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Discussion Starter · #1 ·
Hi allI have been suffering for 12 years (I am 29) It really is screwing up my life at the mo..I am here at home when I should be at work (its Friday and I only made it in on Tues this week)My main symptoms are - ready....Both C and D - can alternate in the space of a few minutes!Hot flushes/cold sweats and shiversConstant lower back pain - it does sometimes affect my whole backDizinessNauseaTired 24hrs a day - could sleep forever!Pain all over my stomach - can't really pin point it - but it seems worse under and just below my ribsSevere bloating - look like I'm about to give birth (and feel like it most of the time)Difficulty in "catching" my breath sometimesWell, that's the main symptoms! During a severe attack (known in my family as a "turn" coz my mum, sister and nan have all had one although not really had IBS!) I will firstly have a VERY urgent need for a bm, if I make it to the loo without passing out then I'm there for what feels like forever, barely conscious, in severe pain and dripping with sweat. Ringing noises in my ears and my vision fading in and out. Once I think it's finally over I'll attempt to make it to my bed without passing out. Then, lie huddled under a duvet shivering for ages, but laying lifeless, with absolutely no energy left in me. Need to just rest after this incredibly draining experienceThere you have it. That is a severe attack for me, and probably occurs once every couple of months. I do feel the rest of the time that every day I am just getting worse and worse and each day leads me closer to the next attack. When will it end?If anyone else suffers like this please let me knowI am pretty scared about all this - some of these pains feel life threatening sometimesI have had blood tests and an ultrasound, and am on the waiting list for a colonoscopy. My GI says the colonoscopy is just a formalityI came off the pill about two months ago and have cut out caffeinated tea and coffee but no changeI am not on any meds but am willing to try anything!Pleas adviseBig hugs to you all
 

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assuming you have ibs it sounds like the combined bowel complaints and anxiety/emotional complaints are overwhelming you. i would discuss with your doctor the introduction of medication to treat some or all of your symptoms. how he intends to proceed is up to him. i've been where you are(although not quite as severe)good luck!
 

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I have had many of the things you have described. Recently I have had a particularly bad 2 months and this is the worst time for me to feel sick. We are in the process of moving and staying at my Moms.She can't understand how a person can feel so sick all the time and that there is no cure. Everyone has an opinion as to what I should be doing to get 'well' . It all drives me crazy! In two weeks we will be moving into our house so I will have hundreds of boxes to unpack and walls to paint. Plus the yard there is a mess . I really don't know how I will have the energy to get through it all. This never use to be a problem for me .I always had energy to spare.Plus the fact that those near and dear to me are sick of me being sick doesn't make it any easier. So anyway,you are not alone,nor crazy. Hope your doctor can help you. ~L~
 

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I would look into the antidepressants and antispasmodics for controlling pain.I would look into the mind-body therapies as they also help with anxiety and panic in addition to helping with the pain. (Cognitive Behavioral Therapy and Hypnotherapy).Pain with IBS can be severe (My allergist got me into see one of the top IBS specialists in the country because I was ready to remove my own colon with my bare hands and force them to give me an ostomy bag) but it can be controlled. I'm now in remission, so it can be done.K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.My story and what worked for me in greatly easing my IBS: http://www.ibsgroup.org/ubb/Forum17/HTML/000015.html
 
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Discussion Starter · #5 ·
Please don't think you are alone! I can sympathise so much with your description of what's happening to you. Pardon the pun but you're right, it scares the **** out of me too... I am looking for a holistic solution and am willing to change ANYTHING about my lifestyle to feel normal again and put a full week into work. (Thank god for a sympathetic boss). How about working on a solution together... My husband has been great but he can't really understand the full picture. If you want to share ideas then lets have a go. p.s. Am thinking of buying shares in Andrex and Nurofen...
 
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Discussion Starter · #6 ·
Hi HollyThanks so much for letting me know that I'm not going mad! I sometimes think I'm a hypercondriac and should just get on with life, but that just seems impossible!Anyway, I'd love to work on this together. I have found some interesting info on the net over the last few days. I have read success stories that were had from hypnotherapy (see www.ibsaudioprogram.com) which treats the apparently important signals that the brain sends to the gut (I still don't know much about it though) and other people had success involving a book by Dr John Samo (or Sarno - the type face was wierd!) called The Bodymind Prescription, whereby the patients follow a strict diet and at the end of it are 100% pain/IBS free and can eat whatever they like! I never used to think so, but I now believe that there is a light at the end of the tunnel for all of us, it's just gonna take some time for us to reach it.Thanks again for your post, and anyone please feel free to email me at phillnali###zoom.co.uk with any useful info/tips/worries etc. I'm always glad to be in contact with people like myself - I find these forums a godsend.Best wishesAli
 
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Discussion Starter · #7 ·
I truly sympathise with you, you have suffered for an eternity. The one thing you did not mention was the type of medication you have been using to relieve the symptoms. I have suffered with severe IBS for 5 years and the regular pattern is a very bad attack every two months. I take antispasmodic pills every day, and when i have bad attack it is straight on to high dose pain killers. It gets me down because i have become a walking medicine cabinet. I get very depressed because i loose time from work and i generally feel like ####. The best symptom free time i had was when I changed my life style. I was regularly doing exercise 3-4 times per week, low fat diet and avoided any foods and alcohol which set an attack off. I was practically pain free for 18 months. What I learnt during this time was to not let IBS control you life with the right type of medication it can be controlled unfortunately not erradicated. Good luck and keep smiling dont let this take over you life.
 
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Discussion Starter · #8 ·
Hi VictoriaThanks for your post, it really cheered me up! I have not been given any meds that work so I not taking anything at the moment. I have posted on other forums and they have suggested that I may have a thyroid problem. Does this ring a bell with anyone? I have never had it tested, because no one ever said it may be my problem! I know that over the last couple of years I have gained around 4 stone! (although given up smoking last Feb didn't help I'm sure!)I'm wondering if this is an avenue I should explore. I need to know the symptoms before I confront my doctor so I convince him to test me. It's like getting blood out of a stone going to my Doc! Anyway, thanks all of you for your helpful advise - I'll keep you posted on my progress
 

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Weight gain, tiredness and constipation are symptoms of low thyroid, but are not specific to low thyroid. Additionally people with low thyroid often have dry skin and feel cold easily.It wouldn't hurt to get it checked.K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.My story and what worked for me in greatly easing my IBS: http://www.ibsgroup.org/ubb/Forum17/HTML/000015.html
 

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hi- Your description of your "turns" sounded really familiar to me. It is EXACTLY what used to happen to me before I even had IBS, but whenever I got my period! It would start off with cramps but then the diarrhea, nausea, vomiting, cold sweats, feel shaky like you can't stand up, etc. So this may not be helpful for you at all, but is it possible that you have some kind of hormonal problem going on? I also have a low thyroid although I'm not sure if this was related to the episodes of sickness. Eventually they just went away after my late teens or so - I think around that time I also started exercising, eating better etc. so maybe that would be helpful too.
 
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Discussion Starter · #11 ·
Hi all. Thanks for your advise.I am amazed that my GP hasn't even mentioned thyroid probs to me before - when I read of the symptoms you guys have posted, they sound familiar! i.e. very dry skin, including dandruff, (nightmare when you have dark hair!) tiredness, feeling the cold, weight gain etc. Definately worth looking into. Thanks one and all - and please keep in touch
 

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HI ALISON:Sorry to see someone suffering the same symptoms I lived with for over 30 years before I was taught by some immunologists the physical basis for systemic symptoms sets like this. These symptoms were linked to hidden abnormal immunologic and non-immunologic reactions to something or things I was putting into my gut by mouth.This symptom set you describe, RULING OUT thyroid problems as a comorbidity which was very appropriately suggested (which could account for some of the symptoms), is almost classic for food or chemical hypersensitivity (sometimes is allergenic but usually not...there are at least 8 distinct pathways of response which can be invoked alone or together).There are over 100 specific chemicals, called in general "mediators" of multiple-classes which are released from both the immune cells of the small bowel lining and from circulating immune cells (which can include one or more types of the lymphocytes, leukocytes, and even platelets) which are first exposed to ingested food in the small blood vessels of the small bowel.Depending upon which specific cells react, a myriad of preformed "stored" toxic chemicals and post-response "synthesized chemicals" can be released into the walls of the small bowel. Some are also released into the bloodstream, where they circulate throuout the body and effect other body tissues up to and including the brain and other structures of the central nervous system, blood vessels throughout the body, glandular tissues, etc.But the first direct effect is on the mucosa, nerves and smooth muscles throughout the gastrointestinal tract. There are a limited number of ways of identifying what the provoking agents are in the diet which produce the underlying responses that lead to this symptom set. As was pointed out by several others the effects are amplified and exaggerated by the anxiety and other stress-reactions associated with the pschological response to the symptoms and what they do in your life. Ofetn, this is mistaken as a primary cause as the patient has not been carefully examined for the presence of these reactions, largely because clinical methods to do so are very very difficult to implement, and testing technologies which can detect these reactions are relatively new and many practitioners do not know of them yet. Or a "symptom based" treatment protocol is used rather than a causal-based approach so if you never look you will never find. You will simply used treatments designed to reduce the symptoms after-the-fact.These reactions can be and are amplified both in the brain itself, and in the reactions of the bowel muscle and nerves, which are upregulated ("twitchy") due to the effects of the chemicals released locally. It is a viscious cycle which can go on for years and decades until the hidden substances triggereing the abnormal responses are identified and removed. Unlike allergy, which may also be present as a comorbidity, these reactions are hard to isolate. They are dose-dependent (allergic reactions are generally not), and out-of-phase with the time of ingestion (in effect the onset of perceptible symptoms can be delayed up to 72 hours, making it impossible to match intake with response).Now to learn about this you have to read hundreds of papers published over 20 years by investigators working on this problem often in isolation from each other, and approaching it form various different angles. Then try to integrate all the findings under the tutelage of someone who knows allergy and immunology thoroughly. Then you may still be baffled (I have this exprience daily).Or, to learn about this in detail in laymans' terms from an authority figure in this medical field (food allergy and intolerance) I recommend you immediately invest $18 in this book: http://www.amazon.com/exec/obidos/ASIN/089...r=2-1/102-64875 08-3420903[/URL] This is the most current BOOK in print on the subject, and even some of the information that the book says is "unknown" has changed over the last 2 years since it was published. The latest investigations further amplifiy the truths Dr. Brostoff expounds in this book-for-victims of food allergies and intolerances, and have opened new avenues of investigation into immune responses which seem to run contrary to what has been thought to be true before!Once you read it (Brostoffs book above) a lot of what you are suffering will make more sense, and you will be better prepared to sort out your options.Here you will find a list of other books by the same doctr, demonstrating his leadership in the field of allergy and immunology: http://www.greenleaves.com/bookcat/by_brostoff_jonathan.html This is my personal recommendation to you, as I and thousands like me around the world have been the direct beneficiaries of the information given. Our physicians ("us" meaning patients of doctors who work in this area) used it to isolate and remove the offending substances from our diets, and we have achieved substantial to complete remission as a result. Many patients have seen such a dramatic difference applying this information that they are drug free as well by following specific regimens in their lifestyle tailored to their personal profiles of food or chemical intolerances.Eat well. Think well. Be well.MNL_______________ www.leapallergy.com [This message has been edited by Mike NoLomotil (edited 06-18-2001).]
 
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