His thread both got moved and now also closed. http://www.ibsgroup.org/forums/index.php?/topic/128795-dr-albert-snow/page__st__140I do feel that many of are interested in seeing weither his method is working or not.6 people are currently starting or have started with his treatment and I am really excited to see how this will work out for them.XXXBerto55, Coda, Cookies 2 friends, Needhelp14 and Valeria A are those people.Please continue posting when you get the meds/products needed to start. Like Coda did in the other thread.I know there must be many other people just as curious to how you are doing as I am myself.I hope this thread can stay open for those people to comment on how the treatment is working for them. This has nothing to do with Dr. not being welcome here anymore and as you can see I myself was sceptical towards him in the other thread. But now I am genuinly interested to see if the treatment is working or if it is not.The treatment deserves a chance. And if it doesn't work we can judge him for being a liar and so on. But please let this thread be open we can see how the patients are doing.
Dr. Snow patients. Follow up. How are you doing?
Siea
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Thanks for the replies, i'll look into getting some liquid fish oil when i near the end of my tablets.The probiotic i'm using is called Floramore which was recommended by Dr Snow. Its says to store in the fridge once opened (which i have done) but it comes via mail order and not from a fridge, will this be a problem?
It should not be if it is fresh. Room temp spurns the bacteria to come alive and feed off the prebiotics that the manufacturer incorporated into the formula.And cold slows them down, so that they are not so active and they don't eat up all their prebiotic foods that keeps them alive.So the expiry date is something of great concern bcos that will tell you how fresh your product is. And if it is pretty fresh, then it should not be a problem.Just store them in the fridge to stop their feeding frenzy, that way they will live longer, until you use the entire supply.
At the 14th of January 2011 I started Dr. Snows treatment. (except I cannot get hold of refrigerated probiotics) My dosage: (I take this dose on empty stomach both in the morning and in the evening. So the total daily intake is twice the below):Colostrum: 2x 450 mg capsules. This equals 900 mg in the morning and 900 in the evening for a total of 1800 mg a day.Probiotics: 1 Renew life (3 billion), 1 capsule Probimage Swedish brand (10 billion), 1 capsule Life another Swedish brand (5 billion). 1 capsule Lamberts (10 billion). 1 capsule Lactiplus (10 billion).Glutamine: 1x tablespoon (15 mg).Omega-3: 3x 1000 mg capsules.Boulardii: 2x capsules of 250mg.Psyllium Husk soluble fiber with added probiotics: 10 grams and 1 billion probiotics.The dosage has been slightly adjusted compared to earlier by Dr. Snow.The probiotics I buy I try to get as man different strains as possible. I have not counted but I estimate I take between 10-15 different strains at the moment.Results: Since I changed the brand of the boulardii (1 week ago) I improved (the first brand actually made things worse for me). Im not sure if the boulardii is helping or not or if it is the healing. The psyllium husk fibers seems to help reduce urgency a little in the morning.So a small continued improvement. But still far from cured.I ordered more so I can continue this treatment since it is going in the right direction.I will continue to update if things change or in time if they do not.
DR. Snow told my son(21) he will be cured in 2-3 months and start feeling better in a week. He has IBS-D. His diet is perfect and he trains in the martial arts. So 30 days and $600 later Dr. Snow told me he cannot help him!! The supplements were making him worse. Dr. Snow tried to adjust them but they did work. So now my son is left with another healthcare professional who has failed him. I am ok with that because that seems the norm. What I am not ok with is the fact he told a 21 year-old, my son, he could cure him. That was a huge disservice. I beleive Dr. Snow is sincere and can help people. He just shouldn't be telling people he can do something he cannot guarantee. I want to clarify what he did so people can be clear. My son took all the supplements as directed and changed his diet to reduce fiber. After a week his system was a wreck. I told Dr. Snow. He said to just go on one of the supplements until we were to speak again and to go back to his normal diet. He did. When we spoke this week Dr. Snow said to start the supplements again slowly. He started with Floramax. He experienced pain in his stomach like never before. Told Dr. Snow. His response "I cannot help your son". He never told us to expect pain, discomfort or worse symtoms. He just said he may need to make adjustments. I am not saying Dr. Snow cannot help you. Just be clear you know what you are getting into. I know everyones body is different. He just needed to be more clear with us. He should have said that he might be able to help my son. He blamed my son for not taking the pills. My son couldn't take the pills as they were making his condition worse. I wish everyone all the best. And again, to be clear, I think Dr. Snow is legit and sincere and can and does help some people. He just needs to be more clear with people.
I can relate to the intense stomach/intestinal pain. So please hear me out. When the gas gets trapped due to twisted up intestines, you just want to die. Taking cleansing supplements or probiotics create a die-off situation of the bad bacteria's, which when they die, they expel ammonia which must be expelled from usby passing gas, but we are not able to bcos the intestines have somehow twisted up. I have seen the xray of my intestines taken during one of my sever attacks, during my visit to the hospital emergency room. It even shocked the G.I. They did not know what to do for me.To make a very long story short........I recently found Activated Charcoal to really help with those terrible attacks where you cannot pass gas. Taking 2-4 pills DOES NOT WORK. Taking 6 -10 pills does help quite a lot. The reason for the large dosage is that it should equal 1 heaping teaspoon. I ended up trying the powder, as the pills took to long to dissolve and work. And when your rolling on the floor in excruciating pain, time is of the essence. The powder is messy, it does not dissolve in the water, so I just stick a spoon of it in my mouth and try to sip water to get it down. It's quite a tricky black mess. It is such a fine powder and flies everywhere. I have eventually mastered this method, but for most people, I think that the pills would be much easier. It's just that you have to take a lot of them in one shot, with very warm/hot water and wait at least 30 - 45 min for them to work.The powder starts to work as soon as you manage to get it down. So for me, the black messy powder, trial and error was worth it. Shortly after that, I stumbled on Dr. Snow's protocol and I must say, it has help me a lot. I am eating everything now. I only did it for as long as the 1st supply lasted. I know that I do need to do it again and for much longer, once my finances improve, but in all honesty I can say I am about 80% cured. I can eat all my trigger food and only once in a blue moon will I feel that twisted kink below my right rib cage, followed by lots of gas and D. But that is only once in a while when I over do with foods that cause a detox effect. I have not had to mess around with the Activated Charcoal since Oct 2010. And for me, that is a great thing. Get your son to try it. The bottle suggests taking 2 pills. But that will not do it. Have him start with 6 pills in one shot and if need be, increase it the next time he takes it. Try to take a good heaping teaspoon's worth in pill form, that's when your son will see a difference. And once things have settled down, your son can resume the probiotic and colostrum protocol without the excruciating pains.Activated Charcoal can be bought at the pharmacy or health food stores and is a miracle product as far as I am concerned.
Thanks for the response. Dr. Snow never mentioned charcol or any other fix for my sons issues with the probiotics. I am not here to bash Dr. Snow just inform people. I think he can and does help people but he did not help my son. Maybe if he communicated better he could have helped him.
I take this back. I do not believe it makes much of a difference. But today I had quite alot fo urgency even though it wasn't super loose. And when I think back of the days when eating the fibers I believe I in total had to go more times than without it.Therefor with university this week I wont take any chances with this since it is no miracle and I manage about the same without it.I will stop eating the psyllium husk fibers and maybe try it again on a weekend if I get time for it.
I am sorry that the psyllium husks are not helping you. Google search: health benefits of Activated Charcoal. Maybe it will help you and take much more than the bottle suggests. Try to equal 1 teaspoon full in pill form, in one dose.check out the info on this linkhttp://hubpages.com/hub/Medicinal-Benefits-of-CharcoalGood Luck with your exams.
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I'm very sorry to hear about your son's condition, but can understand 100%. I've not gotten into this Dr. Snow conversation for a long time, since he was first here and told me my nutritionist/naturopath wasn't the way to go for me. But, I have to respond to you and the rest of this community. I have IBD - Ulcerative Colitis - as well as IBS. I take an Rx daily med. for the UC, and over the past 14 years have made huge changes in my life to cope with the IBS and IBD - I left a good-paying corporate job to be self-employed, I have changed my diet radically more than once, because what works one month or one year may not work the next (our bodies change and our needs change and the same diet won't work forever and always), I've learned meditation, taken up yoga and rhythmic breathing, etc. etc. etc. I live a much better life today than 10 years ago when I was nearly always in pain, was having 10-30 BM's/day, losing weight like crazy, etc. But, most of that has come from the work I've done to help myself. About a year ago a new friend took note that I was suddenly needing to eat gluten-free, she also noted my IBD and IBS and suggested a friend of hers who is a nutritionist and homeopath. I saw him. I liked him. He never said he could cure me, he only said he could help me. I warned him that my system is very hypersensitive to nearly EVERYTHING - even Tylenol and vitamins. He said that was okay, he had many patients who were the same and we would take it slowly. He did extensive blood analysis, urinalysis, and stool cultures. He formulated a plan for me. And we started on supplements - many of the same ones that Dr. Snow is suggesting in his protocol. BUT, because of my hypersensitivity to everything, we started out with one supplement at a time at the very lowest doses possible. Sometimes it took weeks for me to work my way up to a typical dose. Sometimes, after a few days at the lowest dose I would have serious side effects - ones that my naturopath said were very rare, but possible. The thing is, my naturopath is someone I see face-to-face, to listens to me and takes my body seriously, he doesn't have a one-size-fits-all protocol for everyone with IBD or IBS to follow because he realizes that we aren't all going to react the same way to certain things. I am glad that you and your son are wise enough to realize that this particular protocol is not helping him and he is best to move on. There may be someone else out there who can help him and listen to him and work with him in a better manner. But, honestly, from what I read of Dr. Snow and how he feels about his protocol - if you don't follow it to the letter then he can't be blamed - I'm, quite frankly, not surprised that he gave up on your son. I think everyone should listen to their bodies. And if something that they are taking is not helping them then they should stop. As for the activated charcoal comment from another poster, it seems a bit risky to recommend others take a major dose of this based on your results. What is good for you, may not be good for others. Elizabeth
Here is some info about taking charcoal:http://www.drugs.com/mtm/activated-charcoal.htmlIt does say there that one should not take more than directed unless via a Dr's instructions. So ask your Dr about it.
Hi Guys,Just a QuicK final Update... protocal definiltley helped with the d.. i actually sometimes get constipated which isnt a good thing.. but the one thing that still haunts me is the urgency and the viscous cycle effect..i am still pretty much home ridden only out and about in im 8km " un safety Zone" things are falling apart for me much faster than anticipated so im grasping at any late afternoon jobs ...by the way have had # interviews " medicated and on immodium made through all 3 fine but the build up to the interview day was horrible.. i guess ill move onto another forum either agoraphobia, panic, anxiety.. or avooid the internet altoghether.. fully completed protoco.. still taking pro biotics and l glutimine fish oil and fibre... no more boulardii... every thing has been very expensive and need a break... back on clonazepam to help me sleep and take immodium on stressful days.. i wish i had more positive news to pass on but this is the truth... ive had it for so long i need to break the habit which is so scary and i am getting the point of the hell with it i am what i am and i need to continue life at what ever expense... i hope all of you are feeling better.. if a miracle happens i will report back.. ciao for now....i will pry that you all find your answers.....take care.. sorry about all the bad grammer and typo's very tired............
coda
codaI have decided to do Dr. Snow's protocol... might as well right?I have been taking the colostrum and boulardii for about 3 weeks now. I was actually doing much better with just these two additions.I've also been taking glutamine and fish oil, both of which I've taken on and off for a year now with no noticeable effects.Started the probiotics two days ago and what do you know, I got my same normal reaction to them. Gas and lots of pooping! I promised myself I'd tough it out this time, at least make it a week or two. Thinking about adding calcium back in, which I discontinued 2 weeks ago for experimental purposes.Will update.Current Brands:x2 Jarrow Boulardii (5 billion) x4 Vitamin Shoppe Colostrum 40% IgGx3 Origin Fish Oilx1 Udo's Adult Probiotic (12 billion)Muscle Gauge Nutrition Glutamine (about to run out)
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PD85,RE: probiotics - many people find that they have gas, bloating, increased BM's, etc. for the first few days or week of taking a probiotic. Try to tough it out and see if things calm down. If not, then give your body a break for a week, then try a different probiotic. Also remember, a good quality probiotic should have at least 6-8 different bacterial strains in it, a minimum of 10 billion per capsule, and should need to be refrigerated. Good luck,Elizabeth
Thanks. The one I got is refrigerated and has plenty of strains + 12 billion. I was almost thinking of taking 2 per day but we'll see how it goes.
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Just stay at the one per day until your uncomfortable symptoms improve. Then, you can increase to two or even three per day.
Thank you all for you responses. My son was taking a pharmacuetical grade of probiotic called VSL#4. You get it without a prescription from the pharmacy. It is refrigerated. My son was only taking the VSL, nothing else. No colustrum etc. It didn't work to well so he stopped taking it. The probiotic Dr. Snow had him on was causing havic on his system. Maybe we'll try this probiotic with the other supplements in a few weeks. I know there are worse conditions in life but this tops the list. I would happily trade my life for my sons happiness and health. It is killing me to see a 21 year old go through what he is going through. He is strong and I will not give up until he is happy and healthy. To all of you, I wish the best.
Hi Elizabeth,1 teaspoon IS the recommended dosage for Activated charcoal. Are you not aware that anything in pill form, always states take 2. Do your homework, the reason they say two is bcos it is the minimum dosage, for tiny people. If they put the maximum dose and a tiny person took it, it could cause a law suit. I was NOT suggesting mega dosing with activated charcoal. I teaspoon is the norm. So, one would have to take more capsules to equal 1 teaspoon. It even says more on the bottle. 2 capsules will do nothing during a severe attack. Anyway, I came across something that you might want to investigate. It's from my favourite web site Earth Clinic.comThe product is: LDN (low-dose naltrexone) The person says: (I take LDN successfully for Crohn's disease, and it works for a host of issues.)
Hi dlbaral,Even the famous G.I., Dr. Borody (Australia) who does fecal transplants with health bacteria, hoping that they will attach themselves to the intestinal wall, clearly statesthat NO ONE KNOWS what the bacteria eco balance should be, bcos it's impossible to tell. Meaning which strain of bacteria is needed.So you are correct to experiment with different strains. I, personally, suffer if I eat yogurt. Whether conventional or organic. I bloat up like I am pregnant within 1/2 hr of eating it. Obviously, what ever strain is in there is not for me. But, Organic NOT conventional buttermilk is a life saver for me. Drinking 1 quart a day, by the 3rd day, my attacks seriously subside. I lived on that a while back, but unfortunately, I also put on a ton of weight. yuk. Sooooo, what ever is in the Organic Buttermilk, does work for me.So yes, one does have to experiment. Raw potato juice also was a miracle help for me. But again, one gets so tired of playing around with the juicer/clean up. But it did stop the horrible attacks within a few days. So yes, you will have to play around with things to see what will bring your son into that remission period. I came across a medical intuitive, who has been tested in Japan. She is NOT part of the mass media circuit. Not a money grabber. We only communicated via email and I asked her to give me some proof that she can read me before I invested in a reading. I did not tell her anything about my suffering. Believe it or not, she wrote back with: You suffer from intestinal problems. I see that you either were born with a missing neuron transmitter in the brain, or that it burnt out. Either way, it's not there. This neuron transmitter is need for communication to the intestines. That's all she wrote. hmmmmm? So, from that free tiny bit of info., I have been trying to find things that would enhance the neuron transmitters. But I came across Dr. Snow's report here, and so far so good for me. And I haven't really bothered to look at neuron transmitters since.In case you wonder who she is, her name is Carol Everett. Click on the "Scientific Testing" link on the top left side of the page. Don't give up hope. Your son's intestines must be pretty inflamed right now and it does take a long while before they settle down but eventually, they will. That's the problem with this condition. One minute your in excruciating pain for months on end, living on water, if that, then all of the sudden it just stops. Weird, so very weird. Be strong & calm for his sake. It will pass.
I just found out my kitty has cancer. My focus is on her now. Talk about cry me a river.
Hi dlbaral,Even the famous G.I., Dr. Borody (Australia) who does fecal transplants with health bacteria, hoping that they will attach themselves to the intestinal wall, clearly statesthat NO ONE KNOWS what the bacteria eco balance should be, bcos it's impossible to tell. Meaning which strain of bacteria is needed.So you are correct to experiment with different strains. I, personally, suffer if I eat yogurt. Whether conventional or organic. I bloat up like I am pregnant within 1/2 hr of eating it. Obviously, what ever strain is in there is not for me. But, Organic NOT conventional buttermilk is a life saver for me. Drinking 1 quart a day, by the 3rd day, my attacks seriously subside. I lived on that a while back, but unfortunately, I also put on a ton of weight. yuk. Sooooo, what ever is in the Organic Buttermilk, does work for me.So yes, one does have to experiment. Raw potato juice also was a miracle help for me. But again, one gets so tired of playing around with the juicer/clean up. But it did stop the horrible attacks within a few days. So yes, you will have to play around with things to see what will bring your son into that remission period. I came across a medical intuitive, who has been tested in Japan. She is NOT part of the mass media circuit. Not a money grabber. We only communicated via email and I asked her to give me some proof that she can read me before I invested in a reading. I did not tell her anything about my suffering. Believe it or not, she wrote back with: You suffer from intestinal problems. I see that you either were born with a missing neuron transmitter in the brain, or that it burnt out. Either way, it's not there. This neuron transmitter is need for communication to the intestines. That's all she wrote. hmmmmm? So, from that free tiny bit of info., I have been trying to find things that would enhance the neuron transmitters. But I came across Dr. Snow's report here, and so far so good for me. And I haven't really bothered to look at neuron transmitters since.In case you wonder who she is, her name is Carol Everett. Click on the "Scientific Testing" link on the top left side of the page. Don't give up hope. Your son's intestines must be pretty inflamed right now and it does take a long while before they settle down but eventually, they will. That's the problem with this condition. One minute your in excruciating pain for months on end, living on water, if that, then all of the sudden it just stops. Weird, so very weird. Be strong & calm for his sake. It will pass.
I just found out my kitty has cancer. My focus is on her now. Talk about cry me a river.
One week on the Dr. Snow protocol in the books.I actually feel like I adjusted to a probiotic for the first time in my life... but now that I've adjusted, I feel the exact same as without it... lol!I'm going to start taking it WITH food instead of on an empty stomach. In the book, The Probiotic Revolution, that is what the author recommends and it is also what is recommended on the bottle of probiotics I have. I will update in a week with any changes. Good luck everyone!
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