the bathroom with debilitating cramps, no BM, a high fever, chills, and non-stop vomiting for about five hours. At that point, I called my GI doc who advised going to the ER. I was hospitalized for several days.Exactly one year before I had had a colonoscopy....no abnormalities. In the hospital I had another colonoscopy which showed numerous ulcers and clear signs of Ischemic Colitis. I had been to the doctor on Friday...we both thought my response to the medication was great....I was hospitalized early Sat. morning. The reason I'm reporting this is to emphasize that it wasn't a matter of having problems with the drug and not being smart enough to stop it. I did not know that anything was wrong in my response to the medicine until I was in very serious trouble. As you no doubt know, Ischemic Colitis is the result of the bowel being deprived of blood flow and it dies. Gangrene then develops, and the outcome if not caught in time is death. I had many problems while I was taking the medication, but because they were seemingly unrelated to IBS, I had no idea (and neither did the four doctors I saw) that the medication was causing the problems. I had daily migraines, chest pain and back pain (which resulted in hospitalization 10 days before the IC hospitalization), a cough when I ate and tried to sleep, and erratic blood pressure.....on one hospitalization it was 209/94. My typical blood pressure all my life has been 120/70. Again, I saw multiple docs and specialist during this two month period and none of them realized it was the Lotronex even though they all knew I was taking it! Since stopping the Lotronex, all the above symptoms have gone away. My blood pressure is still a little higher than normal (###145/81), but not a problem.One of the things I've noted on the various boards over the past two months is a seeming tendency by other IBS sufferers who love their Lotronex to blame the patients who have had problems with Lotronex. I have received very hostile e-mails from people who me and/or my doctor for taking the medication inappropriately. For someone like me, who is intelligent, educated (Ph.D.), and informed, it is insulting to be blamed for taking the medication irresponsibly or to having been prescribed the medication inappropriately. This absolutely was not the case. Anyway, sorry to be so long-winded. I just felt you might need a few more facts before assuming that Lotronex is really that miracle drug we all want. FaithIP: L
 

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Hello, my father has ischemic colitis. He developed this after he had radiation to the pelvic area. The symptoms are bad, bad cramps, fever, bloody diarreah. There is no cure. Antibiotics have helped him. But occasionally he will have another episode. He has found the mayonaise products make him have a flare up, not sure why though. Well take care!!!!
 

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Hi cookie:Does he have ischemic colitis or regular colitis. Ischemic can be cured, but not so regular colitis.BTW, we have a Crohns and Colitis forum if you want to check it out to give him some tips!JeanG[This message has been edited by JeanG (edited 12-08-2000).]
 
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Discussion Starter · #6 ·
Thank you all so much for your replies. I think that I am going to stop taking the Lotronex slowly over a week or two. Since Faith was only taking one half to one pill aday when she had the attack it doesn't soundlike a good risk to me. RATS!!!! Back to calcium I guess...One other question to anyone who reads this.I have never had any asthma or related breathing problems in my life. Since movingto Curitiba (which is about 3/4 of a mile high) I have had trouble breathing on and off. I have blamed it on the altidude and thepossibility of allergies to new plants andeven of the pollution here since the trucksblast fumes directly in your face wheneveryou're in a car. I wonder if it could be related to the Lotronex since Faith says thatshe also developed a cough (I cough a lot).I realize that it's highly unlikely that thetwo are related but I would like to know ifanyone else has commented on it? I feel likeI missed a LOT of information in the pastfew months...Thanks again for all replies.Linda
 

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Hi Jean, my father has ischemic colitis, the only thing they give him is an antibiotic, but occasionally he will still get a flare up!! He feels real bad to, for at least a couple of days. He worries about gangrene in the bowel, sometimes ischemic colitis can cause that. Then he would have to have the "dead" part of the bowel removed, pretty scary thing to have i guess, and to worry about!!!
 
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